Download or read book End of Life and People with Intellectual and Developmental Disability written by Roger J. Stancliffe and published by Springer Nature. This book was released on 2022-06-11 with total page 542 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning

Download or read book Health Care for People with Intellectual and Developmental Disabilities across the Lifespan written by I. Leslie Rubin and published by Springer. This book was released on 2016-04-25 with total page 2307 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.

Download or read book Intellectual Disability in Health and Social Care written by Stacey Atkinson and published by Routledge. This book was released on 2014-09-16 with total page 598 pages. Available in PDF, EPUB and Kindle. Book excerpt: Many practitioners within health and social care come into contact with people with intellectual disabilities and want to work in ways that are beneficial to them by making reasonable adjustments in order to meet clients’ needs and expectations. Yet the health and wellbeing of people with learning disabilities continues to be a neglected area, where unnecessary suffering and premature deaths continue to prevail. This text provides a comprehensive insight into intellectual disability healthcare. It is aimed at those who are training in the field of intellectual disability nursing and also untrained practitioners who work in both health and social care settings. Divided into five sections, it explores how a wide range of biological, health, psychological and social barriers impact upon people with learning disability, and includes: Six guiding principles used to adjust, plan and develop meaningful and accessible health and social services Assessment, screening and diagnosis of intellectual disability across the life course Addressing lifelong health needs Psychological and psychotherapeutic issues, including sexuality, behavioural and mental health needs, bereavement, and ethical concerns. The changing professional roles and models of meeting the needs of people with intellectual and learning disabilities. Intellectual Disability in Health and Social Care provides a wide-ranging overview of what learning disability professionals’ roles are and provides insight into what health and social care practitioners might do to assist someone with intellectual disabilities when specific needs arise.

Download or read book Choice Preference and Disability written by Roger J. Stancliffe and published by Springer Nature. This book was released on 2020-04-17 with total page 375 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines choice and preference in the lives of people with disability, focusing on people with intellectual and developmental disabilities. It provides an overview of choice and examines foundational concepts related to choice and preference, including self-determination and supported decision making. Chapters examine a range of critical service and policy issues, such as guardianship, individualized funding, the health care system, and the situation regarding choices for people with disability in international contexts. In addition, chapters explore issues ranging from the development of preference and choice in childhood to choices in older age and end of life matters. It provides in-depth analysis of particular choices faced at different points across the lifespan. The book concludes with implications for policy and practice. Topics featured in this book include: Supported decision making for adults with intellectual disabilities or acquired brain injury. The role of parents and families in the development of choice-making skills. Preference assessments for individuals who cannot tell us what they prefer. Employment opportunities for people with intellectual disabilities. Sexual and reproductive rights for people with intellectual disabilities. Disability and the choice to become a parent. Choice, Preference, and Disability is an essential resource for researchers, professors, clinicians, therapists, and other professionals as well as graduate students in the fields of developmental and positive psychology, rehabilitation, social work, special education, occupational, speech and language therapy, public health, and healthcare policy.

Download or read book End of life Care for Children and Adults with Intellectual and Developmental Disabilities written by Sandra L. Friedman and published by American Association. This book was released on 2010 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: End-of-life care is the only major reference to systematically explore the unique medical, social, legal, political, and ethical issues to consider while providing care to adults and children with intellectual and developmental disabilities who are facing terminal illness or life-limiting conditions.

Download or read book Health Inequalities and People with Intellectual Disabilities written by Eric Emerson and published by Cambridge University Press. This book was released on 2014 with total page 177 pages. Available in PDF, EPUB and Kindle. Book excerpt: An authoritative, evidence-based overview of the health needs of people with intellectual disabilities and how to manage these needs appropriately.

Download or read book Intellectual Disability and Dementia written by Karen Watchman and published by Jessica Kingsley Publishers. This book was released on 2014-05-21 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Presenting the most up-to-date information available about dementia and intellectual disabilities, this book brings together the latest international research and evidence-based practice, and describes clearly the relevance and implications for support and services Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of dementia, from diagnosis to end of life. Particular emphasis is placed on how intellectual disability and dementia services can work collaboratively to offer more effective, joined up support. Practitioners, managers and commissioners will find this to be an informative resource for developing person-centred provision for people with intellectual disabilities and dementia and their families. It will also be a key text for academics and students who wish to be up-to-date with the latest research and practice developments in this field.

Download or read book Mental Health Intellectual and Developmental Disabilities and the Ageing Process written by Vee P. Prasher and published by Springer Nature. This book was released on 2020-12-22 with total page 392 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book brings together findings from research and clinical practice, with comprehensive coverage of the important aspects of mental health in ageing persons with intellectual and developmental disabilities. It is crucial for professionals involved in the care of persons with all intellectual and developmental disabilities to have a broad understanding of the essential range of issues, and therefore this book provides a truly multi-disciplinary perspective, complete with many figures and illustrations to underline the key points. Undoubtedly, research and clinical practice are much more advanced in the general ageing population than in persons with intellectual and developmental disabilities, and so professionals and academics must be made fully aware of commonalities and idiosyncrasies of older people with intellectual and developmental disabilities. This book presents the ongoing developments concerning mental health and aging, which will become relevant to the intellectually disabled population. Through experience, this book also acknowledges that the impact on the persons themselves and on their carers always needs to be taken into account, with treatment programs established with a multi-faceted team approach in mind. Avoiding the jargon of many titles in this area while maintaining the hands-on approach of clinical practice, this book meshes the practical and scientific worlds, with all chapters written by leading experts in the field. Beyond the US, the IASSIDD support expands the book message worldwide.

Download or read book The Wiley Handbook of Healthcare Treatment Engagement written by Andrew Hadler and published by John Wiley & Sons. This book was released on 2020-01-30 with total page 550 pages. Available in PDF, EPUB and Kindle. Book excerpt: Against a global backdrop of problematic adherence to medical treatment, this volume addresses and provides practical solutions to the simple question: “Why don’t patients take treatments that could save their lives?” The Wiley handbook of Healthcare Treatment Engagement offers a guide to the theory, research and clinical practice of promoting patient engagement in healthcare treatment at individual, organizational and systems levels. The concept of treatment engagement, as explained within the text, promotes a broader view than the related concept of treatment adherence. Treatment engagement encompasses more readily the lifestyle factors which may impact healthcare outcomes as much as medication-taking, as well as practical, economic and cultural factors which may determine access to treatment. Over a span of 32 chapters, an international panel of expert authors address this far-reaching and fascinating field, describing a broad range of evidence-based approaches which stand to improve clinical services and treatment outcomes, as well as the experience of users of healthcare service and practitioners alike. This comprehensive volume adopts an interdisciplinary approach to offer an understanding of the factors governing our healthcare systems and the motivations and behaviors of patients, clinicians and organizations. Presented in a user-friendly format for quick reference, the text first supports the reader’s understanding by exploring background topics such as the considerable impact of sub-optimal treatment adherence on healthcare outcomes, before describing practical clinical approaches to promote engagement in treatment, including chapters referring to specific patient populations. The text recognizes the support which may be required throughout the depth of each healthcare organization to promote patient engagement, and in the final section of the book, describes approaches to inform the development of healthcare services with which patients will be more likely to seek to engage. This important book: Provides a comprehensive summary of practical approaches developed across a wide range of clinical settings, integrating research findings and clinical literature from a variety of disciplines Introduces and compliments existing approaches to improve communication in healthcare settings and promote patient choice in planning treatment Presents a range of proven clinical solutions that will appeal to those seeking to improve outcomes on a budget Written for health professionals from all disciplines of clinical practice, as well as service planners and policy makers, The Wiley Handbook of Healthcare Treatment Engagement is a comprehensive guide for individual practitioners and organizations alike.

Download or read book Mental Disorders and Disabilities Among Low Income Children written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2015-10-28 with total page 472 pages. Available in PDF, EPUB and Kindle. Book excerpt: Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.

Download or read book Cancer and Cancer Care written by Debbie Wyatt and published by SAGE. This book was released on 2014-11-30 with total page 1025 pages. Available in PDF, EPUB and Kindle. Book excerpt: ‘This book creates new ground for all health professionals working in cancer care to read, enjoy, look at and question their practice.’ Caroline Adcock, Clinical Practice Educator – Haematology and Oncology, Royal Shrewsbury Hospital Cancer and Cancer Care is a complete study of cancer, the care of people with the disease and its impact on everyday life. Addressing the physical and psychosocial aspects of the illness in detail, it covers all fundamental aspects of cancer diagnosis, treatment, survival and aspects of psychosocial support for all those affected by cancer: patients, their families, and their healthcare providers. Chapters include: - A review of the latest theory and evidence on over 30 separate topic areas - Reflective questions which challenge readers to reappraise what they have learned - Chapter overviews and chapter summaries which highlight the key points The book is essential reading for all those on cancer care courses at undergraduate and postgraduate level. It will be valuable reading for nurses, oncologists, psychologists, social workers and all healthcare practitioners and researchers working with people affected by cancer.

Download or read book How to Break Bad News to People with Intellectual Disabilities written by Irene Tuffrey-Wijne and published by Jessica Kingsley Publishers. This book was released on 2012-09-15 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers unique and flexible guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The guidelines, which are adaptable to individual communication ability and level of understanding, address the many complex needs of people with intellectual disabilities who can find understanding and accepting news that has a negative impact on their life a very difficult task. In the book, Irene Tuffrey-Wijne covers a range of different types of bad news, from bereavement and illness to more minor issues such as a change of accommodation, and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible. An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with intellectual disabilities.

Download or read book Supporting People with Intellectual Disabilities Experiencing Loss and Bereavement written by Sue Read and published by Jessica Kingsley Publishers. This book was released on 2014-08-21 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Exploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience. This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life. Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.

Download or read book Decision Making by Individuals with Intellectual and Developmental Disabilities written by Ishita Khemka and published by Springer Nature. This book was released on 2021-11-23 with total page 573 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book examines theoretical considerations in the study of decision making as well as practical applications in social interpersonal domains for adolescents and adults with intellectual and developmental disabilities (IDD). It provides a history of the study of decision making in individuals with IDD and examines emerging views on decision making from a positive psychology perspective. The book explores the role of decision making in self-determination as well as offers global perspectives on the rights and responsibilities of individuals with IDD to engage in independent decision making. It outlines a framework for the study of decision making in individuals with IDD, reviews research that addresses the role of culturally diverse influences on individual decision making, and examines likely consequences of the etiological bases of disability on decision-making profiles. Key areas of coverage include: · Critical role of basic processes of cognition, motivation and self-beliefs, affect and emotion, and various styles of decision making. · Applications of decision-making skills within family and community contexts, in personal and social relationships, during transition to adulthood and more independent lifestyles, and in successful community living. · Self-protective decision making by individuals in situations of abuse as well as in resisting peer victimization and bullying. · Decision-making parameters for enabling maximum participation in self-decision making, through shared and supported decision making in contexts such as health care, aging, and end-of-life decisions. · Research-based interventions to improve effective decision making in individuals with IDD. Decision Making by Individuals with Intellectual and Developmental Disabilities is a must-have reference for researchers, professors, and graduate students as well as clinicians and other professionals in the fields of developmental and positive psychology, rehabilitation, social work, special education, occupational, speech and language therapy, public health, and healthcare policy.

Download or read book Group Homes for People with Intellectual Disabilities written by Tim Clement and published by Jessica Kingsley Publishers. This book was released on 2009-10-15 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Group homes are the dominant form of residential accommodation for people with severe learning or intellectual disabilities, and yet there are significant problems within these living environments. This book seeks to highlight the key issues for both residents and staff, and offers practical suggestions for improving community living. Based on original empirical research and drawing on extensive field notes, the book paints a picture of life in group homes today. The authors propose a framework for increasing community presence and participation, and consider the barriers to be overcome if progress is to be made in achieving these key goals. The notion of 'homeliness', the challenge of maintaining a balance between individual and group needs and the concept of practice leadership are all explored. Group Homes for People with Intellectual Disabilities is essential reading for anyone working with people with learning or intellectual disabilities in residential services, as well as academics and students of disability studies, social work and health and social care programmes.

Download or read book Am I Going to Die written by Sheila Hollins and published by Books Beyond Words. This book was released on 2018-06-11 with total page 66 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells the story of John, who has an intellectual disability. John is dying. The pictures follow him in his illness and his final days. They are designed to help the reader make sense of what is happening to them or someone they know who is ill. The pictures help them to ask questions or share their concerns.

Download or read book Neurological Psychiatric and Developmental Disorders written by Institute of Medicine and published by National Academies Press. This book was released on 2001-01-01 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.