Download or read book Hope for Families of Children with Congenital Heart Defects written by Lynda T. Young and published by . This book was released on 2010-06-21 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The devastating words Congenital Heart Defect thrust parents of more than 36,000 children annually into a frightening, dark tunnel—dramatically changing the dynamics of each family. Because CHD, attacks unexpectedly, parents reel, bombarded with information regarding treatments, tests, and decisions—as parents echo, "I’ve never felt so alone. I can’t believe this is happening to us." From the initial diagnosis and throughout the daunting journey, the twelve chapters and resources in this guide weave advice, support, and hope from fellow travelers and medical professionals who come alongside through encouraging short stories, refreshing helpful hints, and inspiring scriptures and prayers. Many weary parents pull apart as communication breaks down during these devastating times—sometimes far apart. You-niquely Made is a section that helps family members appreciate different personalities and methods of coping. Overwhelmed families find comfort and courage as they read about the struggles parents face, balancing needs of their child and family (the set-aside spouses and the invisible ones—siblings) and self—the caregiver. Readers come to understand—the new normal of congenital heart disease. Heartfelt stories also include becoming your child’s advocate, reactions to stages of grief including unexpected waves and survivor’s guilt. This second book in the "You Are Not Alone" book series joins national award winning, Hope for Families of Children with Cancer, shining rays of light in the darkness.
Download or read book Rainbows Storms written by Jennifer Jackson and published by . This book was released on 2021-04 with total page 26 pages. Available in PDF, EPUB and Kindle. Book excerpt: Enter into the world of two young girls, each diagnosed with congenital heart disease, and witness how their unique paths translate into an instant connection between them. Their rare journeys, complete with surgeries at young ages and other complexities difficult for children to process, lends itself to forging a friendship that has given them the confidence to endure the lifelong fight against their CHDs and the emotional challenges that follow. The rainbows and storms the girl face side-by-side creates a special bond that helps carry them through challenges, yet also normalizes their childhood, including embracing their warrior zipper scar. Faith, hope, and love is instilled in the girls from their mothers and proves to be the anchor of all the uncertainty and their roadmap for learning to support each other along the way.
Download or read book Heart Warriors written by Amanda Adams and published by Behler Publications. This book was released on 2012-06-12 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.
Download or read book Special Heart written by Bret Baier and published by Center Street. This book was released on 2014-06-03 with total page 262 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fox News Channel anchor Bret Baier shares the New York Times bestselling story of his son Paul's ongoing battle with heart disease, and how it transformed his own life and family. This deeply touching personal story is told through the eyes of a journalist as he faces his life's greatest crisis: caring for his critically ill son. With the acute insight of a seasoned reporter, and the deep love of a husband and father, Baier shares behind-the-scenes stories and emotional narrative of young Paul's life thus far. Bret and his wife Amy emerge-just like their brave young son-scarred but infinitely stronger, and clearly understanding what matters most in life. Told by a loving father and master storyteller, this hope-filled account offers an inspirational glimpse into the family of a man who just happens to be someone millions turn to for the day's news. One hundred percent of what the author receives from the sale of this book is donated to various non-profit pediatric heart causes.
Download or read book Pediatric Home Care for Nurses written by Wendy Votroubek and published by Jones & Bartlett Learning. This book was released on 2010-09-15 with total page 763 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Home Care is a practice-based text perfect for either students or for supporting pediatric nurses practicing in a home-care setting. The text includes a variety of nursing information required for this type of care across a large spectrum of physiologic categories and acuity levels. The Third Edition has been completely revised and updated to reflect the most current practice and technology and includes a new focus on evidence based practice.
Download or read book Patch written by Jones Halls (Natalie) and published by . This book was released on 2012 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book My Brother Needs an Operation written by Anna Marie Jaworski and published by . This book was released on 1998-12-01 with total page 57 pages. Available in PDF, EPUB and Kindle. Book excerpt: Joey's life changes a great deal when his little brother, Alex, goes to the hospital. Includes information for parents, questions for the reader, a hospital diary, and activities.
Download or read book The Medical Library Association Guide to Finding Out About Heart Disease written by Jeanette de Richmond and published by American Library Association. This book was released on 2013-10-10 with total page 443 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heart disease affects millions of people every year. The MLA Guide to Finding Out About Heart Disease organizes and offers evaluated print and online resources to help readers develop a collection or research specific medical options, incorporating important data and key concepts about risk factors and symptoms of heart disease.
Download or read book The Heart of a Warrior a Mom s Journey of Faith and Hope written by and published by Old American Publishing. This book was released on with total page 132 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Gio s Heart written by Amir Alexander and published by . This book was released on 2021-08-16 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of Gio's Heart was inspired by the life of my son, Gianni "Gio" Young, who was born with a congenital heart defect called Hypoplastic Left Heart Syndrome or HLHS. Gio's Heart embellishes on personal lessons learned throughout a challenging ICU experience to illustrate the effect that one child's heart had on all who were connected to him. Gio's Heart encourages the spread of love, forgiveness, hope, and kindness, as well as allows young readers to practice visual recognition, use their motor skills, and use their imagination. Gio's Heart was written and illustrated with young children who have brief or extended stays in the ICU, as well as their parents and family members in mind. It is our hope that you can find support, representation, and encouragement within this book. Gio's Heart is dedicated to Gio and to all of the brave children with congenital heart defects worldwide.
Download or read book The Road Ahead written by Jane Seymour and published by Post Hill Press. This book was released on 2017-12-05 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: Each of us knows the absolute joy that a new relationship, or the birth of a child, or fulfilling your heart’s desire can bring. But it’s the life events that aren’t so euphoric that test how we weather those storms. Jane Seymour learned from her mother that, when your life is tough, the road becomes easier when you help others. In The Road Ahead, she shares inspirational stories from readers around the world who’ve overcome when the “happily ever after”—isn’t. Using a three-step process of o Acceptance o Unconditional forgiveness o Selfless acts of kindness you can take heart as you face your road ahead.
Download or read book Happily Everly After written by Everly Backe and published by . This book was released on 2019-07-23 with total page 74 pages. Available in PDF, EPUB and Kindle. Book excerpt: Everly is almost 2 years old. She's sweet and feisty all at the same time. She loves to do just about anything her big brother, Jack, is doing. She thinks she's 7, too! She loves playing with her dogs, Maddie and Grace, and snuggling our foster puppies. She loves to be outside. She especially loves to swing on her swing set and play in her sand table. She loves to read books and dance!
Download or read book Neuro Development and Psychological Issues in Congenital Heart Defects written by Antonio F. Corno and published by Frontiers Media SA. This book was released on 2018-02-07 with total page 87 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Download or read book Families of Children with Newly Diagnosed Congenital Heart Disease written by Lorraine M. Zinck and published by . This book was released on 1992 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Parent s Guide to Children s Congenital Heart Defects written by Gerri Freid Kramer and published by Three Rivers Press (CA). This book was released on 2001 with total page 278 pages. Available in PDF, EPUB and Kindle. Book excerpt: Provides answers to parents' concerns about congenital heart defects, discussing the various types of problems, their causes and long-term prognoses, the treatment options available, and what parents can do to help their children.
Download or read book Walk on Water written by Michael Ruhlman and published by Penguin. This book was released on 2004-03-30 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Described by one surgeon as “soul-crushing, diamond-making stress,” surgery on congenital heart defects is arguably the most difficult of all surgical specialties. Drawing back the hospital curtain for a unique and captivating look at the extraordinary skill and dangerous politics of critical surgery in a pediatric heart center, Michael Ruhlman focuses on the world-renowned Cleveland Clinic, where a team of medical specialists—led by idiosyncratic virtuoso Dr. Roger Mee—work on the edge of disaster on a daily basis. Walk on Water offers a rare and dramatic glimpse into a world where the health of innocent children and the hopes of white-knuckled families rest in the hands of all-too-human doctors.
