Download or read book Living with and Surviving Sickle Cell Disease written by Juanita McClain and published by Xlibris Corporation. This book was released on 2017-07-24 with total page 29 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with and surviving Sickle cell disease is an autobiography written about the life of a girl who fights to survive a chronic illness that she was diagnosed with at birth. She lives her life in fear of dying from this horrific disease. Instead of giving up and letting the disease conquer her she chooses to take a stand and fight instead. She uses her experiences as motivation to write about what she has been through and inspire the lives of many people. The book offers many miraculous stories and different scenarios of ups and downs in her life. The book is very informational, educational, moving, and inspirational to anyone who is going through some of the same experiences and even those who are not. The book will no doubt leave a lasting impression about the author.
Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Download or read book The Monster Within Me written by Juanita McClain and published by Xlibris Corporation. This book was released on 2018-02-28 with total page 23 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Monster Within Me is about a child who is born with a genetic blood disorder called sickle cell disease. She fears the disease because of the pain and other effects it causes her. And even though this monster will always live inside of her, she doesnt let it stop her from living a fulfilling life.
Download or read book Living with Sickle Cell written by Judy Gray Johnson and published by . This book was released on 2015-09-15 with total page 150 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell is often thought of as the "invisible disease." It affects every organ in the body, yet no one would ever know unless there is a crisis. Living with Sickle Cell: The Inside Story will help you understand the struggle of surviving with this disease. This book is the "heart and soul' story of a woman who has beaten the odds of not only surviving with this inherited chronic illness, but she has surpassed the average lifespan of 45 years of age. Judy G. Johnson budgeted her energy and sustained the pain to educate herself and retired as a school teacher. As a single parent, she orchestrated her daughter's career and today her daughter is a clinical therapist with a PhD in private practice. In Living with Sickle Cell: The Inside Story you will discover that: It's a war cry to bring awareness to the disease Looks can be deceiving, pain is not visual It dispels the myth of laziness Majority of Sickle Cell survivors are not "drug addicts" Sickle Cell Disease (Disorder) is not just an African American disease (every ethnic group can be a carrier) Regardless of your ethnicity, everyone should have a Hemoglobin Electrophoresis blood test
Download or read book Surviving Sickle Cell written by Kalysia Johnson and published by AuthorHouse. This book was released on 2020-10-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!
Download or read book Living With Sickle Cell written by Judy Gray Johnson and published by Createspace Independent Publishing Platform. This book was released on 2015-10-15 with total page 140 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell is often thought of as the "invisible disease." It affects every organ in the body, yet no one would ever know unless there is a crisis. Living with Sickle Cell: The Inside Story will help you understand the struggle of surviving with this disease. This book is the "heart and soul' story of a woman who has beaten the odds of not only surviving with this inherited chronic illness, but she has surpassed the average lifespan of 45 years of age. Judy G. Johnson budgeted her energy and sustained the pain to educate herself and retired as a school teacher. As a single parent, she encouraged her daughter throughout her career to be the best she could be. Today, her daughter is a clinical therapist with a PhD in private practice. In Living with SICKLE CELL: The Inside Story you will discover that: - It's a war cry to bring awareness to the disease - Looks can be deceiving, pain is not visual - It dispels the myth of laziness - Majority of Sickle Cell survivors are not "drug addicts" - Sickle Cell Disease (Disorder) is not just an African American disease (every ethnic group can be a carrier) - Regardless of your ethnicity, everyone should have a Hemoglobin Electrophoresis blood test
Download or read book Sickle Cell Pain written by Samir K. Ballas and published by Lippincott Williams & Wilkins. This book was released on 2015-06-01 with total page 1004 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
Download or read book Hope and Destiny written by Allan F. Platt and published by Hilton Publishing. This book was released on 2002 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: An up-to-date, informative, and personal discussion of sickle-cell anaemia, this guide provides information on medically proven methods of treatment along with patient vignettes. Written primarily for African Americans, who comprise the majority of the victims of sickle-cell anaemia, this handbook for patients and those who live or work with them examines the complex issues that surround this genetic disease. Advice on dealing with the physical suffering, inability to work, quality of life issues, and premature death that affect sickle-cell patients is offered in layman's terms to aid patients and caregivers in making informed decisions.
Download or read book Burning Bright written by Maryam Awaisu and published by iUniverse. This book was released on 2014-11-13 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt: Burning Bright is not a story about statistics, but of an over-achieving young lady, who is determined not to let sickle cell anemia stand in her way. Without notice, difficulties that Nadia Habeeb did not foresee complicate her health and love life, changing everything immensely. With the walls of life itself closing in on her, will she stand conqueror this time? If she does, what will be her fate back home in Nigeria, with a closed-off heart, and physical challenge? This is a story of a family struggling to maintain faith and hope in the face of severe emotional challenges, social upheaval, medical necessity, and the paradox of humanity. Set within the complexities of Nigerian culture, it is the story of young people trying to make their way in a world they didn't make. It is also a story of pain and redemption, of love lost and found, generational conflict, and the emergence of true faith.
Download or read book Sickle Cell Natural Healing written by Tamika Moseley and published by AuthorHouse. This book was released on 2013-09-26 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: After spending every three months of her newborn's life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son's debilitating disease. Three years since she started using herbs to minimize his sickle cell crises, her son is living a normal, healthy and pain-free life. Whether you have sickle cell disease or the trait, this book will show you what your body needs and how to treat your symptoms so that pain is no longer a part of your vocabulary. As Tamika likes to say, "Knowledge is power!" Sickle Cell Natural Healing: A Mother's Journey gives you the benefit of the wisdom one fearless and determined mother collected so that others suffering with this disease can thrive.
Download or read book Survival of the Sickest LP written by Dr. Sharon Moalem and published by Harper Collins. This book was released on 2007-05-22 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Was diabetes evolution's response to the last Ice Age? Did a deadly genetic disease help our ancestors survive the bubonic plagues of Europe? Will a visit to the tanning salon help lower your cholesterol? Why do we age? Why are some people immune to HIV? Can your genes be turned on—or off? Survival of the Sickest is fi lled with fascinating insights and cutting-edge research, presented in a way that is both accessible and utterly absorbing. This is a book about the interconnectedness of all life on earth—and especially what that means for us. Read it. You're already living it.
Download or read book Meet Camden written by Ishia L. Washington-Gattis and published by AuthorHouse. This book was released on 2010-05 with total page 39 pages. Available in PDF, EPUB and Kindle. Book excerpt: This fun and knowledgeable book is about a 9 year old boy named Camden. He has Sickle Cell Anemia. This book will show Camden's courage and strength in his day to day life. It will also explain some of the things you may go through if you have Sickle Cell Anemia.
Download or read book Alexia s World written by Alexia Tennent and published by Tennflex Wellness. This book was released on 2019-11-10 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alexia's World is about a little girl living with sickle cell disease. She is passionate and full of life. While she is aware of her limitations, she places no limits on herself. She is funny, creative, energetic, bold, authentic, kind and compassionate. Her mom, who also has the disease, is her hero and best friend. Together they form a formidable team. They focus on wellness to control the symptoms of the disease. Alexia and her mom also help other children living with the disease to thrive despite the disease. The book chronicles her journey living with sickle cell disease. She speaks about the ups and downs of her life, including the struggles her family faces navigating the healthcare system and the joy of finding what has helped to improve her health-related quality of life. Alexia now lives relatively symptom free.
Download or read book ABC s of Sickle Cell Disease written by Elle Cole and published by Cleverly Changing Press. This book was released on 2021-04-15 with total page 56 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABC's of Sickle Cell Disease is a top educational resource for children with sickle cell disease. Parents, caregivers, and healthcare workers should have the book on hand to help explain how the condition works within a child's body. A recommended children's book for ages 5-12. It breaks down terms and concepts for children diagnosed with Sickle Cell Disease (SCD). The author simplified the information so even a child could understand how this genetic blood disorder affects the body. The book is an excellent tool for parents, teachers, healthcare workers, or caregivers to teach children.healthcare workers ABC'S OF SICKLE CELL DISEASE FEATURES: Beautiful original illustrations―Children learn more about Sickle Cell Disease using the letters A to Z. Large 8.5 x 11-inch pages. Educational and interesting―Each page effectively describes the blood disorder to young patients. Made for diverse families―The pages feature children, adults, and medical professionals from different ethnic groups because sickle cell disease affects families from multicultural backgrounds worldwide. Positive and inspiring―The book is a positive keepsake that gives young sickle cell warriors a chance to boost their confidence and creativity.
Download or read book Handling Sickle Cell Disease written by Yvette LaPierre and published by ABDO. This book was released on 2021-08-01 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores sickle cell disease and how people with the disease manage it. It examines how sickle cell affects daily life, work, and school, and it explains the latest treatments available. Features include a glossary, web resources, source notes, and an index. Aligned to Common Core Standards and correlated to state standards. Essential Library is an imprint of Abdo Publishing, a division of ABDO.
Download or read book Resilience written by Judy Johnson and published by Createspace Independent Publishing Platform. This book was released on 2014-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Noted author Judy Gray Johnson's first book Living With Sickle Cell Disease: The Struggle To Survive was well received. After reviewing comments, she decided that she had a lot more to say which prompted her to write Resilience: Coping with Sickle Cell Disease. This book strengthens the resolve for those suffering from sickle cell disease in particular and anyone that may have a disability. This should be recommended reading for parents, educators, and anyone in the workplace who supervise those who may be classified as disabled. In these pages you will learn: -How to effectively work with those who don't fit the mold of expectations within the family, at school, and/or the work place. -How to place responsibility for individual production on all stake holders: the disabled, the parent, the supervisor. -How to concentrate on what the disabled can do rather than on what they can't do. -How to go beyond the American for Disability Act (ADA) and feel good about it.
Download or read book The Immortal Life of Henrietta Lacks written by Rebecca Skloot and published by Crown. This book was released on 2010-02-02 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
