Download or read book Health Maintenance Education for Caregivers of Pediatric Inflammatory Bowel Disease Patients Impact on Knowledge and Adherence written by Payal Dharia and published by . This book was released on 2021 with total page 188 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Inflammatory Bowel Disease (IBD) has the potential to affect growth, pubertal and psychosocial development. Limited knowledge and adherence can be problematic for both children with IBD and their caregivers. Inflammatory bowel disease experts recommend annual physical exams, gastroenterologist appointments, vaccinations, eye screenings, and laboratory work. At the time of implementation, the project site did not have a standardized process for health maintenance education for IBD patients/caregivers. The primary purpose of this study was to examine the impact of a live online educational intervention on caregivers of pediatric IBD patients’ level of knowledge and health maintenance adherence. Secondary aims included: (1) to compare various demographic characteristic with IBD knowledge scores and (2) to evaluate the educational session. IBD knowledge was measured using the IBD-KNOW tool before the intervention and one-week and six-weeks after the intervention. Caregivers were asked about adherence to and plans for scheduling health maintenance appointments pre-intervention and six-weeks later, respectively. Evaluation of the education was measured one-week after the session. Caregivers (N = 24), most college-educated, participated in one 30-minute education session. Results indicated a significant 13.7% (p =.002) increase in mean knowledge scores from pre-intervention to the six-week follow up. All caregivers (n = 14) reported they planned to schedule the recommended appointments (i.e., eye exam, blook work, vaccinations, and provider appointments) during the upcoming year. However, during the prior year, five of 24 caregivers reported the child did not have an eye exam. Results revealed a significantly higher knowledge level at baseline for those with a family history of IBD (t = 2.25, p = .035). Findings indicated no significant difference between knowledge scores in caregivers of children with Crohn’s disease versus Ulcerative colitis. Caregivers (n = 21) were overwhelmingly satisfied with the education; found it helpful and understandable. Online education may help to improve IBD-related knowledge, health maintenance plans, and prevent disease related complications. Future research could provide education directly to IBD patients in their teen-years and examine the impact on knowledge and adherence.
Download or read book Your Child with Inflammatory Bowel Disease written by North American Society for Pediatric Gastroenterology, Hepatology and Nutrition and published by JHU Press. This book was released on 2010-06-10 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has inflammatory bowel disease, the family has many concerns: Why is my child sick? What can we do to help him get better? What does the future hold for her? In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD. The authors' empathy and experience are evident throughout as they answer such questions as: • What are inflammatory bowel disease, Crohn disease, and ulcerative colitis?• Is there a cure for IBD?• How is IBD going to affect my child's daily life?• Will my child's diet change?• Can my child still play sports?• Will my child need surgery?• What are the side effects of commonly prescribed medications? The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Additional information on IBD medications, complementary treatments, and further reading round out this comprehensive and reliable resource.
Download or read book Healthcare Partnerships for Pediatric Adherence written by David D. Schwartz and published by Springer. This book was released on 2015-04-20 with total page 183 pages. Available in PDF, EPUB and Kindle. Book excerpt: This timely professional reference and educational resource applies current concepts of pediatric adherence to medical treatment to create a model for a family-centered, collaborative approach to managing chronic illness. At its core are the latest findings on adherence: the factors that encourage it, the barriers that derail it, and the most effective interventions for its improvement. The book's developmental lens highlights how adherence waxes and wanes across different stages of childhood and adolescence, and specialized chapters analyze social realities exacerbating adherence problems. And its end product is a framework for how patients, parents/caregivers, and providers can work together effectively for improved adherence and optimum outcomes. Included in the coverage: The scope and impact of nonadherence. Poverty, stress, and chronic illness management. Racial/ethnic health disparities and adherence. Reconsidering the idea of self-management. · Screening for nonadherence in pediatric patients. · A comprehensive behavioral health system for identifying and treating nonadherence. Healthcare Partnerships for Pediatric Adherence offers relevant contemporary perspective for pediatricians looking for new ways to reduce treatment failure, improve support to patients and their families, and promote patient involvement in their own care.
Download or read book Your Child with Inflammatory Bowel Disease written by North American Society for Pediatric Gastroenterology, Hepatology and Nutrition and published by JHU Press. This book was released on 2017-12-15 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: "When a child has inflammatory bowel disease, the family has many concerns: Why is my child sick? What can we do to help him get better? What does the future hold for her? In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD. The authors' empathy and experience are evident throughout as they answer such questions as: - What are inflammatory bowel disease, Crohn disease, and ulcerative colitis?- Is there a cure for IBD?- How is IBD going to affect my child's daily life?- Will my child's diet change?- Can my child still play sports?- Will my child need surgery?- What are the side effects of commonly prescribed medications?The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Additional information on IBD medications, complementary treatments, and further reading round out this comprehensive and reliable resource." --Publisher description.
Download or read book Pediatric Inflammatory Bowel Diseases Looking to the Future written by Eytan Wine and published by Frontiers Media SA. This book was released on 2020-04-01 with total page 85 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Pediatric Inflammatory Bowel Disease An Issue of Gastroenterology Clinics of North America E Book written by Marla Dubinsky and published by Elsevier Health Sciences. This book was released on 2023-08-09 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this issue of Gastroenterology Clinics, guest editor Dr. Marla Dubinsky brings her considerable expertise to the topic of Pediatric Inflammatory Bowel Disease. Pediatric patients with IBD become adult patients with IBD, making it imperative that children receive early, effective intervention to optimize their growth and development, minimize disease complications, and support patients on their journey from childhood to adulthood. In this issue, top experts provide up-to-date information that helps provide an evidence-based approach for each patient. Contains 11 practice-oriented topics including optimizing the transition and transfer of care in pediatric IBD; building a self-management toolkit for pediatric IBD patients; choosing the right therapy at the right time for pediatric IBD: does sequence matter?; the state of clinical trials in pediatric IBD; the role of diet in pediatric IBD; and more. Provides in-depth clinical reviews on pediatric inflammatory bowel disease, offering actionable insights for clinical practice. Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field. Authors synthesize and distill the latest research and practice guidelines to create clinically significant, topic-based reviews.
Download or read book Pediatric and Inflammatory Bowel Disease written by John A. Walker-Smith and published by Karger Medical and Scientific Publishers. This book was released on 2009 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic inflammatory bowel disease (IBD) encompasses Crohn's disease, ulcerative colitis and indeterminate colitis. The distinct phenotype in pediatric and adolescent patients and the difference from adult IBD make early-onset IBD a unique subgroup requiring specific therapeutic considerations. In this book, leading experts from the USA, Europe and Israel present new data on the genetics, epidemiology, pathology and pathogenesis of pediatric IBD. Imaging and endoscopy in the diagnosis of IBD are also discussed. Extensive coverage is given to disease management, i.e. pharmacological, nutritional and surgical approaches, with special emphasis on growth failure and delayed puberty. The important topic of transition from pediatric to adult medical care is highlighted and a clinical and developmental timeline is proposed.Offering practical information on IBD in infants, toddlers, children, adolescents and young adults, this book is essential reading for gastroenterologists, in particular pediatric gastroenterologists and trainees, as well as general pediatricians and nutritionists.
Download or read book Pediatric Inflammatory Bowel Disease written by Petar Mamula and published by Springer Science & Business Media. This book was released on 2012-12-14 with total page 573 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Inflammatory Bowel Disease, Second Edition provides an essential reference with an emphasis on the unique pediatric issues of IBD. Chapters focus on complications of IBD specific to children and adolescents. Treatment recommendations are based on the latest clinical research available. The textbook also presents sections dedicated to the aspects of participation in clinical research unique to children and adolescents and the complicated yet vital process of successfully transitioning a patient from a pediatric to adult specialist. Controversies in pediatric IBD care such as the off-label use of medications are also covered. The format incorporates multiple tables, graphs, and figures to improve readability and make for an efficient reference for clinicians to use. Thoroughly revised and updated from the first edition, the volumes includes new therapies that are currently being used or tested for treatment of IBD, important areas regarding incidence and prevalence, immunization and response to vaccine administration as well as advancements in our understanding of growth and development with particular to the use of growth hormone therapy. Other new areas covered include important topics of complementary and alternative medicine use in IBD, immunization, and liver disease in IBD. Pediatric Inflammatory Bowel Disease, Second Edition is a valuable resource for pediatric gastroenterologists as well as adult gastroenterologists.
Download or read book Impact of the Transition from Pediatric to Adult Medical Care on Health Service Utilization in Inflammatory Bowel Disease IBD written by Xinbei Zhao and published by . This book was released on 2017 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: OBJECTIVES: Inflammatory bowel disease (IBD) is a chronic condition with increasing pediatric incidence. Transition from pediatric to adult care is associated both with disruption of links with familiar caregivers and differences in health care delivery. This study explored the impact of the transfer from pediatric to adult care on health services utilization for pediatric-onset IBD patients. APPROACH: A population-based retrospective cohort study identified all children diagnosed with IBD 1994-2008 and treated by pediatric gastroenterologists from within Ontario health administrative data. Self-controlled case series analyses compared health services utilization in the 2 years before and after transfer to adult gastroenterologists, with a 6-month washout period at transfer. Outcome evaluated included IBD related/specific hospitalization, emergency department (ED) utilization, outpatient visits, and laboratory utilization. Relative incidence (RI) in the post-transfer was compared to pre-transfer periods using Poisson regression analysis controlling for transfer starting age. Analyses were stratified by IBD types: Crohn's disease (CD) and ulcerative colitis (UC). RESULTS: 536 patients were included in the study (388 CD, 148 UC). ED utilization rate was higher after transfer for both CD (RI 2.12, 95% CI 1.53-2.93) and UC (RI 2.34, 95% CI 1.09-5.03). Other increases in health care provision included outpatients visits (CD: RI 1.56, 95% CI 1.42-1.72; UC: RI 1.48, 95% CI 1.24-1.76), and laboratory investigations (CD: RI 1.43, 95% CI 1.26-1.63; UC: 1.38, 95% CI 1.13-1.68). There was no statistically significant change in hospitalization (CD: RI 0.70, 95% CI 0.42-1.18; UC: RI 2.41, 95% CI 0.62-9.40). Sensitivity analysis revealed similar results when only the first year post-transfer period was assessed. CONCLUSIONS: In the largest study to date examining the transfer from pediatric to adult IBD care, health services utilization increased significantly in the two years after transfer for measures of access to health care providers. Understanding causation and rigorously evaluated transition programs may help to better manage the resources and meet the needs of pediatric-onset IBD patients.
Download or read book Micronutrient Supplementation in Pediatric Inflammatory Bowel Disease written by Kaila A. Stephens and published by . This book was released on 2013 with total page 50 pages. Available in PDF, EPUB and Kindle. Book excerpt: Objective: To summarize rates of supplement adherence in youth with inflammatory bowel disease (IBD) and to identify predictors and outcomes of supplemental adherence. Methods: 49 adolescents (ages 11-18) participated. Youth completed six monthly assessments of adherence and supplement knowledge. Youth and parents completed questionnaires. Medical record reviews provided medical and laboratory data. Results: Mean supplement adherence rates ranged from 32% to 44%. Predictors of supplement adherence included higher knowledge (for multivitamin, iron, and calcium adherence) higher family involvement (for iron and calcium adherence), and greater inflammation (via a hematological index) for multivitamin adherence. Few relationships between supplement adherence and inflammation, growth, or nutritional outcomes were found. Conclusion: Supplement adherence is problematic in pediatric IBD, and predictors of adherence tended to be psychosocial rather than biological variables. Future research with larger sample sizes and assessments of supplement adherence that do not rely solely on patient self-report are important next steps.
Download or read book The Effect of a Tailored Patient Activation Intervention in Inflammatory Bowel Disease IBD Patients a Pilot Study written by Chisom Nnenna Kanu and published by . This book was released on 2017 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Patient activation may improve medication adherence by equipping patients with skills and knowledge about their disease. There is evidence of a positive relationship between activation and quality of life in IBD patients. However, the impact of a tailored patient activation intervention (PAI) among this group of patients has not been investigated. Activated patients are motivated to be partners in managing their health and would most likely remain in remission for longer periods (in the case of IBD patients). The purpose of this study was to evaluate the effectiveness of a Patient Activation Intervention (PAI) tailored to the needs of individual IBD patients in improving patient activation levels (primary outcome) as well as medication adherence, and satisfaction with medical care. A pre-test, post-test, control group design was employed. IBD patients, who met the inclusion criteria, were selected from medical records via convenience sampling, were consented and completed a baseline survey. They were then categorized into one of four patient activation stages based on responses to the 13-item patient activation measure (PAM-13) at baseline. During their office visit, intervention group patients (N=23) were given a tailored PAI based on their stage which consisted of an information booklet and focused discussion with the gastroenterologist, while the control group (N=27) received usual care. For those who completed both surveys (N=20 intervention group and N=21 control group), baseline scores were compared to 1-month post-intervention scores for changes in patient activation score/stage, medication adherence, and satisfaction with medical care using Chi square and T tests. The majority of participants were Caucasian (88%), female (64%), college graduates (56%), and had Crohn’s disease (59.2%). Averaging across both groups, females had a significantly higher (p=0.04) mean activation score (Mean=70.9, SD=15.4) than males (Mean=60.9, SD=10.7) at baseline and this trend was the same post-intervention (75.6 females vs 64.4 males; p=0.03). The mean activation score difference pre- vs post-intervention for the intervention group (Mean=6.8, SD=12.0) was higher than that of the control group (Mean=1.9, SD=12.5; p=0.21). There was no significant difference in medication adherence or satisfaction scores pre- vs post-intervention for either group. Tailored PAIs have the potential to provide customized medical care to patients (especially those with chronic conditions) and to involve them in their disease management, leading to improved health outcomes.
Download or read book Adherence and Self Management in Pediatric Populations written by Avani C. Modi and published by Academic Press. This book was released on 2020-01-06 with total page 456 pages. Available in PDF, EPUB and Kindle. Book excerpt: Adherence and Self-Management in Pediatric Populations addresses the contemporary theories, evidence-based assessments, and intervention approaches for common pediatric chronic illnesses. An introductory chapter summarizes the state of the field and provides a general foundation in adherence and self-management. Subsequent chapters focus on specific diseases, ensuring that the scope of knowledge contained therein is current and thorough, especially as the assessments and interventions can be specific to each disease. Case examples are included within each chapter to illustrate the application of these approaches. The book ends with an emerging areas chapter to illuminate the future of adherence science and clinical work. This book will be extremely helpful to professionals beginning to treat youth with suboptimal adherence or for those who conduct adherence research. Experts in the field will benefit from the synthesized literature to aid in clinical decision-making and advancing adherence science. Organized by disease for quick reference Provides case examples to illustrate concepts Incorporates technology-focused measurement and intervention approaches (mobile and electronic health) throughout
Download or read book The Impact of Adult Heatlh Care Model Academic Versus Community on Emergent Health Resource Utilization in Patients with Pediatric onset Inflammatory Bowel Disease written by Natasha Bollegala and published by . This book was released on 2016 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Background: Patients diagnosed with Inflammatory Bowel Disease (IBD) during childhood require transfer to an adult gastroenterologist. Purpose: The purpose of this study was to determine the impact of post-transfer health care setting (academic vs. community) on emergent health resource utilization. Methods: This was a population-based retrospective cohort study using health care administrative data from Ontario, Canada. Patients with PO-IBD were identified and health resource utilization during a 2-year pre-transfer period, transfer of care period and 2-year post-transfer period was analyzed. Comparator groups included academic vs. community vs. loss-to-follow-up. The primary outcome comprised Emergency Department (ED) utilization. Secondary outcomes included hospitalizations, surgeries, ambulatory visits, endoscopic and radiological investigations. Results: There were no significant differences found in ED use, ambulatory care visits (aside from the lost to follow-up group), hospitalizations, endoscopic or radiological procedures. Conclusion: Post-transfer healthcare setting does not impact emergent health resource utilization in the post-transfer period.
Download or read book Cumulated Index Medicus written by and published by . This book was released on 2000 with total page 1836 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Health Care Transition written by Albert C. Hergenroeder and published by Springer. This book was released on 2018-05-03 with total page 386 pages. Available in PDF, EPUB and Kindle. Book excerpt: This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.
Download or read book Heart Failure in the Child and Young Adult written by John L Jefferies and published by Academic Press. This book was released on 2017-12-05 with total page 824 pages. Available in PDF, EPUB and Kindle. Book excerpt: Heart Failure in the Child and Young Adult: From Bench to Bedside combines multiple etiologies for pediatric heart failure, including congenital heart disease, cardiomyopathies, infectious diseases and metabolic abnormalities. This comprehensive resource combines research from multiple contributors with current guidelines to bridge the knowledge gap for the recognition and management of heart failure in children. Coverage begins with the basic science of heart failure, then progresses through diagnosis, management, treatment and surgery, finally concluding with advanced special topics, including genetics, self-management and nanomedicine. Provides coverage of the basic science of heart failure, its epidemiology and economic aspects, outpatient and inpatient management, and advanced therapies, including mechanical circulatory support and heart transplantation Combines cutting-edge research with current guidelines from the field
Download or read book Evidence Helping people help themselves written by Debra de Silva and published by The Health Foundation. This book was released on 2011 with total page 52 pages. Available in PDF, EPUB and Kindle. Book excerpt:
