Download or read book Family Based Palliative Care written by Jane Marie Kirschling and published by Routledge. This book was released on 2018-10-24 with total page 130 pages. Available in PDF, EPUB and Kindle. Book excerpt: Learn to interact with families in ways that promote family functioning when a family member is dying. Family-Based Palliative Care is an insightful book that aims to increase professionals’understanding of the family as client. Authoritative contributors who are experienced in working with the terminally ill present the most current theory, practice, and research related to family-based care of hospice patients. Each readable chapter includes a wealth of information that can be applied to health care settings in which holistic care is a priority. The first chapter presents a conceptual framework for caring for families of the terminally ill as well as clinical examples that are used to illustrate the application of the framework in practice. Experts describe four research studies--two qualitative studies that examine sources of stress for caregivers and identify the resources used by families to manage at home; a methodological study that explores the positive and negative aspects of family caregiving; and a case study that evaluates a hospice staff’s efforts in providing family- based care. Because little research has been done with family caregivers of terminally ill hospice patients, Family-Based Palliative Care will be essential reading for nurses, social workers, hospice staff, and other professionals whose job it is to care for the dying and their families.
Download or read book Fragility Fracture Nursing written by Karen Hertz and published by Springer. This book was released on 2018-06-15 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: This open access book aims to provide a comprehensive but practical overview of the knowledge required for the assessment and management of the older adult with or at risk of fragility fracture. It considers this from the perspectives of all of the settings in which this group of patients receive nursing care. Globally, a fragility fracture is estimated to occur every 3 seconds. This amounts to 25 000 fractures per day or 9 million per year. The financial costs are reported to be: 32 billion EUR per year in Europe and 20 billon USD in the United States. As the population of China ages, the cost of hip fracture care there is likely to reach 1.25 billion USD by 2020 and 265 billion by 2050 (International Osteoporosis Foundation 2016). Consequently, the need for nursing for patients with fragility fracture across the world is immense. Fragility fracture is one of the foremost challenges for health care providers, and the impact of each one of those expected 9 million hip fractures is significant pain, disability, reduced quality of life, loss of independence and decreased life expectancy. There is a need for coordinated, multi-disciplinary models of care for secondary fracture prevention based on the increasing evidence that such models make a difference. There is also a need to promote and facilitate high quality, evidence-based effective care to those who suffer a fragility fracture with a focus on the best outcomes for recovery, rehabilitation and secondary prevention of further fracture. The care community has to understand better the experience of fragility fracture from the perspective of the patient so that direct improvements in care can be based on the perspectives of the users. This book supports these needs by providing a comprehensive approach to nursing practice in fragility fracture care.
Download or read book Social Aspects of Care written by Betty R. Ferrell and published by Oxford University Press. This book was released on 2015-12-02 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Social Aspects of Care' provides an overview of financial and mental stress illness places, not just on the patient, but on the family as well. This volume contains information on how to support families in palliative care, cultural considerations important in end-of-life care, sexuality and the impactof illness, planning for the actual death, and bereavement.
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 638 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book Aging Well written by JEAN. HASELTINE GALIANA (WILLIAM.) and published by Springer. This book was released on 2019-01-01 with total page 218 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This open access book outlines the challenges of supporting the health and wellbeing of older adults around the world and offers examples of solutions designed by stakeholders, healthcare providers, and public, private and nonprofit organizations in the United States. The solutions presented address challenges including: providing person-centered long-term care, making palliative care accessible in all healthcare settings and the home, enabling aging-in-place, financing long-term care, improving care coordination and access to care, delivering hospital-level and emergency care in the home and retirement community settings, merging health and social care, supporting people living with dementia and their caregivers, creating communities and employment opportunities that are accessible and welcoming to those of all ages and abilities, and combating the stigma of aging. The innovative programs of support and care in Aging Well serve as models of excellence that, when put into action, move health spending toward a sustainable path and greatly contribute to the well-being of older adults."--Provided by publisher.
Download or read book Family Focused Grief Therapy written by David William Kissane and published by Open University Press. This book was released on 2002-04 with total page 280 pages. Available in PDF, EPUB and Kindle. Book excerpt: "To those of us who have been aware of the innovative service to families facing death and bereavement that has been developed by David W. Kissane and Sidney Bloch this book has been eagerly awaited. Their work is a logical development in the field of Palliative Care in which it has long been recognized that, when life is threatened, it is the family (which includes the patient) which is, or ought to be, the unit of care. The work also has great relevance for the wider field of bereavement care...all who work to help families at times of death and bereavement will find much to learn from this book which represents a useful addition to our understanding of the losses which, sooner or later, we all have to face." - Colin Murray Parkes Family members are often intimately involved in the care of dying people and themselves require support through both their experience of palliative care and bereavement. This innovative book describes a comprehensive model of family care and how to go about it - Family Focused Grief Therapy is an approach which is new, preventive, cost effective and with proven benefits to bereaved people. It describes a highly original and creative approach to bereavement care, one likely to revolutionize psychosocial care in oncology, hospice or palliative care and grief work. The book has been designed rather like a therapy manual, providing a step-by-step approach to assessment and intervention. Its rich illustration through many clinical examples brings the process of therapy alive for the reader, anticipating the common challenges that arise and describing how the therapist might respond. Families are recognised throughout as the central social unit, pivotal to the success of palliative care. Family Focused Grief Therapy will be of use to doctors, nurses, psychologists, social workers, pastoral care workers, psychiatrists and other allied health professionals who work in caring for the dying and for their bereaved relatives. Based soundly on a decade of internationally regarded research, this book will alter the direction of future medical practice and is destined to become a classic in its field.
Download or read book Suggestions for Addressing Clinical and Non Clinical Issues in Palliative Care written by Marco Cascella and published by BoD – Books on Demand. This book was released on 2021-07-21 with total page 348 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data from the World Health Organization indicate that about 40 million people worldwide require palliative care each year. We must face this enormous problem with appropriate welfare policies and training of up-to-date and competent personnel. In this context, a book that collects the experiences of authors with diverse backgrounds, and operating in different settings of palliative care, can be added to the many editorial products on the subject. Over five sections, this volume addresses such topics as palliative care in children, infants, and gynecologic oncology patients; the role of the caregiver; the use of drugs; and ethics, organization, and policy issues. Although this book should not be considered as an exhaustive treatise on palliative care, the many topics covered and the experience and competence of the authors involved make it a useful tool for those who are already experts in the field as well as those who are studying this field.
Download or read book Palliative Care in Oncology written by Bernd Alt-Epping and published by Springer. This book was released on 2015-03-26 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: Palliative care provides comprehensive support for severely affected patients with any life-limiting or life-threatening diagnosis. To do this effectively, it requires a disease-specific approach as the patients’ needs and clinical context will vary depending on the underlying diagnosis. Experts in the field of palliative care and oncology describe in detail the needs of patients with advanced cancer in comparison to those with non-cancer disease and also identify the requirements of patients with different cancer entities. Basic principles of symptom control are explained, with careful attention to therapy for pain associated with either the cancer or its treatment and to symptom-guided antineoplastic therapy. Complex therapeutic strategies for palliative cancer patients are highlighted that involve both cancer- and symptom-directed options and address a range of therapeutic aims. Issues relating to drug use in palliative cancer care are fully explored, and a separate section is devoted to care in the final phase. A range of organizational and policy issues are also discussed, and the book concludes by considering likely future developments in palliative care for cancer patients. Palliative Care in Oncology will be of particular interest to palliative care physicians who are interested in broadening the scope of their disease-specific knowledge, as well as to oncologists who wish to learn more about modern palliative care concepts relevant to their day-to-day work with cancer patients.
Download or read book Patient Safety and Quality written by Ronda Hughes and published by Department of Health and Human Services. This book was released on 2008 with total page 592 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Download or read book Hospital Based Palliative Medicine written by Steven Z. Pantilat and published by John Wiley & Sons. This book was released on 2015-01-27 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first comprehensive, clinically focused guide to help hospitalists and other hospital-based clinicians provide quality palliative care in the inpatient setting. Written for practicing clinicians by a team of experts in the field of palliative care and hospital care, Hospital-Based Palliative Medicine: A Practical, Evidence-Based Approach offers: Comprehensive content over three domains of inpatient palliative care: symptom management, communication and decision making, and practical skills, Detailed information on assessment and management of symptoms commonly experienced by seriously ill patients, Advise on the use of specific communication techniques to address sensitive topics such as prognosis, goals of care, code status, advance care planning, and family meetings in a patient- and family-centered manner, Targeted content for specific scenarios, including palliative care emergencies, care at the end of life, and an overview of post-hospital palliative care options, Self-care strategies for resilience and clinician wellness which can be used to help maintain an empathic, engaged, workforce and high quality patient care, A consistent chapter format with highlighted clinical pearls and pitfalls, ensuring the material is easily accessible to the busy hospitalist and associated hospital staff. This title will be of use to all hospital clinicians who care for seriously ill patients and their families. Specialist-trained palliative care clinicians will also find this title useful by outlining a framework for the delivery of palliative care by the patient’s front-line hospital providers. Also available in the in the Hospital-Based Medicine: Current Concepts series: Inpatient Anticoagulation Margaret C. Fang, Editor, 2011 Hospital Images: A Clinical Atlas Paul B. Aronowitz, Editor, 2012 Becoming a Consummate Clinician: What Every Student, House Officer, and Hospital Practitioner Needs to Know Ary L. Goldberger and Zachary D. Goldberger, Editors, 2012 Perioperative Medicine: Medical Consultation and Co-Management Amir K. Jaffer and Paul J. Grant, Editors, 2012 Clinical Care Conundrums: Challenging Diagnoses in Hospital Medicine James C. Pile, Thomas E. Baudendistel, and Brian J. Harte, Editors, 2013 Inpatient Cardiovascular Medicine Brahmajee K. Nallamothu and Timir S. Baman, Editors 2013
Download or read book Pediatric Palliative Care written by Betty R. Ferrell and published by Hpna Palliative Nursing Manual. This book was released on 2015-08-31 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.
Download or read book Life after the Diagnosis written by Steven Pantilat and published by Da Capo Press. This book was released on 2017-02-14 with total page 999 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Life After the Diagnosis, Dr. Steven Z. Pantilat, a renowned international expert in palliative care, shares innovative approaches for dealing with serious illness, outlines the steps that patients should take, and demystifies the medical system. He makes sense of what doctors say, what they actually mean, and how to get the best information to help make the best medical decisions. Dr. Pantilat covers everything from the first steps after the diagnosis and finding the right caregiving and support, to planning your future so your loved ones don't have to. He offers advice on how to tackle the most difficult treatment decisions and discussions and shows readers how to choose treatments that help more than they hurt, stay consistent with their values and personal goals, and live as well as possible for as long as possible.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Compassionate Person Centered Care for the Dying written by Bonnie Freeman, RN, DNP, ANP, ACHPN and published by Springer Publishing Company. This book was released on 2015-02-23 with total page 296 pages. Available in PDF, EPUB and Kindle. Book excerpt: A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dying "A valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and brings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them." --Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPN Professor and Director, Division of Nursing Research and Education City of Hope National Medical Center From the Foreword This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible. The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved. Key Features: Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve care Clarifies the current and often complex literature on care of the dying Includes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES tool Based on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice Guidelines
Download or read book Compassionate Person Centered Care for the Dying written by Bonnie Freeman and published by Springer Publishing Company. This book was released on 2015-02-23 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author’s research-based CARES Tool, a reference that synthesizes five key elements demonstrated to enable a peaceful death as free from suffering as possible: Comfort, Airway Management, Management of Restlessness and Delirium, Emotional and Spiritual Support, and Self-Care for Nurses. The book describes step-by-step how nurses can easily implement the basic tenets of the CARES Tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible.
Download or read book Supporting the Child and the Family in Paediatric Palliative Care written by Erica Brown and published by Jessica Kingsley Publishers. This book was released on 2007-06-15 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Supporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families. Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral. This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.
Download or read book Models and Strategies to Integrate Palliative Care Principles into Care for People with Serious Illness written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2018-02-28 with total page 103 pages. Available in PDF, EPUB and Kindle. Book excerpt: Palliative care is the interdisciplinary specialty focused on improving quality of life for people with serious illness and their families. This interdisciplinary care is provided by doctors, nurses, social workers, chaplains and others who work together with the patient's other doctors to provide an extra layer of support. Such care is appropriate for people at any age and at any stage in a serious illness, and can be provided together with curative treatment to address clinical, emotional, psychosocial and spiritual concerns of the patient and their family. To better understand how the principles of palliative care can be integrated into the overall provision of care and services to those facing serious illness, the Roundtable on Quality Care for People with Serious Illness held a public workshop in April 2017. This publication summarizes the presentations and discussions from the workshop.
