Download or read book Dementia Activist written by Helga Rohra and published by Jessica Kingsley Publishers. This book was released on 2016-07-21 with total page 152 pages. Available in PDF, EPUB and Kindle. Book excerpt: What's happening to me?' Successful translator and linguist Helga Rohra was understandably good with words - that is, until she found herself getting in a muddle when she spoke. She started to forget the way home, even though she could remember her address. Her confusing symptoms increased and Helga was diagnosed with dementia at age 50 - but she hasn't let herself be labelled with the usual stereotypes. With entertaining vim Helga shows that her life is still as abundant and self-determined as ever, dismantling the negative stereotypes that often surround a dementia diagnosis. She speaks frankly and with humour about her diagnosis and life with young onset Lewy Body Dementia. She explains the changes in her everyday life and the challenges she faces, and shares practical tips that prove it is possible to live well with dementia. Helga also talks about her activism work, which has made hers one of the key voices internationally in dementia advocacy.
Download or read book On Vanishing written by Lynn Casteel Harper and published by Catapult. This book was released on 2020-04-14 with total page 126 pages. Available in PDF, EPUB and Kindle. Book excerpt: A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
Download or read book Dementia Friendly Communities written by Susan McFadden and published by Jessica Kingsley Publishers. This book was released on 2020-11-19 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: Creating dementia-friendly communities can give people with dementia the chance to continue meaningful lives with reciprocal personal relationships. Underpinning successful dementia-friendly communities is an awareness of people with dementia as active citizens and the importance of supporting engagement in community life. This book offers an overview of the dementia-friendly communities movement, showing the many benefits of this approach. It describes community initiatives from across the globe, such as Dementia Friends, memory cafes, and creative engagement with the arts through organizations like TimeSlips. This compassionate book tells another story about dementia, away from negative stereotypes. This alternative approach claims people can retain a sense of dignity, hold onto hope, sustain meaningful relationships, and live with a sense of purpose with support from their communities.
Download or read book What the hell happened to my brain written by Kate Swaffer and published by Jessica Kingsley Publishers. This book was released on 2016-01-21 with total page 340 pages. Available in PDF, EPUB and Kindle. Book excerpt: Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia. Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about dementia, suggesting ways in which we can include and empower people with the diagnosis. She also reflects on the ways in which her writing and dementia advocacy work have taken her on a process of self-discovery and enabled her to develop a new and meaningful personal identity. Kate's powerful words will challenge misconceptions about dementia, and open our eyes to new ways of supporting people with the diagnosis. A must read for people with dementia and their families as well as for professionals and carers.
Download or read book Nothing about Us Without Us written by Christine Bryden and published by . This book was released on 2015-09-21 with total page 304 pages. Available in PDF, EPUB and Kindle. Book excerpt: Insightful and inspiring presentations by the foremost dementia advocate, compiled here for the first time, provide new ways of understanding dementia and better ways to ensure that the voices of people with dementia are heard.
Download or read book Everyday Citizenship and People with Dementia written by Ann-Charlotte Nedlund and published by Liverpool University Press. This book was released on 2019-11-01 with total page 155 pages. Available in PDF, EPUB and Kindle. Book excerpt: An edited volume discussing the underpinning concepts of citizenship, agency, and participation in the context of the everyday lives of people living with a dementia. The editors explain the theoretical underpinning of citizenship before the contributors show the way it can broaden the everyday lives of people with dementia.
Download or read book Alzheimer S Through the Alphabet written by Leslie F. Hergert and published by Archway Publishing. This book was released on 2018-03-22 with total page 112 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a vivid story of life with Alzheimersor at least, one story of one family with an unusual sense of humor. Told in an unconventional style (through the alphabet rather than chronologically), Leslie F. Hergert describes the sadness, humor, and challenges of caring for a partner with Alzheimers Disease through its many stages. Each letter of the alphabet provides reflections on some facet of the Alzheimers experience, told with honesty and a wry eye. Leslie spoke at our conference on Dementia and attendees said that her stories were the most powerful part of a very good conference. Her book extends that speech to provide an inside view of living with Alzheimers, a comfort for others living with the disease and an education for outsiders. Nancy Willbanks, Somerville Cambridge Elder Services Ms. Hergert writes candidly and poignantly about her experience caring for her husband with early onset Alzheimers Disease. She touches upon the major cognitive, psychological, and functional changes that occur over the course of the disease, and she provides practical tips to caregivers on how to manage them. She also writes movingly about the multiple emotions she felt as she accompanied her husband on the journey, reminding all of us that there are moments of joy and laughter even among those of loss and grief. I have no doubt that readers will find her words of wisdom helpful. Serena Chao, MD, MSc; Geriatrics Division Chief, Cambridge Health Alliance; Instructor of Medicine, Harvard Medical School
Download or read book Critical Dementia Studies written by Richard Ward and published by Taylor & Francis. This book was released on 2023-03-15 with total page 334 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition, it proposes a new critical movement for the field of dementia studies and practice. The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development. The Open Access version of this book, available at http://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.
Download or read book Lesbian Gay Bisexual and Trans Individuals Living with Dementia written by Sue Westwood and published by Routledge. This book was released on 2016-04-28 with total page 242 pages. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking collection is the first to focus specifically on LGBT* people and dementia. It brings together original chapters from leading academics, practitioners and LGBT* individuals affected by dementia. Multi-disciplinary and international in scope, it includes authors from the UK, USA, Canada and Australia and from a range of fields, including sociology, social work, psychology, health care and socio-legal studies. Taking an intersectional approach – i.e. considering the plurality of experiences and the multiple, interacting relational positions of everyday life – LGBT Individuals Living with Dementia addresses topics relating to concepts, practice and rights. Part One addresses theoretical and conceptual questions; Part Two discusses practical concerns in the delivery of health and social care provision to LGBT* people living with dementia; and Part Three explores socio-legal issues relating to LGBT* people living with dementia. This collection will appeal to policy makers, commissioners, practitioners, academics and students across a range of disciplines. With an ageing and increasingly diverse population, and growing numbers of people affected by dementia, this book will become essential reading for anyone interested in understanding the needs of, and providing appropriate services to, LGBT* people affected by dementia.
Download or read book Dear Alzheimer s written by Keith Oliver and published by . This book was released on 2019 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keith Oliver was diagnosed with young onset dementia in 2010, and has since become a leading activist for dementia care, and an international speaker. Telling his story through a diary format, this book gives an unparalleled insight into what day-to-day life with dementia is like, and how he continued to live a full life after diagnosis.
Download or read book The Routledge Handbook of Disability Activism written by Maria Berghs and published by Routledge. This book was released on 2019-10-28 with total page 662 pages. Available in PDF, EPUB and Kindle. Book excerpt: The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be. This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies. It also challenges the activist movements, transnational and emancipatory politics, as well as providing future directions for disability activism. With contributions from senior and emerging disability activists, academics, students and practitioners from around the globe, this handbook covers the following broad themes: • Contextualising disability activism in global activism • Neoliberalism and austerity in the global North • Rights, embodied resistance and disability activism • Belonging, identity and values: how to create diverse coalitions for rights • Reclaiming social positions, places and spaces • Social media, support and activism • Campus activism in higher education • Inclusive pedagogies, evidence and activist practices • Enabling human rights and policy • Challenges facing disability activism The Routledge Handbook of Disability Activism provides disability activists, students, academics, practitioners, development partners and policy makers with an authoritative framework for disability activism.
Download or read book Social Work Practice with People with Dementia written by Peter Scourfield and published by Taylor & Francis. This book was released on 2022-07-08 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: Social Work Practice with People with Dementia critically discusses the cultural and discursive contexts in which social work with dementia takes place. This is because how we think about dementia influences how we treat people living with the condition. The book also explains the demographic context that has made dementia a global public health priority in recent years. The different forms of dementia are discussed in a way that is accessible to a non-medical readership. The book discusses the different settings and circumstances in which social work with people with dementia and their carers takes place and examines the chief elements of the social work role. In doing this, it explains the professional knowledge, skills and values that social workers need in order to practice effectively in this area of growing importance. Part of this is appreciating how approaches to dementia care have evolved over time. In this context, the book discusses how the dominant bio-medical model has been challenged by person-centred and rights-based approaches. As a key part of social work is to offer people choices, the book provides information about a wide range of health, social care and other services that are available, whilst also highlighting the gaps that exist for different groups and in different areas. Case studies and activities help the reader apply theory to practice. Social Work Practice with People with Dementia will be of particular interest to social work students and early career social workers, primarily in a UK context. However, it contains much relevant information about dementia and dementia practice for anyone involved with adult health and social care both in the UK and around the world.
Download or read book The Future of Alzheimer s written by Sharon Ricardi and published by Hatherleigh Press. This book was released on 2024-02-06 with total page 118 pages. Available in PDF, EPUB and Kindle. Book excerpt: A collection of informative and inspirational thoughts of many of the nation’s leaders in research, medicine, education, senior care and advocacy around the subject of Alzheimer’s disease. The Future of Alzheimer's features candid views from experts on how they respond today to someone on the difficult journey of Alzheimer’s and what they believe is the future hope for a cure. More than 20 experts in the field of Alzheimer's research or caretakers are asked two key questions: What advice would you give to the loved ones of someone who is newly diagnosed? Do you think there will be a cure, and if so, when? Their answers help provide context and hope for patients, caretakers and loved ones looking for answers by providing helpful insights on the disease and what's to come. Alzheimer's prevalence in the US makes it the 6th leading cause of death, killing more than half a million people, mainly seniors, every year and experts believe this number will only grow. The Future of Alzheimer's seeks to make this and other forms of dementia less of the devastating diagnosis it is now for all of those people.
Download or read book The Dementia Manifesto written by Julian C. Hughes and published by Cambridge University Press. This book was released on 2019-02-14 with total page 233 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explores how a values-based and person-centred approach can be applied to every aspect of the experience of dementia.
Download or read book Dear Alzheimer s written by Keith Oliver and published by Jessica Kingsley Publishers. This book was released on 2019-04-18 with total page 224 pages. Available in PDF, EPUB and Kindle. Book excerpt: Keith Oliver was diagnosed with Alzheimer's in 2010, and has since become a leading activist for dementia care, and an international speaker. Telling his story through a diary format, this book gives an unparalleled insight into what day-to-day life with dementia is like, and how he continued to live a full life after diagnosis.
Download or read book Understanding Young Onset Dementia written by Marjolein de Vugt and published by Routledge. This book was released on 2021-07-22 with total page 127 pages. Available in PDF, EPUB and Kindle. Book excerpt: Understanding Young Onset Dementia provides a state-of-the-art overview of approaches to care and evaluation for people with young onset dementia. It reviews the challenges in providing care and services, outlines new innovations in treatment and explores the impact of the condition to offer guidance about best practice in care. Written by world-leading researchers and experts in the field, this book gives key evidence for best practice and focuses on lived experience of those with young onset dementia. It has a broad focus looking at aspects of care beyond diagnosis and gives a comprehensive summary of the current qualitative and quantitative research in the field of young onset dementia. This international collaboration fills a much-needed gap in the academic market and is vital to guide learning and deliver future innovations. This book will be of great interest for academics, scholars and post graduate students in the field of mental health and dementia research. It will also appeal to neurologists, psychiatrist, geriatricians and psychologists looking to update their knowledge or already working in the field.
Download or read book Talking with Dementia Reconsidered written by Keith Oliver and published by McGraw-Hill Education (UK). This book was released on 2024-05-01 with total page 268 pages. Available in PDF, EPUB and Kindle. Book excerpt: “The voice of lived experience is ever growing and without doubt we should never miss an opportunity like this to listen, capture and learn from it.” Paola Barbarino, CEO, Alzheimer’s Disease International “This latest book will help so many people - those with dementia and their loved ones.” Victoria Derbyshire, British Journalist, Newsreader and Broadcaster “Talking with Dementia Reconsidered is a landmark, which will inspire professionals, researchers and the upcoming cohort of people whose lives are affected by dementia.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “I would strongly advise all health and social care professionals to read this and rethink what they “know” about dementia.” Dr Hilda Hayo Chief Admiral Nurse and CEO, Dementia UK This book places people living with a diagnosis of dementia at its core, providing each person with the opportunity to express themselves whilst viewing their lives in relation to the Kitwood flower model. Authored by a person living with dementia, an experienced consultant clinical psychologist and a respected academic, the three combine to amplify and showcase the words of the Fifteen people living with dementia, in an original, authentic and unique way. This book: Gives readers transparent insight into the lives, hopes and fears of a diverse range of people living with various forms of dementia Shows how each petal of the Kitwood flower with love at its centre is a helpful framework for each person to describe their life Links the interviews with issues, frameworks, policy and practice Examines what stakeholders can take from this book to advance dementia care. Talking with Dementia Reconsidered truthfully adds to the growing knowledge base of what life with dementia is really like in an engaging and informative way. It is essential reading for anyone and everyone directly or indirectly affected by dementia through lived experience, studying dementia or working professionally to support those affected. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Dr Keith Oliver is an Alzheimer's Society Ambassador and Dementia Service User Envoy for Kent and Medway Partnership NHS Trust in the UK. He retired from being a head teacher when diagnosed with Alzheimer’s at age 55. Keith is Series editor for the Reconsidering Dementia Series. Reinhard Guss is Associate Fellow of the British Psychological Society and former Dementia Work Stream Lead for the Faculty of the Psychology of Older People (FPOP). Reinhard is a Consultant Clinical Psychologist and Neuropsychologist working within the National Health Service. Dr Ruth Bartlett is Associate Professor at the University of Southampton, UK, co-director of the University’s Doctoral Training Centre in Dementia Care and Principal Investigator of an interdisciplinary, cross-faculty research project funded by the Alzheimer’s Society.
