Download or read book The Invisible Kingdom written by Meghan O'Rourke and published by Penguin. This book was released on 2022-03-01 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.

Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

Download or read book Atmospheres of Breathing written by Lenart Škof and published by State University of New York Press. This book was released on 2018-03-19 with total page 328 pages. Available in PDF, EPUB and Kindle. Book excerpt: As a physiological or biological matter, breath is mostly considered to be mechanical and thoughtless. By expanding on the insights of many religions and therapeutic practices, which emphasize the cultivation of breath, the contributors argue that breath should be understood as fundamentally and comprehensively intertwined with human life and experience. Various dimensions of the respiratory world are referred to as "atmospheres" that encircle and connect human existence, coexistence, and the world. Drawing from a number of traditions of breathing, including from Indian and East Asian religion and philosophy, the book considers breath in relation to ontological, hermeneutical, phenomenological, ethical, and aesthetic concerns in philosophy. The wide-ranging topics include poetry, theater, environmental issues and health, feminism, and media studies.

Download or read book Ask Me About My Uterus written by Abby Norman and published by Bold Type Books. This book was released on 2018-03-06 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: For any woman who has experienced illness, chronic pain, or endometriosis comes an inspiring memoir advocating for recognition of women's health issues In the fall of 2010, Abby Norman's strong dancer's body dropped forty pounds and gray hairs began to sprout from her temples. She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics. Unable to get out of bed, much less attend class, Norman dropped out of college and embarked on what would become a years-long journey to discover what was wrong with her. It wasn't until she took matters into her own hands -- securing a job in a hospital and educating herself over lunchtime reading in the medical library -- that she found an accurate diagnosis of endometriosis. In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised. Putting her own trials into a broader historical, sociocultural, and political context, Norman shows that women's bodies have long been the battleground of a never-ending war for power, control, medical knowledge, and truth. It's time to refute the belief that being a woman is a preexisting condition.

Download or read book Living Well with a Hidden Disability written by Stacy Taylor and published by . This book was released on 1999 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: For those who live with a hidden disability, such as chronic pain, depression, or a range of other conditions often misunderstood, downplayed, or even dismissed by others, this book offers practical suggestions for surviving rough times, coping with negative reactions, and dealing with employment issues, as well as strategies to manage pain, find a helpful therapist, rebuild self-esteem, and strengthen the body, mind, and soul.

Download or read book 1990 Census of Population and Housing written by and published by . This book was released on 1993 with total page 590 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book All in My Head written by Paula Kamen and published by Da Capo Lifelong Books. This book was released on 2009-04-24 with total page 369 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the age of twenty-four, Paula Kamen's life changed in an instant. While she was putting in her contacts, the left lens disturbed a constellation of nerves behind her eye. The pain was more piercing than that of any other headache she had ever experienced. More than a decade later, she still has a headache-the exact same headache. From surgery to a battery of Botox injections to a dousing of Lithuanian holy water, from a mountain of pharmaceutical products to aromatherapy and even a vibrating hat, All in My Head chronicles the sometimes frightening, usually absurd, and always ineffective remedies Kamen-like so many others-tried in order to relieve the pain. Beleaguered and frustrated by doctors who, frustrated themselves, periodically declared her pain psychosomatic, she came to understand the plight of the millions who suffer chronic pain in its many forms. Full of self-deprecating humor and razorsharp reporting, All in My Head is the remarkable story of patience, acceptance, and perseverance in the face of terrifying pain.

Download or read book Easy to Love But Hard to Live with written by Tricia Bliven-Chasinoff and published by . This book was released on 2014-10-10 with total page 318 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book contains 35 powerful essays from adults with autism, mental illnesses, fetal alchol spectrum disorders, OCD, ADHD, and other "invisible special needs" and those who love them. These poignant, funny, heartbreaking and honest stories let mothers, fathers, brothers, sisters, lovers, husbands, wives, children and individuals with neurobehavioral disabilities themselves know that they are not alone, and that they somehow stop being important to the world when they reach adulthood. Finding that common powerful bond in a world of judgement and cruelty from those who don't understand, magically transforms the journey and makes it easier to cope. Instead of putting on appearances for others, adults with challenges and their loved ones can choose to connect with who they really are and accept their lives. "Easy To Love But Hard To Live With" is filled with poignant stories that inspire and empower. A great read for those living with a misunderstood partner, sibling, parent, child or other loved one."

Download or read book Wandering in Darkness written by Eleonore Stump and published by OUP Oxford. This book was released on 2012-09-13 with total page 688 pages. Available in PDF, EPUB and Kindle. Book excerpt: Only the most naïve or tendentious among us would deny the extent and intensity of suffering in the world. Can one hold, consistently with the common view of suffering in the world, that there is an omniscient, omnipotent, perfectly good God? This book argues that one can. Wandering in Darkness first presents the moral psychology and value theory within which one typical traditional theodicy, namely, that of Thomas Aquinas, is embedded. It explicates Aquinas's account of the good for human beings, including the nature of love and union among persons. Eleonore Stump also makes use of developments in neurobiology and developmental psychology to illuminate the nature of such union. Stump then turns to an examination of narratives. In a methodological section focused on epistemological issues, the book uses recent research involving autism spectrum disorder to argue that some philosophical problems are best considered in the context of narratives. Using the methodology argued for, the book gives detailed, innovative exegeses of the stories of Job, Samson, Abraham and Isaac, and Mary of Bethany. In the context of these stories and against the backdrop of Aquinas's other views, Stump presents Aquinas's own theodicy, and shows that Aquinas's theodicy gives a powerful explanation for God's allowing suffering. She concludes by arguing that this explanation constitutes a consistent and cogent defense for the problem of suffering.

Download or read book A Hidden Madness written by James T. R. Jones and published by Quid Pro Books. This book was released on 2012-03-11 with total page 287 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'A Hidden Madness' tells the story of an accomplished individual who has reached the pinnacle of his profession despite suffering for over thirty years from the severe mental illness bipolar disorder. He has done so mostly in silence because of fear of stigma. Extreme childhood bullying helped cause his condition, which has seen him hospitalized five times in psychiatric facilities for periods as long as six months. It is an eye-opening voyage through the little-understood realm of severe mental illness featuring its powerful medications, periodic hospitalizations, often rocky relationships, and light as well as dark moments. The story offers both real hope for those afflicted by serious mental illness and deep insight into their many symptoms, numerous drugs, periodic crises, and potential triumphs. It shows that by being compliant with a medical regimen of therapy and medication, getting help and support from others with the same illness, benefitting from a loving family, discovering coping mechanisms to get through every day, having caring and understanding friends, and being too stubborn to let a disease ruin his life one can enjoy a successful and fulfilling professional and personal life.

Download or read book Living Human written by Flic Manning and published by Simon and Schuster. This book was released on 2021-09-14 with total page 158 pages. Available in PDF, EPUB and Kindle. Book excerpt: My deepest wish is that reading this book will inspire you to take a look at your human experience and see it for the beautiful, painful blessing that it is. Whether you face illness and pain or you want to build a scalable business, you have the power to do it no matter what life throws at you by doing it your perfectly imperfect way, with your perfectly imperfect body and mind. Flic Manning has lived a life that is anything but traditional. With the odds stacked against her, facing incurable invisible diseases and mental health issues, she has walked the path less traveled to embrace the power she believes we all have inside no matter what complexities we face. In this wellness memoir, Flic takes us through her deeply personal journey, from struggling with pain and illness as a dancer to finding her voice and stepping into her most human, raw, and powerful self as an entrepreneur and wellness advocate. Her story contains nuggets of wellness and mindset wisdom wrapped up in lessons from her journey that are sometimes dark, other times deeply funny, and always inspiring. You will be uplifted, but you will also discover the sustainable wellness steps you can take to make your life a profound and healthy one

Download or read book But You Don t Look Sick written by Bette Brown and published by . This book was released on 2019-10-08 with total page 135 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is a wealth of information in this small book regarding fibromyalgia and its many co-existing illness. Topics such as medication, hints and tips, educating the family, childhood fibromyalgia (JFS), financial advice and much more is discussed.Fibromyalgia is an invisible, chronic illness for which there are no medical tests. Diagnosis is by a process of elimination and there is no recognised treatment. Symptoms include widespread aches and pains; extreme fatigue; cognitive and mobility difficulties and impairment; insomnia; gut, digestive, bowel and bladder problems; headaches/migraines; Tinnitus and many more unexplained symptoms.For many years Bette Brown has been diagnosed and living with the challenges of fibromyalgia (sometimes referred to as Fibromyalgia Syndrome or FMS). She knows how it affects every corner of your life. She's had to make several lifestyle changes to ensure she can keep fighting this life changing illness. As well as her own experience, knowledge and research, she has had access to the personal stories of others who have had the challenge and trauma of living with fibromyalgia and its effect. They have agreed Bette can share these with you. This is a down to earth, easy-to-read book about the debilitating, fluctuating and frequently misunderstood illness fibromyalgia.Ann Livingstone B.H.(Hons) Business Admin

Download or read book Invisible Men written by Michael Addis and published by Macmillan. This book was released on 2011-12-20 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Award-winning research psychologist Michael E. Addis identifies and provides answers surrounding the long-unspoken epidemic of silence and vulnerability in men Drawing on scientific research, as well as his own personal and clinical experience, award-winning research psychologist Michael E. Addis describes in this book an epidemic of personal, relational, and societal problems that are caused by the widespread invisibility of men's vulnerabilities. From increasing rates of suicide among men, to alcohol abuse, to violence and school shootings, his research reveals the continued cost of staying silent when emotional, physical, or spiritual pain enters men's lives. In the spirit of such bestsellers as William Pollack's Real Boys, Addis identifies the specific problems that result from men's silence and invisibility, what causes them, and how they can be changed. Addis provides readers with compelling stories of the causes and consequences of silence and invisibility in real men's lives. Invisible Men shows both male and female readers how they can break through the gauntlets that appear to protect men, but in reality cause severe harm to men, women, and families.

Download or read book Suffering and the Heart of God written by Diane Langberg and published by New Growth Press. This book was released on 2015-09-01 with total page 316 pages. Available in PDF, EPUB and Kindle. Book excerpt: She's seen slave dungeons in Ghana. Genocide in Rwanda. Systemic sexual abuse in Brazil. Child abuse and domestic violence in the US. After forty years of counseling abuse survivors around the world, Dr. Diane Langberg, a world renowned trauma expert, remains certain that what trauma destroys, Christ can and does restore. This book will convince you, too, of the healing heart of God. But it's not a fast process, instead much patience is required from family, friends, and counselors as they wisely and respectfully help victims unpack their traumatic suffering through talking, tears, and time. And it's not a process that can be separated from the work of God in both a counselor and counselee. Dr. Langberg calls all of those who wish to help sufferers to model Jesus's sacrificial love and care in how they listen, love, and guide. The heart of God is revealed to sufferers as they grow to understand the cross of Christ and how their God came to this earth and experienced such severe suffering that he too is "well-acquainted with grief." The cross of Christ is the lens that transforms and redeems traumatic suffering and its aftermath, not only for the sufferer, but it also transforms those who walk with the suffering. This book will be a great help to anyone who loves, listens to, and seeks to help someone impacted by trauma and abuse. There is no quick fix, but there is the hope for healing through the love of God in Christ.

Download or read book The Lady s Handbook for Her Mysterious Illness written by Sarah Ramey and published by Anchor. This book was released on 2021-05-11 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: The darkly funny memoir of Sarah Ramey’s years-long battle with a mysterious illness that doctors thought was all in her head—but wasn’t. In her harrowing, darkly funny, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions—autoimmune illnesses, fibromyalgia and chronic fatigue syndrome, chronic Lyme disease, chronic pain, and many more. Ramey's pursuit of a diagnosis and cure for her own mysterious illness becomes a page-turning medical mystery that reveals a new understanding of today's chronic illnesses as ecological in nature, driven by modern changes to the basic foundations of health, from the quality of our sleep, diet, and social connections to the state of our microbiomes. Her book will open eyes, change lives, and, ultimately, change medicine. The Lady's Handbook for Her Mysterious Illness is a revelation and an inspiration for millions of women whose legitimate health complaints are ignored.

Download or read book Your Symptoms Are Real written by Benjamin H. Natelson, MD and published by Wiley. This book was released on 2007-10-26 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Praise for Your Symptoms Are Real "Thank God for this book. It provides the help that millions of Americans with 'silent illnesses' like chronic fatigue and fibromyalgia have been waiting for. Dr. Natelson is a brilliant and compassionate clinician who covers the best treatments that medical science has to offer, along with a thorough consideration of complementary approaches. Short of cloning him, this book offers the specific help you need to work in partnership with your own physician." --Joan Borysenko, Ph.D., author of Minding the Body, Mending the Mind "Natelson is the kind of doctor every patient is looking for: smart, thoughtful, empathetic, and supportive. Reading Your Symptoms Are Real is the next best thing to having a world-renowned specialist managing your case." --Charles W. Lapp, M.D., Director of the Hunter-Hopkins Center and Assistant Consulting Professor at Duke University Medical Center "Do not throw up your hands and give up when one doctor after another tells you there is nothing wrong with you--instead, read this book! Benjamin Natelson is the person you have been looking for to guide you on your path to recovery." --Sandra Blakeslee, coauthor of The Body Has a Mind of Its Own "Natelson superbly incorporates research studies, clinical trials (even on drugs in development), and patient case reports in this book. If you are battling pain and fatigue symptoms but your tests are all normal, you will enjoy reading Natelson's pro-patient approach to explaining the real nature of your illness, his recommended treatment approaches, and how to cope with everything that is going on in your life." --Kristin Thorson, editor of the Fibromyalgia Network and President of the American Fibromyalgia Syndrome Association

Download or read book Brain on Fire written by Susannah Cahalan and published by Simon and Schuster. This book was released on 2012-11-13 with total page 294 pages. Available in PDF, EPUB and Kindle. Book excerpt: NOW A MAJOR MOTION PICTURE STARRING CHLOË GRACE MORETZ A “captivating” (The New York Times Book Review), award-winning memoir and instant New York Times bestseller that goes far beyond its riveting medical mystery, Brain on Fire is a powerful account of one woman’s struggle to recapture her identity. When twenty-four-year-old Susannah Cahalan woke up alone in a hospital room, strapped to her bed and unable to move or speak, she had no memory of how she’d gotten there. Days earlier, she had been on the threshold of a new, adult life: at the beginning of her first serious relationship and a promising career at a major New York newspaper. Now she was labeled as violent, psychotic, a flight risk. What happened? In an “unforgettable” (Elle), “stunningly brave” (NPR), and breathtaking narrative, Susannah tells the astonishing true story of her descent into madness, her family’s inspiring faith in her, and the lifesaving diagnosis that almost didn’t happen. “A fascinating look at the disease that…could have cost this vibrant, vital young woman her life” (People), Brain on Fire is an unforgettable exploration of memory and identity, faith and love, and a profoundly compelling tale of survival and perseverance.