Download or read book Living the Sickled Life written by Bryan Ballard and published by . This book was released on 2022-06-19 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell is a inherited blood disease that causes problems throughout ones life. These problems could be minor or even life threatening. This particular warrior puts on an unimaginable fight with Sickle Cell. Including ups and downs throughout his life that even doctor's are shocked he is still here to tell his story on how he is... "Living the Sickled Life"

Download or read book Living with and Surviving Sickle Cell Disease written by Juanita McClain and published by Xlibris Corporation. This book was released on 2017-07-24 with total page 30 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with and surviving Sickle cell disease is an autobiography written about the life of a girl who fights to survive a chronic illness that she was diagnosed with at birth. She lives her life in fear of dying from this horrific disease. Instead of giving up and letting the disease conquer her she chooses to take a stand and fight instead. She uses her experiences as motivation to write about what she has been through and inspire the lives of many people. The book offers many miraculous stories and different scenarios of ups and downs in her life. The book is very informational, educational, moving, and inspirational to anyone who is going through some of the same experiences and even those who are not. The book will no doubt leave a lasting impression about the author.

Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.

Download or read book Alexia s World written by Alexia Tennent and published by Tennflex Wellness. This book was released on 2019-11-10 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alexia's World is about a little girl living with sickle cell disease. She is passionate and full of life. While she is aware of her limitations, she places no limits on herself. She is funny, creative, energetic, bold, authentic, kind and compassionate. Her mom, who also has the disease, is her hero and best friend. Together they form a formidable team. They focus on wellness to control the symptoms of the disease. Alexia and her mom also help other children living with the disease to thrive despite the disease. The book chronicles her journey living with sickle cell disease. She speaks about the ups and downs of her life, including the struggles her family faces navigating the healthcare system and the joy of finding what has helped to improve her health-related quality of life. Alexia now lives relatively symptom free.

Download or read book Living with Sickle Cell written by Judy Gray Johnson and published by . This book was released on 2015-09-15 with total page 150 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell is often thought of as the "invisible disease." It affects every organ in the body, yet no one would ever know unless there is a crisis. Living with Sickle Cell: The Inside Story will help you understand the struggle of surviving with this disease. This book is the "heart and soul' story of a woman who has beaten the odds of not only surviving with this inherited chronic illness, but she has surpassed the average lifespan of 45 years of age. Judy G. Johnson budgeted her energy and sustained the pain to educate herself and retired as a school teacher. As a single parent, she orchestrated her daughter's career and today her daughter is a clinical therapist with a PhD in private practice. In Living with Sickle Cell: The Inside Story you will discover that: It's a war cry to bring awareness to the disease Looks can be deceiving, pain is not visual It dispels the myth of laziness Majority of Sickle Cell survivors are not "drug addicts" Sickle Cell Disease (Disorder) is not just an African American disease (every ethnic group can be a carrier) Regardless of your ethnicity, everyone should have a Hemoglobin Electrophoresis blood test

Download or read book The Monster Within Me written by Juanita McClain and published by Xlibris Corporation. This book was released on 2018-02-28 with total page 23 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Monster Within Me is about a child who is born with a genetic blood disorder called sickle cell disease. She fears the disease because of the pain and other effects it causes her. And even though this monster will always live inside of her, she doesnt let it stop her from living a fulfilling life.

Download or read book Sickle Cell Natural Healing written by Tamika Moseley and published by AuthorHouse. This book was released on 2013-09-26 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: After spending every three months of her newborn's life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son's debilitating disease. Three years since she started using herbs to minimize his sickle cell crises, her son is living a normal, healthy and pain-free life. Whether you have sickle cell disease or the trait, this book will show you what your body needs and how to treat your symptoms so that pain is no longer a part of your vocabulary. As Tamika likes to say, "Knowledge is power!" Sickle Cell Natural Healing: A Mother's Journey gives you the benefit of the wisdom one fearless and determined mother collected so that others suffering with this disease can thrive.

Download or read book Living Well With Sickle Cell Anemia written by Ebun Ekunwe and published by . This book was released on 2018-03-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: To look at me, you cannot tell that I was born with sickle cell anemia. At 70 years of age, I am living healthy and pain-free in spite of having grown up with severe debilitation.What is my secret? There is a body of scientific knowledge on how nutrition impacts our genetic code. With my insight as a medical doctor, I have discovered the secret of living well with hereditary diseases, with special reference to sickle cell disorders. In the past decade, I have studied and practiced to perfect this strategy. "Living Well With Sickle Cell Anemia: One Doctor's Story" is a description of how you too can perfect it to enhance your health. Soon after you get your hands on this book, the insights contained in it will ensure that you too start to live healthy and pain-free. In the book, you get the advantage of over a decade's worth of study and practice. Before too long, you (or your loved one, if you are also getting them a copy) will almost forget that you have sickle cell disease.When asked how you are coping with sickle cell anemia, your response will be "What sickle cell?" Enjoy your life!I am enjoying mine, sickle cell notwithstanding.

Download or read book Surviving Sickle Cell written by Kalysia Johnson and published by AuthorHouse. This book was released on 2020-10-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!

Download or read book A Sick Life written by Tionne "T-Boz" Watkins and published by Rodale. This book was released on 2017-09-12 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: A candid memoir of fame, strength, family, and friendship from the lead singer of TLC As the lead singer of Grammy-winning supergroup TLC, Tionne "T-Boz" Watkins has seen phenomenal fame, success, and critical acclaim. But backstage, she has lived a dual life. In addition to the balancing act of juggling an all-consuming music career and her family, Tionne has struggled since she was a young girl with sickle-cell disease--a debilitating and incurable condition that can render her unable to perform, walk, or even breathe. A Sick Life chronicles Tionne's journey from a sickly young girl from Des Moines who was told she wouldn't live to see 30 through her teen years in Atlanta, how she broke into the music scene, and became the superstar musician and sickle-cell disease advocate she is today. Through Tionne's tough, funny, tell-it-like-it-is voice, she shares how she found the inner strength, grit, and determination to live her dream, despite her often unpredictable and debilitating health issues. She dives deep into never-before-told TLC stories, including accounts of her friendship with Lisa "Left-Eye" Lopes and her tragic death. Tionne's unvarnished discussion of her remarkable life, disease, unending strength, and ability to power through the odds offers a story like no other.

Download or read book Life Has an Ugly Face Living with Sickle Cell Anemia written by Carol Sapp-Burnside and published by Xulon Press. This book was released on 2012-12-01 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hello readers, I am the author of "Life has an Ugly Face, Living with Sickle Cell Anemia." I was diagnosed with the disease at the tender age of seventeen, although symptoms started as early as nine years of age. I am a wife, mother of two children, grandmother to six beautiful intelligent grandchildren, and an evangelist evangelizing out of my home church. I dedicated my life to the Lord at the young age of 12. I could always feel God's presence in my life even when I didn't know it was him. I am a person who truly loves the Lord God and I am grateful for his love, kindness, tender mercies, and healing blessings in my life. Thank you for taking the time to share this journey with me. God bless each and every one of you.

Download or read book Victory In Christ Against All Odds written by Suzzy Sone Muke and published by . This book was released on 2021-02-09 with total page 150 pages. Available in PDF, EPUB and Kindle. Book excerpt: Victory in Christ against all odds is a book written out of compassion and experience.Suzzy did her best to shed light and bring sickle cell anemia (ss), to the forefront so other people can become aware of this global issue, in order to take action so we all can work together to effectuate a change. In this book Suzzy shared, what sickle cell pain feels like and how it impacts the daily lives of its sufferers and the struggles. Suzzy is equally (ss) carrier who wants to give (ss) patients another voice to be heard, to ensure they all get the necessary medical attention they deserve. Educating people about the chronic effects of this disease, giving them a chance to walk in their shoes, albeit for a minute, so they can have a little glimpse of what it is like for someone to live with sickle cell.Most importantly this book was written for every sickle cell patient to understand in spite of all the pains and struggles they face, we all are more victorious, we can excel in everything through Christ who gives us strength.This book is a must read, for everyone.Enjoy

Download or read book Breaking Silence written by James Griffin and published by CreateSpace. This book was released on 2015-03-30 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: This powerful book gives you a behind the scenes look at what it's like to live with the chronic illness, Sickle Cell Anemia. Diagnosed at the tender age of two James faced many daily obstacles and challenges because of his condition but stayed determined not to let it define him. Out of the fear of being judged and looked upon negatively by others, James worked diligently to keep his health a secret and chose never to discuss it openly with anyone. Now with his first published book Breaking Silence: Living With Sickle Cell Anemia, he's done the unthinkable by opening up and revealing all about his illness. As you read this book you will be taken on a personal journey through the life of James as he brings you closer to him by giving you candid stories of his childhood, relationships, and how he's dealt with having sickle cell anemia. His unique style of writing along with the raw and uncut message that he delivers will keep you engaged as a reader. This book is highly recommended for anyone going through their own battles with sickle cell anemia, anyone who knows someone with sickle cell anemia, or anyone who's ever heard of it and wants to learn more about the condition.

Download or read book Hope and Destiny written by Allan F. Platt and published by Hilton Publishing. This book was released on 2002 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: An up-to-date, informative, and personal discussion of sickle-cell anaemia, this guide provides information on medically proven methods of treatment along with patient vignettes. Written primarily for African Americans, who comprise the majority of the victims of sickle-cell anaemia, this handbook for patients and those who live or work with them examines the complex issues that surround this genetic disease. Advice on dealing with the physical suffering, inability to work, quality of life issues, and premature death that affect sickle-cell patients is offered in layman's terms to aid patients and caregivers in making informed decisions.

Download or read book Understanding Sickle Cell Disease written by Miriam Bloom and published by Univ. Press of Mississippi. This book was released on 2009-10-20 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although more is known about sickle cell disease than about any other inherited disease, no cure for it exists. In America alone, about one in 375 who are of African ancestry is born with sickle cell disease. A smaller number of Americans descended from families from the Mediterranean area, the Middle East, and India also are affected. In addition, about eight percent of black Americans who do not suffer from the disease itself carry the gene for it that can be transmitted to their children. Sickle cell disease is of enormous biological, social, and historic importance. It was first described in medical literature almost a century ago. Improvements during the past two decades in our understanding of the disease and in medical care are permitting those afflicted to live longer, more comfortable and more productive lives. This book was written for all who are interested in this disease--those who have it, their families, the carriers of the sickle cell gene, teachers, and those who wish to update their information about it. This overview of sickle cell disease explains what it is and how it is inherited, as well as the relationship between the sickle cell gene and its geographic origins, the way the gene has been spread throughout history, and the effect of sickle cell hemoglobin on red blood cells that carry it. Understanding Sickle Cell Disease describes the variety of symptoms in both children and adults and details the emotional aspects of the disease. Of particular interest is a chapter on the care, especially the home care, of those who are affected. This book explains how it is possible today for couples carrying the genes to raise families free of the disease. Although there is no known cure for sickle cell disease, there is little doubt that one will ultimately be devised. This volume surveys current research efforts and the promise they hold.

Download or read book I Am a Living Testimony written by Bolaniran Deji-Adeyale and published by . This book was released on 2021-02-12 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: When asked what my reason for telling this story is, I said I only want to inspire and encourage other people facing the samechallenge, make them live life to the fullest with the people they love. Encourage them to love, laugh, play and share like they were as fit as a fiddle. There's a good that has come out of my experience with sickle-cell anaemia, and that's the privilege to counsel and be a muse of hope to children with the disorder. Nothing beats the joy of earning their parents' trust in this regard. Trust me.So, I thought "why not write my experience, so I can reach a larger audience, and spread this hope?" Why not reach other Sickle Cell Warriors with this one message: the doctor's report doesn't define you. Rather, embracing God's word for your life is, of all things, most important. I am a living witness to this! We are overcomers...we are warriors.... weare survivors!"For I know the plans I have for you, declares the LORD plans to prosper you and not to harm you, plans to give you hope and a future" (Jeremiah29:11).Furthermore, sickle cell patients are not abnormal people, the illness is not a curse and it is wrong to believe that investing in a child with the disorder is a waste of financial resources. With access to quality care, the symptoms can be controlled and disease complications managed such that sickle cell patients can live normally, even to old age. It is this positive message that I am so happy to share with my fellow survivors and the world: that they, too, can be all they want to be in life.Finally, this book is driven by a deep sense of gratitude for life and is a call of hope to all Sickle Cell Warriors to takethe life they have been given and make the most of it. For as long as there is breath in man, there is a bigger picturealready painted that in which there are no limitations to what can be achieved in between the doctor's visits and frightening episodes that leave you wishing you could do more.Of course, the challenges exist. And, for people like us, our life is rife with them, but everything works out an awesome victory for us, by God himself. Come to think of it? Without these obstacles, we'll never discover our incredible ability tobeat them, and come out dancing still? If God is by your side, you will beat any challenge.

Download or read book The Real Life Stories Of Sickle Cell A Global Collaboration written by Agnes Nsofwa and published by . This book was released on 2023-09-30 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: It's deemed the world's most common genetic disorder, but why is sickle cell disease still not fully understood in communities where it's very prevalent. The Real-Life Stories of Sickle Cell - A Global Collaboration presents stories from different parts of the world to enlighten us about the effects of this condition. Stories from sickle cell warriors, caregivers, healthcare professionals, and advocates capture these people's understanding and awareness of Sickle Cell Disease. You will read stories of hope, resilience, frustration, and sadness as we strive to bring these stories to the world. Although being the most common disorder, what this project taught us was that even people living with sickle cell disease do not get adequate treatment in most parts of the world. Sickle cell warriors are still stigmatised in different parts of the world. That sickle cell warriors would rather hide from peers or employers that they are affected, fearing the treatment they may receive. We have learned of warriors bearly getting adequate treatment because it's simply not available in their area. These stories will give you that understanding of how much we still need to do as a sickle cell community, to double our efforts to support people impacted from different parts of the world, especially developing countries.