Download or read book Life Disrupted written by Laurie Edwards and published by Bloomsbury Publishing USA. This book was released on 2011-02-01 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.

Download or read book Finding a New Normal written by Suzan Linn Jackson and published by . This book was released on 2019-12-14 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: This guide provides inspiration, advice on emotional coping, and support on living your best life with chronic illness from someone who's been there. The emphasis in this book is on LIVING your life, not just enduring it.

Download or read book Living a Healthy Life with Chronic Conditions written by Kate Lorig and published by . This book was released on 2000 with total page 330 pages. Available in PDF, EPUB and Kindle. Book excerpt: Drawing on input from people with long-term ailments, this book points the way to achieving the best possible life under the circumstances.

Download or read book Living Well with Chronic Illness written by Institute of Medicine and published by National Academies Press. This book was released on 2011-06-30 with total page 350 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

Download or read book How to Live Well with Chronic Pain and Illness written by Toni Bernhard and published by Simon and Schuster. This book was released on 2015-10-06 with total page 355 pages. Available in PDF, EPUB and Kindle. Book excerpt: Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for negotiating the everyday hurdles of medical appointments, household chores, and social obligations • Tools for navigating the strains illness can place on relationships Several chapters are directed toward family and friends of the chronically ill, helping them to understand what their loved one is going through and how they can help. Humorous and empathetic, Bernhard shares her own struggles and setbacks with unflinching honesty, offering invaluable support in the search to find peace and well-being.

Download or read book Surviving and Thriving with an Invisible Chronic Illness written by Ilana Jacqueline and published by New Harbinger Publications. This book was released on 2018-03-01 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: “An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.

Download or read book The Chronic Illness Workbook written by Patricia Fennell and published by Albany Health Management Publishing. This book was released on 2012 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: THE CHRONIC ILLNESS WORKBOOK brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic apsects as well.

Download or read book What Doesn t Kill You written by Tessa Miller and published by Henry Holt and Company. This book was released on 2021-02-02 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Should be read by anyone with a body. . . . Relentlessly researched and undeniably smart." —The New York Times Named one of BuzzFeed's "Best Books of 2021" What Doesn't Kill You is the riveting account of a young journalist’s awakening to chronic illness, weaving together personal story and reporting to shed light on living with an ailment forever. Tessa Miller was an ambitious twentysomething writer in New York City when, on a random fall day, her stomach began to seize up. At first, she toughed it out through searing pain, taking sick days from work, unable to leave the bathroom or her bed. But when it became undeniable that something was seriously wrong, Miller gave in to family pressure and went to the hospital—beginning a years-long nightmare of procedures, misdiagnoses, and life-threatening infections. Once she was finally correctly diagnosed with Crohn’s disease, Miller faced another battle: accepting that she will never get better. Today, an astonishing three in five adults in the United States suffer from a chronic disease—a percentage expected to rise post-Covid. Whether the illness is arthritis, asthma, Crohn's, diabetes, endometriosis, multiple sclerosis, ulcerative colitis, or any other incurable illness, and whether the sufferer is a colleague, a loved one, or you, these diseases have an impact on just about every one of us. Yet there remains an air of shame and isolation about the topic of chronic sickness. Millions must endure these disorders not only physically but also emotionally, balancing the stress of relationships and work amid the ever-present threat of health complications. Miller segues seamlessly from her dramatic personal experiences into a frank look at the cultural realities (medical, occupational, social) inherent in receiving a lifetime diagnosis. She offers hard-earned wisdom, solidarity, and an ultimately surprising promise of joy for those trying to make sense of it all.

Download or read book How to Be Sick written by Toni Bernhard and published by Simon and Schuster. This book was released on 2010-05-10 with total page 217 pages. Available in PDF, EPUB and Kindle. Book excerpt: This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.

Download or read book Healing Your Chronic Illness Grief written by Alan D. W and published by 100 Ideas. This book was released on 2019-09 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic illness is a type of loss. Depending on your condition and its course, you may be confronted with physical limitations, financial struggles, relationship challenges, and much more. Your hoped-for future may feel stolen from you. In addition to good physical care, acknowledging and working through your normal, necessary grief along the way is essential to living well with chronic illness. Mourning is important self-care. The 100 tips, affirmations, and simple activities in this book will help you attune to and express your feelings each day. They will support you in living your best life physically, cognitively, emotionally, socially, and spiritually. To mourn well is to clear the way for living well. Let's get started.

Download or read book Chronic Illness and the Quality of Life written by Anselm L. Strauss and published by Mosby Elsevier Health Science. This book was released on 1984 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Psychological Treatment of Cardiac Patients written by Matthew M. Burg and published by Clinical Health Psychology. This book was released on 2018 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This concise primer introduces mental health practitioners to the fundamentals of chronic heart disease. It reviews basic etiology and specific methods for assessing and treating comorbid psychological disorders.

Download or read book Love in the Time of Chronic Illness written by Barbara Kivowitz and published by . This book was released on 2018-06-12 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Having made an emotional commitment, with or without marriage vows, most people expect their partners to care for them when a devastating diagnosis is made or an accident occurs. But amid the medical, financial, and logistical concerns, a couple's emotional relationship is often an unforeseen casualty when illness and injury occur. For most, a health crisis means both partners need to recalibrate their roles in the new reality of their relationship. Love in the Time of Chronic Illness examines what happens when illness becomes part of a relationship, and includes dozens of real couples' frank stories about navigating the medical and relational mazes. These stories, along with practical and thoughtful guidance from a variety of experts in the medical, spiritual, and legal realms, help partners not just get through a crisis, but grow stronger as a couple.

Download or read book University and Chronic Illness written by Pippa Stacey and published by . This book was released on 2020 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Download or read book Chronically Fabulous Finding Wholeness and Hope Living with Chronic Illness written by Marisa Zeppieri and published by Broadleaf Books. This book was released on 2021-05-04 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Marisa Zeppieri was 22-years-old she found herself face-to-face with a raven-haired elderly woman who had emerged from a crowd and gently taken her hands: God will use these hands to change people's lives.Years later Marisa's once-spirited demeanor was shrouded in anger and bitterness. Triggered first by a near-fatal car accident that sent her 100-lb body flying from a crosswalk and later by a painful Lupus diagnosis, she became stuck in a season of brokenness.But in the seasons that followed, an insatiable emotional, spiritual, and physical hunger took over: She learned how to nourish her broken body with the help of food, herbs, and a gastronomically-gifted Italian grandmother, while also nourishing her broken heart and crushed spirit through a deeper relationship with God.With Chronically Fabulous, Marisa fulfills the old woman's prophecy by offering pure nourishment to those of us living with chronic illness, helping us create wholeness and well-being through a love of food. Here, the founder of LupusChick, a nonprofit supporting those with autoimmune diseases, offers guiding principles, personal stories, and recipes that support whole-life thriving. With the depth, smarts, and spiritual advice beloved by her dedicated followers, Marisa shows us how faith, passion, and persistence can radically change our lives.

Download or read book Cambridge Handbook of Psychology Health and Medicine written by Susan Ayers and published by . This book was released on 2007 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Health psychology is a rapidly expanding discipline at the interface of psychology and clinical medicine. This text offers a comprehensive, accessible, one-stop resource for clinical psychologists, mental health professionals and specialists in health-related matters.

Download or read book How to Do Life with a Chronic Illness written by Pippa Stacey and published by Jessica Kingsley Publishers. This book was released on 2024-04-18 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'I know that living with a chronic illness in this inaccessible world is tough. Trust me, I know. But you deserve to find peace and contentment just as much as anybody else. So welcome to your one-stop guide on how to make the most of life alongside your condition, in a way that truly works for you'. Chronic illness affects everybody differently, but we all share the goal of living meaningfully and making the most of what we have. This book exists to help you take accessible steps towards that goal and build a life that truly feels like yours. Instead of focusing on the medical side of long-term conditions, this book dives into the important parts of everyday living that often go unspoken about - from practical advice on friendships, dating and independent living, to more reflective guidance on rediscovering your identity and learning to self-advocate. Between these pages, you'll find bespoke information and resources curated through 10+ years of lived experience, alongside words of wisdom from diverse contributors and subject experts. This book also contains journal prompts, resource lists, and (perhaps most importantly) words of comfort and validation that people with life-altering conditions simply do not hear enough.