Download or read book Everything No One Tells You About Parenting a Disabled Child written by Kelley Coleman and published by Hachette Go. This book was released on 2024-03-12 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child’s success. Over and over, parents are being asked to reinvent the exact same wheels. According to the CDC, “Every 4 ½ minutes a baby is born with a birth defect in the United States.” That’s 1 in 33. There’s no handbook for how to do this. Until now. Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you.
Download or read book Aching Joy written by Jason Hague and published by NavPress. This book was released on 2018-10-02 with total page 181 pages. Available in PDF, EPUB and Kindle. Book excerpt: When his oldest son was diagnosed with severe autism, pastor Jason Hague found himself trapped, stuck between perpetual sadness and a lower, safer kind of hope. This is the common struggle for those of us walking through the Land of Unanswered Prayer. Life doesn’t look the way we expected, so we seek to protect ourselves from further disappointment. But God has a third path for us, beyond sadness or resignation: the way of aching joy. Christ himself is with us here, beckoning us toward the treasures hidden in the darkness. Aching Joy is an honest psalm of hope for those walking between pain and promise: the aching of a broken world and the beauty of a loving God. In this place, rather than trying to dodge the pain, we choose to feel it all—and to see where Jesus is in the midst of struggle. And because we make that choice, we feel all the good that comes with it, too. This is Jason’s story. This is your story. Come, find your joy within the aching.
Download or read book Forever Boy written by Kate Swenson and published by HarperCollins Australia. This book was released on 2022-05-01 with total page 301 pages. Available in PDF, EPUB and Kindle. Book excerpt: An honest and inspiring memoir of autism, motherhood, and love from the creator of Finding Cooper’s Voice. When Kate Swenson’s son Cooper was diagnosed with severe, nonverbal autism, her world stopped. She had always dreamed of having the perfect family life — watching her boy play at baseball games, walking him down the aisle. She hadn’t signed up for life as a mother raising a child with a disability. At first, Kate experienced the grief of broken dreams. Then she felt the frustration and exhaustion that comes with having to fight for your child in a world that is stacked against them. But through hard work, resilience and personal growth, she would come to learn that Cooper wasn’t the one who needed to change. She was. And it was this transformation that led Kate to acceptance — and ultimately joy. Because of Cooper, and autism, she became the person and the mother she was truly meant to be. Now Kate offers comfort and connection to other parents through her blog and Facebook community, Finding Cooper’s Voice. In Forever Boy, she shares her inspiring journey through autism with honesty and compassion, offering solace and hope to others on this path and illuminating the strength and unconditional love of mothers.
Download or read book The Cracks that Let the Light In written by Jessica Moxham and published by Hachette UK. This book was released on 2021-03-04 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'A powerful, moving and inspiring story - it opens up a whole new world of understanding.' Esther Freud 'This is wonderful. I urge you to read it. It is life enhancing and I defy you not to fall in love with Ben!' Natasha Poliszczuk, Books Editor, You Magazine 'An honest and unflinching account of Jessica's journey as the mother of a child born with complex needs. Essential reading... and a source of solace for those who may find themselves on a similar path' Leah Hazard, author of Hard Pushed: A Midwife's Story 'Jessica's beautiful words gave me a deeper understanding about embracing disability. I am inspired and will be recommending this book to parents as a testament to following your parenting instincts.' Arabella Carter-Johnson, author of Iris Grace 'A courageous, heartrending story of grief, love and ultimately hope.' The Sun, 5 star review *** Jessica Moxham thought she was prepared for the experience of motherhood. Armed with advice from friends and family, parenting books and antenatal classes, she felt ready. After giving birth, she found herself facing a different, more uncertain reality. Her son, Ben, was fighting to stay alive. When Jessica could finally take him home from hospital, the challenges were far from over. In this hopeful memoir, Jessica shares her journey in raising Ben. His disability means he will never be able to move or communicate without assistance. Jessica has to learn how to feed Ben when he can't eat, wrestle with red tape to secure his education and defend his basic rights in the face of discrimination. As Ben begins to thrive, alongside his two younger siblings, Jessica finds that caring for a child with unique needs teaches her about appreciating difference and doing things your own way. This uplifting story is about the power of family love, finding inner strength and, above all, hope.
Download or read book Unbroken Faith written by Diane Dokko Kim and published by Worthy Books. This book was released on 2018-04-03 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a parent hears that their child has a disability, hearts and hopes are often broken. But faith doesn't have to be. In Unbroken Faith, Dianne Dokko Kim comes alongside you as a fellow special needs parent to help you reconcile the premise of a good God with the devastating realities of raising a disabled child. Kim courageously articulates deep-seated, unspoken doubts and fears you may have but are afraid to voice: Will my child still have a full life? Can I do this? Where is God in all this? As you are adjusting to your new normal, Kim's biblical-based encouragement will help you understand that you are not alone, that God gets it, and that God's Word is entirely relevant to the raw and messy yet hallowed spaces of special needs parenting.
Download or read book The Family Experience of PDA written by Eliza Fricker and published by Jessica Kingsley Publishers. This book was released on 2021-11-18 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Eliza Fricker gets it. Describing her perfectly imperfect experience of raising a PDA child, with societal judgements and internal pressures, it is easy to feel overwhelmed, resentful and alone. This book's comedic illustrations explain these challenging situations and feelings in a way that words simply cannot, will bring some much-needed levity back into PDA parenting. Humorous anecdotes with a compassionate tone remind parents that they are not alone, and they're doing a great job. If children are safe, happy, and you leave the house on time, who cares about some smelly socks? A light-hearted and digestible guide to being a PDA parent covering everything from tolerance levels, relationships and meltdowns to collaboration, flexibility, and self care to dip in and out as your schedule allows to help get to grips with this complex condition. This book is an essential read for any parent with a PDA child, to help better understand your child, build support systems and carve out some essential self care time guilt free.
Download or read book Changed by a Child written by Barbara Gill and published by Harmony. This book was released on 1998-08-17 with total page 338 pages. Available in PDF, EPUB and Kindle. Book excerpt: Raising a child with a disability can often be more isolating and frustrating than any parent ever imagines. Finally, here is a book that honestly describes the inner needs and range of issues parents with disabled children face. Changed by a Child invites parents to take a moment for themselves. Each of the brief readings offers comfort and hope as they capture the unique challenges and joys of raising a disabled child.
Download or read book Regretting Motherhood written by Orna Donath and published by North Atlantic Books. This book was released on 2017-07-11 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: A provocative and deeply important study of women’s lives, women’s choices—and an ‘unspoken taboo’—that questions the societal pressures forcing women into motherhood Women who opt not to be mothers are frequently warned that they will regret their decision later in life, yet we rarely talk about the possibility that the opposite might also be true—that women who have children might regret it. Drawing on years of research interviewing women from a variety of socioeconomic, educational, and professional backgrounds, sociologist Orna Donath treats regret as a feminist issue: as regret marks the road not taken, we need to consider whether alternative paths for women currently are blocked off. She asks that we pay attention to what is forbidden by rules governing motherhood, time, and emotion, including the cultural assumption that motherhood is a “natural” role for women—for the sake of all women, not just those who regret becoming mothers. If we are disturbed by the idea that a woman might regret becoming a mother, Donath says, our response should not be to silence and shame these women; rather, we need to ask honest and difficult questions about how society pushes women into motherhood and why those who reconsider it are still seen as a danger to the status quo. Groundbreaking, thoughtful, and provocative, this is an especially needed book in our current political climate, as women's reproductive rights continue to be at the forefront of national debates.
Download or read book Elevating Child Care written by Janet Lansbury and published by Rodale Books. This book was released on 2024-04-30 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: A modern parenting classic—a guide to a new and gentle way of understanding the care and nurture of infants, by the internationally renowned childcare expert, podcaster, and author of No Bad Kids “An absolute go-to for all parents, therapists, anyone who works with, is, or knows parents of young children.”—Wendy Denham, PhD A Resources for Infant Educarers (RIE) teacher and student of pioneering child specialist Magda Gerber, Janet Lansbury helps parents look at the world through the eyes of their infants and relate to them as whole people who have natural abilities to learn without being taught. Once we are able to view our children in this light, even the most common daily parenting experiences become stimulating opportunities to learn, discover, and connect with our child. A collection of the most-read articles from Janet’s popular and long-running blog, Elevating Child Care focuses on common infant issues, including: • Nourishing our babies’ healthy eating habits • Calming your clingy, fearful child • How to build your child’s focus and attention span • Developing routines that promote restful sleep Eschewing the quick-fix tips and tricks of popular parenting culture, Lansbury’s gentle, insightful guidance lays the foundation for a closer, more fulfilling parent-child relationship, and children who grow up to be authentic, confident, successful adults.
Download or read book Autism written by Jessie Hewitson and published by Orion Spring. This book was released on 2018-03-22 with total page 373 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'A wise SatNav for what is often a bewildering, or even scary, zone of parenting. The book offers real-world, road-tested, child-first and family-friendly advice; while also highlighting the twin truths that autism is not a tragedy, and that adaptation and acceptance are not resignation' David Mitchell, bestselling author and co-translator of The Reason I Jump 'A must-read for anyone with an autistic child in their life' Laura James, author of Odd Girl Out Written by Jessie Hewitson, an award-winning journalist at The Times, Autism is the book she wishes she had read when her son was first given the diagnosis of autism spectrum disorder. It combines her own experiences with tips from autistic adults, other parents - including author David Mitchell - as well as advice from autism professionals and academics such as Professor Simon Baron-Cohen. Autism looks at the condition as a difference rather than a disorder and includes guidance on: · What to do if you think your child is autistic · How to understand and support your child at school and at home · Mental health and autism · The differences between autistic girls and boys 'It is incredibly useful and informative, full of new research and interviews that put right an awful lot of misinformation. I cannot recommend this highly enough' The Sun 'Exceptionally useful and informative' Uta Frith, Emeritus Professor of Cognitive Development, UCL
Download or read book Not What I Expected written by Rita Eichenstein PhD and published by Penguin. This book was released on 2015-04-07 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: Finalist for a Books for a Better Life Award A pediatric neuropsychologist presents strategies to help parents of special-needs children navigate the emotional challenges they face. As diagnosis rates continue to rise for autism, ADHD, learning disabilities, and other developmental differences, parents face a maze of medical, psychological, and educational choices – and a great deal of emotional stress. Many books address children’s learning or behavior problems and advise parents what they can do to help their kids, but until Not What I Expected: Help and Hope for Parents of Atypical Children there were no books that explain what the parents are going through - and how they can cope with their own emotional upheaval – for their own sake, and for the wellbeing of the whole family. With compassion, clarity, and an emphasis on practical solutions, Dr. Rita Eichenstein's Not What I Expected: Help and Hope for Parents of Atypical Children walks readers through the five stages of acceptance (similar to the stages of grief, but modified for parents of special-needs kids). Using vivid anecdotes and suggestions, she helps readers understand their own emotional experience, nurture themselves in addition to their kids, identify and address relationship wounds including tension in a marriage and struggles with children (special-needs and neurotypical), and embrace their child with acceptance, compassion and joy.
Download or read book Loving Lindsey written by Linda Atwell and published by Simon and Schuster. This book was released on 2017-09-26 with total page 344 pages. Available in PDF, EPUB and Kindle. Book excerpt: Winner - 6th Annual Beverly Hills Book Award for Relationships and Parenting & Families Award Finalist in the "Parenting & Family" category of the 2017 Best Book Awards Finalist, 2018 Next Generation Indie Book Awards in the category of Memoirs—Overcoming Adversity/Tragedy Linda Atwell and her strong-willed daughter, Lindsey—a high-functioning young adult with intellectual disabilities—have always had a complicated relationship. But when Lindsey graduates from Silverton High School at nineteen and gets a job at Goodwill, she also moves into a newly remodeled cottage in her parents’ backyard—and Linda believes that all their difficult times may finally be behind them. Life, however, proves not to be so simple. As Lindsey plunges into adulthood, she experiments with sex, considers a tubal ligation, and at twenty quits Goodwill and runs away with Emmett, a man more than twice her age. As Lindsey grows closer to Emmett, she slips further away from her family—but Linda, determined to save her daughter, refuses to give up. A touching memoir with unexpected moments of joy and humor, Loving Lindsey is a story about independence, rescue, resilience, and, most of all, love.
Download or read book Searching for Spring written by Christine Hoover and published by Baker Books. This book was released on 2018-03-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Bible says that God makes all things beautiful in their time, but when we look around today we see a broken and marred world. Our reality is so often the "not beautiful" that it's hard to trust that God can make our mess into something good. So how do we live with hope for a future redemption of all things? In Searching for Spring, Christine Hoover takes readers on a treasure hunt for beauty in both familiar and unexpected places. Framed by the changing seasons, this journey will heighten readers' senses and awaken their affections for the creator of it all. For all who are in the midst of suffering, who find their faith withering, who are questioning whether God is at work--or even present--as they wait for something in their lives to become beautiful, this book will be a welcome reminder that God never stops his redemptive work and that there is a time for everything under heaven.
Download or read book You Will Dream New Dreams written by Stanley D. Klein and published by Kensington Publishing Corporation. This book was released on 2001 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: A heartwarming collection of deeply personal writings from parents of children with such disabilites as cerebral palsy, autism, and mental retardation shares how they were able to cope, survive, heal, and eventually rediscover happiness, and provides messages of hope and encouragement for parents facing the same challenges. Original. 20,000 first printing.
Download or read book Not My Idea written by Anastasia Higginbotham and published by Ordinary Terrible Things. This book was released on 2018-09 with total page 64 pages. Available in PDF, EPUB and Kindle. Book excerpt: People of color are eager for white people to deal with their racial ignorance. White people are desperate for an affirmative role in racial justice. Not My Idea: A Book About Whiteness helps with conversations the nation is, just now, finally starting to have.
Download or read book The Anti Ableist Manifesto written by Tiffany Yu and published by Souvenir Press. This book was released on 2024-10-08 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'I defy anyone who reads this powerful and urgently needed manifesto not to be galvanised into action' Sophie Morgan, TV host and author of Driving Forwards 'A call to arms, not just for the disabled community, but for every single one of us' Dr Shani Dhanda, UK's Most Influential Disabled Person, Shaw Trust Inclusion and Accessibility Specialist, broadcaster and author In The Anti-Ableist Manifesto, Tiffany Yu highlights the myriad ways in which our society discriminates against people with disabilities - and what we can do about it. Foregrounding disabled identities that have too often been rendered invisible, she demonstrates how ending discrimination begins with self-reflection. From recognising biases to understanding microaggressions, The Anti-Ableist Manifesto teaches us how to deconstruct ableism at work, in our communities and within ourselves. Featuring a foreword by Dr Shani Dhanda, as well as contributions from disability advocates, entrepreneurs and more, The Anti-Ableist Manifesto is an essential guide to going beyond mere awareness and becoming actively anti-ableist.
Download or read book Screwed Up Somehow But Not Stupid Life with a Learning Disability written by Peter Flom and published by . This book was released on 2016-01-01 with total page 174 pages. Available in PDF, EPUB and Kindle. Book excerpt: A description of what it's like to have nonverbal learning disability and what can be done to alleviate it.
