Download or read book Living with Haemophilia written by Peter Jones and published by Oxford University Press, USA. This book was released on 1998 with total page 418 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living With Haemophilia has established itself as the complete guide to haemophilia and related inherited bleeding disorders. Written primarily for affected families, the book also provides a useful and up-to-date guide for doctors, paramedical staff including nurses and physiotherapists, andteachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis and the prospects for a genetic cure. Now available in paperback, this book will continue to be an essential purchase for all those affectedwhether directly or indirectly by haemophilia.
Download or read book Living with Haemophilia written by C. Jones and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: , For the most part we. the haemophiliacs present at this Congress. have come from the great metropolitan centres with their advanced medical and social programmes for sufferers of haemophilia. We. the fortunate from the haemophilia oasis. have much to learn from each other. This is important. but even more important is the urgency to convey your knowledge. your skills. your experience and your dedication to the haemophiliacs in the desert: 'We can only begin to understand the condition. the life of a sufferer. by comparing him to a soldier in the trenches of World War I. In the trenches the soldier seldom forgets that the next moment may bring death or crippling. The haemophiliac is literally in the trenches. The soldier may be spared injury. but pain awaits the haemophiliac. Fear. moreover, is paramount to the pain. As in the trenches. the anxiety can be more oppressive than the wound. Waiting to go over the top imposes a greater strain than the actual charge. For the soldiers that survived World War I in the trenches. 4 years seemed eternity; the haemophiliac never leaves the battlefield: Opening Address, Frank Schnabel. World Federation of Hemophilia. Copenhagen. June 25th. 1963. War can come to an oasis, peace can come to the trenches. With this book, Dr Peter Jones has joined the international struggle. Carefully, concisely and cogently. the text offers a grand strategy. With allies like Dr Jones we will, one day, achieve victory. Frank Schnabel, Chairman.
Download or read book Living with Haemophilia written by Peter Jones and published by OUP Oxford. This book was released on 2002-05-16 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with haemophilia has established itself as the complete guide to haemophilia and related disorders. Written primarily for affected families, the. book also provides a useful and up-to-date guide for doctors, paramedical staff, including nurses and physiotherapists, and teachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis, and the prospects for a genetic cure. Other coverage includes · Sex and family planning · Childhood with haemophilia · Education and employment · Sports and travel · Previous side effects of treatment including HIV and AIDS Sensitively and clearly written at an appropriate level for those with haemophilia, their families and friends. This book aims to dispel the myths and raise awareness of the realities of haemophilia. It takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life. He addresses all the questions that those with haemophilia or those caring for them need to know the answers to, with humour and genuine concern. He has worked with those affected by it for over 30 years and this book contains his wealth of experience. "All of those who come into contact with haemophilia should read this book" Journal of the Royal College of Physicians Features include · Bullet pointed lists of dos and don'ts for those caring for haemophilic children · Boxes containing key information · Clear simple drawings showing treatments and exercises
Download or read book Living with Haemophilia written by Peter Jones and published by Oxford University Press. This book was released on 2002-05-16 with total page 346 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with haemophilia has established itself as the complete guide for people who suffer from haemophilia and their families. Sensitively and clearly written, it takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life.
Download or read book Congenital Bleeding Disorders written by Akbar Dorgalaleh and published by Springer. This book was released on 2018-07-25 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book describes in detail the clinical presentation, diagnosis, and management of a wide range of congenital bleeding disorders. It will assist readers in overcoming the significant challenges involved in clinical and laboratory diagnosis and in providing effective clinical care that makes optimal use of new products, including recombinant factor concentrate. The coverage ranges from hemophilia A and B and von Willebrand disease to rare bleeding disorders such as congenital factor V, factor X, factor XI, and factor XIII deficiency and inherited platelet function disorders. The exceptional attention to rarer conditions is of particular importance given the considerable risk of overlooking them during diagnosis, with potential consequences for disease-related morbidity and mortality. The authors are acknowledged specialists in the field from across the world who have particular expertise in the disorder that they discuss. The book will be of value to hematologists, oncologists, pediatricians, laboratory specialists and technicians, general physicians, and trainees.
Download or read book Hemophilia in Children written by Margaret W. Hilgartner and published by . This book was released on 1976 with total page 234 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Raising a Child with Hemophilia written by Laureen Kelley and published by . This book was released on 2016-04-01 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: A parenting book covering medical, consumer, emotional and practical child-rearing aspects of raising a child with hemophilia.
Download or read book Hemophilia and Von Willebrand Disease written by David Green and published by Academic Press. This book was released on 2018-06-14 with total page 286 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hemophilia and Von Willebrand Disease: Factor VIII and Von Willebrand Factor serves as a must-have reference on the important role these essential blood-clotting proteins play in research and clinical medicine. Clinicians and researchers face the daily challenge of staying current on the vast amounts of research that is now generated. The reference to Janus in the title refers to the two roles of the Factor VIII/Von Willebrand Factor Complex: initiation of coagulation and propagation of clot formation. The complex prevents bleeding in hemophilia and Von Willebrand disease but also augments arterial and venous thrombosis. Presents one source of information on Hemophilia and Von Willebrand Disease, as well as Factor VIII and Von Willebrand Factor, eliminating the search through hundreds of journal articles Combines the multi-disciplinary research that is generated from Factor VIII/Von Willebrand Factor – hematology, drug discovery, genetics, cell biology, and oncology Delves into unanswered questions and future directions of this important blood-clotting complex
Download or read book Injection of Life written by Robert Weatherall and published by . This book was released on 2015-10-30 with total page 113 pages. Available in PDF, EPUB and Kindle. Book excerpt: My Autobiography is of my brothers and myself living with Haemophilia through our lives. I am the oldest and only one left to tell this story of us three boys growing up, and our family experience. It hasn't been easy back in the fifties & sixties as there was not much and technology around for us Haemophiliacs until the mid-sixties. My brothers had a restricted life, because of the lack of technology to help them through their sickness. But we hope there might be a cure for us soon. It may not be around for me, but for the young one, you don't know what technology has in store in the future.Wayne John d. 1994 Aged 32 Died of Aids
Download or read book The Blood Doctor written by Barbara Vine and published by Vintage Crime/Black Lizard. This book was released on 2007-12-18 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sometimes it’s best to leave the past alone. For when biographer Martin Nanther looks into the life of his famous great-grandfather Henry, Queen Victoria’s favorite physician, he discovers some rather unsettling coincidences, like the fact that the doctor married the sister of his recently murdered fiancée. The more Martin researches his distant relative, the more fascinated—and horrified—he becomes. Why did people have a habit of dying around his great grandfather? And what did his late daughter mean when she wrote that he’s done “monstrous, quite appalling things”? Barbara Vine (a.k.a. Ruth Rendell) deftly weaves this story of an eminent Victorian with a modern yarn about the embattled biographer, who is watching the House of Lords prepare to annul membership for hereditary peers and thus strip him of his position. Themes of fate and family snake throughout this teasing psychological suspense, a typically chilling tale from a master of the genre.
Download or read book Bleeder written by Shelby Smoak and published by MSU Press. This book was released on 2013-02-01 with total page 281 pages. Available in PDF, EPUB and Kindle. Book excerpt: I am Caucasian, five foot eleven, have sandy brown hair, blue eyes, and am a tender slip of bone. And I am at the hospital. A coming-of-age memoir for modern times, Bleeder is the incredibly compelling tale of author Shelby Smoak. A hemophiliac, Smoak discovered he had been infected with HIV during a blood transfusion at the start of his college career. This devastating and destabilizing news led Smoak to see his world from an entirely new perspective, one in which life-threatening illness was perpetually just around the corner. Set in the 1990s along the North Carolina coast, Bleeder traces Smoak’s quest for love in a world that feels increasingly dangerous, and despite a future that feels increasingly uncertain. From the bedroom to the operating room, and from one hospital to the next, Smoak seeks out hope and better health. Winner of a PEN American Center award for writers living with HIV, Smoak, whose work has appeared in numerous journals and magazines, constructs this unforgettable story of life and love against insurmountable difficulties in breathtaking, tightly drawn prose.
Download or read book Birth Defects in India written by Anita Kar and published by Springer Nature. This book was released on 2021-07-08 with total page 362 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book presents the epidemiology of birth defects and their public health and social implications in India. As neglected childhood disorders, birth defects remain invisible in global maternal and child health dialogues. Birth defects services are emerging in India. This book approaches birth defects from a public health perspective, identifying the core functions of a birth defects service. Keeping in mind the complex task of providing multidisciplinary services for children with disabilities and complex medical conditions, the book examines the basic public health activities that have been put in place to address these conditions in India. The book describes birth defects surveillance and the challenges of acquiring accurate and timely data on birth defects against the background of India’s mixed health system. It discusses opportunities for prevention of birth defects and describes the structure and function of an emergent genetic service. It explores issues related to an integrated service for children with special healthcare needs, such as screening, early intervention, and rehabilitation. Furthermore, it describes the impact of these conditions on caregivers, including birth defects stigma. This book not only addresses a knowledge gap in the field of public health in India, but also explores the broader issues of services for children with disabilities and disabling conditions in low and low-middle income settings where access to health care is not universal. Given the depth and breadth of its coverage, the book offers an essential resource for birth defects researchers, researchers in the field of maternal and child health, public health/ global health, disability researchers, and researchers from the fields of rehabilitation sciences, nursing and anthropology. This book will be a valuable read for social medicine/community medicine departments, global health courses, and public health schools in India and other low middle-income countries.
Download or read book Textbook of Hemophilia written by Christine A. Lee and published by John Wiley & Sons. This book was released on 2008-04-15 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: The only up-to-date definitive reference source onhemophilia This book is an invaluable resource that provides an overview ofall aspects of the care of patients with haemophilia. Covering how to assess both bleeding children and adults,Haemophilia A and B, molecular basis of the disease, the role offactors in coagulation, epidemiology, pharmacokinetics, andtreatment of inhibitors. There will also be a section onmusculoskeletal aspects of haemophilia as well as newerdevelopments such as gene therapy and rare bleedingdisorders. Textbook of Hemophilia is ideal for: Trainees and residents in hematology Hematologists in practice Specialists working in thrombosis and hemostasis as well astransfusion medicine Why Buy This Book? The only up-to-date definitive reference source onhemophilia Essential for all those managing hemophilia patients Detailed guidance on assessment, diagnosis, management andtreatment Advice for everyday clinical questions Edited by three of the world’s leading experts onhemophilia
Download or read book Hemophilia written by Edward Willett and published by Enslow Publishing. This book was released on 2001 with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discusses hemophilia, the genetic disease that strikes primarily males, including diagnosis, treatment and current research on its prevention.
Download or read book Haemophilia and Other Inherited Bleeding Disorders written by Charles R. Rizza and published by W.B. Saunders Company. This book was released on 1997 with total page 536 pages. Available in PDF, EPUB and Kindle. Book excerpt: A high-level textbook covering haemophilia and related blood disorders including descriptions of the clinical features and investigations of these conditions; explanations of the basic sciences underlying the field; presentation of treatment options and discussions of the consequences of treatment, socially and economically as well as biologically.
Download or read book A Journey of the Heart written by Dana Francis and published by Park Place Publications. This book was released on 2013-09 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt: A collection of true stories of hemophilia social workers and their patients.
Download or read book Hemophilia written by Beverly Britton and published by . This book was released on 2003 with total page 118 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discusses the history of the disease, how it is diagnosed, and the treatments available.
