Download or read book Data Disclosure written by Moritz Hennemann and published by Walter de Gruyter GmbH & Co KG. This book was released on 2023-04-26 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data has become a key factor for the competitiveness of private and state actors alike. Personal data in particular fuels manifold corresponding data ecosystems - in many cases based on the disclosure decision of an individual. This volume presents the proceedings of the bidt "Vectors of Data Disclosure" conference held in Munich 2022. The contributions give comparative insights into the data disclosure process - combining perspectives of law, cultural studies, and business information systems. The authors thereby tackle the question in which way regulation and cultural settings shape (or do not shape) respective decisions in different parts of the world. The volume also includes interim results of the corresponding bidt research project - including in-depth reports covering the regulatory and cultural dimensions of data disclosure in eight different countries / regions worldwide, a business information systems model of the disclosure decision process, and empirical studies. The volume thereby lays the ground for interdisciplinary informed policy decisions and gives guidance to stakeholders.

Download or read book Confidentiality Disclosure and Data Access written by Pat Doyle and published by Elsevier Science & Technology. This book was released on 2001 with total page 474 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is a fundamental tension at the heart of every statistical agency mission. Each is charged with collecting high quality data to inform the national policy and enable statistical research. This necessitates dissemination of both summary and micro data. Each is also charged with protecting the confidentiality of survey respondents. This often necessitates the blurring of the data to reduce the probability of the re-identification of individuals. The tradeoff dilemma, which could well be stated as protecting confidentiality (avoiding disclosure) but optimizing access, has become more complex as both technological advances and public perceptions have altered in an information age. Fortunately, statistical disclosure techniques have kept pace with these changes. This volume is intended to provide a review of new state of the art techniques that directly address these issues from both a theoretical and practical perspective. It provides a review of new research in the area of confidentiality and statistical disclosure techniques. A major section of the book provides an overview of new advances in the field of both economic and demographic data in measuring disclosure risk and information loss. It also presents new information on the different approaches taken by statistical agencies in disseminating data - ranging from licensing agreements , to secure access and provides a new survey of what statistical disclosure techniques are used by statistical agencies around the world. This is complimented by a series of chapters on public perceptions of statistical agency actions, including the results of a new survey on business perceptions. The book concludes with a chapter on the challenges of technology to data protection. National Statistical Agencies, statistical practitioners, thinktanks, research organisations and universities will find this a useful tool.

Download or read book Synthetic Datasets for Statistical Disclosure Control written by Jörg Drechsler and published by Springer Science & Business Media. This book was released on 2011-06-24 with total page 148 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book is to give the reader a detailed introduction to the different approaches to generating multiply imputed synthetic datasets. It describes all approaches that have been developed so far, provides a brief history of synthetic datasets, and gives useful hints on how to deal with real data problems like nonresponse, skip patterns, or logical constraints. Each chapter is dedicated to one approach, first describing the general concept followed by a detailed application to a real dataset providing useful guidelines on how to implement the theory in practice. The discussed multiple imputation approaches include imputation for nonresponse, generating fully synthetic datasets, generating partially synthetic datasets, generating synthetic datasets when the original data is subject to nonresponse, and a two-stage imputation approach that helps to better address the omnipresent trade-off between analytical validity and the risk of disclosure. The book concludes with a glimpse into the future of synthetic datasets, discussing the potential benefits and possible obstacles of the approach and ways to address the concerns of data users and their understandable discomfort with using data that doesn’t consist only of the originally collected values. The book is intended for researchers and practitioners alike. It helps the researcher to find the state of the art in synthetic data summarized in one book with full reference to all relevant papers on the topic. But it is also useful for the practitioner at the statistical agency who is considering the synthetic data approach for data dissemination in the future and wants to get familiar with the topic.

Download or read book Overview of the Privacy Act of 1974 written by United States. Department of Justice. Privacy and Civil Liberties Office and published by . This book was released on 2010 with total page 276 pages. Available in PDF, EPUB and Kindle. Book excerpt: The "Overview of the Privacy Act of 1974," prepared by the Department of Justice's Office of Privacy and Civil Liberties (OPCL), is a discussion of the Privacy Act's disclosure prohibition, its access and amendment provisions, and its agency recordkeeping requirements. Tracking the provisions of the Act itself, the Overview provides reference to, and legal analysis of, court decisions interpreting the Act's provisions.

Download or read book Sharing Clinical Trial Data written by Institute of Medicine and published by National Academies Press. This book was released on 2015-04-20 with total page 236 pages. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Download or read book Health Data in the Information Age written by Institute of Medicine and published by National Academies Press. This book was released on 1994-01-01 with total page 272 pages. Available in PDF, EPUB and Kindle. Book excerpt: Regional health care databases are being established around the country with the goal of providing timely and useful information to policymakers, physicians, and patients. But their emergence is raising important and sometimes controversial questions about the collection, quality, and appropriate use of health care data. Based on experience with databases now in operation and in development, Health Data in the Information Age provides a clear set of guidelines and principles for exploiting the potential benefits of aggregated health dataâ€"without jeopardizing confidentiality. A panel of experts identifies characteristics of emerging health database organizations (HDOs). The committee explores how HDOs can maintain the quality of their data, what policies and practices they should adopt, how they can prepare for linkages with computer-based patient records, and how diverse groups from researchers to health care administrators might use aggregated data. Health Data in the Information Age offers frank analysis and guidelines that will be invaluable to anyone interested in the operation of health care databases.

Download or read book Registries for Evaluating Patient Outcomes written by Agency for Healthcare Research and Quality/AHRQ and published by Government Printing Office. This book was released on 2014-04-01 with total page 385 pages. Available in PDF, EPUB and Kindle. Book excerpt: This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Download or read book Privacy Protections for Personal Information Online written by Gina Stevens and published by DIANE Publishing. This book was released on 2011-08 with total page 15 pages. Available in PDF, EPUB and Kindle. Book excerpt: There is no comprehensive federal privacy statute that protects personal info. Instead, a patchwork of federal laws and regulations govern the collection and disclosure of personal info. and has been addressed by Congress on a sector-by-sector basis. Some contend that this is insufficient to meet the demands of today¿s technology. Contents of this report: (1) Background; (2) Federal Legal Framework for the Privacy of Online Personal Info.: Constitutional Protections; Statutory Protections; (3) The Federal Trade Comm. (FTC): FTC Enforcement Actions Concerning the Privacy of Personal Info.; (4) Recent Policy Initiatives; (5) Electronic Communications Privacy Act Reform. This is a print on demand report.

Download or read book Statistical Confidentiality written by George T. Duncan and published by Springer Science & Business Media. This book was released on 2011-03-22 with total page 205 pages. Available in PDF, EPUB and Kindle. Book excerpt: Because statistical confidentiality embraces the responsibility for both protecting data and ensuring its beneficial use for statistical purposes, those working with personal and proprietary data can benefit from the principles and practices this book presents. Researchers can understand why an agency holding statistical data does not respond well to the demand, “Just give me the data; I’m only going to do good things with it.” Statisticians can incorporate the requirements of statistical confidentiality into their methodologies for data collection and analysis. Data stewards, caught between those eager for data and those who worry about confidentiality, can use the tools of statistical confidentiality toward satisfying both groups. The eight chapters lay out the dilemma of data stewardship organizations (such as statistical agencies) in resolving the tension between protecting data from snoopers while providing data to legitimate users, explain disclosure risk and explore the types of attack that a data snooper might mount, present the methods of disclosure risk assessment, give techniques for statistical disclosure limitation of both tabular data and microdata, identify measures of the impact of disclosure limitation on data utility, provide restricted access methods as administrative procedures for disclosure control, and finally explore the future of statistical confidentiality.

Download or read book Advances in Patient Safety written by Kerm Henriksen and published by . This book was released on 2005 with total page 526 pages. Available in PDF, EPUB and Kindle. Book excerpt: v. 1. Research findings -- v. 2. Concepts and methodology -- v. 3. Implementation issues -- v. 4. Programs, tools and products.

Download or read book Data Privacy Foundations New Developments and the Big Data Challenge written by Vicenç Torra and published by Springer. This book was released on 2017-05-17 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book offers a broad, cohesive overview of the field of data privacy. It discusses, from a technological perspective, the problems and solutions of the three main communities working on data privacy: statistical disclosure control (those with a statistical background), privacy-preserving data mining (those working with data bases and data mining), and privacy-enhancing technologies (those involved in communications and security) communities. Presenting different approaches, the book describes alternative privacy models and disclosure risk measures as well as data protection procedures for respondent, holder and user privacy. It also discusses specific data privacy problems and solutions for readers who need to deal with big data.

Download or read book Improving Access to and Confidentiality of Research Data written by National Research Council and published by National Academies Press. This book was released on 2000-09-11 with total page 75 pages. Available in PDF, EPUB and Kindle. Book excerpt: Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risksâ€"both absolute and relativeâ€"created by researchers and research data, as well as by other data users and other types of data.

Download or read book Statistical Disclosure Control written by Anco Hundepool and published by John Wiley & Sons. This book was released on 2012-07-05 with total page 308 pages. Available in PDF, EPUB and Kindle. Book excerpt: A reference to answer all your statistical confidentiality questions. This handbook provides technical guidance on statistical disclosure control and on how to approach the problem of balancing the need to provide users with statistical outputs and the need to protect the confidentiality of respondents. Statistical disclosure control is combined with other tools such as administrative, legal and IT in order to define a proper data dissemination strategy based on a risk management approach. The key concepts of statistical disclosure control are presented, along with the methodology and software that can be used to apply various methods of statistical disclosure control. Numerous examples and guidelines are also featured to illustrate the topics covered. Statistical Disclosure Control: Presents a combination of both theoretical and practical solutions Introduces all the key concepts and definitions involved with statistical disclosure control. Provides a high level overview of how to approach problems associated with confidentiality. Provides a broad-ranging review of the methods available to control disclosure. Explains the subtleties of group disclosure control. Features examples throughout the book along with case studies demonstrating how particular methods are used. Discusses microdata, magnitude and frequency tabular data, and remote access issues. Written by experts within leading National Statistical Institutes. Official statisticians, academics and market researchers who need to be informed and make decisions on disclosure limitation will benefit from this book.

Download or read book Elements of Statistical Disclosure Control written by Leon Willenborg and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 273 pages. Available in PDF, EPUB and Kindle. Book excerpt: Statistical disclosure control is the discipline that deals with producing statistical data that are safe enough to be released to external researchers. This book concentrates on the methodology of the area. It deals with both microdata (individual data) and tabular (aggregated) data. The book attempts to develop the theory from what can be called the paradigm of statistical confidentiality: to modify unsafe data in such a way that safe (enough) data emerge, with minimum information loss. This book discusses what safe data, are, how information loss can be measured, and how to modify the data in a (near) optimal way. Once it has been decided how to measure safety and information loss, the production of safe data from unsafe data is often a matter of solving an optimization problem. Several such problems are discussed in the book, and most of them turn out to be hard problems that can be solved only approximately. The authors present new results that have not been published before. The book is not a description of an area that is closed, but, on the contrary, one that still has many spots awaiting to be more fully explored. Some of these are indicated in the book. The book will be useful for official, social and medical statisticians and others who are involved in releasing personal or business data for statistical use. Operations researchers may be interested in the optimization problems involved, particularly for the challenges they present. Leon Willenborg has worked at the Department of Statistical Methods at Statistics Netherlands since 1983, first as a researcher and since 1989 as a senior researcher. Since 1989 his main field of research and consultancy has been statistical disclosure control. From 1996-1998 he was the project coordinator of the EU co-funded SDC project.

Download or read book Statistical Disclosure Control for Microdata written by Matthias Templ and published by Springer. This book was released on 2017-05-05 with total page 299 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book on statistical disclosure control presents the theory, applications and software implementation of the traditional approach to (micro)data anonymization, including data perturbation methods, disclosure risk, data utility, information loss and methods for simulating synthetic data. Introducing readers to the R packages sdcMicro and simPop, the book also features numerous examples and exercises with solutions, as well as case studies with real-world data, accompanied by the underlying R code to allow readers to reproduce all results. The demand for and volume of data from surveys, registers or other sources containing sensible information on persons or enterprises have increased significantly over the last several years. At the same time, privacy protection principles and regulations have imposed restrictions on the access and use of individual data. Proper and secure microdata dissemination calls for the application of statistical disclosure control methods to the da ta before release. This book is intended for practitioners at statistical agencies and other national and international organizations that deal with confidential data. It will also be interesting for researchers working in statistical disclosure control and the health sciences.

Download or read book Privacy Online written by Sabine Trepte and published by Springer Science & Business Media. This book was released on 2011-07-21 with total page 267 pages. Available in PDF, EPUB and Kindle. Book excerpt: Communications and personal information that are posted online are usually accessible to a vast number of people. Yet when personal data exist online, they may be searched, reproduced and mined by advertisers, merchants, service providers or even stalkers. Many users know what may happen to their information, while at the same time they act as though their data are private or intimate. They expect their privacy will not be infringed while they willingly share personal information with the world via social network sites, blogs, and in online communities. The chapters collected by Trepte and Reinecke address questions arising from this disparity that has often been referred to as the privacy paradox. Works by renowned researchers from various disciplines including psychology, communication, sociology, and information science, offer new theoretical models on the functioning of online intimacy and public accessibility, and propose novel ideas on the how and why of online privacy. The contributing authors offer intriguing solutions for some of the most pressing issues and problems in the field of online privacy. They investigate how users abandon privacy to enhance social capital and to generate different kinds of benefits. They argue that trust and authenticity characterize the uses of social network sites. They explore how privacy needs affect users’ virtual identities. Ethical issues of privacy online are discussed as well as its gratifications and users’ concerns. The contributors of this volume focus on the privacy needs and behaviors of a variety of different groups of social media users such as young adults, older users, and genders. They also examine privacy in the context of particular online services such as social network sites, mobile internet access, online journalism, blogs, and micro-blogs. In sum, this book offers researchers and students working on issues related to internet communication not only a thorough and up-to-date treatment of online privacy and the social web. It also presents a glimpse of the future by exploring emergent issues concerning new technological applications and by suggesting theory-based research agendas that can guide inquiry beyond the current forms of social technologies.

Download or read book Statistical Disclosure Control in Practice written by Leon Willenborg and published by Springer Science & Business Media. This book was released on 2012-12-06 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book is to discuss various aspects associated with disseminating personal or business data collected in censuses or surveys or copied from administrative sources. The problem is to present the data in such a form that they are useful for statistical research and to provide sufficient protection for the individuals or businesses to whom the data refer. The major part of this book is concerned with how to define the disclosure problem and how to deal with it in practical circumstances.