Download or read book Cystic Fibrosis written by David M. Orenstein and published by Lippincott Williams & Wilkins. This book was released on 2012-03-28 with total page 788 pages. Available in PDF, EPUB and Kindle. Book excerpt: This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Download or read book A Life Course Perspective on Health Trajectories and Transitions written by Claudine Burton-Jeangros and published by Springer. This book was released on 2015-08-11 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book examines health trajectories and health transitions at different stages of the life course, including childhood, adulthood and later life. It provides findings that assess the role of biological and social transitions on health status over time. The essays examine a wide range of health issues, including the consequences of military service on body mass index, childhood obesity and cardiovascular health, socio-economic inequalities in preventive health care use, depression and anxiety during the child rearing period, health trajectories and transitions in people with cystic fibrosis and oral health over the life course. The book addresses theoretical, empirical and methodological issues as well as examines different national contexts, which help to identify factors of vulnerability and potential resources that support resilience available for specific groups and/or populations. Health reflects the ability of individuals to adapt to their social environment. This book analyzes health as a dynamic experience. It examines how different aspects of individual health unfold over time as a result of aging but also in relation to changing socioeconomic conditions. It also offers readers potential insights into public policies that affect the health status of a population.
Download or read book Facts about Cystic Fibrosis written by and published by . This book was released on 1995 with total page 6 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Not a Wasted Breath written by LaRecea Tabor Gibbs and published by Tate Publishing. This book was released on 2010-12-14 with total page 282 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Sis, the worst thing CF [cystic fibrosis] can do is kill me. It can't stop me from living.' Todd Gibbs spoke those words once to his sister and he proved that statement true time and time again. Though cystic fibrosis did kill him five days after his thirty-first birthday, the living he did showed that he had won the battle, even if CF eventually won the war. Not a Wasted Breath is not just a story about living with a fatal disease or waiting for a transplant. That was only a part of Todd's life. He never allowed his illness to rule his life, even in the face of over eighty hospitalizations. This is truly a story about how others perceived Todd, how they were affected by his presence in their lives, and how Todd viewed himself and his existence. In a poignant compilation of thoughts, memories, articles, and journal entries, LaRecea Gibbs, Todd's mother, creates a touching tableau of a life well spent that will inspire anyone to overcome personal obstacles through faith, determination, courage, and most of all, humor. Join mother and author LaRecea Gibbs in an inspiring biography which shows that though Todd's life was short, he never wasted a single breath. This Book is an inspiration to all readers in appreciating the gift of life. The account is thorough, has depth of development, is authentic, and puts us inside the people involved. Not a Wasted Breath enables readers to travel along emotionally. As a result, we count our own blessings. John Hagaman, Professor of English, Western Kentucky University, Director of WKU Writing Project.
Download or read book Muddy Thursday written by Darla Garvey and published by . This book was released on 2021-10-13 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is nothing remarkable about finding a penny on the sidewalk or bumping into an old friend on the street, but what if you stumble upon a lifeless child lying in the grass on a cold, dark night? What happens then? In Muddy Thursday, Darla Garvey tells us exactly what happens, because it happened to her. And that child? He was her son. Darla Garvey would have preferred to write a murder mystery, an action hero series, or even a folktale. Anything but a memoir that centers on the most traumatic event of her life - and that is the sudden, mysterious death of her twelve-year old son, Ray. But this is the story that chose her. Ray lived with cystic fibrosis (CF), a genetic life-threatening disease that primarily affects the lungs and digestive system. His daily care was complicated and time-consuming, but between respiratory treatments Ray lived as if he didn't have cystic fibrosis. He was equal parts charming, feisty, thoughtful, stubborn, and incredibly funny. In fact, nothing brought Ray more joy than making people laugh. So it seems especially cruel that a young boy who brought laughter to this world, and one who fought every day to slow the progression of his disease, would be blindsided by something else that shockingly took his life. Ray's younger sister, Martha was also diagnosed with cystic fibrosis. Not only did Martha lose her only sibling, she lost her best friend, her partner in crime, and the only other person she knew who had CF. After her brother's death, Martha was left to deal with complications from her illness without the one person who would have understood her fight and would have championed for her to hang in there. Muddy Thursday chronicles Martha's courageous journey with, and without, her brother. With her sense of humor, Garvey skillfully provides levity just when the reader needs it the most. And while Muddy Thursday is certainly a tragic, heartbreaking story, it is also a testament to one family's strength, courage and hope. Most of all, Muddy Thursday is a love story.
Download or read book Salt in My Soul written by Mallory Smith and published by Random House. This book was released on 2019-03-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Download or read book Alex written by Frank Deford and published by Open Road Media. This book was released on 2015-02-24 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.
Download or read book Living with Cystic Fibrosis written by Susan Heinrichs Gray and published by . This book was released on 2003 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: The chronic condition of cystic fibrosis is explained to help children better understand and cope with the condition and to educate regarding the prospects of a cure.
Download or read book Living on Borrowed Time written by Debbie Pitts and published by Author House. This book was released on 2007-01-19 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: My book tells how I have struggled to live from day to day since my being diagnosed at six months of age. So you know I have lived a long time with this disease. It hadn't been easy.
Download or read book Liam Strong as a Tree written by Meghan Behse and published by . This book was released on 2020-05-05 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: Liam couldn't be happier. He's off to kindergarten, where he's going to make a million new friends and learn a billion new things! Mom is worried about Liam going to school, but Liam knows he'll be fine. He has his oxygen mask and his medication for lunch and snack time. Plus, he knows he's strong as a tree. You see, Liam has a great big tree in his backyard. Mom says trees need lots of oxygen from the air, just like his lungs. And they need food from the ground, just like his tummy. Sometimes, their tree gets sick, sicker than the other trees. That's when Mom and Liam give it special food and extra love, and it grows big and strong again. School is everything Liam hoped it would be. And when Liam needs his oxygen mask or medication, his friends know that Liam just needs a little extra help to be strong like the others. Until one winter's day, when Liam catches a cold. Inspired by a real boy and his first year of school while battling cystic fibrosis, read how Liam's young friends, with compassion and support, remind Liam of his own strength during the isolating time of illness.
Download or read book Cystic Fibrosis written by Anne H. Thomson and published by Facts. This book was released on 2008 with total page 163 pages. Available in PDF, EPUB and Kindle. Book excerpt: This title explains clearly what is happening to the body in cystic fibrosis, what causes it and what treatment options are available for the different aspects of the disease. It also looks to the future in terms of potential new therapies and provides useful information on organisations that can provide help.
Download or read book Every Precious Breath written by Tom Valenta and published by Michelle Anderson Publishing. This book was released on 2012-07-01 with total page 207 pages. Available in PDF, EPUB and Kindle. Book excerpt: Tom Valenta tells the story of his two grandsons and discovers that people living with cystic fibrosis and their families are very special people. Their ability to overcome hardships, endure pain and laugh at adversity is inspirational.
Download or read book Living with Illness Jasper s Story Living with Cystic Fibrosis written by Andy Glynne and published by Franklin Watts. This book was released on 2017-08-10 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this powerful story, told in his own words, Jasper explains what it means to grow up with cystiuc fibrosis. Read about what cystic fibrosis is, the treatment he receives and how it affects his daily life.
Download or read book Integrated Palliative Care of Respiratory Disease written by Stephen Bourke and published by Springer Science & Business Media. This book was released on 2012-12-03 with total page 244 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book brings together the knowledge, skills and attitudes of specialists in both Respiratory Medicine and Palliative Medicine to focus on the palliative care of patients with respiratory diseases. It deals not only with end of life care but also with symptom control and supportive care to improve the quality of life of those living their lives with advanced progressive lung disease.
Download or read book Lung Epithelial Biology in the Pathogenesis of Pulmonary Disease written by Venkataramana K Sidhaye and published by Academic Press. This book was released on 2017-03-09 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lung Epithelial Biology in the Pathogenesis of Pulmonary Disease provides a one-stop resource capturing developments in lung epithelial biology related to basic physiology, pathophysiology, and links to human disease. The book provides access to knowledge of molecular and cellular aspects of lung homeostasis and repair, including the molecular basis of lung epithelial intercellular communication and lung epithelial channels and transporters. Also included is coverage of lung epithelial biology as it relates to fluid balance, basic ion/fluid molecular processes, and human disease. Useful to physician and clinical scientists, the contents of this book compile the important and most current findings about the role of epithelial cells in lung disease. Medical and graduate students, postdoctoral and clinical fellows, as well as clinicians interested in the mechanistic basis for lung disease will benefit from the books examination of principles of lung epithelium functions in physiological condition. Provides a single source of information on lung epithelial junctions and transporters Discusses of the role of the epithelium in lung homeostasis and disease Includes capsule summaries of main conclusions as well as highlights of future directions in the field Covers the mechanistic basis for lung disease for a range of audiences
Download or read book Always Another Mountain Living With Cystic Fibrosis written by Benjamin Easterday and published by Lulu.com. This book was released on 2018-04-05 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: Always Another Mountain is the whimsical life story of David Foster, an adventurer, an outdoors man, and a man afflicted with the debilitating lung disorder Cystic Fibrosis. This book is adapted from the screenplay and draws the reader in through film styled scene descriptions. The story is an inspirational love story with many notes of humor that will leave you the reader with a full range of emotions. David had a passion for life and a love of the outdoors which transcended the physical limitations brought on by this incurable disease. Foster wanted to leave this world better than he found it, and wanted his life to serve as an inspiration not only for those suffering from CF, but for all of us. This is a story that touches on triumphs and tragedies that all those afflicted with cystic fibrosis must face during their shortened lives, and specifically David FosterÕs life. ""I'm just like anyone else, I just cough a little more"" -DavidFoster
Download or read book My Life in My Hands written by Doug Lab and published by Labpro Press. This book was released on 1990 with total page 163 pages. Available in PDF, EPUB and Kindle. Book excerpt: Like an adventure story, Doug Lab narrates his lifelong struggle with the genetic disease, cystic fybrosis. Chronic illness sapped his energy but never broke his spirit or diminished his zest for living. He shows the cost of care, emotional needs & effects of his illness on others. People in his life -- family, friends & lovers, fellow CF patients & medical staff provide a counterpoint to this gutsy story of a survivor. 163 pages. $7.95 Informative; inspirational.
