Download or read book I Am a Sickle Cell Survivor written by Carol Marriam Mulumba and published by Mulumba. This book was released on 2019-10-27 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Iam a Sickle Cell Survivor, Ten Years and still Counting narrates the raw, straight-from-the-source story of an 18-year-old Sickle Cell survivor recounting her medical journey from frequent hospital visits, multiple absences from school, as well as an almost unconscious pull to be rid of what genetic shackles are holding her back. And all her memories were formed from the innocent cradle of her mind from when she was only a child. At seven years of age when she received the bone marrow and cord blood stem cell transplant. Carol's story before and now 10 years after the procedure is nothing short of an incredible make-over. The innocence but depth of this spell-binding narrative is more than just an eye-opener to the intricate challenges of sickle cell anemia. Her story renders a human face to sickle cell anemia and is the welcome handbook during an encounter with the debilitating and almost always, a fatal disease.
Download or read book I m a Survivor written by Shehu Olaitan Mohammed and published by . This book was released on 2021 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book I Am a Living Testimony written by Bolaniran Deji-Adeyale and published by . This book was released on 2021-02-12 with total page 122 pages. Available in PDF, EPUB and Kindle. Book excerpt: When asked what my reason for telling this story is, I said I only want to inspire and encourage other people facing the samechallenge, make them live life to the fullest with the people they love. Encourage them to love, laugh, play and share like they were as fit as a fiddle. There's a good that has come out of my experience with sickle-cell anaemia, and that's the privilege to counsel and be a muse of hope to children with the disorder. Nothing beats the joy of earning their parents' trust in this regard. Trust me.So, I thought "why not write my experience, so I can reach a larger audience, and spread this hope?" Why not reach other Sickle Cell Warriors with this one message: the doctor's report doesn't define you. Rather, embracing God's word for your life is, of all things, most important. I am a living witness to this! We are overcomers...we are warriors.... weare survivors!"For I know the plans I have for you, declares the LORD plans to prosper you and not to harm you, plans to give you hope and a future" (Jeremiah29:11).Furthermore, sickle cell patients are not abnormal people, the illness is not a curse and it is wrong to believe that investing in a child with the disorder is a waste of financial resources. With access to quality care, the symptoms can be controlled and disease complications managed such that sickle cell patients can live normally, even to old age. It is this positive message that I am so happy to share with my fellow survivors and the world: that they, too, can be all they want to be in life.Finally, this book is driven by a deep sense of gratitude for life and is a call of hope to all Sickle Cell Warriors to takethe life they have been given and make the most of it. For as long as there is breath in man, there is a bigger picturealready painted that in which there are no limitations to what can be achieved in between the doctor's visits and frightening episodes that leave you wishing you could do more.Of course, the challenges exist. And, for people like us, our life is rife with them, but everything works out an awesome victory for us, by God himself. Come to think of it? Without these obstacles, we'll never discover our incredible ability tobeat them, and come out dancing still? If God is by your side, you will beat any challenge.
Download or read book How My Daughter Is a Survivor of Sickle Cell Disease written by Adrienne F. Easter and published by . This book was released on 2010-06 with total page 72 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book My Life as a Sickle Cell Warrior written by Patricia Maley and published by Xlibris Corporation. This book was released on 2016-08-19 with total page 143 pages. Available in PDF, EPUB and Kindle. Book excerpt: Walk a mile in the shoes of a sickle-cell warrior, one who hoped to fulfill her calling in this world. To blend in like all the normal people in the world. Almost everything she did was through survival mode; at work, at home, in school and all in all within the community. You will notice how this blood borne disease knocks her down and even makes her vulnerable numerous times as she has a brush with death. But only courage, determination and encouragement have helped her accomplish so much successfully.
Download or read book Surviving Sickle Cell written by Kalysia Johnson and published by AuthorHouse. This book was released on 2020-10-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!
Download or read book Sickle Cell Disease Sickle Cell Trait written by Ezekiel Sandy and published by iUniverse. This book was released on 2013-05-01 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is based on a disease that has plagued the Cushite race from the dawn of existence: sickle cell or trait sickle cell, for which experts continue to say there is no cure. As a victim of this disease, I prayed I would be provided with the answers to overcome this serious health condition. I believed there had to be a way and was determined to find it. Inside this book is my story and the tools I discovered. Given a chance, the material within will serve as a major help for all who read. Having this disease or any other chronic illness can be a building block for learning how to overcome struggles and live your best life now. I hope this book helps you make positive changes in your health. I, Ezekiel J. Sandy, am an example of one man who overcame this illness and you can, too, if you apply the knowledge.
Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Download or read book My Battles with Sickle Cell Disease written by Eric Bradley and published by . This book was released on 2019-04-16 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: A very detailed description of sickle cell disease and coping strategies through the eyes of true warrior and survivor.
Download or read book Living Well With Sickle Cell Anemia written by Ebun Ekunwe and published by . This book was released on 2018-03-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: To look at me, you cannot tell that I was born with sickle cell anemia. At 70 years of age, I am living healthy and pain-free in spite of having grown up with severe debilitation.What is my secret? There is a body of scientific knowledge on how nutrition impacts our genetic code. With my insight as a medical doctor, I have discovered the secret of living well with hereditary diseases, with special reference to sickle cell disorders. In the past decade, I have studied and practiced to perfect this strategy. "Living Well With Sickle Cell Anemia: One Doctor's Story" is a description of how you too can perfect it to enhance your health. Soon after you get your hands on this book, the insights contained in it will ensure that you too start to live healthy and pain-free. In the book, you get the advantage of over a decade's worth of study and practice. Before too long, you (or your loved one, if you are also getting them a copy) will almost forget that you have sickle cell disease.When asked how you are coping with sickle cell anemia, your response will be "What sickle cell?" Enjoy your life!I am enjoying mine, sickle cell notwithstanding.
Download or read book Burning Bright written by Maryam Awaisu and published by iUniverse. This book was released on 2014-11-13 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt: Burning Bright is not a story about statistics, but of an over-achieving young lady, who is determined not to let sickle cell anemia stand in her way. Without notice, difficulties that Nadia Habeeb did not foresee complicate her health and love life, changing everything immensely. With the walls of life itself closing in on her, will she stand conqueror this time? If she does, what will be her fate back home in Nigeria, with a closed-off heart, and physical challenge? This is a story of a family struggling to maintain faith and hope in the face of severe emotional challenges, social upheaval, medical necessity, and the paradox of humanity. Set within the complexities of Nigerian culture, it is the story of young people trying to make their way in a world they didnt make. It is also a story of pain and redemption, of love lost and found, generational conflict, and the emergence of true faith.
Download or read book Sickle Cell Anemia Challenges written by Willa Boykin and published by Createspace Independent Publishing Platform. This book was released on 2011-09-07 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Describes ... what life was really like during parenting. ... Two of our children were born with sickle cell disease."--Page xi.
Download or read book The Many Faces and Lives of Sickle Cell A Global Collaboration written by Agnes Nsofwa and published by . This book was released on 2022-06-19 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Captivating Stories of Survival, Bravery, and Resilience from around the World
Download or read book Facing Two Sickles written by Zetta Sylvia Baillou-Poitier and published by iUniverse. This book was released on 2019-06-21 with total page 110 pages. Available in PDF, EPUB and Kindle. Book excerpt: When author Zetta Sylvia Baillou-Poitier met her husband, Floyd, in 1988, it was love at first sight. She had no idea he carried the sickle-cell trait, and he had no idea Zetta also had the sickle-cell trait. But it set the stage for the challenges the couple would face as they started a family together. In Facing Two Sickles, Zetta shares the story of raising two children diagnosed with sickle-cell disease, an inherited condition affecting a person's haemoglobin. In this memoir, she offers a look at the disease, its symptoms, its treatment, and she tells how she leaned on the Lord. Facing Two Sickles offers encouragement and inspiration to caretakers and parents of children with sickle-cell disease. Through Zetta's personal story, it helps one cope with the death of a loved one, and it sends the message that those coping with dire illness and loss are not alone.
Download or read book Survival of the Sickest LP written by Dr. Sharon Moalem and published by Harper Collins. This book was released on 2007-05-22 with total page 370 pages. Available in PDF, EPUB and Kindle. Book excerpt: Was diabetes evolution's response to the last Ice Age? Did a deadly genetic disease help our ancestors survive the bubonic plagues of Europe? Will a visit to the tanning salon help lower your cholesterol? Why do we age? Why are some people immune to HIV? Can your genes be turned on—or off? Survival of the Sickest is fi lled with fascinating insights and cutting-edge research, presented in a way that is both accessible and utterly absorbing. This is a book about the interconnectedness of all life on earth—and especially what that means for us. Read it. You're already living it.
Download or read book Life Has an Ugly Face Living with Sickle Cell Anemia written by Carol Sapp-Burnside and published by Xulon Press. This book was released on 2012-12-01 with total page 180 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hello readers, I am the author of "Life has an Ugly Face, Living with Sickle Cell Anemia." I was diagnosed with the disease at the tender age of seventeen, although symptoms started as early as nine years of age. I am a wife, mother of two children, grandmother to six beautiful intelligent grandchildren, and an evangelist evangelizing out of my home church. I dedicated my life to the Lord at the young age of 12. I could always feel God's presence in my life even when I didn't know it was him. I am a person who truly loves the Lord God and I am grateful for his love, kindness, tender mercies, and healing blessings in my life. Thank you for taking the time to share this journey with me. God bless each and every one of you.
Download or read book Soar written by Gail Campbell Woolley and published by Agate Bolden. This book was released on 2017 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The posthumous memoir of Gail Campbell Woolley, an acclaimed journalist who, after being diagnosed with sickle cell anemia at age seven, made a conscious decision to live a full, eventful, ambitious life and exceeded her life expectancy by more than 20 years.
