Download or read book Care of the Dying Child written by Ann Goldman and published by . This book was released on 1994 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: This unique book considers the specific medical, psycho-social, and practical issues involved in caring for children dying from chronic diseases. Ann Goldman, herself a consultant paediatrician in palliative care at the Hospital for Sick Children, Great Ormond Street, recognizes the special needs of terminally ill children and their families. She confronts the problems and issues surrounding the care of these children in order to help paediatricians and other professionals provide the very best possible care for such patients. A range of contributors experienced in palliative care for children provide comprehensive coverage of the subject, including: consideration of the magnitude of the problem and the provision of services, pain control symptom management, family support and communication with children, spiritual issues, bereavement, stress. This practical, interdisciplinary approach to the specific needs of children with terminal diseases will be invaluable for every professional who wishes to enhance standards of care for dying children and their families.
Download or read book Care of the Dying Child written by Robert W. Buckingham and published by Continuum Counseling Series. This book was released on 1989 with total page 212 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Home Care for the Dying Child written by Ida Marie Martinson and published by . This book was released on 1976 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Hospice Care for Children written by Ann Armstrong-Dailey and published by Oxford University Press. This book was released on 1993-09-02 with total page 314 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with life-threatening and terminal illnesses--and their families--require a unique kind of care to meet a wide variety of needs. This book provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment: organizational structure, clinical issues, the complementary roles of medical professionals and volunteers, the particular circumstances of neonatal and AIDS-related deaths, pain and symptom control, and bereavement support. It explains the developmental stages of children's understanding of death and offers useful advice about school programs and the helpful role of children's literature. Special consideration is given to the need to provide support to hospice staff as well as to grieving parents and surviving siblings. The book is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.
Download or read book Home Care for the Dying Child with Cancer written by Cindy L. Tucker and published by . This book was released on 1985 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book A Special Kind of Love written by Robert W. Buckingham and published by Burns & Oates. This book was released on 1983 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 470 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Download or read book The Private Worlds of Dying Children written by Myra Bluebond-Langner and published by Princeton University Press. This book was released on 2020-05-05 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Download or read book Pediatric Palliative Care written by Betty Ferrell and published by . This book was released on 2016 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Download or read book Home Health Care for Chronically Ill Children written by United States. Congress. Senate. Committee on Labor and Human Resources and published by . This book was released on 1985 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Caring for the Dying Patient and the Family written by Janet Moscrop and published by Springer. This book was released on 2013-11-11 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: This third edition of a popular textbook has been completely revised by the joint editors, Janet Moscrop and Joy Robbins. As in previous editions, the focus is on the person dying at home, in residential care or in hospital and the emphasis is on teamwork in caring for the individual and their relatives and friends. Experts in all aspects of care have contributed to this complete revision of the previous text and each chapter is written by a different member of the multiprofessional team. The chapter on the terminal care of people suffering from AIDS has been enlarged and consideration is also given to care of those in the term inal stages of other non-malignant diseases. Other new material includes chapters on complementary therapy, the use of the day centre, the value of volunteers, diversional therapy and respite care. The chapter on bereavement covers many aspects of grief and loss and there is a sensitive approach to the need for supporting staff in this spe cialized work. Consideration is also given to the needs of dying and griev ing people from differing ethnic backgrounds with varying cultural expectations in a pluralistic society. The third edition offers a broad overview of the support given to the dying person and the carers by medical and nursing staff, physiothera pists, pharmacists, social workers, the chaplaincy and members of the pastoral care team. Students of all these disciplines should find this book both readable and informative.
Download or read book Home Care of the Dying Child written by Ida Marie Martinson and published by Center for Thanatology Research &. This book was released on 1976-01-01 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Dying at Home written by Andrea Sankar and published by JHU Press. This book was released on 2024-02-20 with total page 307 pages. Available in PDF, EPUB and Kindle. Book excerpt: A comprehensive guide for those caring for a loved one nearing the end of life. Many people seek the comfort and dignity of dying at home. Advances in pharmacology and hospice care allow the dying to remain at home relatively free of pain and symptoms, but navigating professional services, insurance coverage, and family dynamics often compounds the complexity of this process. Extensively updated and revised, this third edition of Andrea Sankar's Dying at Home: A Family Guide for Caregiving provides essential information that caregivers and dying persons need to navigate this journey. Featuring contributions by professionals and personal stories from in-depth case studies of family caregivers, this guide discusses the challenges, resources, benefits, and barriers to care at home. With updates on advance care planning, developments in palliative care medicine, and the availability of legally assisted dying, this edition discusses how to: • Arrange medical care, nursing, and ancillary therapies • Understand costs, sources of financial support, and insurance coverage • Collaborate with health professionals in the home • Assist in implementing pain management techniques • Find social and spiritual support, as well as self-care for caregivers • Handle family dynamics and legal matters • Collaborate to make complex care and treatment decisions • Navigate the process of dying and caring for the body after death
Download or read book On Children and Death written by Elisabeth Kübler-Ross and published by Simon and Schuster. This book was released on 2011-07-26 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: On Children and Death is a major addition to the classic works of Elisabeth Kübler-Ross, whose On Death and Dying and Living with Death and Dying have been continuing sources of strength and solace for tens of millions of devoted readers worldwide. Based on a decade of working with dying children, this compassionate book offers the families of dead and dying children the help -- and hope -- they need to survive. In warm, simple language, Dr. Kübler-Ross speaks directly to the fears, doubts, anger, confusion, and anguish of parents confronting the terminal illness or sudden death of a child.
Download or read book Parental Perceptions of Needs and Concerns Regarding Home Care of Their Dying Child written by Betsy J. Antenucci and published by . This book was released on 1981 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Palliative Care for Infants Children and Adolescents written by Brian S. Carter and published by JHU Press. This book was released on 2011-10-15 with total page 769 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
