Download or read book Medical Gaslighting written by Ilana Jacqueline and published by BenBella Books. This book was released on 2024-10-01 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Our healthcare system is broken. But it doesn’t have to break you. This practical, realistic guide is designed to help women fight medical bias and neglect in order to get the care they need—and deserve. For women, the possibility of experiencing medical gaslighting—having a health care provider dismiss or ignore their concerns without considering appropriate testing or creating a treatment plan—has always been a very real and present danger, with consequences ranging from self-doubt and emotional stress to delayed diagnosis and death. And being a woman of color, transgender, or disabled only compounds the risk. Today, more women are aware of medical gaslighting than ever—but awareness isn’t enough. In Medical Gaslighting, you’ll equip yourself with the tools you need to be fully heard at every step of the process, including: Mastering the ability to request, revise, and read your electronic medical records so you and your medical team are on the same page. Responding effectively when you recognize the signs, language, and scenarios associated with medical gaslighting Give yourself a fighting chance against common medical bias by being mindful of how you present yourself as a patient. With expert advice and stories from women across the medical spectrum who fought medical gaslighting and lived to tell their stories, patient advocate (and rare disease patient), Ilana Jacqueline provides a combat guide for increasing your confidence—and success—when advocating for your health. You might have to get naked in the exam room, but you don’t have to walk in unarmed. Medical Gaslighting is your guide to taking control of your healthcare.
Download or read book Doing Harm written by Maya Dusenbery and published by HarperCollins. This book was released on 2018-03-06 with total page 463 pages. Available in PDF, EPUB and Kindle. Book excerpt: Editor of the award-winning site Feministing.com, Maya Dusenbery brings together scientific and sociological research, interviews with doctors and researchers, and personal stories from women across the country to provide the first comprehensive, accessible look at how sexism in medicine harms women today. In Doing Harm, Dusenbery explores the deep, systemic problems that underlie women’s experiences of feeling dismissed by the medical system. Women have been discharged from the emergency room mid-heart attack with a prescription for anti-anxiety meds, while others with autoimmune diseases have been labeled “chronic complainers” for years before being properly diagnosed. Women with endometriosis have been told they are just overreacting to “normal” menstrual cramps, while still others have “contested” illnesses like chronic fatigue syndrome and fibromyalgia that, dogged by psychosomatic suspicions, have yet to be fully accepted as “real” diseases by the whole of the profession. An eye-opening read for patients and health care providers alike, Doing Harm shows how women suffer because the medical community knows relatively less about their diseases and bodies and too often doesn’t trust their reports of their symptoms. The research community has neglected conditions that disproportionately affect women and paid little attention to biological differences between the sexes in everything from drug metabolism to the disease factors—even the symptoms of a heart attack. Meanwhile, a long history of viewing women as especially prone to “hysteria” reverberates to the present day, leaving women battling against a stereotype that they’re hypochondriacs whose ailments are likely to be “all in their heads.” Offering a clear-eyed explanation of the root causes of this insidious and entrenched bias and laying out its sometimes catastrophic consequences, Doing Harm is a rallying wake-up call that will change the way we look at health care for women.
Download or read book Microaggressions in Medicine written by Lauren Freeman and published by Oxford University Press. This book was released on 2024 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: Microaggressions in Medicine introduces a novel account of microaggressions and applies it in medical contexts. Guided by diverse patient testimonies and case studies, it focuses on harms experienced by patients marginalized on the basis of race, gender, sexual orientation, body size, and disability. It makes a compelling case that the harms of microaggressions are anything but micro and argues that healthcare professionals have a moral obligation to prevent them. By proving practical strategies for healthcare professionals to reduce microaggressions in their practices, Microaggressions in Medicine will make a positive difference in the lives of marginalized patients as they interact with healthcare professionals. All patients deserve high quality, patient-centered care, but healthcare professionals must change their practices in order to achieve such equity.
Download or read book The Gaslight Effect written by Dr. Robin Stern and published by Harmony. This book was released on 2018-01-09 with total page 306 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this groundbreaking guide, the prominent therapist Dr. Robin Stern shows how the Gaslight Effect works, how you can decide which relationships can be saved and which you have to walk away from—and how to gasproof your life so you'll avoid gaslighting relationship. Your husband crosses the line in his flirtations with another woman at a dinner party. When you confront him, he asks you to stop being insecure and controlling. After a long argument, you apologize for giving him a hard time. Your mother belittles your clothes, your job, and your boyfriend. But instead of fighting back, you wonder if your mother is right and figure that a mature person should be able to take a little criticism. If you think things like this can’t happen to you, think again. Gaslighting is an insidious form of emotional abuse and manipulation that is difficult to recognize and even harder to break free from. Are you being gaslighted? Check for these telltale signs: 1) Does your opinion of yourself change according to approval or disapproval from your spouse? 2) When your boss praises you, do you feel as if you could conquer the world? 3) Do you dread having small things go wrong at home—buying the wrong brand of toothpaste, not having dinner ready on time, a mistaken appointment written on the calendar? 4) Do you have trouble making simple decisions and constantly second guess yourself? 5) Do you frequently make excuses for your partner's behavior to your family and friends? 6) Do you feel hopeless and joyless?
Download or read book Gaslighting written by Stephanie Sarkis and published by Hachette+ORM. This book was released on 2018-08-28 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: A mental health expert sheds light on "gaslighting"--the manipulative technique used by sociopaths, narcissists, and others--offering practical strategies to cope and break free. He's the charmer -- the witty, confident, but overly controlling date. She's the woman on your team who always manages to take credit for your good work. He's the neighbor who swears you've been putting your garbage into his trash cans, the politician who can never admit to a mistake. Gaslighters are master controllers and manipulators, often challenging your very sense of reality. Whether it's a spouse, parent, coworker, or friend, gaslighters distort the truth -- by lying, withholding, triangulation, and more -- making their victims question their own reality and sanity. Dr. Stephanie Sarkis delves into this hidden manipulation technique, covering gaslighting in every life scenario, sharing: Why gaslighters seem so "normal" at first Warning signs and examples Gaslighter "red flags" on a first date Practical strategies for coping How to coparent with a gaslighter How to protect yourself from a gaslighter at work How to walk away and rebuild your life With clear-eyed wisdom and empathy, Dr. Sarkis not only helps you determine if you are being victimized by a gaslighter -- she gives you the tools to break free and heal.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR APERT SYNDROME written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1469 pages. Available in PDF, EPUB and Kindle. Book excerpt: Apert Syndrome is a rare genetic condition characterized by the fusion of certain bones in the skull, hands, and feet, leading to a range of physical and psychological challenges. While significant medical advancements have improved the quality of life for individuals with this syndrome, the psychological impact often remains underexplored. This book aims to bridge that gap by providing a comprehensive understanding of Apert Syndrome and the essential psychological support that can be offered through Cognitive Behavioral Therapy (CBT). As a psychologist dedicated to helping individuals navigate the complexities of genetic disorders, I have witnessed firsthand the profound effects that both the diagnosis and the associated challenges can have on mental health. Families and individuals face not only the physical implications of Apert Syndrome but also the emotional burdens that come with it—ranging from anxiety and trauma to issues of self-esteem and identity. In this book, we will explore the biological and genetic underpinnings of Apert Syndrome, delving into how these factors intersect with psychological well-being. We will discuss trauma, coping mechanisms, and the essential principles of CBT, along with practical tools and techniques designed to support mental health in the context of genetic illness. The aim is to provide a personalized therapeutic approach that empowers individuals to manage their condition while fostering resilience and emotional growth. Each chapter is structured to build upon the previous one, beginning with a foundational understanding of Apert Syndrome and moving towards actionable CBT strategies. Readers will find valuable insights not only for themselves but also for caregivers, family members, and mental health professionals who wish to offer informed support. This journey is not merely about managing a condition; it’s about enhancing the quality of life, cultivating self-acceptance, and fostering a deeper understanding of the psychological aspects of living with Apert Syndrome. It is my hope that this book serves as a resource of knowledge, support, and inspiration for anyone touched by this syndrome. Together, we can pave the way for a brighter future, one where psychological support is recognized as a vital component of holistic care for individuals with Apert Syndrome.
Download or read book The Long Haul written by Ryan Prior and published by MIT Press. This book was released on 2024-03-05 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: How survivors of the Covid-19 pandemic battling long-term disabling conditions are fighting for recognition and research—and helping to transform healthcare for many overlooked diseases. To the world’s public health authorities, Covid-19 would be either a deadly disease for some or a simple respiratory illness for most, its symptoms clearing up in just a matter of weeks. But then tens of millions around the world got sick and stayed sick. With scientists and doctors caught off guard, these Long Covid patients often found solace only with one another, organizing support groups across oceans and continents while ill in bed. In The Long Haul, CNN journalist Ryan Prior weaves his own life, the stories of activist patients, and the latest science into a captivating tale of regular people crying out for care that actually works. What Covid “long haulers” found was that their new illness was not so new. In fact, it resembled other post-viral syndromes: difficult to treat and neglected by science. In riveting and accessible prose, Prior follows an innovative band of patients who took matters into their own hands and researched the disease themselves, thereby flipping the script and illustrating a new paradigm for research. In these unprecedented times, the CDC and the WHO came to them. As Covid continues to circulate, its long-term effects could grow as well, weighing on the healthcare system for decades to come. But, as Prior shows, getting Long Covid treatments right could help revolutionize care for all complex and chronic illnesses.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR TURNER SYNDROME written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1477 pages. Available in PDF, EPUB and Kindle. Book excerpt: Turner Syndrome is a genetic condition that affects females, characterized by the complete or partial absence of one of the X chromosomes. This syndrome presents a unique set of challenges that can significantly impact not only physical health but also emotional well-being and mental health. As the understanding of Turner Syndrome continues to evolve, so too does the need for effective psychological support tailored to those affected. This book, Psychological Support by Cognitive Behavioral Therapy for Turner Syndrome, aims to bridge the gap between genetic understanding and psychological support. Through the lens of Cognitive Behavioral Therapy (CBT), we explore the emotional complexities that accompany Turner Syndrome and provide practical tools and strategies for coping with its challenges. In the following chapters, we delve into various aspects of Turner Syndrome, including its biological, genetic, and psychological components. By integrating insights from genetics, epigenetics, and behavioral health, this book presents a holistic approach to understanding and managing the emotional impact of Turner Syndrome. Cognitive Behavioral Therapy is a well-established psychological intervention that has proven effective in addressing a variety of mental health issues, including anxiety, depression, and trauma. Throughout this book, we discuss the principles and techniques of CBT, emphasizing their application in the context of Turner Syndrome. The strategies outlined here are designed to empower individuals by fostering resilience, promoting self-awareness, and encouraging healthy coping mechanisms. It is important to recognize that the journey with Turner Syndrome is deeply personal and can vary widely among individuals. This book is not intended to be a definitive guide, but rather a supportive resource to assist those navigating the psychological landscape of this condition. Whether you are a person with Turner Syndrome, a caregiver, or a mental health professional, I hope you find valuable insights and practical tools within these pages. I would like to express my gratitude to all the individuals and families who shared their stories and experiences, which have informed and enriched this work. Your courage and resilience are an inspiration to all. As we embark on this journey together, may we foster a deeper understanding of Turner Syndrome and its psychological implications, ultimately paving the way for better mental health support for those who need it most.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR PYRUVATE DEHYDROGENASE DEFICIENCY written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1479 pages. Available in PDF, EPUB and Kindle. Book excerpt: The journey of living with Pyruvate Dehydrogenase Deficiency (PDD) is complex and often isolating. Those affected by this rare, hereditary metabolic disorder face unique challenges, not only medically but emotionally and psychologically. As awareness grows about the impact of chronic and genetic conditions on mental health, it becomes clear that support must extend beyond physical treatment to address the holistic needs of patients and their families. This book seeks to bridge that gap by providing a comprehensive guide to managing PDD through the lens of Cognitive Behavioral Therapy (CBT). Drawing from the latest research in genetics, epigenetics, and behavioral therapy, this book aims to equip readers with knowledge and practical tools for coping with the daily challenges of PDD. The first sections introduce the fundamental biological concepts relevant to understanding PDD, including genetics, hereditary diseases, and congenital conditions. Understanding these aspects can empower individuals, helping them feel more informed and involved in their health journey. The second half of this book focuses on actionable CBT strategies designed to support mental well-being. CBT is a well-established therapeutic approach that has shown significant benefits in managing emotional distress, anxiety, and depression—common challenges among those with chronic illnesses. Through personalized therapeutic approaches and practical tools, this book offers readers a range of coping strategies to manage the psychological impact of PDD. From learning to navigate medical bureaucracy to addressing concerns about social relationships and personal identity, these strategies are intended to foster resilience, self-compassion, and an adaptive mindset. This book also includes guidance for clinicians and caregivers. Understanding the psychological needs of individuals with PDD can help caregivers and healthcare providers offer more empathetic and effective support. The included CBT tools have been selected for their applicability to common struggles faced by individuals with genetic conditions, such as grief, fear of stigma, and managing relationships in the face of chronic health concerns. Psychological Support by Cognitive Behavioral Therapy for Pyruvate Dehydrogenase Deficiency was inspired by the strength and resilience of individuals living with genetic conditions. It is our hope that this book serves as a source of comfort, empowerment, and practical help to anyone affected by PDD. Whether you are a patient, a family member, or a healthcare provider, this resource is dedicated to improving the quality of life for all those touched by this condition.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR TAY SACHS DISEASE written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 871 pages. Available in PDF, EPUB and Kindle. Book excerpt: Tay-Sachs disease is a devastating genetic disorder that profoundly affects individuals, families, and communities. Characterized by the progressive degeneration of nerve cells, it often leads to severe physical and cognitive impairments, ultimately resulting in premature death. For those diagnosed with Tay-Sachs, as well as their loved ones, the emotional and psychological toll can be as challenging as the physical manifestations of the disease. This book aims to bridge the gap between medical understanding and psychological support, offering a comprehensive guide to utilizing Cognitive Behavioral Therapy (CBT) as a tool for managing the emotional and mental health challenges associated with Tay-Sachs disease. While advancements in genetics and medical science continue to expand our knowledge of this condition, it is equally essential to address the psychological aspects that arise throughout the genetic journey. In the chapters that follow, we will explore a range of topics, from the biological underpinnings of Tay-Sachs and its genetic implications to the various emotional struggles experienced by individuals and families. We will delve into the principles of CBT, providing practical tools and strategies to help those affected by Tay-Sachs navigate their emotional landscapes. By integrating concepts from behavioral genetics, personalized therapeutic approaches, and effective pain management techniques, this book seeks to offer a holistic view of the psychological support available to those living with this condition. I have drawn on my experience in psychology and my passion for supporting individuals facing chronic illness to craft this resource. My hope is that readers will find solace, guidance, and empowerment through these pages. It is my belief that while we cannot change the course of Tay-Sachs disease, we can certainly change how we respond to it—both in our minds and in our hearts. I invite you to embark on this journey with me, as we explore the intersection of psychology, genetics, and compassion. Together, let us foster resilience, enhance well-being, and illuminate a path of understanding for those impacted by Tay-Sachs disease.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR WERDNIG HOFFMANN DISEASE written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1486 pages. Available in PDF, EPUB and Kindle. Book excerpt: Werdnig-Hoffmann disease, a severe form of spinal muscular atrophy (SMA), presents not only profound physical challenges but also significant psychological and emotional burdens for those diagnosed and their families. This book, Psychological Support by Cognitive Behavioral Therapy for Werdnig-Hoffmann Disease, seeks to address these psychological dimensions by offering a comprehensive framework for understanding the emotional toll of the disease and providing evidence-based therapeutic strategies to improve quality of life. The journey through a life with Werdnig-Hoffmann disease involves not only managing a progressive and often debilitating physical condition but also navigating the intricate psychological landscape that comes with it. Individuals with this disease, their caregivers, and healthcare providers are often faced with feelings of grief, helplessness, anxiety, and frustration. Coping with such emotions is essential for enhancing the quality of life and ensuring better overall well-being. Cognitive Behavioral Therapy (CBT) has proven to be an effective tool in managing emotional difficulties in chronic illness. CBT focuses on understanding the connection between thoughts, feelings, and behaviors and offers practical tools to alter negative thought patterns, improve emotional regulation, and promote healthier coping strategies. The therapy is particularly beneficial in the context of genetic disorders like Werdnig-Hoffmann disease, where individuals may face unique challenges such as identity struggles, anxiety about genetic transmission, and the emotional impact of medical decisions. This book is intended to provide a solid foundation for clinicians, caregivers, and patients themselves to explore the intersection of mental health and genetic disease. It combines an in-depth understanding of Werdnig-Hoffmann disease with insights into genetics, epigenetics, and hereditary conditions. Through this, I aim to offer not just a therapeutic guide but a pathway to emotional resilience in the face of genetic illness. In addition to providing theoretical and clinical perspectives, this work delves into the application of CBT, addressing common issues faced by patients such as chronic pain, societal pressures, feelings of isolation, and the emotional toll on caregivers. By focusing on practical tools and therapeutic strategies, I hope to empower those affected by Werdnig-Hoffmann disease to manage their emotions, foster resilience, and improve their mental health alongside physical treatment. The integration of personalized therapeutic approaches is emphasized throughout the book, as each individual’s experience with this disease is unique. It is my belief that through this personalized care and the application of CBT techniques, individuals can better navigate the emotional challenges of Werdnig-Hoffmann disease, ultimately leading to improved psychological well-being and quality of life. I would like to dedicate this book to the individuals and families affected by Werdnig-Hoffmann disease and other similar conditions. Your courage, perseverance, and resilience in the face of adversity are the inspiration behind this work. It is my hope that this book serves as a supportive guide in your journey, helping to alleviate some of the emotional burdens and fostering a deeper sense of peace and empowerment.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR KLINEFELTER SYNDROME written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1479 pages. Available in PDF, EPUB and Kindle. Book excerpt: Klinefelter Syndrome (KS) is one of the most common genetic conditions, yet it remains a relatively underrecognized aspect of health and wellness. Characterized by the presence of an extra X chromosome in males, this syndrome can lead to a variety of physical, psychological, and emotional challenges that impact individuals and their families. The complexities of Klinefelter Syndrome extend far beyond its biological implications, as those affected often navigate a landscape marked by unique struggles related to identity, self-esteem, and interpersonal relationships. In this book, we aim to bridge the gap between genetic understanding and psychological support by emphasizing the vital role of Cognitive Behavioral Therapy (CBT) in the management and treatment of Klinefelter Syndrome. Our goal is to provide a comprehensive guide that integrates scientific insights from genetics and psychology, offering practical tools and strategies for both individuals with KS and their healthcare providers. The journey through Klinefelter Syndrome can often feel isolating, laden with societal pressures and misconceptions. Many individuals with KS grapple with feelings of inadequacy, trauma, and confusion regarding their identities and futures. By employing the principles of CBT, we can help facilitate a shift in perspective, empowering individuals to reframe their experiences, develop resilience, and embrace their unique identities. Throughout the chapters, we will explore a wide range of topics, from the biological underpinnings of Klinefelter Syndrome to the psychological tools that can foster healing and growth. Each section is designed to build upon the last, weaving together insights from genetics, trauma, mental health, and therapeutic practices. We delve into the specific challenges faced by those with KS, offering targeted strategies to cope with pain, anxiety, stigma, and the emotional toll of living with a genetic condition. It is my hope that this book serves as a resource not only for individuals affected by Klinefelter Syndrome but also for family members, healthcare professionals, and educators seeking to better understand the complexities of this condition. By fostering a supportive and informed community, we can enhance the quality of life for those with KS, helping them navigate their unique journeys with confidence and hope. Thank you for joining me on this important exploration of Klinefelter Syndrome and the profound impact of psychological support through Cognitive Behavioral Therapy. Together, we can work towards a future where individuals with KS are empowered to lead fulfilling lives, unencumbered by stigma or limitation.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR PONTOCEREBELLAR HYPOPLASIA written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1474 pages. Available in PDF, EPUB and Kindle. Book excerpt: Psychological Support by Cognitive Behavioral Therapy for Pontocerebellar Hypoplasia aims to provide a specialized resource for individuals, families, and healthcare professionals dealing with the challenges of Pontocerebellar Hypoplasia (PCH). This rare genetic disorder, which impacts motor skills, cognition, and overall quality of life, requires not only medical care but also robust psychological support to address the mental and emotional burdens associated with its symptoms. This book integrates Cognitive Behavioral Therapy (CBT) techniques with an understanding of genetic, biological, and psychological aspects of PCH. Each chapter is designed to explore foundational knowledge about genetics, hereditary diseases, and the specific impacts of PCH, followed by detailed sections on trauma, mental health, and coping strategies. By addressing the multifaceted needs of PCH patients, the book equips caregivers, patients, and therapists with practical tools to manage pain, emotional difficulties, and other daily challenges that arise due to this condition. The CBT approach in this book is designed with sensitivity to the specific emotional and psychological needs of those affected by PCH. In the therapy-focused sections, I have aimed to address common issues encountered in living with a chronic condition, such as social isolation, fears about cognitive decline, and the stigma associated with genetic disorders. Tools such as Acceptance and Commitment Therapy (ACT), relaxation techniques, and resilience-building exercises have been included to provide a well-rounded psychological toolkit. The book also seeks to validate the experiences of individuals with PCH and their families by acknowledging the emotional toll of navigating a rare disease. I hope that by combining cognitive-behavioral strategies with insights into the biological and genetic foundations of PCH, this book will serve as a compassionate, practical, and informative guide to promoting psychological well-being and resilience. Ultimately, this book is a dedication to those facing Pontocerebellar Hypoplasia and the professionals working tirelessly to support them. May it offer hope, practical guidance, and emotional relief for all who walk this challenging path.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR USHER SYNDROME written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1473 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent years, there has been growing recognition of the profound psychological impact that genetic disorders such as Usher Syndrome can have on individuals and their families. Usher Syndrome, which affects both hearing and vision, presents not only physical challenges but also significant emotional and mental health obstacles that can alter the course of a person's life. As a result, psychological support has become an essential component of comprehensive care for those living with this condition. This book, "Psychological Support by Cognitive Behavioral Therapy for Usher Syndrome," was written to provide a practical and evidence-based guide to understanding and managing the psychological consequences of living with a chronic genetic disorder. Cognitive Behavioral Therapy (CBT) has emerged as a leading approach to helping individuals navigate the mental health challenges associated with conditions like Usher Syndrome. Through this therapy, people can develop the tools they need to cope with trauma, anxiety, depression, and the profound changes that come with progressive sensory loss. The content of this book aims to provide both a theoretical and practical framework for supporting individuals with Usher Syndrome. From understanding the genetic and biological underpinnings of the condition to exploring the psychological and emotional aspects of living with it, this book provides a holistic perspective. Special emphasis is placed on CBT techniques, tailored approaches, and actionable tools for managing the psychological toll of genetic illness. Additionally, the book delves into broader topics, including the biology of trauma, the fundamentals of genetics, and the importance of personalized therapeutic approaches. It is designed to serve not only clinicians and therapists but also individuals living with Usher Syndrome and their families, offering them knowledge, guidance, and practical strategies for improving their mental well-being. As you journey through the following chapters, it is my hope that this book will serve as a valuable resource for enhancing both the psychological resilience and quality of life of those affected by Usher Syndrome.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR LISSENCEPHALY written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1485 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book, Psychological Support by Cognitive Behavioral Therapy (CBT) for Lissencephaly, was born out of the need to address the complex emotional and psychological challenges faced by individuals and families affected by lissencephaly, a rare but profoundly impactful neurological condition. Lissencephaly, characterized by an absence of normal brain folds, often brings a unique array of physical, developmental, and emotional challenges. These challenges extend beyond the individual, affecting families, caregivers, and even communities. This book aims to provide a comprehensive guide to cognitive behavioral therapy (CBT) and its application for supporting mental health and resilience within this context. Each section has been crafted with a dual purpose: to offer a thorough understanding of the biological, genetic, and psychological aspects of lissencephaly and to introduce actionable, evidence-based CBT strategies tailored to the specific needs arising from this condition. This book explores essential foundations, from understanding genetic and epigenetic influences to practical therapeutic approaches, coping mechanisms, and tools for pain management. Given the chronic and often unpredictable nature of lissencephaly, mental health support becomes critical. While we often address physical symptoms and medical treatments, emotional health, too, requires a compassionate, structured approach. CBT offers a powerful method for navigating the internal and external realities faced by those affected. It enables individuals to confront negative thinking patterns, build resilience, and find meaning even amid difficult circumstances. Whether you are a healthcare professional, caregiver, family member, or individual seeking understanding, it is my hope that this book provides practical and compassionate insights. As you turn these pages, may you find tools that empower, strategies that support healing, and encouragement to foster resilience. Together, we can create a support system that helps individuals affected by lissencephaly lead lives filled with hope, strength, and dignity.
Download or read book How to Do Life with a Chronic Illness written by Pippa Stacey and published by Jessica Kingsley Publishers. This book was released on 2024-04-18 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'I know that living with a chronic illness in this inaccessible world is tough. Trust me, I know. But you deserve to find peace and contentment just as much as anybody else. So welcome to your one-stop guide on how to make the most of life alongside your condition, in a way that truly works for you'. Chronic illness affects everybody differently, but we all share the goal of living meaningfully and making the most of what we have. This book exists to help you take accessible steps towards that goal and build a life that truly feels like yours. Instead of focusing on the medical side of long-term conditions, this book dives into the important parts of everyday living that often go unspoken about - from practical advice on friendships, dating and independent living, to more reflective guidance on rediscovering your identity and learning to self-advocate. Between these pages, you'll find bespoke information and resources curated through 10+ years of lived experience, alongside words of wisdom from diverse contributors and subject experts. This book also contains journal prompts, resource lists, and (perhaps most importantly) words of comfort and validation that people with life-altering conditions simply do not hear enough.
Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR CYSTINOSIS written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1482 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with a rare genetic condition like cystinosis presents a unique set of challenges that extend far beyond the physical symptoms. It is a journey marked by moments of uncertainty, resilience, and the ever-present task of balancing medical treatment with emotional well-being. For individuals and families facing cystinosis, the psychological toll can often feel as heavy as the medical burden itself. In this book, "Psychological Support by Cognitive Behavioral Therapy for Cystinosis," I aim to provide a comprehensive guide that not only addresses the biological and genetic aspects of the disease but also focuses on the crucial role of mental health in the overall treatment process. Drawing from years of research in cognitive behavioral therapy (CBT), this manual offers practical tools, strategies, and insights for managing the emotional and psychological effects of living with cystinosis. The structure of this book is designed to take you on a journey—from understanding the biological and genetic foundations of cystinosis to exploring the psychological impacts and offering tailored therapeutic solutions. I begin with the basics of genetics, epigenetics, and the nature of genetic disorders, followed by an in-depth look at trauma, mental health, and pain management. Central to this book is the application of CBT principles, which serve as an empowering approach to coping with the emotional, cognitive, and social challenges that often accompany chronic illness. Each chapter is a stepping stone, guiding the reader through various facets of the cystinosis experience. From learning how to cope with feelings of isolation and frustration with treatment options to addressing the impact on family dynamics, this book provides a supportive framework for navigating the emotional highs and lows. I have also devoted special attention to the importance of managing pain and understanding the intricate ways in which it can affect mental health. Above all, this book serves as a reminder that while the genetic journey can feel isolating, there is hope and strength in knowledge, support, and effective therapeutic techniques. Whether you are a person living with cystinosis, a family member, or a healthcare provider, my hope is that this book will serve as a vital resource for finding balance, resilience, and empowerment through the practice of cognitive behavioral therapy. In writing this preface, I want to acknowledge the courage and determination of every individual affected by cystinosis. This book is for you, a companion on your journey towards mental and emotional well-being.
