Download or read book Living Well with a Hidden Disability written by Stacy Taylor and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those who live with a hidden disability, such as chronic pain, depression, or a range of other conditions often misunderstood, downplayed, or even dismissed by others, this book offers practical suggestions for surviving rough times, coping with negative reactions, and dealing with employment issues, as well as strategies to manage pain, find a helpful therapist, rebuild self-esteem, and strengthen the body, mind, and soul.
Download or read book But You Look Good written by Wayne Connell and published by Invisible Disabilities Association. This book was released on 2014-09-14 with total page 84 pages. Available in PDF, EPUB and Kindle. Book excerpt: Do your loved ones have a hard time understanding your chronic illness or pain, because to them you LOOK fine? But You LOOK Good is a book that gives those living with chronic illness and pain a voice about how they feel, what they need and how others can be an encouragement to them. It is a convenient, informative way to educate loved ones about what people living with ongoing illness and pain struggle with, fight for and need from their friends and family. It is easy to read, gives practical ideas on how loved ones can be supportive and is not too long for readers to lose interest! But You LOOK Good gets to the heart of why our friends and family have difficulty with understanding ongoing illness and pain. It serves as a tool to help explain to loved ones how extreme fatigue, pain, dizziness, cognitive impairments and other symptoms can be limiting, even though the person may not look sick or in pain. Moreover, it gives them simple, pragmatic ways to truly be an encouragement, what to say, what not to say and how to help. Often loved ones are enlightened as to why their well-meaning advice is not always well-received. It is cherished by both those living with illness or injury, as well as those who love them!
Download or read book Easy to Love But Hard to Live with written by Tricia Bliven-Chasinoff and published by . This book was released on 2014-10-10 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains 35 powerful essays from adults with autism, mental illnesses, fetal alchol spectrum disorders, OCD, ADHD, and other "invisible special needs" and those who love them. These poignant, funny, heartbreaking and honest stories let mothers, fathers, brothers, sisters, lovers, husbands, wives, children and individuals with neurobehavioral disabilities themselves know that they are not alone, and that they somehow stop being important to the world when they reach adulthood. Finding that common powerful bond in a world of judgement and cruelty from those who don't understand, magically transforms the journey and makes it easier to cope. Instead of putting on appearances for others, adults with challenges and their loved ones can choose to connect with who they really are and accept their lives. "Easy To Love But Hard To Live With" is filled with poignant stories that inspire and empower. A great read for those living with a misunderstood partner, sibling, parent, child or other loved one."
Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 178 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.
Download or read book Talking Splat Communicating about Our Hidden Disabilities written by Christina Irene and published by Independently Published. This book was released on 2019-02-26 with total page 62 pages. Available in PDF, EPUB and Kindle. Book excerpt: Talking Splat: Communicating About Our Hidden Disabilities is for people with chronic illnesses, mental health diagnoses, and other invisible struggles. Our conditions are often a "moving target," meaning we never know how we're going to feel from one day to the next. The one certainty is that every day, we feel like we've been run over by something. Splat is an innovative way to communicate what that "something" is while also managing others' expectations, alleviating feelings of failure and guilt, assuring better self-care, and enabling us to establish actual routines ... at last! Written by a professional comedian and disabilities awareness trainer who lives with osteoarthritis and fibromyalgia, Talking Splat is a fast, fun, inspiring read that, if you let it, will make your life worlds better and give you your own way to make the world better for us all.
Download or read book Sick And Tired Of Feeling Sick And Tired written by Paul J Donoghue and published by W. W. Norton & Company. This book was released on 2000-10-10 with total page 310 pages. Available in PDF, EPUB and Kindle. Book excerpt: Invisible chronic illness (ICI) can manifest itself in chronic fatigue, chronic pain, and many other miseries that are often perceived and dismissed negatively, even by doctors. This book offers "an invaluable source of help and comfort" (Katharina Dalton, M.D.) to those who suffer from ICI. "Today" feature.
Download or read book Disability Visibility written by Alice Wong and published by Vintage. This book was released on 2020-06-30 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: “Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Download or read book Redefining Disability written by and published by BRILL. This book was released on 2022-02-14 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: Redefining Disability features all disabled authors and creators. By combining traditional academic works with personal reflections, graphic art, and poetry, the volume centers disability by drawing from the experiences and expertise of disabled individuals.
Download or read book Scapegoat written by Katharine Quarmby and published by Granta Books. This book was released on 2011-06-02 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: Every few months there's a shocking news story about the sustained, and often fatal, abuse of a disabled person. It's easy to write off such cases as bullying that got out of hand, terrible criminal anomalies or regrettable failures of the care system, but in fact they point to a more uncomfortable and fundamental truth about how our society treats its most unequal citizens. In Scapegoat, Katharine Quarmby looks behind the headlines to question and understand our discomfort with disabled people. Combining fascinating examples from history with tenacious investigation and powerful first person interviews, Scapegoat will change the way we think about disability - and about the changes we must make as a society to ensure that disabled people are seen as equal citizens, worthy of respect, not targets for taunting, torture and attack.
Download or read book Enabling Acts written by Lennard J. Davis and published by Beacon Press. This book was released on 2015-07-14 with total page 313 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first major behind-the-scenes account of the history, passage, and impact of the Americans with Disabilities Act (ADA)—the landmark moment for disability rights The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known. In this riveting account, acclaimed disability scholar Lennard J. Davis delivers the first on-the-ground narrative of how a band of leftist Berkeley hippies managed to make an alliance with upper-crust, conservative Republicans to bring about a truly bipartisan bill. Based on extensive interviews with all the major players involved including legislators and activists, Davis recreates the dramatic tension of a story that is anything but a dry account of bills and speeches. Rather, it’s filled with one indefatigable character after another, culminating in explosive moments when the hidden army of the disability community stages scenes like the iconic “Capitol Crawl” or an event when students stormed Gallaudet University demanding a “Deaf President Now!” From inside the offices of newly formed disability groups to secret breakfast meetings surreptitiously held outside the White House grounds, here we meet countless unsung characters, including political heavyweights and disability advocates on the front lines. “You want to fight?” an angered Ted Kennedy would shout in an upstairs room at the Capitol while negotiating the final details of the ADA. Congressman Tony Coelho, whose parents once thought him to be possessed by the devil because of his epilepsy, later became the bill’s primary sponsor. There’s Justin Dart, adorned in disability power buttons and his signature cowboy hat, who took to the road canvassing 50 states, and people like Patrisha Wright, also known as “The General,” Arlene Myerson or “the brains,” “architect” Bob Funk, and visionary Mary Lou Breslin, who left the hippie highlands of the West to pursue equal rights in the marble halls of DC.
Download or read book The Power of Disability written by Al Etmanski and published by Berrett-Koehler Publishers. This book was released on 2020-02-04 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: The author of Impact uses this compilation of inspiring stories of disabled people to convey ten important life lessons to help anyone. This book reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. They are among our most popular comedians, poets, and storytellers. And at 1.2 billion, they are also the largest minority group in the world. Al Etmanski offers ten lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of one hundred individuals from twenty countries. Some are familiar, like Michael J. Fox, Greta Thunberg, Stephen Hawking, Helen Keller, Stevie Wonder, and Temple Grandin. Others deserve to be, like Evelyn Glennie, a virtuoso percussionist who is deaf—her mission is to teach the world to listen to improve communication and social cohesion. Or Aaron Philip, who has revolutionized the runway as the first disabled, trans woman of color to become a professional model. The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, love, sexuality, resistance, dealing with adversity, and living a good life. “This book reminds us of what we have in common: the power to create a good life for ourselves and for others, no matter what the world has in store for us.” —Michael J. Fox “Hopefully the universal lessons in this book will not only empower all of us to trampoline to our highest potential but also move the global disability rights movement to achieve the success it fully deserves—so we can all live in a more just and equitable world.” —Susan Sygall, disability activist and MacArthur fellow “Etmanski engages every reader, whether new to the world of disability or an old hand, with thoughtful insights on the value of difference. This book made me laugh, made me cry, made me proud.” —Yazmine Laroche, former chair, Muscular Dystrophy Canada
Download or read book Living Well with a Disability written by Barbara Walsh-McCaffrey and published by Independently Published. This book was released on 2021-03-31 with total page 96 pages. Available in PDF, EPUB and Kindle. Book excerpt: Barbara is no stranger to challenges in her life. Her first book, Overcoming Underachievement, depicts very well the problems she faced in high school and how and why she was able to achieve her goals in life. Her life hit another milestone when she was diagnosed with a serious illness called late onset Friedreich's Ataxia. It is a form of Muscular Dystrophy that is progressive and currently Barbara is in a wheelchair. Living Well with a Disability reflects her attitude, fears, hopes, and dreams. The book is a realistic approach to understanding disabilities and some of the pain and mental strife involved in moving on and finding happiness again through options, careers, faith, family, and friends. Barbara has many feelings of happiness and gratitude in her daily living and shares the importance of those emotions with you. Most of all, the book was written for you, your family members, and caregivers to know and understand that we certainly appreciate all they do for us, and we get it that there is sorrow in watching a loved one struggle. Welcome to Life! Let's express happiness when we can.
Download or read book Can t Sit written by Rick Lunkenheimer and published by . This book was released on 2018-01-04 with total page 172 pages. Available in PDF, EPUB and Kindle. Book excerpt: Memoir of how a the inability to sit for long periods of time has affected my life.
Download or read book Living the Invisible Disability written by Hannah Andrusky and published by . This book was released on 2014-04-21 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This portrait of many months recovering has much to teach the physicians as well as lay readers. The condition she struggled with is neither rare nor trivial, but unfortunately, remains medically unaddressed." - Bruce Beutler Nobel Prize Winner & Laureate 2011. "As a close friend to Hannah and no stranger to brain injuries after playing in the NFL as a wide receiver for the Buffalo Bills for sixteen years and being ranked 10th in NFL history, I watched Hannah regress slowly. I had just lost my friend, Junior Seau, to suicide resulting from a brain injury. I couldn't sit back and let her fall too. Today, the controversy over concussions and post concussion syndrome is growing rapidly. This timely book sheds a light for all those who have suffered from it." - Andre Reed NFL Hall of Fame 2014.
Download or read book Winning the Disability Challenge written by John F. Tholen and published by . This book was released on 2008 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nobody wants to believe it could ever happen to them. Whether you're on the job or at home, the threat of receiving a disabling injury is omnipresent anytime or anywhere in our lives. Our ability to work and live the daily life we often take for granted can all be taken away in an instant, leaving those of us suffering from physical or occupational disabilities feeling withdrawn, helpless and depressed. Now all that can change. In his inspiring book, Winning The Disability Challenge: A Practical Guide to Successful Living, renowned psychologist John F. Tholen, Ph.D. provides a fresh, positive outlook on living life as a disabled individual through: Tips on how fulfilling life experiences can be achieved after becoming permanently disabled. Essential guidelines to help the disabled navigate and negotiate the complex worlds of private insurance companies, Social Security, Medicare, Medicaid, VA Benefits, Federal and State Disability along with its subsequent maze of bureaucratic red tape. 100 affirmations that can be a source of comfort and help in getting back on track, even at times of great discouragement. Simpe, manageable methods for improving health, managing pain, curing insomnia and coping with various depressive, distressing symptoms.
Download or read book To the Left of Inspiration written by Katherine Schneider and published by Dog Ear Publishing. This book was released on 2005 with total page 128 pages. Available in PDF, EPUB and Kindle. Book excerpt: When is the last time you've read an honest, funny book about living with disabilities? To the Left of Inspiration: Adventures in Living with Disabilities is just such a book. Fifty-four million Americans have chronic illnesses or disabilities requiring them to make accommodations in the ways they live their lives. You may have students, customers, and clients with disabilities and want to interact with them knowledgeably and sensitively. Or perhaps you are adjusting to a new illness or disability and have accepted that it's a whole new world you are entering. You'll learn from a woman blind from birth about activities of daily life, like talking to children about disabilities, traveling, going to church, and working. Kathie's life experiences highlight the warmth and humor in everyone's struggles to be humane with each other, whether we are temporarily able-bodied or disabled. Disabilities can be more than adjusted to; they can be mined for pearls and Kathie shares some of hers with you. Kathie is a guide, familiar with the territory, who will walk beside you as you negotiate your new world. You won't learn how to overcome your disability, but you will laugh in recognition and hope as you read To the Left of Inspiration. Come along with Kathie and her Seeing EyeT dog on their adventures; your life will be enriched. Katherine Schneider has been blind since her premature birth in 1949 and has had fibromyalgia for over ten years. She was the first blind student to graduate from the Kalamazoo, Michigan public school system in 1967 and was a valedictorian as well as a National Merit scholar. Three years later she graduated with honors from Michigan State University with a BS in psychology. After receiving her PhD in clinical psychology from Purdue University, she has worked at four universities: three of them public and one private. She has taught psychology courses from freshman psychology to the graduate level and has counseled, supervised, and administered university counseling services. Kathie has presented papers at national professional meetings and authored articles and book chapters on such topics as counseling people with disabilities and religion and visual impairment. She has won awards for her professional work from the Courage Center, the University of Wisconsin-Eau Claire, and the University of Wisconsin System Regents, among others. Katherine has recently retired and is enjoying serving on seven state and local boards (at least she's never bored), reading novels, and trying to live the Red Hat(R) philosophy. She is proud to have been a Seeing EyeT dog user for the past thirty years.
Download or read book Living Well Spending Less written by Ruth Soukup and published by HarperChristian + ORM. This book was released on 2014-12-30 with total page 149 pages. Available in PDF, EPUB and Kindle. Book excerpt: “If you struggle to simplify your life and wish you could savor the here and now, this book is a must-read.” —Crystal Paine, founder of MoneySavingMom.com and New York Times–bestselling author Have you ever felt that your life—and budget—is spiraling out of control? Do you sometimes wish you could pull yourself together but wonder exactly how to manage all the scattered pieces of a chaotic life? Is it possible to find balance? In a word, yes. Ruth Soukup knows firsthand how stressful an unorganized life and budget can be. Through personal stories, biblical truth, and practical action plans, she will inspire you to make real and lasting changes to your personal goals, home, and finances. With honesty and the wisdom of someone who has been there, Ruth will help you: Discover your “sweet spot” —that place where your talents and abilities intersect. Take back your time and schedule by making simple shifts in your daily habits. Reduce stress in your home and family by clearing out the clutter. Stop busting your budget and learn to cut your grocery bill in half. This book provides real and practical solutions from someone who has been there. Ruth doesn’t just offer advice, she walks it with you, and shares with brutal honesty her own mistakes, failures, and shortcomings. It is encouraging, motivating, and life-changing. “An inspiring book full of step-by-step instructions and spiritual wisdom. I love how Ruth is transparent about her mistakes as she leads us to reevaluate our priorities. This book is a great biblical guide to living well and finding joy!” —Courtney Joseph, founder of Women Living Well Ministries
