Download or read book Mommy Has Lupus written by Aujia Wood-Russell and published by Christian Faith Publishing, Inc.. This book was released on 2023-02-09 with total page 97 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nine-year-old Lisa tells her little sister all about Mommy being sick with lupus. She has to be creative in order to help her little sister understand the ins and outs of such a complex disease. Lisa answers the question, "What is Lupus?" and "How does it affect Mommy?" like only a child can.
Download or read book LIVING WITH THE WOLF and Surviving Lupus written by Liz Shaw-Stabler and published by Xlibris Corporation. This book was released on 2010-07-31 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: “This book from Liz Shaw-Stabler brings passion, guidance, and hope to the struggle of people suffering from chronic illnesses. Liz has spent decades battling systemic lupus, even enduring kidney failure and the challenges of living each day after day when she feels ill and then the near-miracle of kidney transplant—and all of the effects on the living of life. Liz is greatly admired by all who know her—a fighter, dedicated not only to personally overcoming illness, but also to bringing health care to people of color—a group that SLE strikes particularly hard. Shaw-Stabler is a professional educator and a passionate advocate, devoting hundreds of hours to founding LupusCare, which provides education and group meetings for a community in Los Angeles that is rich in African American and Latino families—a community that needs much better access to health care and health education. This book is another step in the battle. Read it to understand, to learn, and to discover how one person can influence the battle for personal and public health. Finally, read it to be inspired and to be moved to action. This book and its author are national treasures”—Bevra H Hahn, MD Professor of Medicine Chief of Rheumatology, David Geffen School of Medicine at UCLA, Great Admirer of Liz Stabler-Shaw Los Angeles, California, June 2010. “Lupus is a life-altering experience and wisdom provided our teachers and mentors can be enabling and empowering. Liz Shaw-Stabler has helped hundreds of women with her reassuring advice”—Daniel J. Wallace, MD, FACP, FACR Chief of Rheumatology at Cedares-Sinai Medical Center Liz Shaw-Stabler was born in East Texas and received her undergraduate degree from Prairie View A and M University. She moved to Chicago, Illinois, and began her career immediately after graduation. After living in Chicago for a few years, teaching high school, acquiring a Master’s Degree and doing freelance modeling, she slowed down long enough to get married. She is the mother of one daughter who resides in Chicago. Liz now lives with her husband, Jay, in Inglewood, California, where she became the Founder and Executive Director of the Center for Lupus Care Incorporated and organization that advocates for under-served lupus patients. Liz is a thirty-year lupus patient and has suffered many life-threatening illnesses but continued to believe that she was created to do something much bigger than her illness.
Download or read book Lupus It Chose Me written by LaTonya Bias PhD and published by WestBow Press. This book was released on 2020-04-28 with total page 127 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is time, at last, to speak the truth about Lupus, and the truth is this. No one knows currently if your autoimmune system is the reason you have Lupus. For me, if this is the truth, why aren’t we implementing blood transfusions? New blood, could that be the cure? This book is about bringing awareness from one person’s perspective, as to what is going on in her life with Lupus. “Let me help you take back your life by sharing my story. I hope this will provide you with a clear understanding of what Lupus is and how to maintain your body daily. Moreover, I want you to know what to do if you or someone you know is affected by this madly disease”.
Download or read book Despite Lupus written by Sara Gorman and published by Sara Gorman. This book was released on 2009 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Looking for a better way to manage life with a chronic illness? Despite Lupus will guide you through the proven steps needed to obtain the emotional and physical wellness you deserve.
Download or read book Julie s Story My Life With Lupus written by Julie Miller and published by Author House. This book was released on 2008-10-14 with total page 108 pages. Available in PDF, EPUB and Kindle. Book excerpt: Julie's Story, 'My Life With Lupus', sums up the challenges and struggles of a young woman's life in dealing with the very unpredictable disease, Lupus. Julie was a young and energetic twenty- four- year- old woman with her whole life ahead of her. Planning the wedding of her dreams to her college sweetheart and finishing her Master's degree in Social Work, life couldn't get any better! Although life was headed in the right direction for Julie, her health had other plans. Julie began noticing vague symptoms which became bothersome to her studies. She hesitated to voice these problems due to the fact 'she looked fine on the outside'. For a year, Julie dealt with ongoing fatigue and pain which was attributed to the stress of planning a wedding and working toward a master's degree. Eventually, the symptoms worsened and Julie needed to seek medical attention. What would the doctors tell her? How would she react? Ten years later, Julie is talking about how she coped through the challenges and got through the difficult days in dealing with lupus. "Life is a rollercoaster", Julie says. "It has its ups and downs, but you just have to take one day at a time. I feel God has blessed me with Lupus, so that I can reach out to others. My life could be a whole lot worse, and I've seen a whole lot worse". Julie's Story, 'My Life With Lupus' has been written for all of those who suffer from an autoimmune disease. Especially the great friends I've made along the way. Some of the proceeds of this book will be donated to the Lupus Foundation to help find a cure for this very unpredictable, life-threatening disease!
Download or read book Travels with the Wolf written by Melissa Anne Goldstein and published by Ohio State University Press. This book was released on 2000 with total page 298 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Lupus Foundation of America estimates that between .5 and 1.5 million people have been diagnosed with lupus, a chronic autoimmune disease that can attack any part of the body. The elusive nature of the illness often becomes a source of overwhelming helplessness and frustration to its victims, their loved ones, and the physicians who treat it. Narrated through both poetry and prose, Travels with the Wolf is an autobiographical account of Melissa Anne Goldstein's experiences with lupus. It is her story of becoming a young woman, writer, and teacher in the presence of severe, often debilitating disease. It is an exploration of her relationships with her family and friends as the illness steals into their lives, and the record of her struggle to maintain her independence and identity despite disease. Finally, it is an author's journey to find her spiritual core. This book is not just about lupus. Goldstein uses her experience of the illness as well as sociological, literary, and historical research, to portray and understand the dilemmas faced by the chronically ill person in our society. In her conclusion, she calls for reform of today's health care system, which does not meet the needs of the chronically ill or their physicians.
Download or read book Her Have Lupus written by J. Maolisa McLaughlin and published by Createspace Independent Publishing Platform. This book was released on 2016-04-15 with total page 86 pages. Available in PDF, EPUB and Kindle. Book excerpt: This is a true story of a young mother's fight for survival from a potentially devastating disease of Lupus. It is a story of courage, faith, love and hope.
Download or read book Julie s Story My Life with Lupus written by Julie Miller and published by . This book was released on 2008-10 with total page 104 pages. Available in PDF, EPUB and Kindle. Book excerpt: Blake Habers hated Indians, especially the tribe his sister lived with. He forced her to come home with him. But Amanda had other plans that involved her lawyer, Gentry Fox. Though he couldn't help her with her problem, he knew someone who could. Shawna dreaded hearing from her cousin. For it always meant trouble, for her. Leaving preparations for the cattle drive in her foreman's hands, she and Joshua went to deal with Gentry for the last time. Once there, things became more complicated. Namely because of who Amanda's husband turned out to be. Desert Wolf was in search of his wife. But after years of believing she was dead, he was dreaming of his first love, Little Eagle. Suddenly, all his deeply buried feelings for the sultry chief consumed him. Was this a sign she was alive and searching for him? Should he leave his wife for her? Would Little Eagle become his regardless of everything? Of all his questions, this he wanted to know most of all. Kali Ickier had something in common with Shawna, but that didn't stop Desert Wolf from wanting her. Still on the run, the girl reluctantly joins the Kanes in their travels. Knowing her husband's desires, Amanda tries to sway the girl into marriage. But another Indian has other plans for her.
Download or read book Lupus written by Suzy Szasz and published by . This book was released on 1995 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: An autobiography in which the author discusses her ongoing battle with Lupus, telling of her refusal to be defined as a victim because of her chronic illness, and revealing her detemination to live a full, independent life.
Download or read book Lupus the Disease with a Thousand Faces written by Rick Saldan and published by Createspace Independent Publishing Platform. This book was released on 2013-09-09 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines several of the reasons why a disease as dreadful as Lupus continues to remain unrecognized, undiagnosed and untreated at a time when incredible breakthroughs have been made with countless other diseases. Lupus is often a debilitating disease that silently destroys the lives of its victims, dismantling every aspect of their lives block by block. In many ways, Lupus can be viewed as a modern-day form of Leprosy. Its sun sensitive victims often have to hide in darkness because the sunlight causes them such extensive pain and a number of other symptoms. Their social calendars go haywire because they never known when the Lupus flare-ups will strike and all plans have to suddenly be canceled. They agonize when so many around them make comments like, "Oh, she looks absolutely fine. I don't think anything is wrong with her. It's probably all in her head." Lupus is a chronic, inflammatory disease in which the body's immune system fails to serve its normal protective functions and instead forms antibodies that attack healthy tissues and organs. Up to 2 million people have been diagnosed with Lupus, making it more prevalent at that time than sickle cell anemia, cerebral palsy, multiple sclerosis and cystic fibrosis combined. Lupus affects 1 in every 185 Americans, and although it can occur at any age, and in either sex, 90% of people with Lupus are women. There is no cure for Lupus. Lupus symptoms may include achy joints, frequent fevers, prolonged or extreme fatigue, skin rashes, anemia, kidney involvement, pleurisy (chest pain), abnormal blood clotting and nervous system effects such as difficulty concentrating, seizures, memory loss and personality changes. Because most of the symptoms of Lupus are internal, Lupus patients often appear strong and healthy in spite of their very poor health. They can look fine on the outside, but are tormented and agonizing on the inside. The debilitating effects of Lupus are sometimes multiplied by symptoms of overlapping syndromes. Lupus can be accompanied by other autoimmune disorders such as fibromyalgia, CREST syndrome, autoimmune hepatitis and Sjogren's syndrome. The combination of these disorders can be extremely debilitating, as they affect all systems of the body. What can be done to start making a change for the people who are so heavily victimized by Lupus?
Download or read book Butterfly Girl My Lupus Journey written by Aimee Ackell and published by Createspace Independent Publishing Platform. This book was released on 2016-03-23 with total page 78 pages. Available in PDF, EPUB and Kindle. Book excerpt: Aimee Ackell's, Butterfly Girl, MY LUPUS JOURNEY is a story about the time she was diagnosed with Lupus and how she weathered many trials and challenges on her journey of twenty years with the disease. She gives the reader a positive outlook on how to handle it and how she persevered in her life. She talks about her illness, medications, hospitalizations, family, friends, work, exercise, diet spirituality, and love for inspiring people to conquer their fears with an illness. She is a motivating individual who believes that anyone can just do it to heal him or herself back to being healthy. Aimee Ackell offers an informative and positive perspective on coping with Lupus for people with the disease and their families. Lupus is a chronic autoimmune disease that is difficult to diagnose, and the symptoms-from achy joints to skin rashes- often mimic those of other diseases. Lupus affects more than 1.4 million people in the United States, and affects more women then men. It is considered the silent disease. Her journey of twenty years with Lupus demonstrates the good, the bad and the ugly. The challenges of Lupus are unlimited but there is hope and inspiration given to the reader. She describes the major events that have affected her with her Lupus and how she handled it. The reader walks away with a confident outlook on to handle Lupus. She is very inspirational and her journey allows you a peek into her life while living with a chronic disease. As she always says, smile and smile more!
Download or read book Lupus written by Marisa L. Zeppieri-Caruana and published by Thoughts & Letters Incorporated. This book was released on 2013-04-30 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life was progressing as expected; getting sick was never part of their plan. However, in its own distinct and sudden way, Lupus showed up in the lives of the men and women profiled in this book. Although their ages, locations and stories are different, they all share one thing in common: they refuse to give up hope, despite Lupus. Lupus: Real Life, Real Patients, Real Talk is the first book of its kind in relation to the disease. Journalist, Lupus patient and Lupus Foundation of America Board Member, Marisa Zeppieri-Caruana, sets out to find men and women across the nation who will share the hurdles of daily life when battling a debilitating and cruel disease. What she discovers is a community not broken and hopeless, but one that is optimistic and refuses to give in. These patients have encountered many obstacles - kidney transplants, open-heart surgeries, coma, and dialysis - yet they continue to persevere. They share their darkest moments and their future dreams. In addition to telling their stories, they discuss tips on how to manage and deal with the disease - emotionally, spiritually and physically. This book provides tangible information and inspiration for every Lupus patient and their loved ones. It is also an essential tool for those who are newly diagnosed and trying to navigate the choppy waters of chronic illness and daily life. Featuring Amy Kelly-Yalden, CEO of the Lupus Foundation of America, Southeast Chapter, and Magdalena Cadet, MD, FACR, Director of Rheumatology at New York Presbyterian Healthcare System, this book is not to be missed.
Download or read book Lupus the Battle Within written by Valerie Horn and published by Vjh Publishing. This book was released on 2016-08-17 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Valerie Horn is a lupus patient that has been battling lupus for over fifty years. While living in New York City, her parents did whatever they could by taking her from hospital to hospital, until that one special doctor made a difference in her life. She shares her life story with admirable strength and courage, as she takes you through her most precious and private moments. You will follow Valerie's journey from childhood, when she was first diagnosed, all the way into adulthood, as she talks about her marriage and divorce and raising a child. Her leap at love again left her heartbroken in another state, with two more children to raise...alone. "Lupus: The Battle Within," is a glimpse into the daily struggle that so many lupus patients face, but may be too ashamed to talk about. In Horn's debut memoir, you are reminded that you are NOT alone. You can persevere like a champion, and leave a "Legacy" for your family to remember forever.
Download or read book The Love for a Dying Woman with Lupus written by Odell K. Miller Sr and published by . This book was released on 2008-02-01 with total page 80 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book captures the life lived by young people who survived the Biafran war with Nigeria. Timothy's life was the focus of the book. Timothy lived and survived the war. He also survived the aftermath of the war, when it finally ended, to find love with his sweetheart, Amber. Both Timothy and Amber endured the village life, which neither of them was used to before the war. They both lived in the village among the villagers after the war. While living in the village, both converted the disadvantages into advantages when they went to work with Phillip of UNESCO. Timothy is a likeable person, and Phillip of UNESCO like him so much he would have done anything for him. Timothy benefited but did not take advantage of Phillip's fondness for him. Timothy's cultured and intelligent attitude earned him the trust of everyone around him. Amber saw and appreciated his many good qualities and all that he did, and both of them found love.
Download or read book Nicki the Lupus in Me written by Lois'e Hall and published by . This book was released on 2002-09 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Tragedy happened in 1980, and Nicki's life took a turn that changed the lives of much of our family and close friends around us. We called it the evil generation gap, and that explains it all. It changed our future, leaving a scar so wide that no graft could mend the space that was displaced in our healing. It is an incurable disease. I thought, "It is not the hand of God. It can only be the hands of Satan evil hands." I took from every event of our lives, especially mine, searching to find a reason or "the truth of things that had come." In my long search, you will see the point for my calling this thing the evil generation gap. It's a long haul that I found touched not only my family, but also many families like mine. It affects many people of all ages. It does not have a generation. This story not only teaches you the life of lupus, it also teaches you that God plays a very important part in the life of a person dealing with lupus and the family and friends who are around them. Nicki's doctors gave her a short time. When she was diagnosed with lupus, she was eleven years old, very active, smart and loved by all who knew her. God gave us much more time than was expected by her doctors and the medical staff who cared for her. As you take the time to read this book, you will see how illness can destroy, and destroy again, the lives of loved ones. In the still and peaceful night creeps the darkness that stands outside the doorway, awaiting the return of the beautiful smiling face of the one we hold so dear, and beneath that face is held a mound of pain.
Download or read book When Lupus Throws You for a Loop written by Donna Oram and published by Createspace Independent Publishing Platform. This book was released on 2017-02-03 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Lupus Throws You for a Loop is a handbook for those newly diagnosed, lupus veterans, and those who love them. It takes you on a journey to acceptance acknowledging the difficulty of incorporating lupus into your life. You learn ways to communicate effectively, live with unpredictability, imperfection, stress, and loss of control. You learn to read your body's signals, enhance your relationships regarding intimacy, and increase your positivity and resilience. The book explores the various types of impact lupus has on adolescents and adults as well as the relationships of your significant others. You learn to feel confidant, proud, strong and empowered. You learn what it is to be a true warrior of lupus. One year after being diagnosed with lupus, the author earned a master's degree in social work. Rather than focus on the negativity of her diagnosis, Donna Oram decided to volunteer and work in the lupus community for twenty-plus years mentoring positive attitudinal changes. The book is interspersed with personal and professional experiences Donna encountered. Her vast knowledge, insight, and empathy for those who have lupus and those who love them guided her desire to help. She has "walked the walk."
Download or read book Lupus written by Wanda M Argersinger and published by . This book was released on 2020-08-23 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Wanda Argersinger was diagnosed with lupus when the diagnosis came with the words 'five year survival rate'. It was devastating and could easily have been the stopping point of a young life. That was not what Wanda wanted. She was determined to learn all she could about this foe and find a way to fulfill her dreams, pursue her passions, and live a rewarding life. Thirty years later she is telling her story and sharing it with the world. Her diagnosis has not changed, but how she faces her disease and those who treat her lupus has changed. In this books she shares what she has learned, how she faces those who don't believe, and the good and bad of medical practitioners.
