Download or read book Love and Lupus A love story around one woman s lifelong struggles with Lupus written by Ken Conklin and published by BookLocker.com, Inc.. This book was released on 2023-06-15 with total page 97 pages. Available in PDF, EPUB and Kindle. Book excerpt: Shortly after marrying Ken, her best friend and soulmate in February of 1975, Katy Conklin, at thirty-five, learned that she had SLE (Systemic Lupus Erythematosus), an incurable autoimmune disease that can attack any part of the body. For Katy, lupus initially affected her joints often causing pain and fatigue. Later, this insidious disease progressed to her lungs and circulatory system, leading to asthma and then to blood clots, including DVTs (Deep Vein Thrombosis) in her legs, and eventually to lupus-induced strokes. Instead of giving in to lupus, Katy, a positive person by nature, vows to overcome the lupus obstacles and live as full a life as possible. She finds success in her work as a CEO of several branches of a non-profit organization. She also uses her music and acting ability to find fulfillment with a semi-professional chorus and by singing and acting with a retirement village entertainment company. With her husband by her side throughout her struggles, she achieves success in her work and in her daily life.

Download or read book Life Love and Lupus written by Stevie Beth and published by AuthorHouse. This book was released on 2011-09-09 with total page 235 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Mary discovered the pain she was experiencing doing every-day things at school and at home was due to a disease called lupus, she was determined not to let it affect her life. What she didnt know at the time was that the physical challenges of lupus would pale in comparison to the emotional challenges she would face when she fell in love with two very different menand found that neither of them felt quite the same way about her. Never one to give up in the face of any obstacle, Mary began her long-term endeavor to change their minds. Life, Love, and Lupus is the story of Marys battle to overcome unrequited love and go after what she most desires, whatever the consequences and regardless of the limitations. Through narrative description, journal entries and email exchanges, the reader is taken along on an intimate journey with the sharp-witted Mary as she follows her hopes and dreams and finds out that sometimes you have to learn to love yourself first.

Download or read book The Love for a Dying Woman with Lupus written by Odell K. Mike Sr. and published by AuthorHouse. This book was released on 2008-02-01 with total page 80 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book was written in tribute to a great woman who developed a disease called lupus. Having this illness caused her to give up her career as a registered nurse and to submit to lupus. Alice's desire to live came from her faith in God. She knew that God has the power to heal. At times Alice would get angry over her illness and cry out to God, saying, "Why me?" Some people say we should not question God or ask why. It has been said that we should ask God for what we want and wait for the answer. As this lady of great faith held to God's unchanging hands and the doctors were doing all they could, she began to motivate herself to live on. She developed a purpose for living. She had developed lupus in the year of 1972. At that time, they did not know much about the disease called lupus. Being her husband and caretaker, I began to try to understand. I was having emotional difficulty dealing with the thought that there was no cure and that my loved one was going to die. It seemed very unfair. My faith and our faith combined together, and our love for one another was our strength and our key to our endurance. When you are doing all you can, the best medicine is just a little tender loving care. I was proud to be her husband through sickness and in health. This story is about my love for a dying woman with lupus.

Download or read book Lupus the Battle Within written by Valerie Horn and published by Vjh Publishing. This book was released on 2016-08-17 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Valerie Horn is a lupus patient that has been battling lupus for over fifty years. While living in New York City, her parents did whatever they could by taking her from hospital to hospital, until that one special doctor made a difference in her life. She shares her life story with admirable strength and courage, as she takes you through her most precious and private moments. You will follow Valerie's journey from childhood, when she was first diagnosed, all the way into adulthood, as she talks about her marriage and divorce and raising a child. Her leap at love again left her heartbroken in another state, with two more children to raise...alone. "Lupus: The Battle Within," is a glimpse into the daily struggle that so many lupus patients face, but may be too ashamed to talk about. In Horn's debut memoir, you are reminded that you are NOT alone. You can persevere like a champion, and leave a "Legacy" for your family to remember forever.

Download or read book Julie s Story My Life with Lupus written by Julie Miller and published by . This book was released on 2008-10 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt: Blake Habers hated Indians, especially the tribe his sister lived with. He forced her to come home with him. But Amanda had other plans that involved her lawyer, Gentry Fox. Though he couldn't help her with her problem, he knew someone who could. Shawna dreaded hearing from her cousin. For it always meant trouble, for her. Leaving preparations for the cattle drive in her foreman's hands, she and Joshua went to deal with Gentry for the last time. Once there, things became more complicated. Namely because of who Amanda's husband turned out to be. Desert Wolf was in search of his wife. But after years of believing she was dead, he was dreaming of his first love, Little Eagle. Suddenly, all his deeply buried feelings for the sultry chief consumed him. Was this a sign she was alive and searching for him? Should he leave his wife for her? Would Little Eagle become his regardless of everything? Of all his questions, this he wanted to know most of all. Kali Ickier had something in common with Shawna, but that didn't stop Desert Wolf from wanting her. Still on the run, the girl reluctantly joins the Kanes in their travels. Knowing her husband's desires, Amanda tries to sway the girl into marriage. But another Indian has other plans for her.

Download or read book Lupus It Chose Me written by LaTonya Bias PhD and published by WestBow Press. This book was released on 2020-04-28 with total page 127 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is time, at last, to speak the truth about Lupus, and the truth is this. No one knows currently if your autoimmune system is the reason you have Lupus. For me, if this is the truth, why aren’t we implementing blood transfusions? New blood, could that be the cure? This book is about bringing awareness from one person’s perspective, as to what is going on in her life with Lupus. “Let me help you take back your life by sharing my story. I hope this will provide you with a clear understanding of what Lupus is and how to maintain your body daily. Moreover, I want you to know what to do if you or someone you know is affected by this madly disease”.

Download or read book Her Have Lupus written by J. Maolisa McLaughlin and published by Createspace Independent Publishing Platform. This book was released on 2016-04-15 with total page 86 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a true story of a young mother's fight for survival from a potentially devastating disease of Lupus. It is a story of courage, faith, love and hope.

Download or read book Twenty one Days of Falling in Love With Lupus written by Destiny Ward and published by Createspace Independent Publishing Platform. This book was released on 2018-01-28 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: Destiny Ward was diagnosed with Lupus in the year of 2014. She is now an author, speaker, and activist for Lupus. Her love for inspiring others has lead her to being a Mental Health Counselor to help people nationwide who battle diseases, depression, and suicidal thoughts. She truly believes that everyone deserves a glimpse of heaven.

Download or read book Lupus Love written by Tammy Anderson and published by . This book was released on 2010 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Living with Lupus written by Ann Miles and published by University of Texas Press. This book was released on 2013-05-15 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: Once associated only with the wealthy and privileged in Latin America, lifelong illnesses are now emerging among a wider cross section of the population as an unfortunate consequence of growing urbanization and increased life expectancy. One of these diseases is the chronic autoimmune disorder lupus erythematosus. Difficult to diagnose and harder still to effectively manage, lupus challenges the very foundations of women’s lives, their real and imagined futures, and their carefully constructed gendered identities. While the illness is validated by medical science, it is poorly understood by women, their families, and their communities, which creates multiple tensions as women attempt to make sense of an unpredictable, expensive, and culturally suspect medically managed illness. Living with Lupus vividly chronicles the struggles of Ecuadorian women as they come to terms with the experience of debilitating chronic illness. Drawing on years of ethnographic research, Ann Miles sensitively portrays the experiences and stories of Ecuadorian women who suffer with the intractable and stigmatizing disease. She uses in-depth case histories, rich in ethnographic detail, to explore not only how chronic illness can tear at the seams of women’s precarious lives, but also how meanings are reconfigured when a biomedical illness category moves across a cultural landscape. One of the few books that deals with the meanings and experiences of chronic illness in the developing world, Living with Lupus contributes to our understanding of a significant global health transition.

Download or read book Life and Lupus written by Danielle Ferguson and published by . This book was released on 2018-01-18 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is about the life of Danielle Ferguson. She shares her struggles with adjusting to living with lupus at the age of 20, while away in college and the deaths of many close family members. Throughout her journey full of trials and tribulations, she never lost faith and she has found an even greater love for God. With everything that she learned, she hopes to encourages others with ANY chronic illness to forgive those who don't understand, never give up, and always keep faith in your heart without fear.

Download or read book Butterfly Girl My Lupus Journey written by Aimee Ackell and published by Createspace Independent Publishing Platform. This book was released on 2016-03-23 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aimee Ackell's, Butterfly Girl, MY LUPUS JOURNEY is a story about the time she was diagnosed with Lupus and how she weathered many trials and challenges on her journey of twenty years with the disease. She gives the reader a positive outlook on how to handle it and how she persevered in her life. She talks about her illness, medications, hospitalizations, family, friends, work, exercise, diet spirituality, and love for inspiring people to conquer their fears with an illness. She is a motivating individual who believes that anyone can just do it to heal him or herself back to being healthy. Aimee Ackell offers an informative and positive perspective on coping with Lupus for people with the disease and their families. Lupus is a chronic autoimmune disease that is difficult to diagnose, and the symptoms-from achy joints to skin rashes- often mimic those of other diseases. Lupus affects more than 1.4 million people in the United States, and affects more women then men. It is considered the silent disease. Her journey of twenty years with Lupus demonstrates the good, the bad and the ugly. The challenges of Lupus are unlimited but there is hope and inspiration given to the reader. She describes the major events that have affected her with her Lupus and how she handled it. The reader walks away with a confident outlook on to handle Lupus. She is very inspirational and her journey allows you a peek into her life while living with a chronic disease. As she always says, smile and smile more!

Download or read book Lupus written by Marisa L. Zeppieri-Caruana and published by Thoughts & Letters Incorporated. This book was released on 2013-04-30 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life was progressing as expected; getting sick was never part of their plan. However, in its own distinct and sudden way, Lupus showed up in the lives of the men and women profiled in this book. Although their ages, locations and stories are different, they all share one thing in common: they refuse to give up hope, despite Lupus. Lupus: Real Life, Real Patients, Real Talk is the first book of its kind in relation to the disease. Journalist, Lupus patient and Lupus Foundation of America Board Member, Marisa Zeppieri-Caruana, sets out to find men and women across the nation who will share the hurdles of daily life when battling a debilitating and cruel disease. What she discovers is a community not broken and hopeless, but one that is optimistic and refuses to give in. These patients have encountered many obstacles - kidney transplants, open-heart surgeries, coma, and dialysis - yet they continue to persevere. They share their darkest moments and their future dreams. In addition to telling their stories, they discuss tips on how to manage and deal with the disease - emotionally, spiritually and physically. This book provides tangible information and inspiration for every Lupus patient and their loved ones. It is also an essential tool for those who are newly diagnosed and trying to navigate the choppy waters of chronic illness and daily life. Featuring Amy Kelly-Yalden, CEO of the Lupus Foundation of America, Southeast Chapter, and Magdalena Cadet, MD, FACR, Director of Rheumatology at New York Presbyterian Healthcare System, this book is not to be missed.

Download or read book Goodbye Lupus written by Brooke Goldner and published by Createspace Independent Publishing Platform. This book was released on 2015 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Goldner discusses the pain of her illness and her recovery, and how she discovered a way to help herself heal through proper nourishment.

Download or read book When Lupus Throws You for a Loop written by Donna Oram and published by Createspace Independent Publishing Platform. This book was released on 2017-02-03 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Lupus Throws You for a Loop is a handbook for those newly diagnosed, lupus veterans, and those who love them. It takes you on a journey to acceptance acknowledging the difficulty of incorporating lupus into your life. You learn ways to communicate effectively, live with unpredictability, imperfection, stress, and loss of control. You learn to read your body's signals, enhance your relationships regarding intimacy, and increase your positivity and resilience. The book explores the various types of impact lupus has on adolescents and adults as well as the relationships of your significant others. You learn to feel confidant, proud, strong and empowered. You learn what it is to be a true warrior of lupus. One year after being diagnosed with lupus, the author earned a master's degree in social work. Rather than focus on the negativity of her diagnosis, Donna Oram decided to volunteer and work in the lupus community for twenty-plus years mentoring positive attitudinal changes. The book is interspersed with personal and professional experiences Donna encountered. Her vast knowledge, insight, and empathy for those who have lupus and those who love them guided her desire to help. She has "walked the walk."

Download or read book Julie s Story My Life With Lupus written by Julie Miller and published by Author House. This book was released on 2008-10-14 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: Julie's Story, 'My Life With Lupus', sums up the challenges and struggles of a young woman's life in dealing with the very unpredictable disease, Lupus. Julie was a young and energetic twenty- four- year- old woman with her whole life ahead of her. Planning the wedding of her dreams to her college sweetheart and finishing her Master's degree in Social Work, life couldn't get any better! Although life was headed in the right direction for Julie, her health had other plans. Julie began noticing vague symptoms which became bothersome to her studies. She hesitated to voice these problems due to the fact 'she looked fine on the outside'. For a year, Julie dealt with ongoing fatigue and pain which was attributed to the stress of planning a wedding and working toward a master's degree. Eventually, the symptoms worsened and Julie needed to seek medical attention. What would the doctors tell her? How would she react? Ten years later, Julie is talking about how she coped through the challenges and got through the difficult days in dealing with lupus. "Life is a rollercoaster", Julie says. "It has its ups and downs, but you just have to take one day at a time. I feel God has blessed me with Lupus, so that I can reach out to others. My life could be a whole lot worse, and I've seen a whole lot worse". Julie's Story, 'My Life With Lupus' has been written for all of those who suffer from an autoimmune disease. Especially the great friends I've made along the way. Some of the proceeds of this book will be donated to the Lupus Foundation to help find a cure for this very unpredictable, life-threatening disease!

Download or read book The Lupus Encyclopedia written by Donald E. Thomas Jr. and published by JHU Press. This book was released on 2023-09-05 with total page 845 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now completely updated! The best-selling, most comprehensive guide to lupus, its complications, and management. Lupus is an autoimmune disease that can attack any body organ. It is three times more common in the United States today than it was in the 1980s, so there is an increased need for accurate, practical information on this potentially devastating disease. Lupus expert and clinician Donald E. Thomas, Jr., MD, provides all the helpful information patients need so they can understand and treat this disease. Highlighting amazing advancements in the diagnosis and treatment of lupus, this edition includes new and expanded information on: • The latest FDA-approved medications • How lupus affects different body parts • Advanced labs that improve lupus diagnosis and treatment • The role of the microbiome and anti-inflammatory diets • Updated recommendations for those who are pregnant or breastfeeding • Childhood-onset lupus • The interaction between COVID-19 and lupus • Non-drug treatments, complementary medicine, and medical cannabis The gold standard since it was first published and carefully reviewed by experts in the field, the latest edition of The Lupus Encyclopedia is essential for patients, health care providers, and families. Bonus content on insurance issues and information about working with lupus and disability is also available online. Endorsed by The Lupus Foundation of America Contributors: Jemima Albayda, MD; Divya Angra, MD; Alan N. Baer, MD; Sasha Bernatsky, MD, PhD; George Bertsias, MD, PhD; Ashira D. Blazer, MD; Ian Bruce, MD; Jill Buyon, MD; Yashaar Chaichian, MD; Maria Chou, MD; Sharon Christie, Esq; Angelique N. Collamer, MD; Ashté Collins, MD; Caitlin O. Cruz, MD; Mark M. Cruz, MD; Dana DiRenzo, MD; Jess D. Edison, MD; Titilola Falasinnu, PhD; Andrea Fava, MD; Cheri Frey, MD; Neda F. Gould, PhD; Nishant Gupta, MD; Sarthak Gupta, MD; Sarfaraz Hasni, MD; David Hunt, MD; Mariana J. Kaplan, MD; Alfred Kim, MD; Deborah Lyu Kim, DO; Rukmini Konatalapalli, MD; Fotios Koumpouras, MD; Vasileios C. Kyttaris, MD; Jerik Leung, MPH; Hector A. Medina, MD; Timothy Niewold, MD; Julie Nusbaum, MD; Ginette Okoye, MD; Sarah L. Patterson, MD; Ziv Paz, MD; Darryn Potosky, MD; Rachel C. Robbins, MD; Neha S. Shah, MD; Matthew A. Sherman, MD; Yevgeniy Sheyn, MD; Julia F. Simard, ScD; Jonathan Solomon, MD; Rodger Stitt, MD; George Stojan, MD; Sangeeta Sule, MD; Barbara Taylor, CPPM, CRHC; George Tsokos, MD; Ian Ward, MD; Emma Weeding, MD; Arthur Weinstein, MD; Sean A. Whelton, MD