Download or read book Making Sense of Brain Tumour written by Ea Stewart and published by . This book was released on 2014 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The psychological support needs of people with brain tumour are often overlooked and there is a lack of brain tumour-specific psychological therapy resources. The MSoBT manual is based on research which demonstrated the efficacy of a person-centred and goal directed approach to counselling and rehabilitation. Importantly, the MSoBT programme does not draw upon one particular therapeutic orientation (e.g., Cognitive-Behavioural Therapy, Acceptance and Commitment Therapy, Interpersonal Therapy), but rather a combination of approaches that are considered the best fit for individual clients based on their presenting issues and background. Cognitive- Behavioural Therapy and Mindfulness were often used together for anxiety and anger, whereas Solution-Focused Therapy and Behavioural Therapy were combined for stress management. This integration of techniques reflects the person-centred and goal-directed approach the authors believed was both effective for and valued by participants in the MSoBT programme. The MSoBT therapy manual is intended for use by professionals with qualifications in clinical psychology and neuropsychology. The neuropsychological assessment and psychotherapy approaches in particular require appropriate training at a post-graduate level.

Download or read book Living with a Brain Tumor written by Peter Black and published by Macmillan. This book was released on 2006-10-31 with total page 335 pages. Available in PDF, EPUB and Kindle. Book excerpt: Each year, 100,000 people in the United States are diagnosed with a brain tumor. With his new book, Dr. Peter Black fills a gap in the lay readership, providing an accessible medical resource for adult patients and their families. Dr. Black, who has operated on more than 3,000 patients with brain tumors, is uniquely qualified to discuss both clinical treatment of and research into brain tumors. This invaluable resource tells patients everything they need to know to understand and address their diagnosis, in a four-part structure: • "What is a Brain Tumor?" provides straightforward information about how brain tumors are diagnosed, the different types of tumors and how they develop, and where to go for treatment. • "Coping with Shock" addresses the emotional impact of the diagnosis on the patient and their family, offering specific advice on support groups and how to managing work and finances during your treatment. • "Treatment options" outlines the complex array of available treatments in a sequential, logical, and thorough manner, enabling readers to make informed decisions. • "Recovery" describes how to deal with the aftermath, addressing issues ranging from physical scars to speech and occupational therapy. Dr. Black believes that more than half of brain tumor cases can be resolved with relatively minor side effects or none at all. Equipped with this informative book, patients and their family and friends can learn how to fight brain tumors effectively, putting them on the path to wellness.

Download or read book They Call Me The Miracle The Carmen Rice Story written by Randy R. Harris and published by Ambassador International. This book was released on 2021-10-26 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer is a major worldwide public health problem and is the second leading cause of death in the United States. In 2018, there were seventeen million new cancer cases and 9.5 million cancer deaths worldwide. Seemingly, everyone has been affected by or knows of someone who is affected by the disease. In 2004, doctors discovered that Carmen Rice had a stage 4 Glioblastoma Multiforme brain tumor, one of the deadliest of all cancers—the same cancer which killed John McCain, Edward Kennedy, and Beau Biden. After being diagnosed with a glioblastoma tumor, twenty-nine-year-old Brittany Maynard made headline news when she moved to Oregon to die with dignity. Carmen’s doctor gave her six months to live, but with her faith in God and tenacious spirit, Carmen just kept beating the odds. After all these years, Carmen is “off the map” and into uncharted territory. They Call Me "The Miracle" is her story.

Download or read book Determined to Matter written by Jen O'Hara and published by Scarletta Press. This book was released on 2013 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Shannon O'Hara, skating down the ice chasing after the puck, comes face to face with a larger-than-life opposing team player. Never one to back down from anything, barely five feet fall, Shannon tangles with the player and ends up with a penalty. As she sits in the penalty box--only thinking about getting out in two minutes--no one would ever imagine that this beautiful, vibrant, and competitive young spirit will be gone in 54 days. The devastating news that 12-year-old Shannon is diagnosed with an inoperable brain tumor is unfathomable, surreal, and unimaginable. This is the raw and emotional story of the O'Hara's as they prepare for the fight of their lives, and their ultimate loss. Written and inspired by a blog that Dan and Jen O'Hara wrote to keep in touch with their family, friends, and supporters near and far, the story follows the yearlong battle from diagnosis to death and exemplifies how to live the "new normal" every day, no matter what it entails. Shannon's struggle reveals why family, faith, and hope are so important in our daily lives and how the support of a community plays such a vital role through the good times and especially the bad.

Download or read book The Neuroscientist Who Lost Her Mind written by Barbara K. Lipska and published by HarperCollins. This book was released on 2018-04-03 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the tradition of My Stroke of Insight and Brain on Fire, this powerful memoir recounts Barbara Lipska's deadly brain cancer and explains its unforgettable lessons about the brain and mind. Neuroscientist Lipska was diagnosed early in 2015 with metastatic melanoma in her brain's frontal lobe. As the cancer progressed and was treated, she experienced behavioral and cognitive symptoms connected to a range of mental disorders, including dementia and her professional specialty, schizophrenia. Lipska's family and associates were alarmed by the changes in her behavior, which she failed to acknowledge herself. Gradually, after a course of immunotherapy, Lipska returned to normal functioning, amazingly recalled her experience, and through her knowledge of neuroscience identified the ways in which her brain changed during treatment. Lipska admits her condition was unusual; after recovery she was able to return to her research and resume her athletic training and compete in a triathalon. Most patients with similar brain cancers rarely survive to describe their ordeal. Lipska's memoir, coauthored with journalist Elaine McArdle, shows that strength and courage but also an encouraging support network are vital to recovery.

Download or read book A Statistic of One written by Stephen Hatrak and published by iUniverse. This book was released on 2012-05-11 with total page 92 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Statistic of One: My Walk with Glioblastoma Multiforme traces Stephen Hatraks life from his diagnosis of glioblastoma multiforme, the deadliest of malignant brain tumors, to the present. He chronicles the trials and tribulations he faced and the losses he suffered along his journey. Faith and inner strength are formidable allies in overcoming any tragedy in ones life, and they played vital roles in his struggle. He was told from the start that the he might have twelve months to live; even so, he defi ed the odds and, six years later, is telling his own story. Despite the dire statistics associated with a diagnosis of glioblastoma, there are several stories of long-term survival; these stories gave him hope that this cancer could be tamed. To overcome this challenge in his life, he had to believe in himself and fi nd his inner sixth sense to strengthen his resolve. Along the way, he learned that life with brain cancer could be tough, but that he could be even tougher. What cancer cannot do.separate me from my soul, squash my spirit, and stop the sun from rising in the east and setting in the west; creating new tomorrows and new opportunities. A Statistic of One is an uplifting story of faith and perseverance; how we cope with challenge will determine how we move forward and live life to its fullest.

Download or read book A Sense of Tumour written by Barbara Connolly and published by . This book was released on 2000 with total page 97 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Pear Shaped written by Adam Blain and published by Createspace Independent Publishing Platform. This book was released on 2015-06-23 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The true story of Adam Blain, a 44-year-old London lawyer and family man who one day, ends up in A&E after a series of headaches and consistent nausea. Expecting to be sent home with a packet of Paracetamol, he's shocked when harassed doctors are suddenly offering to buy him gourmet coffee. Worse still, the diagnosis of a late-stage brain tumour is made by his oncologist wife. So far, so not funny. Adam, however, is determined not to slide into defeatist misery, and approaches the saga of surgery and chemotherapy with a chirpy, irreverent black humour. What else can he do when every outing risks bits of his brain dripping out of his nose without warning? Wondering constantly what the pear-shaped part of his brain that's been removed is thinking, and whether it's having a better time than he is, Adam takes us through the myriad but necessary indignities inflicted on the brain cancer sufferer. A test, for example, on whether he can he determine whether pictures of faces are smiling? Something his wife is more than happy to help him revise for... The 'revision' involves me sitting in a pub or restaurant with Lu who makes a variety of different facial expressions at me covering the full range of human emotions. It is just like being back at kindergarten... Lu hides behind the menu whilst deciding upon and practising the next expression. She then sticks her head over the top of the menu and I give it my best shot. It would be more dignified for me if she didn't shout "Peekaboo!" each time. Or regular appointments with a psychiatrist to determine whether he's a suicide risk? "I appreciate your lateral thinking to my problem. However, isn't suicide completely contrary to the point? I am scared of death and dying, I'm also undergoing horrendous treatments to (hopefully) delay my death. So why would I kill myself? What would be the point? That's been taken care of for me." The psychologist scribbled some stuff down and ticked a box. The box must have been: "No suicide risk", or "Suicide risk but in denial" or most likely... "Smart Arse". Even the bald patch left after the surgery, which resembles A pale pair of boxer shorts shaved into my head. Adam keeps himself going by looking for joy in everything - the radiation mask that resembles an S&M prop, or counting the amount of times he's greeted by a cotton bud being swabbed up his nose and then along the crease of a groin by a nurse to check for MRSA... While his wife encourages him to spend time with fellow cancer sufferers, with their spouses; diarrhea, constipation and catheters making for interesting dinner party conversation... "Let me introduce you to my good friend, Mike. Funny story how we met. Anyway, we get on so well because we are both dying of exactly the same disease. Ain't that right, Micky?" ... his old friends take him out on lads' weekends, their desire to show their mate a good time inhibited by middle-age, children and having, essentially, to babysit a grown man. Pear Shaped is a heartfelt, funny exploration of one man's real-life experiences as he undergoes treatment and simultaneously tries to seize the life he has left, all with the knowledge that a pear-shaped part of his brain is out there somewhere, fending for survival the same way he is.

Download or read book Psychosocial Advances in Neuro Oncology written by Tamara Ownsworth and published by Frontiers Media SA. This book was released on 2016-02-12 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: Neuro-oncology is a rapidly growing field concerned with scientific developments and clinical applications related to neuroscience, neuropsychology, cancer and oncology. Neuro-oncological disorders include cancers that directly affect the central nervous system (CNS), such as brain tumours and brain metastases, and non-CNS cancers with treatments that produce neurocognitive impairment. To date, the biological mechanisms and neuropsychological effects of brain tumour and cancer have been the dominant focus in neuro-oncology literature. In terms of psychosocial aspects of care, people’s understanding of their diagnosis and symptoms and how they cope with their illness has a major influence on their emotional well-being and quality of life.The development and evaluation of psychological and supportive care interventions for people with brain tumour is an area of emerging research and of high interest to health professionals working in the field. This Research Topic aims to enhance understanding of the psychological and social consequences of brain tumour and other cancers impacting neurocognitive function. It also aims to showcase new developments in assessment and psychosocial intervention approaches.

Download or read book Brain Tumors in Children written by Amar Gajjar and published by Springer. This book was released on 2018-09-29 with total page 426 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a comprehensive and up-to-date compendium of all aspects of brain tumors in children. After introductory chapters on the epidemiology of brain tumors, the book will provide readers with state-of-the art chapters on the principals of radiation therapy, neurosurgery and neuroimaging. Subsequent chapters discuss the biology and treatment of specific types of brain tumors. The concluding chapters present critical information relevant to survivorship, neurocognitive and other late effects, and the global challenges to better diagnosis and treatment of brain tumors in children. This book is co-authored by experts in the treatment of pediatric brain tumors. All of the authors are internationally recognized authorities and they offer an evidence-based consensus on the biology and treatment of brain tumors. This handbook has far-reaching applicability to the clinical diagnosis and management of brain tumors in children and will prove valuable to specialists, generalists and trainees alike.

Download or read book This Will All Be Over Soon written by Cecily Strong and published by Simon and Schuster. This book was released on 2022-08-09 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: A powerful memoir from the Saturday Night Live cast member Cecily Strong about grieving the death of her cousin—and embracing the life-affirming lessons he taught her—amid the coronavirus pandemic. Cecily Strong had a special bond with her cousin Owen. And so she was devastated when, in early 2020, he passed away at age thirty from the brain cancer glioblastoma. Before Strong could attempt to process her grief, another tragedy struck: the coronavirus pandemic. Following a few harrowing weeks in the virus epicenter of New York City, Strong relocated to an isolated house in the woods upstate. Here, trying to make sense of Owen’s death and the upended world, she spent much of the ensuing months writing. The result is This Will All Be Over Soon—a raw, unflinching memoir about loss, love, laughter, and hope. Befitting the time-warped year of 2020, the diary-like approach deftly weaves together the present and the past. Strong chronicles the challenges of beginning a relationship during the pandemic and the fear when her new boyfriend contracts COVID. She describes the pain of losing her friend and longtime Saturday Night Live staff member Hal Willner to the virus. She reflects on formative events from her life, including how her high school expulsion led to her pursuing a career in theater and, years later, landing at SNL. Yet the heart of the book is Owen. Strong offers a poignant account of her cousin’s life, both before and after his diagnosis. Inspired by his unshakable positivity and the valuable lessons he taught her, she has written a book that—as indicated by its title—serves as a moving reminder: whatever challenges life might throw one’s way, they will be over soon. And so will life. So make sure to appreciate every day and don’t take a second of it for granted.

Download or read book Epilepsy and Brain Tumors written by Herbert B. Newton and published by Elsevier. This book was released on 2015-03-06 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patients with brain tumor-related epilepsy (BTRE) suffer from two serious pathologies simultaneously – a brain tumor and a secondary form of epilepsy. Although there has been remarkable progress in BTRE research in recent years, it remains an on-going challenge for clinicians and continues to stimulate much debate in the scientific community. This volume is the first to be completely dedicated to BTRE, and in doing so it explores issues faced by the health care team as well as some of the novel and promising directions that future research may take. Epilepsy and Brain Tumors is not only a complete reference on BTRE but also a practical guide based on clinical experiences, with a comprehensive collection of presentations from international experts who share some of the latest discoveries and their approaches to tackling a wide range of difficult and complex issues. Includes coverage of epidemiology, pathology and treatment of both primary and metastatic brain tumors Offers additional insight into supportive care, incidence in children, focal epileptogenesis, clinical evaluation, antiepileptic drugs, surgical treatment, cognitive rehabilitation, and more Chapters authored and edited by leaders in the field around the globe – the broadest, most expert coverage available

Download or read book Central Nervous System Cancer Rehabilitation written by Adrian Cristian and published by Saunders. This book was released on 2018-08-29 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Rehabilitation of a person with cancer of the brain and spinal cord requires individualized care by a team of specialists from time of initial diagnosis through active treatment, survivorship, and advanced stages of the disease. The purpose of this book is to provide useful information to assist these clinicians in the noble endeavor of rehabilitating individuals diagnosed and treated for cancer of the central nervous system with the goal of maximizing the level of function and quality of life. This book begins with a description of the cancer rehabilitation continuum of care, safety considerations, and functional outcomes. The section on brain cancer provides content on neurosurgical management, rehabilitation, cognitive deficits, communication, and swallowing impairments. The section on spinal cord cancer provides the reader with information on characteristics of spinal cord tumors, neurosurgical management, and rehabilitation. A chapter on rehabilitation of the child with brain and spinal cord cancer addresses the unique needs of this population. Pain and fatigue are very common concerns raised by persons with cancer of the central nervous system, and these topics are covered as well. The final chapter covers the equally important topic of the role of palliative rehabilitation in advanced cancer--page ix.

Download or read book Jack s Story written by Ken Fleming and published by . This book was released on 2019-10-14 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: The life and death of Jack Fleming through his battle with glioblastoma multiforme (GBM) brain cancer as told by his father, Ken. This is the story of a very brave young man. I was with him when he took his first breath and I was with him when he took his last. One was a moment of exquisite pleasure and the other was a moment of unimaginable pain. He gave life, and particularly the last two years struggling with terminal brain cancer, his best shot. He never stopped smiling; never gave up; never said no more. He was diagnosed with glioblastoma multiforme (GBM) brain cancer on a cold, wet and wintry 8 July 2016. He was given 12 months to live. We got 22 months. In December 2017 we found out that none of the treatments were working and he was unlikely to live much longer. On 28 March 2018, we were told it was all over. He died at 1.45 pm on 15 April 2018. I promised him I would write a book. I kept my promise. -- Ken Fleming - JACK EVAN FLEMING 25 November 1996 - 15 April 2018 RIP Praise for Jack's Story "Jack's Story is gripping and confronting. Well done for having the courage to write it and get it out there in the public space. I'm sure many other families and health professionals will benefit from reading this book. It was a real tribute to Jack...and also demonstrated you're didn't leave a stone unturned in trying to find a solution to this aggressive cancer." Dr Nick Cooling "Thank you for sharing Jack's Story. I'm deeply sorry to hear about your son's journey with cancer. As you know glioblastoma cancer has touched my life and those that I love dearly. I can only imagine how difficult this process is for you and your family. It sounds like Jack was surrounded with support and indeed possessed courage at its best. I know that the grieving process never quite ends, but in due time, the thought of your son will bring a smile to your lips sooner than a tear to your eye. Our sons gave us so much more than they knew, so much for us to cherish. Our memories of them will always be with us. Please know that Jill and I will keep you in our thoughts and prayers. We're in this with you. God Bless you." Joseph R. Biden. Jr. "I would like to give my condolences to your family as no family should have to go through what your family endured. Taking the pain from your son's story and turning it into a moving and beautifully honest book takes a lot of courage. I appreciate the bravery it took to write this book about what it is really like inside a life with glioblastoma multiforme." Senator John McCain "I read Jack's story in one night ...couldn't put it down ... and despite knowing how it all ended, I was willing there to be a twist and turn on each page that would see a miracle happen. What a truly incredible story of hope, love, courage and ultimate tragedy." Katie Murray "I'm so sorry that despite all the expert advice and treatment he received that no more could be done to save him. It is stories like these, and patients like Jack, that drive us to continue our work and research and clinical trials to try to find new and better treatments to counter this awful disease. Let's hope we can make some more break throughs in memory of all the children and young adults like Jack." Dr David Ziegler

Download or read book Until Further Notice I Am Alive written by Tom Lubbock and published by Granta Publications. This book was released on 2012-04-05 with total page 98 pages. Available in PDF, EPUB and Kindle. Book excerpt: “These are thoughts for us all, sooner or later—and this is a book I'll keep with me, as long as I live.”—David Sexton, The Scotsman In 2008, art critic Tom Lubbock was diagnosed with a rare brain tumor and told he had only two years to live. Physically fit and healthy, and suffering from few symptoms, he faced his death with the same directness and courage that had marked the rest of his life. Lubbock was renowned for the clarity and unconventionality of his writing, and his characteristic fierce intelligence permeates this extraordinary chronicle. With unflinching honesty and curiosity, he repeatedly turns over the fact of his mortality, as he wrestles with the paradoxical question of how to live, knowing we’re going to die. Defying the initial diagnosis, Tom survived for three years. He savored his remaining days; engaging with books, art, friends, his wife and their young son, while trying to stay focused on the fact of his impending death. There are medical details—he vividly describes the slow process of losing control over speech as the tumor gradually pressed down on the area of his brain responsible for language—but this is much more than a book about illness; rather, it's a book about a man who remains in thrall to life, as he inches closer to death. “I hope that if I am ever diagnosed with a terminal illness I will remember to reread Until Further Notice, I Am Alive. It is, in its tough-minded way, truly joyous.”—Lynn Barber, Sunday Times

Download or read book Cancer Care for the Whole Patient written by Institute of Medicine and published by National Academies Press. This book was released on 2008-03-19 with total page 455 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer-including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life-cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met.

Download or read book Principles Practice of Neuro Oncology written by and published by Demos Medical Publishing. This book was released on 2010-10-21 with total page 967 pages. Available in PDF, EPUB and Kindle. Book excerpt: Neuro-oncologic (brain and spine) cancers account for 19,000 new cases and 13,000 deaths per year. The early and proper diagnosis of these virulent cancers is critical to patient outcomes and diagnosis and treatment strategies are continually evolving. The multidisciplinary team that manages these patients involves medical and radiation oncology, neurosurgery, neuroimaging, nurses and therapists. Principles and Practices of Neuro-Oncology establishes a new gold standard in care through a comprehensive, multidisciplinary text covering all aspects of neuro-oncology. Six major sections cover all topics related to epidemiology and etiology, molecular biology, clinical features and supportive care, imaging, neuroanatomy and neurosurgery, medical oncology and targeted therapies, and radiation oncology for adult and pediatric cancers. Expert contributors from multiple disciplines provide detailed and in-depth discussions of the entire field of neuro-oncology including histopathologic harmonization, neurosurgical techniques, quality of life and cognitive functions, and therapeutic changes in terms of combined modality treatments, advanced radiation techniques, the advent of new drugs, especially targeted agents, and the tantalizing early promise of personalized therapeutic approaches. With contributions from over 180 authors, numerous diagrams, illustrations and tables, and a 48 page color section, Principles and Practice of Neuro-Oncology reflects the breadth and depth of this multi-faceted specialty.