Download or read book Extreme Caregiving written by Lisa Freitag and published by Oxford University Press. This book was released on 2017-11-09 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. It presents parents as moral individuals struggling to find their own way through relatively unexplored territory, in order to provide for their child the best life possible
Download or read book The Art of Extreme Self care written by Cheryl Richardson and published by . This book was released on 2012 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: Offers you 12 strategies to transform your life one month at a time. Designed as a practical, action-oriented program, each chapter challenges you to alter one behavior that keeps getting you in trouble.
Download or read book Extreme Measures written by Dr. Jessica Nutik Zitter, M.D. and published by Penguin. This book was released on 2021-08-24 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: For readers of Being Mortal and Modern Death, an ICU and Palliative Care specialist offers a framework for a better way to exit life that will change our medical culture at the deepest level In medical school, no one teaches you how to let a patient die. Jessica Zitter became a doctor because she wanted to be a hero. She elected to specialize in critical care—to become an ICU physician—and imagined herself swooping in to rescue patients from the brink of death. But then during her first code she found herself cracking the ribs of a patient so old and frail it was unimaginable he would ever come back to life. She began to question her choice. Extreme Measures charts Zitter’s journey from wanting to be one kind of hero to becoming another—a doctor who prioritizes the patient’s values and preferences in an environment where the default choice is the extreme use of technology. In our current medical culture, the old and the ill are put on what she terms the End-of-Life Conveyor belt. They are intubated, catheterized, and even shelved away in care facilities to suffer their final days alone, confused, and often in pain. In her work Zitter has learned what patients fear more than death itself: the prospect of dying badly. She builds bridges between patients and caregivers, formulates plans to allay patients’ pain and anxiety, and enlists the support of loved ones so that life can end well, even beautifully. Filled with rich patient stories that make a compelling medical narrative, Extreme Measures enlarges the national conversation as it thoughtfully and compassionately examines an experience that defines being human.
Download or read book Families Caring for an Aging America written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-08 with total page 367 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Download or read book Caring for Children Who Have Severe Neurological Impairment written by Julie M. Hauer and published by JHU Press. This book was released on 2013-08-01 with total page 480 pages. Available in PDF, EPUB and Kindle. Book excerpt: Hauer offers hope and practical coping strategies in equal measure.
Download or read book Already Toast written by Kate Washington and published by Beacon Press. This book was released on 2021-03-16 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Download or read book The Role of Human Factors in Home Health Care written by National Research Council and published by National Academies Press. This book was released on 2010-11-14 with total page 322 pages. Available in PDF, EPUB and Kindle. Book excerpt: The rapid growth of home health care has raised many unsolved issues and will have consequences that are far too broad for any one group to analyze in their entirety. Yet a major influence on the safety, quality, and effectiveness of home health care will be the set of issues encompassed by the field of human factors research-the discipline of applying what is known about human capabilities and limitations to the design of products, processes, systems, and work environments. To address these challenges, the National Research Council began a multidisciplinary study to examine a diverse range of behavioral and human factors issues resulting from the increasing migration of medical devices, technologies, and care practices into the home. Its goal is to lay the groundwork for a thorough integration of human factors research with the design and implementation of home health care devices, technologies, and practices. On October 1 and 2, 2009, a group of human factors and other experts met to consider a diverse range of behavioral and human factors issues associated with the increasing migration of medical devices, technologies, and care practices into the home. This book is a summary of that workshop, representing the culmination of the first phase of the study.
Download or read book The Art of Extreme Self Care written by Cheryl Richardson and published by Hay House, Inc. This book was released on 2019-11-05 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: This life-changing handbook by best-selling author Cheryl Richardson offers you 12 strategies to transform your life one month at a time. Designed as a practical, action-oriented program, each chapter challenges you to alter one behavior that keeps getting you in trouble.The book is filled with personal stories of how Cheryl and others have learned to make the practice of Extreme Self-Care their new standard for living. With chapters such as "End the Legacy of Deprivation," "Take Your Hands off the Wheel," "The Absolute No List," and "Does That Anger Taste Good?" you will stop the endless cycle of self-betrayal and neglect that stems from daily violations of self-care.Each chapter includes a relevant resource section that offers books, Websites, audio programs, podcasts, and more should you want to explore a particular topic further.The Art of Extreme Self-Care is a sane and sensible program that gives you the permission you need to dramatically upgrade your life!
Download or read book Pocket Book of Hospital Care for Children written by World Health Organization and published by World Health Organization. This book was released on 2013 with total page 442 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Pocket Book is for use by doctors nurses and other health workers who are responsible for the care of young children at the first level referral hospitals. This second edition is based on evidence from several WHO updated and published clinical guidelines. It is for use in both inpatient and outpatient care in small hospitals with basic laboratory facilities and essential medicines. In some settings these guidelines can be used in any facilities where sick children are admitted for inpatient care. The Pocket Book is one of a series of documents and tools that support the Integrated Managem.
Download or read book Family Interference with Work in Special Needs Caregivers written by Kerrie L. Vanden Bosch and published by . This book was released on 2002 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Taking Care of Our Own written by Sherry N. Mong and published by Cornell University Press. This book was released on 2020-10-15 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mixing personal history, interviewee voices, and academic theory from the fields of care work, the sociology of work, medical sociology, and nursing, Taking Care of Our Own introduces us to the hidden world of family caregivers. Using a multidimensional approach, Sherry N. Mong seeks to understand and analyze the types of skilled work that family caregivers do, the processes through which they learn and negotiate new skills, and the meanings that both caregivers and nurses attach to their care work. Taking Care of Our Own is based on sixty-two in-depth interviews with family caregivers, home and community health care nurses, and other expert observers to provide a lens through which in-home care processes are analyzed, while also exploring how caregivers learn necessary procedures. Further, Mong examines the emotional labor of caregiving, as well as the identities of caregivers and nurses who are key players in the labor process, and gives attention to the ways in which the labor is transferred from medical professionals to family caregivers.
Download or read book Hope for the Caregiver written by Peter Rosenberger and published by Hachette UK. This book was released on 2015-10-15 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are 65.7 million caregivers in America, making up 29 percent of the U.S. adult population. Where does the caregiver turn when dealing with their own need for encouragement and renewal?
Download or read book Extreme Caring You Have to Go On written by Stuart Donnan and published by Destinworld Publishing Limited. This book was released on 2016-09-30 with total page 252 pages. Available in PDF, EPUB and Kindle. Book excerpt: When his wife was struck down by a stroke, medical academic Stuart Donnan embarked on a journey of learning to understand and manage her needs and the complex side effects of the stroke. Ten years later a further diagnosis revealed that Beryl was suffering from dementia including some aspects of Alzheimer's disease.
Download or read book Family Caregiving written by Brett H. Lewis and published by iUniverse. This book was released on 2012-10-01 with total page 174 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family Caregiving explores one of the most precious and fulfilling gifts of love that can be given to a family member or a friendand also one of the most difficult tasks to undertake. The difficulty increases in magnitude because many family caregivers have no formal medical training other than basic first aid. In most cases, all of their medical knowledge has come from their own life experiences with personal illnesses, accidents, and medications. In Family Caregiving, author Brett Lewis shares his insights and the bounty of information that he learned acting as a family caregiver for both his father and his close friend. He explains that even though caregiving is stressful, being prepared and knowledgeable can reduce stress levels and better position a family member for caregiving success. A caregiver should have a thorough understanding of the patients personal and family medical history, current symptoms, and medical conditions. It is critical to learn how to interact effectively with medical personnel; to become familiar with hospital/rehabilitation center processes and protocols; and to learn about basic medical terminology, equipment, and procedures. By sharing candid, real-world experiencesincluding his mistakesLewis provides a step-by-step guide that can enable the family caregiver to better navigate the journey of caregiving.
Download or read book Vibrant and Healthy Kids written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2019-12-27 with total page 621 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children are the foundation of the United States, and supporting them is a key component of building a successful future. However, millions of children face health inequities that compromise their development, well-being, and long-term outcomes, despite substantial scientific evidence about how those adversities contribute to poor health. Advancements in neurobiological and socio-behavioral science show that critical biological systems develop in the prenatal through early childhood periods, and neurobiological development is extremely responsive to environmental influences during these stages. Consequently, social, economic, cultural, and environmental factors significantly affect a child's health ecosystem and ability to thrive throughout adulthood. Vibrant and Healthy Kids: Aligning Science, Practice, and Policy to Advance Health Equity builds upon and updates research from Communities in Action: Pathways to Health Equity (2017) and From Neurons to Neighborhoods: The Science of Early Childhood Development (2000). This report provides a brief overview of stressors that affect childhood development and health, a framework for applying current brain and development science to the real world, a roadmap for implementing tailored interventions, and recommendations about improving systems to better align with our understanding of the significant impact of health equity.
Download or read book A Caregiver s Guide to Lewy Body Dementia written by Helen Buell Whitworth, "MS, BSN" and published by Demos Medical Publishing. This book was released on 2010-10-20 with total page 312 pages. Available in PDF, EPUB and Kindle. Book excerpt: Received a 2012 Caregiver Friendly Award from Today's Caregiver Magazine Although Lewy Body Dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer' Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book ot present a thorough picture of what Lewy Body Dementia really is. A Caregiver's Guide to Lewy Body Dementia is written in everyday language and filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide, and a glossary of terms and acronyms. This is the ideal resource for caregivers, family members, and friends of individuals seeking to understand Lewy Body Dementia.
Download or read book AARP Meditations for Caregivers written by Barry J. Jacobs and published by Da Capo Lifelong Books. This book was released on 2016-07-12 with total page 240 pages. Available in PDF, EPUB and Kindle. Book excerpt: Family caregiving has its challenges: emotional overload, time constraints, anxiety, burnout, missed work, adult sibling conflicts, and marital issues.AARP Meditations for Caregivers blends emotional and spiritual motivation to minimize the strains while helping caregivers view their work as a mission from the heart. Chapters are organized by theme, including topics such as accepting your feelings, knowing your limits, seeking support, and managing stress. Each reading offers a poignant meditation, an anecdote drawn from the author's personal or clinical experience, and hands-on or psychological advice to foster coping skills and a sense of fulfillment. The meditations in this dispensable book will provide you with solutions to typical caregiving challenges, offer relief and renewal through mindfulness, and inspire you to find meaning and value in the work you do.
