Download or read book Facteurs associ s au lieu de fin de vie dans un contexte de soins palliatifs oncologiques written by Emmanuel Jarry and published by . This book was released on 2021 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Les soins palliatifs, en dépit des innombrables progrès médicaux des dernières décennies, constituent toujours une part non négligeable de la pratique de l'oncologie. En parallèle des avancées techniques sur le plan curatif, se développent également des options thérapeutiques utiles pour accompagner les patients dans la phase terminale, au-delà de tout espoir de rémission ou guérison. Le « prendre soin » dans ce contexte consiste, non seulement en des prises en charge symptomatiques sur le plan physique ou psychique, mais également à répondre aux attentes qui peuvent être formulées par les patients. Parmi ces souhaits exprimés, la question du lieu de fin de vie peut s'avérer être une question centrale. S'orchestreront alors autour du patient un panel d'intervenants divers, dont la finalité du travail consistera à accéder à cette requête ultime : entourage, médecins oncologues, spécialistes d'organe ou généralistes, aides-soignants, infirmiers, prestataires de service, assistantes sociales, psychologues... En France en 2019, l'arsenal de recours à disposition du patient comporte de nombreuses possibilités, que le médecin référent de la prise en charge doit savoir utiliser et adapter à bon escient. Cette période si particulière de la fin de vie laisse la place à l'anticipation ; les patients et les familles sont souvent demandeurs d'explications sur ce qu'il risque d'advenir dans les jours, les semaines, les mois à venir. La charge revient donc au médecin d'exposer les différentes évolutions possibles, et de prévoir les conduites à tenir en fonction des situations à venir. La discussion autour des directives anticipées doit trouver toute sa place dans la relation entre le médecin, le patient et son entourage. Ce travail, qui se veut une aide aux patients autant qu'aux soignants impliqués dans leur prise en charge, a permis de mettre en évidence des facteurs associés au lieu de fin de vie dans ce contexte. Une attention toute particulière devra être portée à la présence, ou non, de symptômes respiratoires ou neuropsychiatriques. Le recours à une équipe de soins palliatifs, lorsqu'il est possible, peut s'avérer utile. L'importante place des aides paramédicales au domicile est confirmée par les résultats de cette étude. Il reste utile de souligner que chaque situation de fin de vie connaît ses particularités, ses spécificités. L'étude réalisée ici pourra servir d'outil scientifique dans une démarche d'aide à la décision, mais ses conclusions ne se substitueront pas à l'expérience du praticien, confronté à une grande diversité de situations cliniques dans le cadre de son exercice.
Download or read book Facteurs associ s un d c s domicile chez des patients atteints de cancer pris en charge par un r seau de soins palliatifs written by Xavière Pincemin and published by . This book was released on 2014 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: Contexte : Les français souhaitent majoritairement décéder à domicile. En France, deux tiers des décès ont lieu à l’hôpital. Plusieurs études se sont intéressées aux facteurs associés à un décès à domicile chez les patients atteints de cancer. L’influence du médecin généraliste sur le lieu de décès de ces patients a très peu été étudiée. Objectif : Rechercher une association entre l’implication du médecin généraliste dans la prise en charge palliative à domicile de patients atteints de cancer et un décès à domicile. Méthode : Etude rétrospective monocentrique réalisée sur 412 patients atteints de cancer, pris en charge par l’équipe de soins palliatifs du réseau OSMOSE, décédés entre le 1er janvier 2010 et le 7 mars 2014. Pour chaque patient, 5 critères objectifs reflétant l’implication du médecin généraliste ont été recueillis : le fait que le médecin généraliste consulte à domicile, qu’il ait adressé le patient au réseau, qu’il ait participé à une visite conjointe avec l’équipe de soins palliatifs du réseau, le nombre d’interactions (mails et appels) entre le médecin généraliste et le réseau et la durée cumulée de ces interactions. D’autres facteurs individuels, liés à la maladie et environnementaux ont été recueillis. Résultats : 122 patients (29,6%) étaient décédés à domicile et 290 (70,4%) en milieu hospitalier, dont la moitié en USP. La participation du médecin généraliste à une visite à domicile conjointe avec l’équipe du réseau était significativement associée à un décès à domicile en analyse univariée (OR : 1,72 IC95% : 1,05-2,81). Ce résultat n’était pas retrouvé en analyse multivariée. Conclusion : Notre étude n’a pas montré d’association indépendante entre l’implication du médecin généraliste et un décès à domicile, de nouvelles études devront être menées pour confirmer les résultats de notre analyse univariée.
Download or read book Aborder les ant c dents familiaux de cancer en soins palliatifs written by Jude Emmanuel Cléophat and published by . This book was released on 2020 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cette thèse vise à documenter le point de vue des intervenants en soins palliatifs et celui des apparentés de patients décédés de cancer en soins palliatifs sur le fait d’aborder les antécédents familiaux de cancer en fin de vie. Elle vise également à recenser et à proposer une analyse critique des outils de collecte des antécédents familiaux de cancer afin de déterminer dans quelle mesure ils pourraient être utiles aux cliniciens dans la prise en charge du caractère héréditaire des cancers. Trois études ont été réalisées à cet effet. Premièrement, une enquête menée auprès de 94 intervenants en soins palliatifs a permis de confirmer la tenue en fin de vie de discussions relatives aux antécédents familiaux de cancer entre les intervenants, les patients et leurs apparentés. Les intervenants ont majoritairement jugé de telles discussions pertinentes et faisables. Les facteurs susceptibles, de leur point de vue, de faciliter ces discussions en fin de vie ont été identifiés. Ces facteurs incluent des connaissances sur les cancers héréditaires et les enjeux éthiques et légaux associés, un cadre règlementaire (lignes directrices, protocole) ainsi que de l’information sur les ressources spécialisées en oncogénétique vers qui diriger les patients et les apparentés admissibles. Deuxièmement, dans le cadre d’une étude qualitative (groupes de discussion), 13 apparentés ont partagé leurs expériences et perceptions concernant les discussions portant sur les antécédents familiaux de cancer et la réalisation du test génétique en fin de vie. Ils ont rapporté n’avoir jamais discuté de ces sujets pendant le séjour de leur proche en soins palliatifs. Ils ont exprimé leur préférence pour que les antécédents familiaux de cancer soient abordés avant l'arrivée de leur proche en soins palliatifs ou après le décès de celui-ci. Certains sont quand même restés ouverts à une brève notification, en soins palliatifs, sur le caractère héréditaire éventuel du cancer de leur proche. La grande majorité des apparentés consultés ont jugé approprié de prélever des échantillons biologiques auprès du patient en fin de vie dans le but de réaliser un test génétique. Troisièmement, une revue critique de la littérature a été conduite afin de recenser les outils développés pour la collecte des antécédents familiaux de cancer. Une évaluation de ces outils a été faite en ce qui a trait au soutien qu’ils pourraient apporter aux professionnels de la santé iii dans l'évaluation du risque de cancer et l’orientation appropriée des patients et des familles. Soixante-deux outils ont été identifiés. Ce sont en majorité des questionnaires papier, destinés à être autoadministrés par les patients ou les apparentés. Un tiers de ces outils sont électroniques. Un quart peuvent produire des pedigrees et une évaluation du risque de cancer. Un quart peuvent aussi fournir des recommandations de suivi. Un tiers ont été validés en utilisant une référence standard comme comparateur. Six outils prometteurs se sont distingués par la pluralité de leurs fonctions et leur potentiel d’efficience dans l’identification des personnes susceptibles d’être porteuses de mutations prédisposant au cancer. La prise en compte des résultats de la présente thèse pourrait conduire à l’élaboration et la mise en place de mesures destinées à répondre aux besoins et préoccupations des patients, des apparentés et des intervenants en soins palliatifs concernant le caractère héréditaire des cancers. De telles mesures pourraient ultimement favoriser une considération adéquate du caractère héréditaire des cancers au moment jugé le plus opportun dans la trajectoire de soins par les patients, les apparentés et les intervenants.
Download or read book Androgen Deprivation Therapy written by Richard J. Wassersug, PhD and published by Springer Publishing Company. This book was released on 2021-07-12 with total page 247 pages. Available in PDF, EPUB and Kindle. Book excerpt: Praise for Androgen Deprivation Therapy: "To my knowledge [this] is the only book written in plain language (no medical jargon) explaining what’s happening during ADT, and detailing how to limit and often solve most associated side effects. It should be read by every man undergoing ADT, as well as family members and also healthcare providers. They will find all the details they need to get the most from this treatment..." Prof. N. Mottet, MD, PhD, Urologist, Medical Oncologist, Head of the Prostate Cancer Guidelines panel of the European Association of Urology Androgen Deprivation Therapy is the only guide written exclusively about the side effects of hormone therapy. The authors have collaborated with the European Association of Urology to produce this specially revised new edition to serve men affected by ADT across the globe. This comprehensive workbook for prostate cancer patients and their loved ones is filled with practical advice from experts in the field. The book covers a wealth of strategies to help men cope with ADT and maintain a good quality of life while on this treatment. It is not only an informational manual, but a guide for both patients and partners about ways to make changes in their lives that can keep them healthy and positive when the patient is on ADT. New to this Edition: Updates on the physical side effects of ADT and management strategies Expanded information on exercise and nutrition for men diagnosed with prostate cancer Updates on the primary drugs used to treat prostate cancer and extensive drug tables with common brand names worldwide Revisions throughout based on critical feedback from international medical experts in the field of prostate cancer and related disciplines Exercises, activities, worksheets, and other tools to promote discussion and inspire behavioural changes that can reduce the burden of ADT Officially endorsed by the European Association of Urology
Download or read book Handbook of Psychiatry in Palliative Medicine written by Harvey Max Chochinov and published by . This book was released on 2009 with total page 591 pages. Available in PDF, EPUB and Kindle. Book excerpt: Psychiatric, or psychosocial, palliative care has transformed palliative medicine. Palliation that neglects psychosocial dimensions of patient and family experience fails to meet contemporary standards of comprehensive palliative care. While a focus on somatic issues has sometimes overshadowed attention to psychological, existential, and spiritual end-of-life challenges, the past decade has seen an all encompassing, multi-disciplinary approach to care for the dying take hold. Written by internationally known psychiatry and palliative care experts, the Handbook of Psychiatry in Palliative Medicine is an essential reference for all providers of palliative care, including psychiatrists, psychologists, mental health counselors, oncologists, hospice workers, and social workers.
Download or read book Oxford Textbook of Palliative Medicine written by Nathan I. Cherny and published by Oxford University Press, USA. This book was released on 2015 with total page 1281 pages. Available in PDF, EPUB and Kindle. Book excerpt: Emphasising the multi-disciplinary nature of palliative care the fourth edition of this text also looks at the individual professional roles that contribute to the best-quality palliative care.
Download or read book At Home written by Irene Cieraad and published by Syracuse University Press. This book was released on 2006-09-28 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: In a volume that brings together a wide range of disciplines—art history, sociology, architecture, cultural anthropology, and environmental psychology—Irene Cieraad presents a collection of articles that focuses on the practices and symbolism of domestic space in Western society. These essays go beyond the discussion of conventional issues such as aesthetics and social standing. At Home takes an in-depth anthropological look at how different cultures use their homes as a visual model of the culture's social structure.
Download or read book Oxford Textbook of Palliative Care for Children written by Richard Hain and published by Oxford University Press. This book was released on 2021-03-24 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Download or read book A Companion to Moral Anthropology written by Didier Fassin and published by John Wiley & Sons. This book was released on 2015-01-20 with total page 672 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Companion to Moral Anthropology is the first collective consideration of the anthropological dimensions of morals, morality, and ethics. Original essays by international experts explore the various currents, approaches, and issues in this important new discipline, examining topics such as the ethnography of moralities, the study of moral subjectivities, and the exploration of moral economies. Investigates the central legacies of moral anthropology, the formation of moral facts and values, the context of local moralities, and the frontiers between moralities, politics, humanitarianism Features contributions from pioneers in the field of moral anthropology, as well as international experts in related fields such as moral philosophy, moral psychology, evolutionary biology and neuroethics
Download or read book Comprehensive Geriatric Assessment written by Alberto Pilotto and published by Springer. This book was released on 2017-12-29 with total page 182 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers an up-to-date review on the principles and practice of multidimensional assessment and management of the older individual, which represents the cornerstone of modern clinical practice in the elderly. The early chapters cover the main elements and scope of the comprehensive geriatric approach and explain the pathways of care from screening and case finding through to in-depth assessment and treatment planning. Subsequent chapters review the evidence of how best to apply the multidimensional assessment and management approach in defined healthcare settings and within specific clinical areas, such as cancer and surgery. Finally, the education and training challenges are reviewed and the prospects for future clinical service and research in this important field are examined. The book is very timely given the recent advances in application of this approach, which reflect the growing international realization that older people are “core business” in many clinical areas where the role of specialist geriatric medicine has hitherto been limited. Accordingly, the book will be relevant to a wide range of clinicians. The authorship comprises many of the best known and widely published experts in their respective fields.
Download or read book Save My Kid written by Amanda M. Gengler and published by NYU Press. This book was released on 2020-01-21 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In “Save My Kid,” Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children’s critical illnesses. She also uncovers the role that emotional goals—deeply rooted in the culture of illness and medicine—play in medical decision-making, healthcare interactions, and the end of children’s lives. A deeply compassionate read, “Save My Kid” is an inside look at inequality in healthcare among those with the most at stake.
Download or read book Comprehensive Cervical Cancer Control written by World Health Organization and published by World Health Organization. This book was released on 2006 with total page 284 pages. Available in PDF, EPUB and Kindle. Book excerpt: Most women who die from cervical cancer, particularly in developing countries, are in the prime of their life. They may be raising children, caring for their family, and contributing to the social and economic life of their town or village. Their death is both a personal tragedy, and a sad and unnecessary loss to their family and their community. Unnecessary, because there is compelling evidence, as this Guide makes clear, that cervical cancer is one of the most preventable and treatable forms of cancer, as long as it is detected early and managed effectively. Unfortunately, the majority of women in developing countries still do not have access to cervical cancer prevention programmes. The consequence is that, often, cervical cancer is not detected until it is too late to be cured. An urgent effort is required if this situation is to be corrected. This Guide is intended to help those responsible for providing services aimed at reducing the burden posed by cervical cancer for women, communities and health systems. It focuses on the knowledge and skills needed by health care providers, at different levels of care.
Download or read book Contemporary Criminological Issues written by Carolyn Côté-Lussier and published by University of Ottawa Press. This book was released on 2020-05-05 with total page 396 pages. Available in PDF, EPUB and Kindle. Book excerpt: Contemporary Criminological Issues tackles some of today’s most pressing social issues, from the criminalization of Indigenous peoples to interpersonal violence, border control, and armed conflicts. This book advances cutting-edge theories and methods, with the aim of moving beyond the scholarship that reproduces insecurity and exclusion. The breadth of approaches encompasses much of the current critical criminological scholarship, serving as a counterpoint to the growth of managerial and administrative criminologies and the rise of explicitly exclusionary and punitive state policies and practices with respect to ‘crime’ and ‘security.’ This edited collection featuring two books, one in English and one in French, includes important contributions to knowledge and public policy by eminent experts and emerging scholars. This book is published in English.
Download or read book Dying A Social Perspective on the End of Life written by Assoc Prof Alex Broom and published by Ashgate Publishing, Ltd.. This book was released on 2015-07-28 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt: An inevitable and universal experience, dying is experienced by individuals in different ways, often related to the character of our relationships, family structures, gender identities, cultural backgrounds, and economic means. Drawing on extensive qualitative fieldwork with patients, carers and health professionals in Australia and the United Kingdom, Dying: A Social Perspective on the End of Life provides a critical examination of the different spheres of dying, in social and cultural context. Exploring complex issues such as the politics of assisted dying, negotiating medical futility, gender and dying, the desire for redemption, the moralities of 'the good fight' and the lived experience of bodily disintegration, this book links novel theoretical ideas within sociology to cutting-edge empirical data collected in palliative and end-of-life care contexts. A theoretically engaged understanding of the social mediation of the end of life, Dying: A Social Perspective on the End of Life also sheds light on the manner in which the end of life can be shaped by major economic, cultural and socio-cultural shifts including neo-liberalism, individualisation, medicalisation, professionalisation and detraditionalisation. As such, it will appeal to social science, health and medical researchers interested in the end of life, as well as those working in palliative and end-of-life care settings.
Download or read book Global Burden of Disease and Risk Factors written by Alan D. Lopez and published by World Bank Publications. This book was released on 2006-04-02 with total page 511 pages. Available in PDF, EPUB and Kindle. Book excerpt: Strategic health planning, the cornerstone of initiatives designed to achieve health improvement goals around the world, requires an understanding of the comparative burden of diseases and injuries, their corresponding risk factors and the likely effects of invervention options. The Global Burden of Disease framework, originally published in 1990, has been widely adopted as the preferred method for health accounting and has become the standard to guide the setting of health research priorities. This publication sets out an updated assessment of the situation, with an analysis of trends observed since 1990 and a chapter on the sensitivity of GBD estimates to various sources of uncertainty in methods and data.
Download or read book The Psychology of Eating written by Jane Ogden and published by John Wiley & Sons. This book was released on 2011-09-20 with total page 420 pages. Available in PDF, EPUB and Kindle. Book excerpt: With its primary focus on the psychology of eating from a social, health, and clinical perspective, the second edition of The Psychology of Eating: From Healthy to Disordered Behavior presents an overview of the latest research into a wide range of eating-related behaviors Features the most up-to-date research relating to eating behavior Integrates psychological knowledge with several other disciplines Written in a lively, accessible style Supplemented with illustrations and maps to make literature more approachable
Download or read book Twice Dead written by Margaret M. Lock and published by Univ of California Press. This book was released on 2002 with total page 452 pages. Available in PDF, EPUB and Kindle. Book excerpt: Medical knowledge and technology have been sufficiently advanced for surgeons to perform thousands of transplants each year. This text traces the discourse since 1970 that contributed to the locating of a new criterion of death in the brain.
