Download or read book Invisible Caregivers written by Daphne Joslin and published by Columbia University Press. This book was released on 2002-02-28 with total page 335 pages. Available in PDF, EPUB and Kindle. Book excerpt: An understudied aspect of the HIV/AIDS epidemic is the creation of hundreds of thousands of grandparent-headed households that have become home to children bereft of one or both of their parents. Such "skip-generation parenting" presents a host of challenges to the families involved and the social programs designed to assist them. Despite this unprecedented caregiving responsibility, older surrogate parents remain relatively invisible, hidden in the shadows of HIV care and the demands of raising a child. The primary goal of Invisible Caregivers is to generate, support, and guide program and policy initiatives designed to meet the needs of elder surrogates and their families. Most social service programs are not able to identify the needs of older surrogates, often because these surrogate parents in HIV-infected families are reluctant to make their needs known for fear of social stigma or possible reductions of benefits. Multiple systemic barriers to case management and other services also frustrate attempts to bring available resources to elder caregivers. These barriers include professional ignorance or denial that HIV affects surrogates, eligibility restrictions through CARE, limited funding and age restriction on OAA, and a fragmented health and human service system. Because the issues facing elder caregivers are many and varied, this collection covers a host of issues: community health, aging, HIV services, child welfare, education, public policy, and mental health.
Download or read book The Invisible Patient the Emotional Financial and Physical Toll on Family Caregivers written by Annalee Kruger and published by . This book was released on 2021-08-27 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.
Download or read book Invisible Caregivers written by Daphne Joslin and published by Columbia University Press. This book was released on 2002 with total page 335 pages. Available in PDF, EPUB and Kindle. Book excerpt: This collection covers a variety of issues facing elder caregivers: community health, aging, HIV services, child welfare, education, public policy, and mental health.
Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Download or read book Invisible Faces and Hidden Stories written by Cecilia Sem Obeng and published by Berghahn Books. This book was released on 2020-11-01 with total page 157 pages. Available in PDF, EPUB and Kindle. Book excerpt: No detailed description available for "Invisible Faces and Hidden Stories".
Download or read book The Caregiver written by Aaron Alterra and published by Cornell University Press. This book was released on 2007 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Forgetting how things are done -- The new primary care physician -- Second opinions -- Giving up the keys -- The right to know -- The real and the unreal -- Another way -- Paying the bill -- I want to go home -- Coda.
Download or read book At the Heart of Work and Family written by Anita Ilta Garey and published by Rutgers University Press. This book was released on 2011-02-01 with total page 299 pages. Available in PDF, EPUB and Kindle. Book excerpt: At the Heart of Work and Family presents original research on work and family by scholars who engage and build on the conceptual framework developed by well-known sociologist Arlie Russell Hochschild. These concepts, such as "the second shift," "the economy of gratitude," "emotion work," "feeling rules," "gender strategies," and "the time bind," are basic to sociology and have shaped both popular discussions and academic study. The common thread in these essays covering the gender division of housework, childcare networks, families in the global economy, and children of consumers is the incorporation of emotion, feelings, and meaning into the study of working families. These examinations, like Hochschild's own work, connect micro-level interaction to larger social and economic forces and illustrate the continued relevance of linking economic relations to emotional ones for understanding contemporary work-family life.
Download or read book The Caring Self written by Clare L. Stacey and published by Cornell University Press. This book was released on 2011-07-07 with total page 215 pages. Available in PDF, EPUB and Kindle. Book excerpt: Stacey draws on observations of and interviews with aides working in Ohio and California to explore the physical and emotional labor associated with the care of others.
Download or read book How Caregiving Affects Development written by Kim Shifren and published by Amer Psychological Assn. This book was released on 2009-01-01 with total page 223 pages. Available in PDF, EPUB and Kindle. Book excerpt: "How Caregiving Affects Development: Psychological Implications for Child, Adolescent, and Adult Caregivers examines these effects using a life span development framework. Each chapter presents theory and empirical research on caregiving during a different phase in the life span, including childhood, adolescence, emerging adulthood, and young, middle, and older adulthood. Within the context of the caregiver's life, the chapter authors examine how the role of caregiver affects development."--BOOK JACKET.
Download or read book Taking Care of Our Own written by Sherry N. Mong and published by Cornell University Press. This book was released on 2020-10-15 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mixing personal history, interviewee voices, and academic theory from the fields of care work, the sociology of work, medical sociology, and nursing, Taking Care of Our Own introduces us to the hidden world of family caregivers. Using a multidimensional approach, Sherry N. Mong seeks to understand and analyze the types of skilled work that family caregivers do, the processes through which they learn and negotiate new skills, and the meanings that both caregivers and nurses attach to their care work. Taking Care of Our Own is based on sixty-two in-depth interviews with family caregivers, home and community health care nurses, and other expert observers to provide a lens through which in-home care processes are analyzed, while also exploring how caregivers learn necessary procedures. Further, Mong examines the emotional labor of caregiving, as well as the identities of caregivers and nurses who are key players in the labor process, and gives attention to the ways in which the labor is transferred from medical professionals to family caregivers.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Combining Work and Care written by Kate Hamblin and published by Policy Press. This book was released on 2024-06-25 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Available Open Access digitally under CC-BY-NC-ND licence. The proportion of employees with caring responsibilities is growing and, as a result, policies that support working carers are becoming increasingly important. Written and informed by national experts, this is the first publication to provide a detailed examination of the development and implementation of carer leave policies and policies in nine countries across Asia, Oceania, Europe and North America. It compares the origins, content and implications of national policies and practices intended to enable workers to provide care to family members and friends while remaining in paid employment – known as ‘carer leave’.
Download or read book Invisible Mothers written by Janet Garcia-Hallett and published by Univ of California Press. This book was released on 2022-11-08 with total page 248 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Drawing on interviews conducted throughout New York City, Black feminist criminologist Janet Garcia-Hallett shares the traditionally silenced voices of formerly incarcerated mothers of color. Patriarchy, misogyny, and systemic racism marginalize and criminalize these mothers, pushing them into the grasp of penal control and exacerbating their racialized and gendered oppression after incarceration. Invisible Mothers exposes the difficult realities that African American, West Indian, and Latina mothers experience when reentering the community after incarceration and navigating motherhood. Armed with critical insight, Invisible Mothers demonstrates the paradox of visibility: social institutions treat mothers of color as invisible, restricting them from equal opportunities, and simultaneously as hypervisible, penalizing them for the ways they survive their marginalization. Though formerly incarcerated mothers of color are forced to live in a state of disempowerment and hypersurveillance, Invisible Mothers reveals and contests their marginalization and highlights how mothers of color perform motherwork on their own terms"--
Download or read book Extreme Caregiving written by Lisa Freitag and published by Oxford University Press. This book was released on 2017-10-12 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Parents who care for children with special needs, particularly those whose children have multiple disabilities or intellectual delays, are pioneers in home health care and caregiving, yet their experience and expertise are rarely recognized. This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. Parents raising children with special needs often must devote all of their resources, both tangible and spiritual, to providing care long into their offspring's lives. Their experience exceeds the usual parameters of parenting. This book examines all of the facets of their parenting role, the care they provide, challenges they face, and questions many assumptions. It presents parents as neither emotional wrecks nor overburdened saints, but as moral individuals struggling to find their own way through relatively unexplored territory. This book begins to recognize the moral consequences of providing long-term care for a child with complex needs. Using a virtue ethic framework isolates the various tasks involved, and evaluates the moral demands placed on the parent attempting to perform them. On their journey to provide for their child the best life possible, parents must alter their own lives and attitudes, and become the sort of person who can perform the necessary caregiving. Raising a child with special needs demands from the parent a reassessment of their personal and social lives. Some of the consequences, such as the presumed emotional and physical burden of constant attentiveness and the numerous unexpected responsibilities, have been reported previously. But the need for competence, which drives an acquisition of medical knowledge, has not previously been analyzed, nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or disabilities. For a child who cannot attain independence, parents must continue to provide care and support into an uncertain future.
Download or read book Vision Loss in Older Adults written by Susan Crocker Houde and published by Springer Publishing Company. This book was released on 2007 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Focused on the care of older adults, this easy-to-use handbook deciphers the complex area of vision loss by providing a valuable step-by-step guide to all aspects of nursing care management and prevention. Expert contributors instruct you on everything from prevention steps to the psychological and soical impact on vision loss on patients, families, and the community. This comprehensive and focused handbook covers the major causes of vision loss as well as important nursing care topics.
Download or read book Handbook of HIV and Social Work written by Cynthia Cannon Poindexter and published by John Wiley & Sons. This book was released on 2010-10-05 with total page 627 pages. Available in PDF, EPUB and Kindle. Book excerpt: Praise for Handbook of HIV and Social Work "Cynthia Cannon Poindexter has given us a remarkable edited volume that contains much information on HIV that every professional social worker needs to know in order to practice competently in today's complex world."—From the Foreword by Vincent J. Lynch, MSW, PhD, Boston College Graduate School of Social Work "This comprehensive handbook assembles a group of social work scholars and practitioners to participate in, guide, and address many of the unresolved challenges characterizing the HIV debates. This handbook is a valuable and timely addition to the literature."—King Davis, MSW, PhD, The Robert Lee Sutherland Chair in Mental Health and Social Policy, The University of Texas at Austin School of Social Work "This handbook is an outstanding resource for the social work professional working to ensure equal access to care, treatment, and resources for all persons living with and/or affected by HIV."—Evelyn P. Tomaszewski, MSW, Project Director, NASW HIV/AIDS Spectrum: Mental Health Training and Education of Social Workers Project "This book is an excellent, up-to-date guide on HIV. It is an indispensable resource for all those who work with HIV and all its complications."—Leon Ginsberg, MSW, PhD, Dean Emeritus, University of South Carolina School of Social Work and Editor, Administration in Social Work The most current knowledge on the HIV pandemic in a thorough, diverse, and accessible volume This invaluable book draws on a distinguished roster of HIV advocates, educators, case managers, counselors, and administrators, assembling the most current knowledge into this volume. Handbook of HIV and Social Work reflects the latest research and its impact on policy and practice realities, with topics including: History, Illness, Transmission, and Treatment Social Work Roles, Tasks, and Challenges in Health Care Settings HIV-related Community Organizing and Grassroots Advocacy The Impact of HIV on Children and Adolescents HIV-affected Caregivers
Download or read book The Oxford Handbook of Higher Education Systems and University Management written by Gordon Redding and published by Oxford University Press. This book was released on 2019-06-20 with total page 528 pages. Available in PDF, EPUB and Kindle. Book excerpt: The world's systems of higher education (HE) are caught up in the fourth industrial revolution of the twenty-first century. Driven by increased globalization, demographic expansion in demand for education, new information and communications technology, and changing cost structures influencing societal expectations and control, higher education systems across the globe are adapting to the pressures of this new industrial environment. To make sense of the complex changes in the practices and structures of higher education, this Handbook sets out a theoretical framework to explain what higher education systems are, how they may be compared over time, and why comparisons are important in terms of societal progress in an increasingly interconnected world. Drawing on insights from over 40 leading international scholars and practitioners, the chapters examine the main challenges facing institutions of higher education, how they should be managed in changing conditions, and the societal implications of different approaches to change. Structured around the premise that higher education plays a significant role in ensuring that a society achieves the capacity to adjust itself to change, while at the same time remaining cohesive as a social system, this Handbook explores how current internal and external forces disturb this balance, and how institutions of higher education could, and might, respond.
