Download or read book Living Life to the Fullest written by Kirsty Liddiard and published by Emerald Group Publishing. This book was released on 2022-05-09 with total page 183 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living Life to the Fullest forges new understandings of the lives, hopes, and desires of children and young people with ‘life-limiting’ or ‘life-threatening’ impairments. Aimed at undergraduate students, this book contributes to contemporary political and theoretical debates about the human in an age of global precarity and austerity.

Download or read book Symptomatic written by Clair A. Francomano and published by Elsevier. This book was released on 2023-12-05 with total page 662 pages. Available in PDF, EPUB and Kindle. Book excerpt: Symptomatic: The Symptom-Based Handbook for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders offers a novel approach structured around the panoply of 75 symptoms with which a person with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) may present to a clinician. The content is arranged intuitively from head to feet, with each chapter integrating clinical case studies with a concise discussion and two important diagnostic tools: a simplified algorithm for diagnosing and treating each symptom and differential diagnoses and alternative explanations for their symptoms. This is a handbook that combines the expertise of some 70 leading clinicians, representing more than 30 specialties. This book is suited for clinicians who need a concise and straight-forward presentation of the various and complex symptoms they confront in their clinical practice. It brings forth a field of knowledge emerging from interdisciplinary collaboration despite the pressures of specialization that bridges gaps in understanding between the several dozen disciplines implicated in EDS and HSD. • A comprehensive compendium of the symptoms of EDS and HSD to aid clinicians and patients• Symptom-based chapters for ease of making a diagnosis• A case report, differential diagnosis, discussion, and diagnostic and treatment algorithm for each symptom

Download or read book A Guide to Living with Ehlers Danlos Syndrome Hypermobility Type written by Isobel Knight and published by Singing Dragon. This book was released on 2014-12-21 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: Covering everything from recognising symptoms and obtaining initial diagnosis to living with the condition on a daily basis, this complete guide to living with and managing Ehlers-Danlos Syndrome (Hypermobility Type - formerly known as Type III) has been revised and fully-updated in this accessible new edition. The author, who has the condition, looks at how it affects children and adolescents and explores pain management, pregnancy, physical and psychological aspects, and how it widely affects dancers and other performance artists. New material includes: changes in terminology information on how osteopathy and nutrition can help psychological approaches beyond CBT how to deal with professionals what to expect from support groups and rehabilitation programmes This new edition will be a must for anybody who suffers, or suspects they might be suffering from, Ehlers-Danlos Syndrome (Hypermobility Type) and provides everything needed to enjoy a fulfilling life with this complex condition. It will also be of interest to their families and friends, and professionals working with Hypermobility Type EDS.

Download or read book The Trifecta Passport Tools for Mast Cell Activation Syndrome Postural Orthostatic Tachycardia Syndrome and Ehlers Danlos Syndrome written by Amber Walker and published by Amber Walker. This book was released on 2021-01-27 with total page 503 pages. Available in PDF, EPUB and Kindle. Book excerpt: The “trifecta” refers to three conditions that commonly occur together: mast cell activation syndrome (MCAS), postural orthostatic tachycardia syndrome (POTS) and the hypermobile type of Ehlers-Danlos syndrome (hEDS). These three conditions are gradually becoming more recognized in the mainstream medical world as more and more patients find themselves struggling with debilitating and often mysterious symptoms. However, recognizing these conditions is only the first step on the healing journey. With the right approach and toolbox, patients can reverse many of these symptoms to find lasting vitality. Written by a Doctor of Physical Therapy who has additional certifications in functional medicine and nutrition and extensive experience in working with these conditions, this book serves as patient guide that empowers individuals to put all of the puzzle pieces together as part of an individualized healing plan. Part One (3 chapters) is an overview of the three trifecta conditions, and Part Two (9 chapters) outlines the important pillars of an essential plan to address any (or all) of these conditions holistically. The book wraps up with a chapter of patient case stories. Accompanying the purchase of this book is access to a free 20-page PDF document that serves as a customizable workbook for readers to use as they read along. The Trifecta Passport dives into topics such as nervous system regulation, mold and other biotoxins, nutrition, exercise, detoxification, mental/emotional health and trauma, structural/musculoskeletal issues and the many underlying root issues (related to hormones, bacterial/viral load, gut health, etc.) that can trigger or exacerbate these conditions. This resource unpacks many different tools and practical treatment options that should be on the radar of patients living with these (and other) chronic conditions. When faced with these labels, it can be overwhelming to weed through all the resources out there to figure out how to move forward with a comprehensive and personalized road map. By helping readers put it all together in an organized manner, this book is a great resource for any patient with chronic illness as well as the caregivers and doctors who support them.

Download or read book Chinese Medicine and the Management of Hypermobile Ehlers Danlos Syndrome written by Paula Bruno and published by Singing Dragon. This book was released on 2023-09-21 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hypermobility syndromes are more common, complex and varied than most practitioners realise. Every hypermobile patient is unique, and therefore challenging to treat using a pre-set paradigm or protocol. The hEDS population can be underserved by Western medicine and there is much that Chinese medicine can do for this community. This book is one of the first of its kind - a Chinese Medicine text focusing specifically on hypermobile Ehlers-Danlos Syndrome. Presenting existing bio-medical narratives before providing an in-depth exploration of the Chinese Medicine paradigms, this guide gives an overview of comprehensive treatment scenarios and addresses issues faced by EDS patients including pain management, psycho-emotional challenges, disruption of gut health, and chronic inflammation, including post-Lyme syndrome.

Download or read book PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR EHLERS DANLOS SYNDROME written by Edenilson Brandl and published by Edenilson Brandl. This book was released on with total page 1475 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers-Danlos Syndrome (EDS) is a complex, hereditary connective tissue disorder that affects many aspects of an individual’s physical health, ranging from joint pain to vascular complications. Beyond the physical challenges, EDS brings profound emotional and psychological burdens, including chronic pain, social isolation, anxiety, and the strain of living with a condition that often goes misunderstood or misdiagnosed. As individuals with EDS navigate their unique experiences, their psychological well-being can often be overshadowed by the focus on physical health. However, mental health plays a critical role in managing chronic conditions like EDS. This book was born from the recognition of the need for psychological support tailored specifically to individuals living with EDS, using Cognitive Behavioral Therapy (CBT) as a key framework to improve emotional resilience and mental health outcomes. Cognitive Behavioral Therapy, with its structured approach to managing thoughts, behaviors, and emotions, has proven to be an effective tool in helping individuals cope with a variety of mental health challenges. In the context of EDS, CBT offers strategies for managing chronic pain, dealing with the emotional toll of frequent medical interventions, and learning how to balance the reality of the condition with hope and quality of life. This book aims to bridge the gap between medical treatment and mental health support for EDS, providing practical tools, techniques, and strategies that can be adapted to each person’s journey. Throughout the chapters, you will find a comprehensive exploration of Ehlers-Danlos Syndrome, insights into the psychological impact of living with a genetic disorder, and actionable CBT strategies designed to help individuals manage not only the physical but also the emotional complexities of their condition. From pain management to cognitive restructuring, and from dealing with trauma to building a resilient mindset, this book is intended to serve as a guide for individuals with EDS, their caregivers, and the professionals who support them. My hope is that this book will provide valuable support, foster a deeper understanding of the intersection between physical and mental health, and, ultimately, empower individuals with EDS to take charge of their psychological well-being. While the journey with EDS may be filled with challenges, it is also one that can be navigated with strength, resilience, and hope—with the right tools in hand. This book is dedicated to all those living with Ehlers-Danlos Syndrome, their families, and the medical professionals who work tirelessly to support them. May this guide be a source of comfort, knowledge, and empowerment in your journey.

Download or read book Connective Tissue and Its Heritable Disorders written by Peter M. Royce and published by John Wiley & Sons. This book was released on 2003-04-14 with total page 1201 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Second Edition of Connective Tissue and Its Heritable Disorders: Molecular, Genetic, and Medical Aspects is the definitive reference text in its field, with over 40% more pages on the nature, diagnosis, and treatment of disease than its predecessor. Collecting new research on disorders detailed in the first edition as well as on those previously excluded, editors Peter Royce and Beat Steinmann provide the most up-to-date clinical and scientific information for medical specialists treating affected individuals. Features of this revised and updated volume include detailed reviews of the clinical diagnosis, mode of inheritance, risk of recurrence, and prenatal diagnosis of each inherited connective tissue disorder; a thorough description of the morphology of connective tissues; a completely updated and revised section on the biology of the extracellular matrix; and the addition of syndromes such as craniosyntosis, and disorders of sulfate metabolism.

Download or read book Management of Genetic Syndromes written by Suzanne B. Cassidy and published by John Wiley & Sons. This book was released on 2011-09-20 with total page 1678 pages. Available in PDF, EPUB and Kindle. Book excerpt: The bestselling guide to the medical management of common genetic syndromes —now fully revised and expanded A review in the American Journal of Medical Genetics heralded the first edition of Management of Genetic Syndromes as an "unparalleled collection of knowledge." Since publication of the first edition, improvements in the molecular diagnostic testing of genetic conditions have greatly facilitated the identification of affected individuals. This thorough revision of the critically acclaimed bestseller offers original insights into the medical management of sixty common genetic syndromes seen in children and adults, and incorporates new research findings and the latest advances in diagnosis and treatment of these disorders. Expanded to cover five new syndromes, this comprehensive new edition also features updates of chapters from the previous editions. Each chapter is written by an expert with extensive direct professional experience with that disorder and incorporates thoroughly updated material on new genetic findings, consensus diagnostic criteria, and management strategies. Edited by two of the field's most highly esteemed experts, this landmark volume provides: A precise reference of the physical manifestations of common genetic syndromes, clearly written for professionals and families Extensive updates, particularly in sections on diagnostic criteria and diagnostic testing, pathogenesis, and management A tried-and-tested, user-friendly format, with each chapter including information on incidence, etiology and pathogenesis, diagnostic criteria and testing, and differential diagnosis Up-to-date and well-written summaries of the manifestations followed by comprehensive management guidelines, with specific advice on evaluation and treatment for each system affected, including references to original studies and reviews A list of family support organizations and resources for professionals and families Management of Genetic Syndromes, Third Edition is a premier source to guide family physicians, pediatricians, internists, medical geneticists, and genetic counselors in the clinical evaluation and treatment of syndromes. It is also the reference of choice for ancillary health professionals, educators, and families of affected individuals looking to understand appropriate guidelines for the management of these disorders. From a review of the first edition: "An unparalleled collection of knowledge . . . unique, offering a gold mine of information." —American Journal of Medical Genetics

Download or read book Selected Papers from CUBANNI 2017 The Fourth International Workshop of Neuroimmunology written by Maria De los Angeles Robinson Agramonte and published by MDPI. This book was released on 2019-02-04 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Selected Papers from CUBANNI 2017—“The Fourth International Workshop of Neuroimmunology” " that was published in Behavioral Sciences

Download or read book ADVANCED TREATMENT FOR EHLERS DANLOS SYNDROME APOMETRY NLP REGRESSION AND HYPNOSIS written by Thor Otto Alexsander and published by Edenilson Brandl. This book was released on with total page 711 pages. Available in PDF, EPUB and Kindle. Book excerpt: Welcome to "Treatment for Ehlers-Danlos Syndrome: Apometry, NLP, Regression, and Hypnosis." In the pages that follow, we embark on a journey into the realm of healing, exploring a comprehensive approach to tackling the challenges presented by Ehlers-Danlos Syndrome (EDS) through innovative techniques and holistic methodologies. Ehlers-Danlos Syndrome is a complex genetic disorder that affects connective tissues, presenting a wide array of physical and often unseen challenges. This book does not claim to be a replacement for medical advice or treatment but instead aims to supplement traditional approaches with alternative and complementary methods that tap into the potential of the human mind, body, and spirit. The Power of Apometry, NLP, Regression, and Hypnosis Our exploration begins with Apometry, a technique that harnesses the power of intention and energy to influence the body's natural healing processes. We delve into the capabilities of Apometry and its potential applications in the realm of EDS treatment. Alongside, we explore Neuro-Linguistic Programming (NLP), Regression, and Hypnosis, each offering unique avenues for addressing the physical, emotional, and psychological aspects of EDS. A Holistic Approach The heart of this book lies in the integration of various therapeutic modalities, creating a holistic tapestry that supports individuals on their healing journey. From understanding the intricacies of Apometry and crafting effective healing commands, to guiding the reader through step-by-step healing sessions, our aim is to provide practical tools for both practitioners and those seeking self-improvement. Unveiling the Unseen As we navigate the realms of spiritual healing, consciousness, and the subconscious mind, we acknowledge the profound interconnectedness between physical health and the intangible aspects of human experience. Through regression and hypnosis, we delve into the past to seek healing for the present, unveiling the potential for transformation. Beyond Boundaries This book does not shy away from pushing boundaries. We explore the intersections of Apometry with genetics, psychology, parapsychology, and even intergalactic beings. By intertwining these seemingly disparate fields, we aim to expand the horizons of healing possibilities. A Call to Empowerment Ultimately, this book is an invitation to empowerment. It is a call for readers to explore the depths of their own potential for healing, growth, and transformation. It is a testament to the remarkable capacities of the human mind and the extraordinary abilities we possess when we embark on a journey of self-discovery and healing. A Collaborative Effort The creation of this book was a collaborative effort, drawing upon insights from various disciplines, research, and personal experiences. It is my hope that the knowledge shared here will inspire readers, practitioners, and researchers to embark on their own journeys of exploration and discovery. As you embark on this journey through the pages that follow, I encourage you to keep an open mind and a receptive heart. The path of healing is a personal and unique one, and this book aims to be a guiding light, offering tools and insights to illuminate that path.

Download or read book A Multidisciplinary Approach to Managing Ehlers Danlos Type III Hypermobility Syndrome written by Isobel Knight and published by Singing Dragon. This book was released on 2013-03-28 with total page 364 pages. Available in PDF, EPUB and Kindle. Book excerpt: The complex effects of Ehlers-Danlos Syndrome (Type 3, Hypermobility), or EDSIII, on a patient's physical and mental wellbeing are extremely challenging for everyone involved, requiring a multidisciplinary care team and enormous dedication from the patient. This book presents an overview of what it means to be a chronic complex patient, examining the wide range of physiological and psychological implications associated with EDSIII and other conditions such as endometriosis and fibromyalgia. It explores the exercise and rehabilitation work involved in managing the condition effectively, considering a diverse range of medical treatments and complementary approaches including physiotherapy, Bowen Technique and Feldenkrais Method(R). There are contributions and insights throughout from experts in the fields of physiotherapy, rheumatology and health psychology, all of whom have extensive experience of working with complex chronic patients. The author links her own symptoms and experiences to those of other EDSIII patients and discusses how she has been able to reach a point where she can successfully manage the condition. This book will be essential reading for professionals working with EDSIII and other complex conditions including medical professionals, physiotherapists, occupational therapists, psychologists, counsellors and complementary therapists, and will be of interest to patients with EDSIII wanting to learn more about effective management of the condition.

Download or read book Yet Will I Praise Him Living and Parenting with a Chronic Illness written by Hannah Wingert and published by Ambassador International. This book was released on 2020-11-17 with total page 131 pages. Available in PDF, EPUB and Kindle. Book excerpt: Motherhood can often feel overwhelming and isolating, but for moms with a chronic illness, those feelings are often intensified. When your life is a constant battle with pain, fatigue, and isolation, it's easy to lose sight of any joy in your life. Wife and mother Hannah Wingert knows this all too well. After finally being diagnosed with a chronic illness following the birth of her fourth child, Hannah has had to come to terms with her diagnosis and to learn to be a wife and mother in the midst of her invisible illness. In her inspirational book, Yet Will I Praise Him, Hannah opens up candidly about her own struggles of living and parenting with a chronic illness. She will help you understand: -how to use your chronic illness to grow in your faith, -how to balance your marriage and parenting, and -how to live each day with hope so you can not only survive the challenges you face, but also thrive. Hannah covers everything from the tough questions such as "Why doesn't God heal me?" to "Why doesn't my husband 'get it?'" She also provides savvy advice and practical tips she's learned along her journey. Though Yet Will I Praise Him is written by a mom for moms, it also covers information such as how the five stages of grief work when you have a chronic illness and what not to say to a parent with a chronic illness, making it beneficial for anyone who has a loved one who lives with a chronic illness.

Download or read book Ehlers Danlos Syndrome A Multidisciplinary Approach written by J.W.G. Jacobs and published by IOS Press. This book was released on 2018-08-14 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Generalized hypermobility has been known since ancient times, and a clinical description of Ehlers-Danlos syndrome (EDS) is said to have first been recorded by Hippocrates in 400 BC. Hypermobility syndromes occur frequently, but the wide spectrum of possible symptoms, coupled with a relative lack of awareness and recognition, are the reason that they are frequently not recognized, or remain undiagnosed. This book is an international, multidisciplinary guide to hypermobility syndromes, and EDS in particular. It aims to create better awareness of hypermobility syndromes among health professionals, including medical specialists, and to be a guide to the management of such syndromes for patients and practitioners. It is intended for use in daily clinical practice rather than as a reference book for research or the latest developments, and has been written to be understandable for any healthcare worker or educated patient without compromise to the scientific content. The book is organized as follows: chapters on classifications and genetics are followed by chapters on individual types, organ (system) manifestations and complications, and finally ethics and therapeutic strategies, with an appendix on surgery and the precautions which should attend it. A special effort has been made to take account of the perspective of the patient; two of the editors have EDS. The book will be of interest to patients with hypermobility syndromes and their families, as well as to all those healthcare practitioners who may encounter such syndromes in the course of their work.

Download or read book Sex Intimacy and Living with Life Shortening Conditions written by Sarah Earle and published by Taylor & Francis. This book was released on 2023-12-19 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: This multi-disciplinary and inclusive collection brings together theoretically informed and empirically focused research on sex, intimacy and reproduction in relation to young people and adults with life-shortening conditions. Advances in healthcare mean that increasing numbers of young people with life-shortening conditions are transitioning into adulthood. Issues such as sex and intimacy, dating and relationships, fertility and having children are increasingly relevant to them and to the people that support them, including families, carers, practitioners and professional education, health and social care agencies. This three-part book explores the relevance and significance of this field, examines everyday experiences, and highlights the challenges faced by individuals and organisations in addressing the needs of such people in daily life and in the context of practice. Drawing on perspectives from sociology, disability studies, epidemiology, health policy, psychotherapy, legal studies, queer studies and nursing, this ground-breaking volume is written by academics, policy makers, practitioners and experts by experience. It is an essential read for all those practising and researching in the fields of sexuality, chronic illness and disability and transition.

Download or read book Chronic Illness Chronicles Stories of Resilience and Hope written by Bev Hill and published by Richards Education. This book was released on with total page 113 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Chronic Illness Chronicles: Stories of Resilience and Hope" is an uplifting and comprehensive guide for individuals navigating the challenges of chronic illness. This book combines inspiring personal stories with practical advice, coping strategies, and holistic approaches to help readers manage their conditions and live fulfilling lives. From understanding the complexities of chronic illness to finding hope and inspiration, this book offers a wealth of information and support. Whether you are newly diagnosed or have been living with a chronic condition for years, "Chronic Illness Chronicles" provides the tools and encouragement needed to thrive in the face of adversity.

Download or read book Cumulated Index Medicus written by and published by . This book was released on 1967 with total page 1900 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Unusually Fun Reading Math eBook PDF Grade 5 written by Schwab and published by Carson-Dellosa Publishing. This book was released on 2023-07-27 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: Unusually Fun 5th Grade Reading and Math Comprehension Workbook Unusual? Check. Fun? Check. Unusually Fun Reading and Math Jumbo Workbook Grade 5 have seriously fun topics that teach seriously important 5th grade math and reading skills! Unusually Fun Grade 5 Math and Reading Workbooks are a great resource to teach 5th grade students unusually fun facts while practicing math, reading comprehension, and critical thinking skills in a fun and engaging way. Why You’ll Love This 5th Grade Workbook Engaging and educational games, puzzles, and learning activities. The reading & math workbook features reading comprehension passages and questions, writing practice, math problem solving, puzzles, mazes, logic problems, creative thinking activities, and so much more! Tracking progress along the way. Use the answer key in the back of the reading & math workbook to track student progress before moving on to new lessons and topics. Practically sized for every activity. The 256-page workbook is sized at about 7.75” x 10.6”—giving your child plenty of space to complete each exercise. About Carson Dellosa For more than 40 years, Carson Dellosa has provided solutions for parents and teachers to help their children get ahead and exceed learning goals. Carson Dellosa supports your child’s educational journey every step of the way. The 5th Grade Math & Reading Workbook Contains: 5th grade math, reading comprehension, and creative writing activities Puzzles, mazes, and other brainteasers and games Answer key