Download or read book Family Needs of Parents of Children and Youth with Cerebral Palsy written by Nihad A. Almasri and published by Universal-Publishers. This book was released on 2010-08-30 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: It is important for professionals who provide medical, rehabilitation, educational, and community services for children and youth with cerebral palsy to provide a quality medical home, family-centered, and needs-based services to address their needs and improve child and family well-being. Knowledge regarding determinants and unique profiles of needs for families of children and youth with cerebral palsy is limited. The aims of this research were to (1) test structural equation models of determinants of three types of family needs of parents of children and youth with cerebral palsy; (2) identify and describe unique profiles of family needs; and (3) examine whether profiles of needs are differentiated based on child, family, and service characteristics. Participants were 579 parents of children and youth with cerebral palsy. Children/youth and their parents completed a modified version of the Family Needs Survey, Family Environment Scale, Coping Inventory, Children's Assessment of Participation and Enjoyment, Measure of Processes of Care, and Services questionnaire. Research assistants determined the Gross Motor Function Classification System levels of the children. The structural models explained 23% of variance in needs related to child condition, 43% of variance in needs related to community and financial resources, and 33% of variance in needs related to family functioning. The determinants of the three models included different combinations of services (accessibility, coordination, processes), family (relationships, income), and child (gross motor function, adaptive behavior, communication problems) characteristics. K-means cluster analysis indicated four unique profiles of needs: Low Needs, Needs Related to Child Health Condition, Needs Related to Community and Financial Resources, and High Needs. Profile membership was differentiated based on child gross motor function and adaptive behavior, family relationships and income, and access to and coordination of services. Families who were included in the profile of low needs commonly reported accessible, coordinated, and family-centered care. The results emphasize the importance of providing medical and family-centered services to address the unique needs of families of children and youth with cerebral palsy. Service providers are encouraged to engage families in expressing their needs, collaborate with families in identifying resources to meet needs, and guide families in navigating complex service systems to address needs.
Download or read book Family Needs of Parents of Children and Youth with Cerebral Palsy written by Nihad Almasri and published by LAP Lambert Academic Publishing. This book was released on 2013 with total page 184 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book is to identify child, family, and services determinants of family needs for child health, financial, and family functioning resources. In addition to describing profiles of family needs for parents of children and youth with cerebral palsy. Results of this research is discussed and important implications for planning family-centered services that are specific and cost effective are presented.
Download or read book Children and Youth with Complex Cerebral Palsy written by Laurie Glader and published by Mac Keith Press. This book was released on 2019-02-26 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Download or read book Cerebral Palsy written by Freeman Miller and published by JHU Press. This book was released on 2006-05-08 with total page 537 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
Download or read book Children with Cerebral Palsy written by Elaine Geralis and published by . This book was released on 1998 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The future is brighter then ever for children with cerebral palsy -- the most common developmental disability among young people today. With advances in medicine, early intervention, and therapy, these children can maximise their potential and lead healthy, rewarding lives. But perhaps the most important influence of all comes from parents who provide constant support and encouragement. This is essential reading for all parents who want to learn about cerebral palsy and how it will affect their child and family.
Download or read book The Parent to Parent Handbook written by Betsy Santelli and published by . This book was released on 2001 with total page 418 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this comprehensive book, you'll learn how to develop and maintain a strong local Parent to Parent program that individually matches "veteran" supporting parents with those who are new to the challenges of caring for a child with a disability.
Download or read book Child Parent Relationship Therapy CPRT Treatment Manual written by Sue C. Bratton and published by Routledge. This book was released on 2006-07-26 with total page 356 pages. Available in PDF, EPUB and Kindle. Book excerpt: This manual is the highly recommended companion to CPRT: A 10-Session Filial Therapy Model. Accompanied by a CD-Rom of training materials, which allows for ease of reproduction and enhanced usability, the workbook will help the facilitator of the filial training and will provide a much needed educational outline to allow filial therapists to pass their knowledge on to parents. The Treatment Manual provides a comprehensive outline and detailed guidelines for each of the ten sessions, facilitating the training process for both the parents and the therapist. The book contains a designed structure for the therapy training described in the book, with child-centered play therapy principles and skills, such as reflective listening, recognizing and responding to children’s feelings, therapeutic limit setting, building children’s self-esteem, and structuring required weekly play sessions with their children using a special kit of selected toys. Bratton and her co-authors recommend teaching aids, course materials, and activities for each session, as well as worksheets for parents to complete between sessions. By using this workbook and CD-Rom to accompany the CPRT book, filial therapy leaders will have a complete package for use in training parents to act as therapeutic agents with their own children. They provide the therapist with a complete package for training parents to act as therapeutic agents with their own children.
Download or read book Children with Cerebral Palsy written by Elaine Geralis and published by . This book was released on 1991-01 with total page 434 pages. Available in PDF, EPUB and Kindle. Book excerpt: CHILDREN WITH CEREBRAL PALSY is the first book that families of children with cerebral palsy should read. The second edition offers a complete spectrum of information and advice about cerebral palsy and its effect on development and education during a child's first six years. Parents' statements at the end of each chapter provide the reader with insight and perspective on how other families cope.
Download or read book Little Children Big Needs written by Don Weinhouse and published by . This book was released on 1994 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: Geared especially for parents, Little Children, Big Needs is also an excellent resource for professionals in early childhood education, special education, pediatrics, general medicine, nursing, occupational therapy, physical therapy, speech and language pathology, audiology, day care, social work, individual/family counseling, and recreation therapy. The extensive range of topics covered in Little Children, Big Needs ensures that this book will remain a relevant reference for many years to come.
Download or read book Understanding Cerebral Palsy written by Marion Stanton and published by Jessica Kingsley Publishers. This book was released on 2012 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: A great starting point for parents and professionals when they first encounter cerebral palsy, this book provides essential information on causes, types, symptoms and treatments as well as practical tips on everyday considerations such as communication and diet. This positive handbook will help readers more fully understand cerebral palsy.
Download or read book America s Children written by Institute of Medicine and National Research Council and published by National Academies Press. This book was released on 1998-10-27 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: America's Children is a comprehensive, easy-to-read analysis of the relationship between health insurance and access to care. The book addresses three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? America's Children explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of "safety net" health providers, including community health centers, children's hospitals, school-based health centers, and others and reviews the changing patterns of coverage and tax policy options to increase coverage of private-sector, employer-based health insurance. In response to growing public concerns about uninsured children, last year Congress voted to provide $24 billion over five years for new state insurance initiatives. This volume will serve as a primer for concerned federal policymakers and regulators, state agency officials, health plan decisionmakers, health care providers, children's health advocates, and researchers.
Download or read book Family Policy and Disability written by Arie Rimmerman and published by Cambridge University Press. This book was released on 2015-01-22 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book explores the status and scope of family policies related to households of children with disabilities, providing an in-depth, evidence-based review of legal, programmatic issues. It includes a discussion of the gaps between family needs and contemporary family policies in the United States and European countries, as demonstrated in these households' surveys. In addition, the volume offers a comparative analysis of cash benefits, tax credits and deductions, and in-kind provisions between the United States and select European countries (UK, France, and Sweden). Most importantly, this book identifies and continues the discussion regarding the critical role of family-centered policies, as expressed in the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), as well as the future of family policy toward families of children with disabilities at a time of economic crisis.
Download or read book Meanings Underlying Parent Narratives of Living with and Caring for Their Preadolescent Child with Cerebral Palsy written by Nicola Dominique Rodrigues and published by . This book was released on 2007 with total page 394 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Interventions for Feeding and Nutrition in Cerebral Palsy written by and published by . This book was released on 2013 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Physical Therapy for Children With Cerebral Palsy written by Mary Rahlin and published by Taylor & Francis. This book was released on 2024-06-01 with total page 465 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cerebral palsy is the most common movement disorder encountered in pediatric physical therapy practice. Physical Therapy for Children With Cerebral Palsy: An Evidence-Based Approach is a unique, comprehensive reference that focuses on physical therapy management of children with cerebral palsy through the analysis and synthesis of published research, and it offers evidence-based teaching and learning opportunities to a wide reading audience. Inside, Dr. Mary Rahlin examines the current approach to the diagnosis and classification of cerebral palsy and explores the research evidence related to prognosis; medical management; and physical therapy examination, evaluation, and intervention for children with this condition. Physical Therapy for Children With Cerebral Palsy analyzes cerebral palsy as a lifespan condition and utilizes the framework of International Classification of Functioning, Disability and Health (ICF). Sections include: Typical and atypical development of movement and postural control Cerebral palsy as a development disorder Medical management of alterations of body structures and functions by body systems Physical therapy management, including theoretical foundation, research evidence, and practice Normal and abnormal gait patterns and current evidence for orthotic management and assistive technology Transition to adult life Unique topics discussed: Variability, complexity, and adaptability in motor development The interdisciplinary team and effective interprofessional collaboration Assessment and management of therapy-related behavior Complementary and alternative interventions Segmental kinematic approach to orthotic management via ankle-foot-orthosis/footwear combination Other unique features include “Questions to Ponder” and “Suggested Questions for Future Research” at the end of each chapter. These are intended to generate healthy professional debate on a variety of topics, both in the classroom and in the clinic, and challenge the readers to plan new studies in search for evidence that will continue moving the pediatric physical therapy practice forward. Bonus! Also included with Physical Therapy for Children With Cerebral Palsy is online access to video clips that accompany the text and highlight typical and atypical development, use of assistive technology, life span issues, and transition to adulthood. Physical Therapy for Children With Cerebral Palsy: An Evidence-Based Approach is intended for physical therapy students, educators, residents, and experienced clinicians, including physical therapists, other members of the interdisciplinary team, and researchers working with children with cerebral palsy.
Download or read book Family Centred Assessment and Intervention in Pediatric Rehabilitation written by Mary Law and published by Routledge. This book was released on 2014-10-29 with total page 116 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family-Centred Assessment and Intervention in Pediatric Rehabilitation analyzes the effectiveness of Family-Centred Services (FCS) for children with disabilities or chronic illnesses. This text provides you with the exact definition of FCS and offers proof that parent involvement in children's treatment greatly enhances therapy. You can use the suggestions and methods to integrate parents into therapy, maximizing the family's intervention experiences and making your work more successful and effective. Many clinicians agree that families play a crucial part in deciding what intervention strategies are best for their children. From this text, you will learn that listening to parents and valuing parental input will give you insight into the goals, needs, and ambitions families have for their children. This enables you to choose, with the parent, the interventions that best suit your patients’needs and the needs of their families. In addition to information on how to integrate parents and families into intervention, Family-Centred Assessment and Intervention in Pediatric Rehabilitation offers suggestions that will improve your existing FCS or help you implement a family- centred approach, including: performing therapy in natural settings, such as school or home, to make changes in the children's social and physical environments acknowledging the grieving and adaptation process of families while being compassionate and understanding letting parents describe what they would like their child to be able to do and accomplish in the future putting the parents’concerns and requests first, enabling parents to deal with caring for their child supporting parents and reinforcing them when they have innovative and helpful ideas informing parents on the progress of their children and educating parents on methodologies and strategies used in FCS Many of the suggestions derived from the analysis of current data and original research in Family-Centred Assessment and Intervention in Pediatric Rehabilitation have immediate clinical applicability, allowing you to quickly adapt methods into your intervention processes. This text also provides you with information on types of evaluative methods, such as Measure of Processes of Care (MPOC) and Family-Centred Program Rating Scale (Fam PRS), that will help you determine if your FCS program is working efficiently. Emphasizing the goal of parent interaction in FCS services, Family-Centred Assessment and Intervention in Pediatric Rehabilitation offers methods that will improve your work with families and patients, making services more beneficial and relevant to the child and to their families.
