Download or read book Dying and Disabled Children written by Harold M. Dick and published by Routledge. This book was released on 2014-02-25 with total page 170 pages. Available in PDF, EPUB and Kindle. Book excerpt: In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child’s serious illness. Ethical decision making, learning to recognize the child’s suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.
Download or read book Death Or Disability written by Dominic Wilkinson and published by Oxford University Press. This book was released on 2013-01-24 with total page 320 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dominic Wilkinson combines philosophy, medicine, and science to explore the profound and contentious ethical issues facing those who work with critically ill children and infants. He addresses questions about the accuracy of predictions for future quality of life; about when to allow children to die; and about how much say parents should have.
Download or read book I Have a Question about Death written by Arlen Grad Gaines and published by Jessica Kingsley Publishers. This book was released on 2017-03-21 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt: Death is a difficult topic for any parent or educator to explain to a child, perhaps even more so when the child has Autism Spectrum Disorder or other Special Needs. This book is designed specifically to help children with these additional needs to understand what happens when someone dies. The first book of its kind, I Have a Question about Death uses straightforward text and images to walk children through what it means when someone dies, as well as ways they might want to react or to think about the person. Using clear illustrations throughout and with information for parents and guardians, this book is essential for families with a child aged 5-11 with Autism Spectrum Disorder or other special needs.
Download or read book What Do We Tell the Children written by Joseph M. Primo and published by Abingdon Press. This book was released on 2013-09-17 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: One out of seven children will lose a parent before they are 20. The statistics are sobering, but they are also a call for preparedness. However, pastors and counselors of all types are often at a loss when dealing with a grieving child. Talking to adults about death and grief is difficult; it's all the more challenging to talk to children and teens. The stakes are high: grieving children are high-risk for substance abuse, promiscuity, depression, isolation, and suicide. Yet, despite this, most of these kids grow up to be normal or exceptional adults. But their chance to become healthy adults increases with the support of a loving community. Supporting grieving children requires intentionality, open communication, and patience. Rather than avoid all conversations on death or pretend like it never happened, normalizing grief and offering support requires us to be in-tune with kids through dialogue as they grapple with questions of “how” and “why.” When listening to children in grief, we often have to embrace the mystery, offer love and compassion, and stick with the basics. The author says, "We don’t have to answer the why and how for them, but we can assure our children that God is with us as we suffer. We can do so by doing good for others and pointing out all of those moments when someone has done something good for us. I believe that most of the time that’s as far as we will get, and that is okay."
Download or read book On Children and Death written by Elisabeth Kübler-Ross and published by Simon and Schuster. This book was released on 2011-07-26 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: On Children and Death is a major addition to the classic works of Elisabeth Kübler-Ross, whose On Death and Dying and Living with Death and Dying have been continuing sources of strength and solace for tens of millions of devoted readers worldwide. Based on a decade of working with dying children, this compassionate book offers the families of dead and dying children the help -- and hope -- they need to survive. In warm, simple language, Dr. Kübler-Ross speaks directly to the fears, doubts, anger, confusion, and anguish of parents confronting the terminal illness or sudden death of a child.
Download or read book Am I Going to Die written by Sheila Hollins and published by Books Beyond Words. This book was released on 2018-06-11 with total page 66 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells the story of John, who has an intellectual disability. John is dying. The pictures follow him in his illness and his final days. They are designed to help the reader make sense of what is happening to them or someone they know who is ill. The pictures help them to ask questions or share their concerns.
Download or read book Why Did You Die written by Erika Leeuwenburgh and published by New Harbinger Publications. This book was released on 2008 with total page 134 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a loved one dies, children are faced with a kaleidoscope of feelings, thoughts, and questions. Struggling with these issues can be overwhelming without guidance, support, and creative forms of expression. This bereavement book contains simple, effective activities to help children and parents communicate about death and the grieving process. Through these activities, children will learn how to grow and thrive after the loss of a loved one.
Download or read book Open to Hope written by Gloria Horsley and published by Open to Hope. This book was released on 2018-08-15 with total page 416 pages. Available in PDF, EPUB and Kindle. Book excerpt: Whether a death is sudden or anticipated, losing a loved one shakes us to our very core, destroying our belief in a just, safe, and predictable world. Grief often changes us quickly both physically and mentally. It is like being kidnapped and suddenly transported to a foreign land without luggage, a passport, or the language to make sense of what's happening. Even if you have a road map for getting through the pain and anguish, you still have to take the trip. The purpose of this book is to help you find threads of hope that will assist your recovery and help you carry on. By sharing inspirational stories, personal experiences, and professional advice from contributors to theOpen to Hope website, we trust that you will be comforted and inspired by learning how others dealt with their losses, what they saw as roadblocks, and how they handled them as well as what it has taken for them to not only survive, but thrive. We want to help you resume leading the life that you were meant to live--a life of satisfaction and one driven by a belief in your own personal power for change.
Download or read book Dying in America written by Institute of Medicine and published by National Academies Press. This book was released on 2015-03-19 with total page 638 pages. Available in PDF, EPUB and Kindle. Book excerpt: For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Download or read book Lifetimes written by Bryan Mellonie and published by Bantam. This book was released on 2009-09-16 with total page 42 pages. Available in PDF, EPUB and Kindle. Book excerpt: When the death of a relative, a friend, or a pet happens or is about to happen . . . how can we help a child to understand? Lifetimes is a moving book for children of all ages, even parents too. It lets us explain life and death in a sensitive, caring, beautiful way. Lifetimes tells us about beginnings. And about endings. And about living in between. With large, wonderful illustrations, it tells about plants. About animals. About people. It tells that dying is as much a part of living as being born. It helps us to remember. It helps us to understand. Lifetimes . . . a very special, very important book for you and your child. The book that explains—beautifully—that all living things have their own special Lifetimes.
Download or read book Coping with Crisis and Handicap written by Aubrey Milunsky and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 427 pages. Available in PDF, EPUB and Kindle. Book excerpt: For over 20 years I have accepted the challenge and had the privilege of caring for sick children, agonizing with their parents during periods of serious illness, which were sometimes fatal. Because of my particular interest in and concern about birth defects and genetic disease, many of these children had severe disabling handicaps, which were often genetic and included mental retardation. Hence care of these children and their families was often complicated by the presence of serious or profound genetic defects. The initial realization of the nature of the disorder invariably led to emotional . difficulties and inevitably later spawned chronic distress. For some children inexorable deterioration led to untimely deaths, while the parents agonized over their handi capped, chronically ill, or defective-but nevertheless loved---
Download or read book Never Too Young to Know written by Phyllis R. Silverman and published by Oxford University Press. This book was released on 2000 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using examples from children's lives as well as the results of reseach, this book provides explains the ways in which children experience death and gives ways in which relatives and professionals can best support them.
Download or read book Justice for Laughing Boy written by Sara Ryan and published by Jessica Kingsley Publishers. This book was released on 2017-09-27 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: On July 4th 2013, Connor Sparrowhawk, also known as Laughing Boy or LB, was found dead in a specialist NHS unit. Connor, who had autism and epilepsy, had a seizure while in the bath and no member of staff was on hand to stop him from drowning. An entirely preventable death. Sara Ryan presents a frank, sometimes funny and touching account of her son's early life and preventable death and the unfolding #JusticeforLB campaign. This serves as a wake-up call to all of us and asks: can we really claim that we respect the life and dignity of learning disabled people?
Download or read book Give Sorrow Words written by Dorothy Judd and published by Routledge. This book was released on 2018-05-01 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Though there has been much written about dying and bereavement in recent years, the particular stress of terminal illness in childhood - as it affects both the families and the professionals - is only beginning to be better understood. In this book Dorothy Judd, a child psychotherapist who has worked with ill, disabled and dying children and adolescents for many years, places her clinical experience in the context of a full understanding of death, the moral and ethical issues raised by some of the treatments for life-threatening illness, and the current research into new developments in approaches to terminal illness. At the heart of the book is a very moving diary of Judd's work with Robert, a seven-year-old suffering from leukaemia. Judd's account of therapeutic work in the hospital setting, away from the privacy of the consulting room, will be of special interest to mental health professionals. Give Sorrow Words combines great sensitivity to the experience of terminal illness with an astute awareness of the more theoretical debates in this increasingly important area of research.
Download or read book After the Death of a Child written by Ann K. Finkbeiner and published by Simon and Schuster. This book was released on 2012-12-11 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt: For a parent, losing a child is the most devastating event that can occur. Most books on the subject focus on grieving and recovery, but as most parents agree, there is no recovery from such a loss. This book examines the continued love parents feel for their child and the many poignant and ingenious ways they devise to preserve the bond. Through detailed profiles of parents, Ann Finkbeiner shows how new activities and changed relationships with their spouse, friends, and other children can all help parents preserve a bond with the lost child. Based on extensive interviews and grief research, Finkbeiner explains how parents have changed five to twenty-five years after the deaths of their children. The first half of the book discusses the short- and long-term effects of the child’s death on the parent’s relationships with the outside world, that is, with their spouses, other children, friends, and relatives. The second half of the book details the effect on the parents’ internal world: their continuing sense of guilt; their need to place the death in some larger context and their inability sometimes to consistently do so; their new set of priorities; the nature of their bond with the lost child and the subtle and creative ways they have of continuing that bond. Finkbeiner’s central point is not so much how parents grieve for their children, but how they love them. Refusing to fall back on pop jargon about “recovery” or to offer easy solutions or standardized timelines, Finkbeiner’s is a genuine and moving search to come to terms with loss. Her complex profiles of parents resonate with the honesty and authenticity of uncomfortable emotions expressed and, most importantly, shared with others experiencing a similar loss. Finally, each profile exemplifies the many heroic ways parents learn to live with their pain, and by so doing, honor the lives their children should have lived.
Download or read book Understanding Death and Illness and what They Teach about Life written by Catherine Faherty and published by Future Horizons. This book was released on 2008 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: Finally, family members and professionals have true guidance for these difficult, but necessary, conversations. Author Catherine Faherty offers detailed, concrete explanations of illness, dying, life after death, losing a pet, and numerous other issues. Her descriptions are written with such care, even caregivers will be comforted by her words. The "Communication Forms" following each short topic will engage learners and include them in the conversation, allowing them to share personal experiences, thoughts, and concerns. Wonderful chapters such as "What People May Learn When Facing Death" and "Role Models and Mentors" put death into perspective in terms of life and encourage us all to live fully. Catherine covers important topics such as: Illness and Injury Recuperating and Healing When Someone is Dying What Happens to the Person Who Dies Putting Pets to Sleep Rituals and Traditions What People Say and Do Plus many more!
Download or read book Angel Catcher for Kids written by Amy Eldon and published by Chronicle Books. This book was released on 2002-06 with total page 70 pages. Available in PDF, EPUB and Kindle. Book excerpt:
