Download or read book Despite Lupus written by Sara Gorman and published by Sara Gorman. This book was released on 2009 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: Looking for a better way to manage life with a chronic illness? Despite Lupus will guide you through the proven steps needed to obtain the emotional and physical wellness you deserve.
Download or read book Lupus Erythematosus written by Peter H. Schur and published by Springer Science & Business Media. This book was released on 2012-07-06 with total page 266 pages. Available in PDF, EPUB and Kindle. Book excerpt: Often considered the prototypic autoimmune disease, Lupus is characterized by protean manifestations and affects a wide range of organ systems. Despite widespread availability of anti nuclear antibody testing and other technological diagnostic advances, the diagnosis of lupus can be elusive, difficult, and inexact. Treatment of the disease can also be challenging. Advances in immunology and biotechnology have led to a burgeoning world of new therapies in development that offer patients the real possibility of new therapies and physicians and scientists novel insights into the pathogenesis of this complicated immunological disease. Lupus Erythematosus: Clinical Evaluation and Treatment summarizes the clinical aspects of lupus facing the general clinician in the 21st century. In this invaluable, practical book, the reader will find introductory chapters regarding general diagnostic and treatment principles, followed by chapters addressing the lupus-specific organ manifestations. Special topics regarding pregnancy and comorbidities are also presented. Written by highly experienced physicians with special expertise in lupus, Lupus Erythematosus: Clinical Evaluation and Treatment is an indispensable reference for the common and not so common problems affecting patients with lupus.
Download or read book The Lupus Encyclopedia written by Donald E. Thomas Jr. and published by JHU Press. This book was released on 2023-09-05 with total page 845 pages. Available in PDF, EPUB and Kindle. Book excerpt: Now completely updated! The best-selling, most comprehensive guide to lupus, its complications, and management. Lupus is an autoimmune disease that can attack any body organ. It is three times more common in the United States today than it was in the 1980s, so there is an increased need for accurate, practical information on this potentially devastating disease. Lupus expert and clinician Donald E. Thomas, Jr., MD, provides all the helpful information patients need so they can understand and treat this disease. Highlighting amazing advancements in the diagnosis and treatment of lupus, this edition includes new and expanded information on: • The latest FDA-approved medications • How lupus affects different body parts • Advanced labs that improve lupus diagnosis and treatment • The role of the microbiome and anti-inflammatory diets • Updated recommendations for those who are pregnant or breastfeeding • Childhood-onset lupus • The interaction between COVID-19 and lupus • Non-drug treatments, complementary medicine, and medical cannabis The gold standard since it was first published and carefully reviewed by experts in the field, the latest edition of The Lupus Encyclopedia is essential for patients, health care providers, and families. Bonus content on insurance issues and information about working with lupus and disability is also available online. Endorsed by The Lupus Foundation of America Contributors: Jemima Albayda, MD; Divya Angra, MD; Alan N. Baer, MD; Sasha Bernatsky, MD, PhD; George Bertsias, MD, PhD; Ashira D. Blazer, MD; Ian Bruce, MD; Jill Buyon, MD; Yashaar Chaichian, MD; Maria Chou, MD; Sharon Christie, Esq; Angelique N. Collamer, MD; Ashté Collins, MD; Caitlin O. Cruz, MD; Mark M. Cruz, MD; Dana DiRenzo, MD; Jess D. Edison, MD; Titilola Falasinnu, PhD; Andrea Fava, MD; Cheri Frey, MD; Neda F. Gould, PhD; Nishant Gupta, MD; Sarthak Gupta, MD; Sarfaraz Hasni, MD; David Hunt, MD; Mariana J. Kaplan, MD; Alfred Kim, MD; Deborah Lyu Kim, DO; Rukmini Konatalapalli, MD; Fotios Koumpouras, MD; Vasileios C. Kyttaris, MD; Jerik Leung, MPH; Hector A. Medina, MD; Timothy Niewold, MD; Julie Nusbaum, MD; Ginette Okoye, MD; Sarah L. Patterson, MD; Ziv Paz, MD; Darryn Potosky, MD; Rachel C. Robbins, MD; Neha S. Shah, MD; Matthew A. Sherman, MD; Yevgeniy Sheyn, MD; Julia F. Simard, ScD; Jonathan Solomon, MD; Rodger Stitt, MD; George Stojan, MD; Sangeeta Sule, MD; Barbara Taylor, CPPM, CRHC; George Tsokos, MD; Ian Ward, MD; Emma Weeding, MD; Arthur Weinstein, MD; Sean A. Whelton, MD
Download or read book Lupus written by Marisa L. Zeppieri-Caruana and published by Thoughts & Letters Incorporated. This book was released on 2013-04-30 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Life was progressing as expected; getting sick was never part of their plan. However, in its own distinct and sudden way, Lupus showed up in the lives of the men and women profiled in this book. Although their ages, locations and stories are different, they all share one thing in common: they refuse to give up hope, despite Lupus. Lupus: Real Life, Real Patients, Real Talk is the first book of its kind in relation to the disease. Journalist, Lupus patient and Lupus Foundation of America Board Member, Marisa Zeppieri-Caruana, sets out to find men and women across the nation who will share the hurdles of daily life when battling a debilitating and cruel disease. What she discovers is a community not broken and hopeless, but one that is optimistic and refuses to give in. These patients have encountered many obstacles - kidney transplants, open-heart surgeries, coma, and dialysis - yet they continue to persevere. They share their darkest moments and their future dreams. In addition to telling their stories, they discuss tips on how to manage and deal with the disease - emotionally, spiritually and physically. This book provides tangible information and inspiration for every Lupus patient and their loved ones. It is also an essential tool for those who are newly diagnosed and trying to navigate the choppy waters of chronic illness and daily life. Featuring Amy Kelly-Yalden, CEO of the Lupus Foundation of America, Southeast Chapter, and Magdalena Cadet, MD, FACR, Director of Rheumatology at New York Presbyterian Healthcare System, this book is not to be missed.
Download or read book Lupus the Battle Within written by Valerie Horn and published by Vjh Publishing. This book was released on 2016-08-17 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: Valerie Horn is a lupus patient that has been battling lupus for over fifty years. While living in New York City, her parents did whatever they could by taking her from hospital to hospital, until that one special doctor made a difference in her life. She shares her life story with admirable strength and courage, as she takes you through her most precious and private moments. You will follow Valerie's journey from childhood, when she was first diagnosed, all the way into adulthood, as she talks about her marriage and divorce and raising a child. Her leap at love again left her heartbroken in another state, with two more children to raise...alone. "Lupus: The Battle Within," is a glimpse into the daily struggle that so many lupus patients face, but may be too ashamed to talk about. In Horn's debut memoir, you are reminded that you are NOT alone. You can persevere like a champion, and leave a "Legacy" for your family to remember forever.
Download or read book Chronically Fabulous Finding Wholeness and Hope Living with Chronic Illness written by Marisa Zeppieri and published by Broadleaf Books. This book was released on 2021-05-04 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: When Marisa Zeppieri was 22-years-old she found herself face-to-face with a raven-haired elderly woman who had emerged from a crowd and gently taken her hands: God will use these hands to change people's lives.Years later Marisa's once-spirited demeanor was shrouded in anger and bitterness. Triggered first by a near-fatal car accident that sent her 100-lb body flying from a crosswalk and later by a painful Lupus diagnosis, she became stuck in a season of brokenness.But in the seasons that followed, an insatiable emotional, spiritual, and physical hunger took over: She learned how to nourish her broken body with the help of food, herbs, and a gastronomically-gifted Italian grandmother, while also nourishing her broken heart and crushed spirit through a deeper relationship with God.With Chronically Fabulous, Marisa fulfills the old woman's prophecy by offering pure nourishment to those of us living with chronic illness, helping us create wholeness and well-being through a love of food. Here, the founder of LupusChick, a nonprofit supporting those with autoimmune diseases, offers guiding principles, personal stories, and recipes that support whole-life thriving. With the depth, smarts, and spiritual advice beloved by her dedicated followers, Marisa shows us how faith, passion, and persistence can radically change our lives.
Download or read book The Challenges of Lupus written by and published by Penguin. This book was released on 1999 with total page 260 pages. Available in PDF, EPUB and Kindle. Book excerpt: Much-needed information and inspiration for the millions who suffer from thisdebilitating disease.
Download or read book A Clinician s Pearls Myths in Rheumatology written by John H. Stone and published by Springer Science & Business Media. This book was released on 2009-10-03 with total page 489 pages. Available in PDF, EPUB and Kindle. Book excerpt: Important strides have been made in understanding the pathophysiologic basis of many inflammatory conditions in recent years, but rheumatology remains a discipline in which diagnosis is rooted in the medical history skillfully extracted from the patient, the careful physical examination, and the discriminating use of laboratory tests and imaging. Moreover, selection of the most appropriate therapy for patients with rheumatic diseases also remains heavily reliant upon clinical experience. Medical disciplines such as rheumatology that depend significantly upon clinical wisdom are prone to the development of systems of ‘Pearls’ and ‘Myths,’ related to the diseases they call their own, a ‘Pearl’ being a nugget of truth about the diagnosis or treatment of a particular disease that has been gained by dint of clinical experience and a ‘Myth’ being a commonly held belief that influences the practice of many clinicians – but is false. This book will pool together the clinical wisdom of seasoned, expert rheumatologists who participate in the care of patients with autoimmune diseases, systemic inflammatory disorders, and all other rheumatic conditions.
Download or read book Pathogenesis of Systemic Lupus Erythematosus written by Alberta Hoi and published by Springer Nature. This book was released on 2021-11-15 with total page 192 pages. Available in PDF, EPUB and Kindle. Book excerpt: The scope of this contributed volume is to provide an overview of the latest translational research in the field of lupus pathogenesis, with particular emphasis on how these discoveries progress in parallel with therapeutic drug development. Systemic lupus erythematosus (SLE) is a multifaceted disease with a number of well-defined immune pathways that are dysregulated, resulting in an immune-mediated chronic inflammatory injury at target organs. As knowledge of these pathways evolves to provide opportunities for targeted drug therapy and lays the foundation for personalized medicine, clinicians and researchers need to keep up with the ever-expanding medical literature. This book will critically appraise the current understanding of important immunological pathways that contribute to the pathogenesis of lupus. We will review the role of interferons as part of the innate immune defects that perpetuate the loss of self-tolerance in SLE. B cell hyperactivity, as a defining hallmark of SLE, and different strategies of B cell targeted therapy will be discussed. The role of co-stimulation or immune checkpoint molecules in activating B and T cells will be reviewed, as well as other cytokines that serve in the amplification loop promoting a more proinflammatory Th1 or Th17 responses. Intracellular targets, such as signaling molecules in the JAK/STAT pathway, or a variety of kinases and proteasomes, can cause a cascading downstream effect of transcriptional responses that are important in SLE. Immune homeostasis can also be restored by bolstering the naturally occurring anti-inflammatory mechanisms. Glucocorticoid, as a potent natural anti-inflammatory hormone, can mediate its effects by recruiting histone deacetylase that serve to repress gene transcription. Glucocorticoid-induced leucine zipper is a gene upregulated by glucocorticoid that can be a potential target for development of anti-inflammatory strategy. Finally, T regulatory cells can be utilized to help restore to immune tolerance and are amongst the latest focus of therapeutic development in SLE.
Download or read book How to Stay Sane in Pain written by Karen Drennan-McEwan and published by Balboa Press. This book was released on 2019-02-15 with total page 227 pages. Available in PDF, EPUB and Kindle. Book excerpt: It’s estimated that 1.5 million Americans, nearly five million people worldwide, have some form of lupus. Current data suggest it’s more common than cystic fibrosis, leukemia, muscular dystrophy, and multiple sclerosis combined. At present, the disease is unfamiliar to most and is widely misunderstood. This leads to high levels of misdiagnosis, belated diagnosis, or misdiagnosis that is potentially life-threatening. It could be a leading “sleeper” disease of modern times, with people suffering unacknowledged and untreated. In How to Stay Sane in Pain, author Karen Drennan-McEwan clarifies the key symptoms of the disease, which include chronic pain, and explains how it is currently diagnosed and treated. She offers a look at its history, medications, and their main side effects. From the author’s perspective of someone who suffers personally from lupus, as well as other patients’ testimonies, this guide describes how to achieve resilience and calm despite the disease. Drennan-McEwan offers a step-by-step mind-body approach, an approach rooted in the author’s experience of a massive lupus flare and utilizing her training as a counselor and psychotherapist.
Download or read book Coping with Lupus written by Robert H. Phillips and published by Penguin. This book was released on 2012-04-03 with total page 659 pages. Available in PDF, EPUB and Kindle. Book excerpt: A completely updated and revised edition that provides comfort, information, strategies, and advice for those living with lupus. There is no cure for lupus, so a diagnosis of this potentially debilitating autoimmune disorder is understandably disquieting. This new edition of Coping with Lupus answers all the important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest. Dr. Robert Phillips, the founder and director of the Center for Coping, lends his expertise in dealing with the psychological aspects of chronic health problems to address a range of issues, including: The medical facts-what lupus is, and how it is diagnosed and treated Medications, nonmedical pain-control methods, exercise, and diet Lifestyle changes to maintain optimal physical and emotional health Coping strategies for virtually every facet of living with lupus
Download or read book Lupus written by Antonia Dibona and published by Createspace Independent Publishing Platform. This book was released on 2014-09-16 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using extensive research, Lupus-In Spite of the Wolf, tells a story of perseverance. It is the true story of one young woman, Erin, diagnosed with lupus ten years ago, who is trying not to let the disease overcome her, and the story of biomedical researchers at Temple University never giving up their pursuit of a cure. A portion of the proceeds of this book will go to lupus research.
Download or read book The London Lupus Centre Book of Lupus A Patients Guide written by Graham Hughes and published by Springer Science & Business Media. This book was released on 2008-11-26 with total page 111 pages. Available in PDF, EPUB and Kindle. Book excerpt: Lupus is an extremely common, potentially treatable, disease of the immune system. It affects approximately 1 in 1000 women and is more common than diseases such as multiple sclerosis and leukaemia. Despite this, there is little information concerning the disease in contrast to other illnesses of similar prevalence. Many people are unaware of the symptoms, treatment, and prevention of lupus. It is important that these topics are highlighted for many reasons. For example, a greater understanding of the symptoms of lupus will enable patients to recognise the symptoms earlier, and get treatment faster; before any serious damage is done. Similarly, awareness of preventative measures may reduce the number of cases of lupus that occur. From a different perspective, it would be of great use to have an easily accessible source of information available to lupus patients that would highlight issues such as treatment options and sources of support. In summary, although knowledge of lupus is growing, greater awareness of the disease amongst both patients and the general public is an issue that needs to be addressed.
Download or read book If You Have to Wear an Ugly Dress Learn to Accessorize written by Linda McNamara and published by Wheatmark, Inc.. This book was released on 2011-08 with total page 214 pages. Available in PDF, EPUB and Kindle. Book excerpt: Chronic illness forces you to slow down and reexamine your values, your choices, and the way you define yourself. This book offers companionship throughout the process, helping you face your challenges with dignity and grace.
Download or read book Lupus written by Niranjana Parthasarathi and published by . This book was released on 2023-01-23 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Lupus: In the Jaws of the Wolf, Niranjana Parthasarathi, M.D., named one of the "Best Doctors in America" and former professor of internal medicine, recounts her thirty-seven-year history with this debilitating disease. Her symptoms began at age 23 while a medical student, and though she was able to pursue her passion for her career, a severe flare at age 50 disabled her, followed by an extended period of multi-organ complications of both disease and treatment. In this book the many complexities and frustrations that lupus brings to a person's life are explored, including physical limitations and effects on relationships as well as one's identity. Dr. Parthasarathi candidly shares her mistakes, pitfalls, and lessons learned along her challenging, continuing journey offering hope, insight, and recommendations to help alleviate suffering: - Practical, day-to-day disease management advice along with research, expert opinion, and recommendations from Dr. Parthasarathi's personal experience - Strategies for handling difficult emotions and staying positive - Inequities in the healthcare system and how they impact the chronically ill - Resources for lupus patients and their families As a physician with lupus, Dr. Parthasarathi brings expertise, and a unique perspective that has enabled her to thrive despite the ravages of the disease. She hopes her account will aid other chronically ill patients and ease their paths forward. Note: All proceeds from the sale of this book will go to Lupus Research Alliance and the Lupus Foundation of America.
Download or read book Mesenchymal Stem Cell Therapy written by Lucas G. Chase and published by Springer Science & Business Media. This book was released on 2012-12-12 with total page 458 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over the past decade, significant efforts have been made to develop stem cell-based therapies for difficult to treat diseases. Multipotent mesenchymal stromal cells, also referred to as mesenchymal stem cells (MSCs), appear to hold great promise in regards to a regenerative cell-based therapy for the treatment of these diseases. Currently, more than 200 clinical trials are underway worldwide exploring the use of MSCs for the treatment of a wide range of disorders including bone, cartilage and tendon damage, myocardial infarction, graft-versus-host disease, Crohn’s disease, diabetes, multiple sclerosis, critical limb ischemia and many others. MSCs were first identified by Friendenstein and colleagues as an adherent stromal cell population within the bone marrow with the ability to form clonogenic colonies in vitro. In regards to the basic biology associated with MSCs, there has been tremendous progress towards understanding this cell population’s phenotype and function from a range of tissue sources. Despite enormous progress and an overall increased understanding of MSCs at the molecular and cellular level, several critical questions remain to be answered in regards to the use of these cells in therapeutic applications. Clinically, both autologous and allogenic approaches for the transplantation of MSCs are being explored. Several of the processing steps needed for the clinical application of MSCs, including isolation from various tissues, scalable in vitro expansion, cell banking, dose preparation, quality control parameters, delivery methods and numerous others are being extensively studied. Despite a significant number of ongoing clinical trials, none of the current therapeutic approaches have, at this point, become a standard of care treatment. Although exceptionally promising, the clinical translation of MSC-based therapies is still a work in progress. The extensive number of ongoing clinical trials is expected to provide a clearer path forward for the realization and implementation of MSCs in regenerative medicine. Towards this end, reviews of current clinical trial results and discussions of relevant topics association with the clinical application of MSCs are compiled in this book from some of the leading researchers in this exciting and rapidly advancing field. Although not absolutely all-inclusive, we hope the chapters within this book can promote and enable a better understanding of the translation of MSCs from bench-to-bedside and inspire researchers to further explore this promising and quickly evolving field.
Download or read book New Hope for People with Lupus written by Theresa Foy Digeronimo and published by Harmony. This book was released on 2011-12-14 with total page 305 pages. Available in PDF, EPUB and Kindle. Book excerpt: Discover Exciting New Ways to Manage Lupus Now you can take control of lupus and begin living a healthier, better life—today! This thoughtful, cutting-edge book can help you manage the flare-ups, symptoms, and side effects of lupus and put you back on the path to a more enjoyable, active lifesyle. Inside is compassionate, practical, and immediate guidance for anyone affected by lupus, including: ·Promising alternative therapies such as DHEA, essential fatty acids, and herbs ·Conventional drug treatments, including corticosteroids and antimalarials ·Easy methods to reduce stress and boost energy ·Important lifestyle requirements, such as diet and exercise ·And much, much more! "A great resource for people with lupus, especially those recently diagnosed. New Hope for People with Lupus gives valuable and credible information about the many aspects of lupus which, as most of us know, can be very confusing." —Gloria M. Spadaro, R.N., executive director, Lupus Foundation Inc. of New Jersey "Reading New Hope for People with Lupus helps you become a central player in the colaborative diagnostic and therapeutic process that is what medical care is all about. This book gives hope because there is hope, particularly after absorbing the pearls in this new partner in your medical care." —From the Foreword by Stephen A. Paget, M.D.
