Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.

Download or read book Living Well With Sickle Cell Anemia written by Ebun Ekunwe and published by . This book was released on 2018-03-04 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: To look at me, you cannot tell that I was born with sickle cell anemia. At 70 years of age, I am living healthy and pain-free in spite of having grown up with severe debilitation.What is my secret? There is a body of scientific knowledge on how nutrition impacts our genetic code. With my insight as a medical doctor, I have discovered the secret of living well with hereditary diseases, with special reference to sickle cell disorders. In the past decade, I have studied and practiced to perfect this strategy. "Living Well With Sickle Cell Anemia: One Doctor's Story" is a description of how you too can perfect it to enhance your health. Soon after you get your hands on this book, the insights contained in it will ensure that you too start to live healthy and pain-free. In the book, you get the advantage of over a decade's worth of study and practice. Before too long, you (or your loved one, if you are also getting them a copy) will almost forget that you have sickle cell disease.When asked how you are coping with sickle cell anemia, your response will be "What sickle cell?" Enjoy your life!I am enjoying mine, sickle cell notwithstanding.

Download or read book Sickle Cell Pain written by Samir K. Ballas and published by Lippincott Williams & Wilkins. This book was released on 2015-06-01 with total page 1004 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.

Download or read book Surviving Sickle Cell written by Kalysia Johnson and published by AuthorHouse. This book was released on 2020-10-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!

Download or read book Living with and Surviving Sickle Cell Disease written by Juanita McClain and published by Xlibris Corporation. This book was released on 2017-07-24 with total page 30 pages. Available in PDF, EPUB and Kindle. Book excerpt: Living with and surviving Sickle cell disease is an autobiography written about the life of a girl who fights to survive a chronic illness that she was diagnosed with at birth. She lives her life in fear of dying from this horrific disease. Instead of giving up and letting the disease conquer her she chooses to take a stand and fight instead. She uses her experiences as motivation to write about what she has been through and inspire the lives of many people. The book offers many miraculous stories and different scenarios of ups and downs in her life. The book is very informational, educational, moving, and inspirational to anyone who is going through some of the same experiences and even those who are not. The book will no doubt leave a lasting impression about the author.

Download or read book A Parent s Guide to Managing Sickle Cell Disease written by Lola Oni and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Understanding Sickle Cell Disease written by Miriam Bloom and published by Univ. Press of Mississippi. This book was released on 2009-10-20 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although more is known about sickle cell disease than about any other inherited disease, no cure for it exists. In America alone, about one in 375 who are of African ancestry is born with sickle cell disease. A smaller number of Americans descended from families from the Mediterranean area, the Middle East, and India also are affected. In addition, about eight percent of black Americans who do not suffer from the disease itself carry the gene for it that can be transmitted to their children. Sickle cell disease is of enormous biological, social, and historic importance. It was first described in medical literature almost a century ago. Improvements during the past two decades in our understanding of the disease and in medical care are permitting those afflicted to live longer, more comfortable and more productive lives. This book was written for all who are interested in this disease--those who have it, their families, the carriers of the sickle cell gene, teachers, and those who wish to update their information about it. This overview of sickle cell disease explains what it is and how it is inherited, as well as the relationship between the sickle cell gene and its geographic origins, the way the gene has been spread throughout history, and the effect of sickle cell hemoglobin on red blood cells that carry it. Understanding Sickle Cell Disease describes the variety of symptoms in both children and adults and details the emotional aspects of the disease. Of particular interest is a chapter on the care, especially the home care, of those who are affected. This book explains how it is possible today for couples carrying the genes to raise families free of the disease. Although there is no known cure for sickle cell disease, there is little doubt that one will ultimately be devised. This volume surveys current research efforts and the promise they hold.

Download or read book How to Live with Sickle Cell written by Tola Dehinde and published by . This book was released on 2021-04-15 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'HOW TO LIVE WITH SICKLE CELL: Sickle Cell and I' is about my personal journey with Sickle Cell Disorder (SCD). Sickle Cell Disorder is a blood disorder that people still misunderstand. I have written this book to help people with SCD, and those who know someone with Sickle Cell. This book will give you a better insight into the lives of those with SCD and it will help clarify what it is. As you read this book, you will find out about the following: My personal experiences with this disorder, Vitamins, minerals and supplements for people with SCD, Food nutritional guide for people with SCD, Complications involving Sickle Cell, Dealing with non-pain issues for people living with Sickle Cell, and more. I can assure you that after you have read my book on Sickle Cell, you will have a better understanding of what SCD is and what it is not. If you have SCD or you are a carer, you will have a more informed choice on how to live your life or help your loved ones. By the end of 'HOW TO LIVE WITH SICKLE CELL: Sickle Cell and I', you will understand why people have crises, how to look after someone with Sickle Cell, how to achieve your purpose if you have SCD, and how to learn about breakthroughs in the area of science. Visit my blog at http: //www.howtolivewithsicklecell.co.u

Download or read book Hope and Destiny written by Allan F. Platt and published by Hilton Publishing. This book was released on 2002 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: An up-to-date, informative, and personal discussion of sickle-cell anaemia, this guide provides information on medically proven methods of treatment along with patient vignettes. Written primarily for African Americans, who comprise the majority of the victims of sickle-cell anaemia, this handbook for patients and those who live or work with them examines the complex issues that surround this genetic disease. Advice on dealing with the physical suffering, inability to work, quality of life issues, and premature death that affect sickle-cell patients is offered in layman's terms to aid patients and caregivers in making informed decisions.

Download or read book Handling Sickle Cell Disease written by Yvette LaPierre and published by ABDO. This book was released on 2021-08-01 with total page 115 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores sickle cell disease and how people with the disease manage it. It examines how sickle cell affects daily life, work, and school, and it explains the latest treatments available. Features include a glossary, web resources, source notes, and an index. Aligned to Common Core Standards and correlated to state standards. Essential Library is an imprint of Abdo Publishing, a division of ABDO.

Download or read book Evidence Based Management of Sickle Cell Disease written by M D George R Buchanan and published by Createspace Independent Publishing Platform. This book was released on 2014-09-09 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease can be severe and disabling. When properly treated, patients live longer and with better quality life. This is a US government publication intended to provide evidence-based guidelines for the care of these patients for the use of all concerned providers as well as patients and family members. This book is available in print here for convenience.

Download or read book Sickle Cell Natural Healing written by Tamika Moseley and published by AuthorHouse. This book was released on 2013-09-26 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: After spending every three months of her newborn's life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son's debilitating disease. Three years since she started using herbs to minimize his sickle cell crises, her son is living a normal, healthy and pain-free life. Whether you have sickle cell disease or the trait, this book will show you what your body needs and how to treat your symptoms so that pain is no longer a part of your vocabulary. As Tamika likes to say, "Knowledge is power!" Sickle Cell Natural Healing: A Mother's Journey gives you the benefit of the wisdom one fearless and determined mother collected so that others suffering with this disease can thrive.

Download or read book The Enemy Within written by Judith McBride and published by . This book was released on 2011-05 with total page 52 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book My Life as a Sickle Cell Warrior written by Patricia Maley and published by Xlibris Corporation. This book was released on 2016-08-19 with total page 143 pages. Available in PDF, EPUB and Kindle. Book excerpt: Walk a mile in the shoes of a sickle-cell warrior, one who hoped to fulfill her calling in this world. To blend in like all the normal people in the world. Almost everything she did was through survival mode; at work, at home, in school and all in all within the community. You will notice how this blood borne disease knocks her down and even makes her vulnerable numerous times as she has a brush with death. But only courage, determination and encouragement have helped her accomplish so much successfully.

Download or read book Sickle Cell Disease in Clinical Practice written by Jo Howard and published by Springer. This book was released on 2015-02-12 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Disease is the most common genetic disease world wide and in the UK. It has marked geographical variation in its distribution in the UK, with a concentration in London and other major conurbations (Birmingham and Manchester). In these areas, specialist centres have become established offering expert, up to date care for both inpatients and out patients with Sickle Cell Disease. Although patient numbers are increasing outside these areas, the expertise of health professionals can be patchy. This book aims to provide a user friendly, accessible resource for areas with smaller numbers of patients, to allow them to provide equitable care with the larger well established centres. Sickle Cell Disease can be associated with acute life threatening complications, when clear, easily available advice is needed, and with chronic long term complications which may need liaison with other health professionals. Clear treatment protocols for all the common complications of sickle cell disease, are outlined here, with summaries of key evidence and references.

Download or read book What You Can Do About Sickle Cell Disease written by Monique Vescia and published by Enslow Publishing, LLC. This book was released on 2015-07-15 with total page 114 pages. Available in PDF, EPUB and Kindle. Book excerpt: What is sickle cell disease? What damage can it cause? Can anyone get it? Can it be treated or prevented? This text explains a rather complex and potentially deadly condition through case studies and interviews, and presents the most current research and treatments.

Download or read book LIVING WITH SICKLE CELL DISORDER written by Chandra Bahadur and published by . This book was released on 2022-06-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle Cell Disorder is a genetic blood disorder that causes many health issues including pain, cardiac arrest, and even death. Living with Sickle Cell Disorder is written with the aim to spread awareness of this genetic disorder and also include guidelines and care for all sickle cell disorder patients to live happily forever. Moreover, in the tribal region, some scheduled tribes and scheduled castes suffer from the disorder in a large number hence they must be aware to stop the spreading from generation to generation. In this booklet, Prof. Chandra Bahadur Singh Dangi and Prof. Shadma Siddiqui concluded all the aspects that help understand and prevent sickle cell disorder. Topics included in this book are what is sickle cell disorder, types of disorders, emergencies caused by the disorder, and guidelines on how to manage situations in acute pain, cardiac arrest, and other critical conditions. In addition, the book also covers guidelines, especially for children suffering from sickle cell disorder, and how to stop spreading the genetic blood disorder. Living with Sickle Cell Disorder book is written in a simple language so that the information can be reached and understood by the people of scheduled tribes and also scheduled castes. Most importantly when people with sickle cell disorder get married or plan for a family, they should follow some treatment and tests to prevent the inharitation of sickle cell disorder to the next generation.