Download or read book Ethical research with children written by Ann Farrell and published by McGraw-Hill Education (UK). This book was released on 2005-11-16 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book focuses on doing ethical research with children in today's climate of increased globalization, surveillance and awareness of children as competent research participants. It covers a range of conceptual, methodological and procedural issues, and provides a framework for doing ethical research with children. Written by international experts in the fields of early childhood research and ethics, this book supports students, practitioner-researchers and research gatekeepers with resources on how to conduct and evaluate ethical research with children. The contributors: Use key examples of cutting-edge research from a range of countries to examine research ethics with children and those around them Provide strategies for planning, conducting and evaluating research in an ethical way Explore theoretical approaches to children and childhood that are relevant to ethical research Ethical Research with Children is key reading for students in childhood studies, teacher education, public health, nursing, human services, legal studies, psychology and social sciences, as well as practitioner-researchers in these fields.
Download or read book Ethical Research with Children written by Sarah Richards and published by Springer. This book was released on 2015-10-26 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: An increasing interest in children's lives has tested the ethical and practical limits of research. Rather than making tricky ethical decisions, transparent researchers tend to gloss over stories that do not fit with sanitized narratives. This book aims to fill this gap by making explicit the lived experiences of research with children.
Download or read book Ethical Conduct of Clinical Research Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2004-07-09 with total page 445 pages. Available in PDF, EPUB and Kindle. Book excerpt: In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Download or read book The Ethics of Research with Children and Young People written by Priscilla Alderson and published by SAGE Publications. This book was released on 2011-02-09 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical questions are at the centre of research with children and young people. This clear and practical text informs students and researchers about the relevant laws and guidelines and current debates in research ethics. Priscilla Alderson and Virginia Morrow cover ethics at every stage of research, and with all kinds of young research participants, particularly those who are vulnerable or neglected. They break down the process of research into ten stages, each with its own set of related questions and problems, and they show how these need to be addressed. This practical book is essential reading for anyone who conducts or reviews research with children or young people. Priscilla Alderson is Emerita Professor of Childhood Studies at the Institute of Education University of London. Virginia Morrow is Senior Research Officer in the Department of International Development, University of Oxford.
Download or read book Ethical and Inclusive Research with Children written by Roseanna Bourke and published by Routledge. This book was released on 2020-04-02 with total page 176 pages. Available in PDF, EPUB and Kindle. Book excerpt: The imperative to include children and young people in educational research, and in more participative ways, is educationally important when exploring policy and practice contexts. It is also critical to recognise that children have the right to contribute to debates, and can express their views through educational research, on matters that affect them. However, the freedom to research alongside young people is only afforded if we continue to unmask the illusion that well-intentioned research is always ethical. This book presents an international set of storied experiences, where researchers have been challenged and have changed the way they think, incorporating and exploring ethics in research. The contributors highlight the ethical dilemmas that can arise when children and young people are included in research agendas, and their reflexive approaches to these dilemmas include being responsive to the cultural, political and social contexts of the lives of the children and developing child-friendly research approaches to ensure their ‘voice’ is accessed in multiple ways. These solution-focused and local approaches facilitate a more ethical, deliberative process where the establishment of trust is central to an ethical engagement with young people and their families and where the explication of ethical dilemmas can improve research practice. This book is a critical resource for researchers and practitioners researching with and alongside children and young people. This book was originally published as a special issue of the International Journal of Inclusive Education.
Download or read book Doing Research with Children and Young People written by Sandy Fraser and published by SAGE. This book was released on 2004 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: Doing Research with Children and Young People introduces researchers to the key considerations involved in working with children and young people.
Download or read book Ethical Research With Children written by Farrell, Ann and published by McGraw-Hill Education (UK). This book was released on 2005-11-01 with total page 198 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book focuses on doing ethical research with children in today's climate of increased globalization, surveillance and awareness of children as competent research participants. It covers a range of conceptual, methodological and procedural issues, and provides a framework for doing ethical research with children.
Download or read book Doing Ethical Research With Children written by Harcourt, Deborah and published by McGraw-Hill Education (UK). This book was released on 2012-08-01 with total page 138 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Doing Ethical Research with Children is an invaluable resource for all student and practitioner-researchers who wish to honour children as active agents and significant voices in research. The book guides the reader through the processes of ethical research with (not on!) children, positioning the child as competent and capable. It includes practical guidance and examples of research so that issues that may emerge during a research project can be anticipated. My advice is - do not embark on an Early Years research project before reading it!" Lyn Trodd, Chair of the National Sector-Endorsed Foundation Degree in Early Years Network (SEFDEY), University of Hertfordshire, UK "Doing Ethical Research with Children provides an invaluable guide to understanding and managing the ethical implications of research projects with children. The highly accessible format includes useful case-study examples, questions and checklists and the four-phased approach supports the reader to reflect on ethical considerations at every stage of the research process. This book is a welcome and essential resource that positions ethical perspectives at the heart of research activity with children." Shirley Allen, Senior Lecturer Early Childhood Studies, Middlesex University, UK "This is an admirably clear and well-structured book that will be invaluable for anyone serious about research with children. The authors write from long experience, and provide a very helpful 'step by step' guide that is always underpinned by deeply principled, insightful considerations that exemplify good practice and respect for children. The use of real examples along with the authors' questions, invite the reader to reflect on their own thinking and actions, and the extensive checklists and sample documentation provide clear guidance that will be a valuable support for students and their supervisors, researchers, and practitioners alike. I look forward to making good use of this book in my own work and in my work with students of early childhood." Sue Robson, Principal Lecturer, Subject Leader for Early Childhood Studies University of Roehampton, London, UK This book provides a step-by-step guide to approaching your research project and will support you in developing, conducting and disseminating research relating to children and childhood with an ethical imperative. Doing Ethical Research with Children will help you focus and identify many of the key issues surrounding research with children. The book presents an overview of both contemporary and traditional perspectives relating to child related research practices. The authors combine relevant theoretical and practical information, offering a guide to the essential elements for conducting ethical research with children. You are prompted to consider and systematically address these elements, with the help of: Real world 'points to ponder', offering unique insights 'Over to you' reflection activities Case studies considering ethical dilemmas Written specifically as a guide and reflection tool for beginning researchers studying early years and childhood, the book follows the research journey from conceptualisation to dissemination and looks at the unique considerations for research involving children.
Download or read book Ethics and Research with Children written by Eric Kodish and published by Oxford University Press, USA. This book was released on 2018-12-14 with total page 345 pages. Available in PDF, EPUB and Kindle. Book excerpt: Fundamental questions about the morality of pediatric medical research persist despite years of debate and the establishment of strict codes of ethics. Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research involving their children? Should children or their parents be paid for participation in research? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research. Each chapter begins with a unique case vignette, followed by rich discussion and incisive ethical analysis. Chapters represent a host of current controversies and are contributed by leading scholars from a variety of disciplines that must grapple with how to best protect children from research risk while driving innovation in the fight against childhood diseases. Chapters end with questions for discussion, providing faculty and students with accessible starting points from which to explore more in depth the thorny issues that are raised. In the final chapter, the editors provide a synthesis and summary that serve as a capstone and companion to the case-based chapters. Unique in its specific focus on research, Ethics and Research with Children provides a balanced and thorough account of the enduring dilemmas that arise when children become research subjects, and will be essential reading for those involved with pediatric research in any context.
Download or read book Ethical Issues in Mental Health Research With Children and Adolescents written by Kimberly Hoagwood and published by Routledge. This book was released on 2014-06-03 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: Studies involving children with mental, emotional, or behavioral problems--or their families--have to meet certain standards of research ethics. This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children's mental health. These experts offer practical suggestions for how to handle these dilemmas. Chapters on the perspectives of parents, regulators, and bioethicists provide additional points of view on these issues. Written in down-to-earth language, this book will be useful for professionals who study children, for those who train students in research methods, and for parents who are thinking about participating in research studies. In attempting to bridge the apparent gap between ethics and science, the editors close this volume on a note commonly sounded by researchers: more research is needed. Yet in this area, a new kind of research is required. The science of scientific ethics must be developed and expanded, and better understanding of the determinants and circumstances under which children can comprehend and evaluate risks and benefits is needed. Likewise, fuller knowledge of the contextual factors affecting children's and families' consent to participate in research is essential. In particular, development of scales to assess children's ability to comprehend risk-benefit issues, studies of families' reactions to research procedures, and empirical data on the impact of various forms of participant reimbursement will advance both science and ethics. This volume should spur further research, serving as a guide for current investigators, participating families, institutional review boards, and policymakers who shape the research enterprise.
Download or read book Ethical Considerations for Research on Housing Related Health Hazards Involving Children written by Institute of Medicine and published by National Academies Press. This book was released on 2005-11-10 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.
Download or read book Researching Young Children s Perspectives written by Deborah Harcourt and published by Taylor & Francis. This book was released on 2011-03-08 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: What ethical dilemmas face researchers who work with young children? Researching Young Children’s Perspectives critically examines the challenges and complexities of rights based, participatory research with children. Rather than approaching these dilemmas as problematic issues, this book positions them as important topics for discussion and reflection. Drawing from their own rich experiences as research collaborators with young children in internationally diverse settings, the authors consider the ethical, methodological and theoretical frameworks that guide best-practice in research with young children. Each chapter poses points for consideration that will inform and challenge both the novice and experienced researcher, such as: How ‘participatory’ can research be with infants under eighteen months? When should listening through observation stand alone? What is the distinction between methodologies and methods? How can all young children be assured of a voice in research? The authors also present seven separate case studies which demonstrate exemplary research with young children. Each study is accompanied by insightful commentary from the authors, who highlight the issues or difficulties faced and propose potential solutions. If you are a student at undergraduate level and above, this book will give you all the confidence you need to conduct your own high quality research with children.
Download or read book Ethics and Integrity in Research with Children and Young People written by Grace Spencer and published by Emerald Publishing Limited. This book was released on 2021-11-04 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: This international and multi-disciplinary edited collection unpacks some of the ethical complexities of conducting research with children and young people. The chapters in the volume offer an applied perspective to navigating contemporary and complicated ethical issues that can arise in the field of childhood and youth-centred research.
Download or read book Social Research on Children and Adolescents written by Barbara Stanley and published by SAGE. This book was released on 1992 with total page 213 pages. Available in PDF, EPUB and Kindle. Book excerpt: The important issues of what theory and research on human development can teach us about adolescents' vulnerability, how to reduce that vulnerability and under what circumstances parental consent does not protect children's rights are considered in this volume. The editors skilfully bridge the gap between those volumes which set out legal requirements that govern research on minors and the research methodology literature on adolescent psychology.
Download or read book Children in Medical Research written by Lainie Friedman Ross and published by OUP Oxford. This book was released on 2006-02-09 with total page 300 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lainie Ross presents a rigorous critical investigation of the development of policy governing the involvement of children in medical research. She examines the shift in focus from protection of medical research subjects, enshrined in post-World War II legislation, to the current era in which access is assuming greater precedence. Infamous studies such as Willowbrook (where mentally retarded children were infected with hepatitis) are evidence that before the policy shift protection was not always adequate, even for the most vulnerable groups. Additional safeguards for children were first implemented in many countries in the 1970s and 1980s; more recent policies and guidelines are trying to promote greater participation. Ross considers whether the safeguards work, whether they are fair, and how they apply in actual research practice. She goes on to offer specific recommendations to modify current policies and guidelines. Ross examines the regulatory structures (e.g. federal regulations and institutional review boards), the ad hoc policies (e.g. payment in pediatric research and the role of schools as research venues), the actual practices of researchers (e.g. the race/ethnicity of enrolled research subjects or the decision to enroll newborns) as well as the decision-making process (both parental permission and the child's assent), in order to provide a broad critique. Some of her recommendations will break down current barriers to the enrolment of children (e.g. permitting the payment of child research subjects; allowing healthy children to be exposed to research that entails more than minimal risk without requiring recourse to 407 panels); whereas other recommendations may create new restrictions (e.g., the need for greater protection for research performed in schools; restrictions on what research should be done in the newborn nursery). The goal is to ensure that medical research is done in a way that promotes the health of current and future children without threatening, to use the words of Hans Jonas, 'the erosion of those moral values whose loss . . . would make its most dazzling triumphs not worth having'.
Download or read book Ethics Social Research and Consulting with Children and Young People written by Priscilla Alderson and published by . This book was released on 2004 with total page 171 pages. Available in PDF, EPUB and Kindle. Book excerpt: Examining the ethical questions raised throughout each project, this text looks at issues that affect planning, reporting, and disseminating the findings of consultations with children.
Download or read book The Ethics of Research with Children and Young People written by Priscilla Alderson and published by SAGE. This book was released on 2020-07-27 with total page 258 pages. Available in PDF, EPUB and Kindle. Book excerpt: A practical guide to carrying out ethical research with children and young people, this practical handbook examines the ethical questions that arise at each stage of research, from first plans to dissemination and impact. Illustrated with case studies from international and inter-disciplinary research, it offers advice for addressing each ethical question, issue or uncertainty. Including: • A showcase of the best practice on a range of topics including data protection • Practical guidance for responding to recent global changes in policy and practice in ethics and law • Discussion of the challenges and opportunities of digital research with children The updated second edition continues to provide an excellent resource for those exploring the old, current and new consensuses on the ethics of researching with children.
