Download or read book Living and Loving with Parkinson s Disease written by Rolf Lulloff and published by M&b Global Solutions. This book was released on 2023-08-14 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson's disease on New Year's Eve, 1989. But the Lulloffs were not about to let Parkinson's get the best of them. They cultivated a special relationship as care partners while enjoying life to its fullest over the next thirty-one years. Their commitment to experiencing all that life has to offer strengthened their bond and established them as examples for others going through similar journeys. Living and Loving with Parkinson's Disease is part love story and part how-to guide for all participants in a care partnership. Care persons, their spouses, and extended family and friends will benefit from the tips and care suggestions Rolf has compiled from his front-row seat to the ever-changing road that is a Parkinson's disease journey. "The sense of despair that often accompanies the loss of control from Parkinson's can be overwhelming. Rolf and Annie Lulloff are great examples of how focusing on love and resilience makes it possible to enjoy a fulfilling quality of life." -Ann McKee, MD, director of the Boston University CTE Center and UNITE brain bank
Download or read book Navigating Life with Parkinson Disease written by Sotirios Parashos and published by Oxford University Press. This book was released on 2012-11-20 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.
Download or read book The Complete Guide for People With Parkinson s Disease and Their Loved Ones written by Lianna Marie and published by Purdue University Press. This book was released on 2020-10-15 with total page 183 pages. Available in PDF, EPUB and Kindle. Book excerpt: A diagnosis of Parkinson’s disease is as disorienting as it is devastating. The Complete Guide for People With Parkinson’s Disease and Their Loved Ones helps make sense of what comes next and what can be done, not just for those suffering from the disease but for their family and friends as well. A trained nurse and primary caregiver for her mother, who was diagnosed with Parkinson’s disease in 1991, Lianna Marie draws upon over twenty years of education, research, and direct experience. Written in straightforward and easily accessible language, this essential guide aims to help patients better understand their role in their treatment so that they may continue to lead happy and hopeful lives. Topics covered include nutrition and exercise, alternative and complementary therapies, medication and treatment, and what caregivers can do to help. Written by an international expert on Parkinson’s who has confronted the disease firsthand, The Complete Guide serves as the go-to book for comprehensive, easy-to-understand information for all Parkinson’s patients and their loved ones.
Download or read book Living with Parkinson s Disease written by Michael Okun and published by . This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: An optimistic guide from an expert author and the world authority on Parkinson's disease. Worldwide, there are more than 10 million people living with Parkinson's disease (PD). In the US alone, approximately one million Americans live with PD and approximately 60,000 more are diagnosed each year. Internationally renowned as both a neurologist and a leading researcher, Dr. Okun has been referred to as the voice of these patients and a world authority on Parkinson's disease. His positive and optimistic approach has helped countless people manage their symptoms and achieve happiness despite them. This approach, detailed in his new book, Living with Parkinson's Disease, is a critical resource for Parkinson's disease patients and their families. Presented in a friendly and easy-to-understand way, this book addresses PD-related issues and symptoms along with emerging therapies. In each chapter, Dr. Okun offers patients the necessary tools to manage their disease and to ultimately find joy and fulfilment in their lives.
Download or read book Parkinson s Disease written by Shelley Peterman Schwarz and published by Demos Medical Publishing. This book was released on 2006-06-06 with total page 150 pages. Available in PDF, EPUB and Kindle. Book excerpt: An indispensable resource for patients, families, and caregivers Filled with creative tips and techniques, this updated second edition of Parkinson's Disease: 300 Tips for Making Life Easier contains a wealth of ideas and shortcuts for working, organizing, simplifying, and conserving time and energy while living with Parkinson's disease. It includes: Ways to make your home safe and accessible, your mealtimes more pleasurable, and your communications easier Unique product suggestions that make daily living tasks less stressful Extensive resources to help you easily locate items and services
Download or read book Life in the Balance written by Thomas B. Graboys and published by Union Square Press. This book was released on 2008 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronicles the author's descent from a top cardiologist to a patient slowly succumbing to Parkinson's disease and dementia, including how he struggles with the feelings he experiences daily and the impact of the diseases in his life.
Download or read book Parkinson s Disease written by William J. Weiner and published by JHU Press. This book was released on 2006-11-13 with total page 291 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent innovations, including deep brain stimulation and new medications, have significantly improved the lives of people with Parkinson’s disease. Nevertheless, medical, emotional, and physical challenges remain. The second edition of this accessible and comprehensive guide provides crucial information for managing this complex condition, including details on the use of medications, diet, exercise, complementary therapies, and surgery. The second edition includes new information about: • The genetic and hereditary pattern of the disease • Medications and uses of established medications • Other approaches to treating the symptoms of Parkinson’s • Juvenile-onset Parkinson’s disease • Normal pressure hydrocephalus • The effects of fluctuating hormones on disease symptoms • Fetal cell transplants and porcine cell transplants • The nutritional supplement Co-Enzyme Q10
Download or read book Parkinson s Treatment written by Michael S. Okun and published by Createspace Independent Publishing Platform. This book was released on 2013-03-16 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Addresses all of the new and emerging Parkinson's disease therapies (stem cells, gene therapy, optogenetics, etc.).
Download or read book Navigating Life with Parkinson s Disease written by Sotirios A. Parashos MD and published by Oxford University Press. This book was released on 2020-06-16 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Navigating Life with Parkinson's Disease is a guide for anyone affected by Parkinson's, providing useful information to those with Parkinson's and their caregivers, family, and friends. This extensively revised second edition contains up-to-date information on recent research and the latest adaptive equipment available to those living with Parkinson's disease. Discussing available treatments and providing practical advice, this book emphasizes lifestyle adjustments that provide a better quality of life for patients and their loved ones. The material is organized so that chapters can be read sequentially or individually, and the index and glossary facilitate the use of the book as a quick reference. Q&A sections, thoughts from people living with Parkinson's and Ask the Experts boxes address often-overlooked topics in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's. Promoting a patient-centered approach, Navigating Life with Parkinson Disease empowers patients and their families to manage their health care.
Download or read book A Life Shaken written by Joel Havemann and published by JHU Press. This book was released on 2003-04-30 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: "I'm flat on my back on a couch that's too short in a windowless room in the bureau. I can't even sit at a computer, much less make a keyboard work. My arms and legs are shaking uncontrollably. Although I am only 53 years old, I have already been struggling with Parkinson's disease for seven years. And right now the disease is winning." So begins Joel Havemann's account of the insidious disease that is Parkinson's. Into his own story, Havemann weaves accessible explanations of how Parkinson's disrupts the brain's circuitry, how symptoms are managed through drugs and surgery, and how people cope with the disease's psychological challenges. The updated paperback edition brings the discussion of treatment options and research thoroughly up to date.
Download or read book Everything You Need to Know About Caregiving for Parkinson s Disease written by Lianna Marie and published by Purdue University Press. This book was released on 2020-10-15 with total page 151 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caregiving for those who suffer from Parkinson’s disease comes with many challenges, from how to deal with guilt and loneliness to avoiding burnout and figuring out what to expect from an unpredictable disease. When giving care, too often caregivers neglect their own well-being. Everything You Need to Know About Caregiving for Parkinson’s Disease is not just about caring for your loved one, but also about taking care of yourself. Lianna Marie served as her mother's caregiver for more than twenty years after she was diagnosed with Parkinson’s disease. Drawing on firsthand experience, her training as a nurse, and the many stories of others she has helped and counseled over the years, Marie shares her wisdom and advice—practical and emotional. Written accessibly and without jargon, Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson’s disease.
Download or read book A Parkinson s Primer written by John M. Vine and published by Paul Dry Books. This book was released on 2017-03-07 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: “John Vine says he wrote this book for people who have been newly diagnosed with Parkinson’s disease. Well, I was diagnosed 24 years ago, and I still learned something new on every page.”—Michael Kinsley, Vanity Fair columnist and author of Old Age: A Beginner’s Guide Here is the book that John Vine and his wife, Joanne, wish they could have consulted when John was first diagnosed with Parkinson’s disease—a nontechnical, personal guide written from the patient’s perspective. Relying on his experiences over the past 12 years, John writes knowledgeably about all aspects of the disease. John also interviewed other Parkinson’s patients and their partners, whose stories and advice he includes throughout the book. “I wish we’d had John Vine’s book when my brother-in-law was diagnosed. The book is highly informative, unflinchingly honest, and reassuringly optimistic. It’s just what the doctor should have ordered.”—Cokie Roberts, best-selling author and political commentator on ABC News and NPR “John Vine details, in a compelling and accessible way, his experience with Parkinson’s disease. His book is an extraordinary guide to living successfully with Parkinson’s, and a must read for all who want to better understand the condition. Although diagnosed with Parkinson’s, my father lived an active and productive life until his death at age 94. As the book makes clear, while each patient’s journey is unique, common approaches are indispensable in treating the symptoms of the disease.”—Eric H. Holder, Jr. served as the 82nd Attorney General of the United States from 2009 to 2015 “John Vine has written the best primer I’ve ever read for newly diagnosed Parkinson’s patients and their families. It helps them cope with the shock of diagnosis, gives them (jargon-free) the scientific basics they need to know, describes the symptoms they may experience (making clear that every case is different) and catalogs the resources available to navigate living with Parkinson’s. John humanizes the book by describing his own experience and that of 22 other patients and their partners. I’d urge every neurologist to have copies of Vine’s primer on hand to help new PD on their journey forward.”—Morton Kondracke, author of Saving Milly: Love, Politics and Parkinson’s Disease and a member of the Founders' Council of the Michael J. Fox Foundation “My husband has PD, and I devoured this book. It’s wise, wonderfully readable, and, above all, helpful. Since John Vine has PD, he speaks with great authority about the challenges, both physical and psychological. If you have Parkinson’s, live with someone who has it, or just know someone battling the disease, A Parkinson’s Primer is for you.”—Lesley Stahl, award-winning television journalist on the CBS News program 60 Minutes “This is a remarkable book describing the personal experiences of many individuals, including the author, living with Parkinson’s disease. It captures the fact that although there are many possible symptoms in this disease, each person experiences different symptoms and copes with them in various ways. The thoughtful and insightful comments and coping strategies should be helpful for persons with PD, and their partners, regardless of the stage of the disease.”—Stephen Grill, MD, PhD, Director of the Parkinson’s & Movement Disorders Center of Maryland
Download or read book Parkinson s Disease For Dummies written by Jo Horne and published by John Wiley & Sons. This book was released on 2022-08-16 with total page 450 pages. Available in PDF, EPUB and Kindle. Book excerpt: Maintain a take-charge attitude and live your life to the fullest with Parkinson's Whether the diagnosis is yours or that of a loved one, Parkinson's Disease for Dummies contains everything you need to know about living with this disease. This book is an easy-to-understand, straightforward, and sometimes humorous guide that offers proven techniques for coping with daily issues, finding the right doctors, and providing care as the disease progresses. This user-friendly guide helps you navigate you through the important steps toward taking charge of your condition. You aren't alone—inside, you'll discover proven coping skills and first-hand advice, along with practical tools that will help you navigate the treatment journey. In classic, compassionate Dummies style, Parkinson's Disease For Dummies will answer all your questions, and guide you through the process of finding your own answers as well. Keep your mind sharp, stay in shape, and keep your stress under control Life a full and satisfying life after a Parkinson's diagnosis Get the most current information on Parkinson's medications and treatments Learn the best ways to support loved ones living with Parkinson's With updates on the latest in alternative treatments, dementia, and young onset PD, Parkinson's Disease for Dummies is here to show you how you can keep a positive attitude and lead an active, productive life.
Download or read book Navigating Life with Parkinson s Disease written by Sotirios A. Parashos and published by Brain and Life Books. This book was released on 2020 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: "It is hard to believe it has been only 7 years since the publication of our first edition. In this short time, so much has changed in what we know about Parkinson's disease and how to treat it. As I read through the first edition, I found much information was already out of date within 4 years from publication. New knowledge about the role of protein misfolding and how it leads to nerve cell damage in Parkinson's, about when and where the disease may be starting, about how it may progress and spread through the brain, about how it affects almost all aspects of body functions, about how all this new knowledge is shaping the quest for a cure, about how important exercise is, and about how the multidisciplinary approach to disease management changes the quality of life of people with Parkinson's has been accumulating at a dizzying pace. More than 200 years after the publication of Parkinson's An Essay on the Shaking Palsy and just over 50 years after the implementation of levodopa in Parkinson's treatment, it looks as though scientists are poised to make a breakthrough toward effective treatments of the disease itself, not just the symptoms, and paths that may eventually lead to a cure are now visible. Such progress would be impossible without the hard work of many researchers; the financial support of the corresponding government agencies; the advocacy of national and international Parkinson's organizations and the philanthropy of their donors; and the tireless efforts and open minds of the doctors, nurses, therapists, and social workers caring for people with Parkinson's and their families. Above all, none of this progress would be possible without the active participation of people with Parkinson's and their families through advocacy, community engagement, and participation in clinical trials. To them we would like to extend a great "thank you"."--
Download or read book Advice from a Parkinson s Wife written by Barbara Sheklin Davis and published by Parker Hayden Media. This book was released on 2021-02-19 with total page 160 pages. Available in PDF, EPUB and Kindle. Book excerpt: More than ten million people worldwide live with Parkinson's disease, and their spouses are most likely to be their primary caregivers. The transition from spouse to caregiver is not an easy one, often causing frustration, resentment, sadness, fear, and concern about the future. A lot has been written about caring for the Parkinson's patient, but their caregivers need a book to help them cope with the enormous life changes that Parkinson's brings to a relationship. This book does that. Barbara Davis's husband had Parkinson's for over twenty years. She wrote this book after more than two decades of personal experience because she wanted to chronicle the serious matters that most Parkinson's partners don't like to talk about publicly, and the feelings and frustrations they are embarrassed to share. By discussing these challenges openly and honestly, this unique book seeks to help others in ways that are not otherwise easily accessible, and to let them know that they are not alone in dealing with the negative life impacts of Parkinson's Disease. Advice from a Parkinson's Wife is realistic and enlightening, providing stories and advice from someone who's been there, along with practical suggestions for how to cope with the changes caregivers experience. Among the topics covered in the book are: -How your marriage changes and what caregiving does to you-How to handle doctor visits-What to do about falls, clinging, masks, and variability-Handling guilt and other emotions -Suggestions for practical things you can do to make things easierBeing a caregiver is tough, but with the wisdom, compassion, and advice in this book, the hope is that you can find moments when you can experience something approaching happiness, pleasure, and maybe even joy.
Download or read book My Journey with Parkinson s Disease written by Robert E. Spekman and published by Page Publishing Inc. This book was released on 2018-03-27 with total page 73 pages. Available in PDF, EPUB and Kindle. Book excerpt: I have had Parkinson's disease (PD) for twenty-two years. I am told I have a mild case, but it is still my PD and I live with it 24/7. I would be a gross understatement to say my life was changed forever. Interesting, many of these changes have made me a more compassionate, empathetic, and caring person. In part, this book was motivated by the following premise: Many of us will experience a life-changing event that will cause us to pause and reassess where we are, what we do, and why we do it. For some, it might be the death of a loved one or a personal tragedy. Or it might be a re-awakening-that aha moment. For me, it was January 2, 1995, when my neurologist said, "Mr. Spekman, I have some bad news for you-you have Parkinson's." My life as it knew it crumpled around me. I could have wallowed in self-pity, but I am a fighter and chose eventually to manage my PD. I have adopted a number of Eastern non-traditional approached to deal with my PD. I have a yoga practice, meditate daily, and engage in massage, acupuncture, and chiropractic adjustments. All these different approaches complement my medication, and all contribute to my being very healthy, given the length of time I have had Parkinson's. I will take you on a journey, my journey, starting with denial to depression to, finally, acceptance. This book is more than the story of one man's journey with PD; it is a story of hope and personal transformation. If you permit me, I am going to take you on a journey that began over two decades ago. I have years to travel so do not ask where the destination is or ask if we are there yet. During the course of this book, I will share with you aspects of my life that were previously know to only a small number of people. It is through this intimacy that you will come to better understand and hopefully better deal with adversity that might affect your life.
Download or read book Optimal Health with Parkinson s Disease written by Monique L. Giroux, MD and published by Springer Publishing Company. This book was released on 2015-11-11 with total page 321 pages. Available in PDF, EPUB and Kindle. Book excerpt: Safely integrate complementary, alternative, and lifestyle medicine with conventional medicine in the treatment of Parkinsonís disease. For many with Parkinsonís disease, adding complementary, alternative, and lifestyle therapies to a care plan can result in symptom relief and a higher quality of life without compromising conventional treatment. Written by a board-certified neurologist and expert in mind-body medicine, Optimal Health with Parkinsonís Diseaseprovides a thorough and up-to-date guide to a variety of therapies so that you and your health care team can make informed decisions to help you achieve optimal health. Key Features: Learn the benefits of a holistic approach Find effective, low risk therapies for symptom relief such as tremor, muscle rigidity, depression, constipation, and insomnia Understand the pros and cons of popular diet and exercise approaches Determine which integrative therapies are best for you Personalize your treatment plan to help meet your goals
