Download or read book Children s Palliative Care An International Case Based Manual written by Julia Downing and published by Springer Nature. This book was released on 2020-04-01 with total page 290 pages. Available in PDF, EPUB and Kindle. Book excerpt: This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-based manual on global CPC and is endorsed and promoted by the International Children’s Palliative Care Network (ICPCN). Children’s palliative care is a rapidly developing field, both in the UK and internationally. The provision of CPC varies considerably, with provision often being insufficient, and over 65% of countries having no recognised CPC service provision whatsoever. As such, while there are an estimated 21.6 million children who require palliative care, in many areas of the world, CPC is poor or non-existent, and children are treated like little adults without their distinctive needs being recognised or understood. There is also a dearth of literature on CPC, hence this clinical case-based manual fills a gap in the market, and is aimed at a global audience, making it a unique text in the field.
Download or read book Palliative Care for Infants Children and Adolescents written by Brian S. Carter and published by JHU Press. This book was released on 2011-10-15 with total page 769 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
Download or read book Pediatric Palliative Care written by Lindsay B. Ragsdale and published by Oxford University Press. This book was released on 2020-02-03 with total page 230 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"
Download or read book Pediatric Palliative Care Global Perspectives written by Caprice Knapp and published by Springer Science & Business Media. This book was released on 2012-01-02 with total page 463 pages. Available in PDF, EPUB and Kindle. Book excerpt: The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.
Download or read book A Guide to the Development of Children s Palliative Care Services written by Association for Children with Life-threatening or Terminal Conditions and their Families and published by . This book was released on 1997 with total page 43 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Pediatric Palliative Care written by Betty R. Ferrell and published by Hpna Palliative Nursing Manual. This book was released on 2015-08-31 with total page 161 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.
Download or read book A Practical Guide to Palliative Care in Paediatrics written by No-surname Children’s Health Queensland Hospital and Health Service – Paediatric Palliative Care Service and published by Fontaine Press Pty Ltd. This book was released on 2015-10-05 with total page 144 pages. Available in PDF, EPUB and Kindle. Book excerpt: This ebook is a practical guide to all of the issues relating to the care of a child or young person with a life limiting condition. It aims to empower clinicians to care for children at home or as close to home as possible. It is a national resource and a major contribution towards supporting dying children and their families to have the best quality of life. Sections include psychosocial considerations, symptom management, the dying process, bereavement and ethics. New sections for this edition include perinatal palliative care and quality improvement in paediatric palliative care. The booklet includes a number of appendices including commonly used drugs and doses. The booklet where possible tries to be evidence based, and reflects best practice guidelines for the Australian and New Zealand context.
Download or read book Pediatric Palliative Care written by Stefan J. Friedrichsdorf and published by MDPI. This book was released on 2019-02-08 with total page 253 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book is a printed edition of the Special Issue "Pediatric Palliative Care" that was published in Children
Download or read book A Really Practical Handbook of Children s Palliative Care written by Justin Amery and published by Lulu.com. This book was released on 2012-02-23 with total page 447 pages. Available in PDF, EPUB and Kindle. Book excerpt: A Really Practical Handbook of Children's Palliative Care for Doctors and Nurses Anywhere in the World offers really practical solutions to common problems faced by health professionals caring for dying children and their families, whatever their culture
Download or read book Managing Pain in Children and Young People written by Alison Twycross and published by John Wiley & Sons. This book was released on 2024-04-03 with total page 357 pages. Available in PDF, EPUB and Kindle. Book excerpt: Master paediatric pain management with precision This practical guide equips nurses and healthcare professionals with evidence-based skills to effectively manage children's pain. Explore assessment techniques, pain relief strategies, and best practices for both hospital and community settings, with a focus on core knowledge, advanced insights, clinical scenarios, and practical tips. The fully updated third edition includes an expanded procedural sedation section, enhanced coverage of capnography for respiratory monitoring, a new quality improvement sciences section, and additional online MCQs and self-assessment material. Written by experienced authors, with contributions from global experts, Managing Pain in Children and Young People covers: Why pain prevention and treatment are crucial Pain's biopsychosocial nature and pharmacology of analgesic drugs Acute nociceptive, neuropathic, and visceral pain management Chronic headaches, post-surgical pain, neonatal pain, and procedural pain Paediatric palliative care and pain management in low-income countries Drug-free pain relief methods and ethical considerations With a multidisciplinary focus, this essential resource is tailored for healthcare practitioners working with children and young people; including doctors, nurses, psychologists, and physiotherapists. This essential resource empowers you to provide the best possible care for young patients, helping them find comfort and relief in their journey towards healing.
Download or read book Interdisciplinary Pediatric Palliative Care written by Joanne Wolfe and published by Oxford University Press. This book was released on 2022-01-11 with total page 625 pages. Available in PDF, EPUB and Kindle. Book excerpt: Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations, evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately benefit team, patient, and family care outcomes. Each chapter includes the perspective of the family of a seriously ill child in the form of a vignette to promote care team understanding of this crucial perspective. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. Interdisciplinary Pediatric Palliative Care is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work. Advance Praise for Interdisciplinary Pediatric Palliative Care, Second Edition "This new edition is as much a testament to pediatric palliative care's remarkable evolution as a field as it is a quintessential playbook for providing the high-quality holistic and compassionate care that families with seriously ill children desperately want. Every page thoughtfully weaves together how interprofessional teams can contribute collaboratively to learning about and supporting the preferences, needs and priorities of the precious patients and families in their circle of care. It is a must read for all practitioners to enhance their palliative care understanding, appreciation and ability as a foundation for optimizing quality of life in practice." - Rebecca Kirch, JD, Executive Vice President of Policy and Programs, National Patient Advocate Foundation "This book offers a truly contemporary and comprehensive view of the entire field of pediatric palliative care. The focus on social determinants of health, cultural humility, and disparities in care could not be timelier, and the section highlighting conflict and conflict resolution should be required reading. The continued and purposeful inclusion of interdisciplinary clinicians in producing each chapter models the palliative care team itself-an approach in which all voices are necessary as we seek to provide the most compassionate care possible." - Rachel Thienprayoon, MD, MSCS, FAAP, FAAHPM, Associate Professor of Anesthesia, Medical Director, StarShine Hospice and Palliative Care, Cincinnati Children's Hospital Medical Center
Download or read book Paediatric Palliative Medicine written by Richard Hain and published by Oxford University Press. This book was released on 2016-09-08 with total page 352 pages. Available in PDF, EPUB and Kindle. Book excerpt: Looking after children with life-limiting conditions is very difficult for both parents and health care professionals. This second edition of Paediatric Palliative Medicine is full of easily-accessible, detailed information , and covers all aspects of the care of children with life-limiting illnesses. It is designed to equip clinicians with the knowledge, and its evidence base, to improve clinical care. Using the bestselling Oxford Specialist Handbook format to deliver practical and concise information, this handbook facilitates bedside delivery of effective palliative medicine to children. It includes a quick reference drug formulary and detailed information on medical conditions and symptom control. There are also specific management plans to guide professionals, whether the child is in their own home, in a hospital, or a hospice. Many children with long term conditions have symptoms which need management, and the principles of palliative care for children need to be known by all who are involved in their care. The unique significance of this handbook is its capacity to guide professionals who have not trained or had experience of caring for the dying child, as well as for students and trainees interested in paediatric palliative care. Children's palliative medicine encompasses symptom control but is not limited to it. This handbook also provides a wealth of information on the philosophy and models that support delivery of palliative medicine to children, as well as the learning and coping skills required in palliative care. Fully updated with an expanded formulary and a new chapter on the intensive care unit, this new edition continues to be the authoritative reference tool in paediatric palliative care.
Download or read book A Guide to the Development of Children s Palliative Care Services written by Finella Craig and published by . This book was released on 2003 with total page 20 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Perspectives on Palliative Care for Children and Young People written by Rita Pfund and published by CRC Press. This book was released on 2017-11-22 with total page 348 pages. Available in PDF, EPUB and Kindle. Book excerpt: Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Download or read book Oxford Textbook of Palliative Care for Children written by Richard Hain and published by Oxford University Press. This book was released on 2021-07-27 with total page 535 pages. Available in PDF, EPUB and Kindle. Book excerpt: The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
Download or read book Palliative Medicine written by Susan MacDonald and published by Oxford University Press. This book was released on 2021-09-30 with total page 421 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Advance care planning (ACP) conversations and goals of care (GOC) discussions prepare patients and their substitute decision makers for medical decision making. When rooted in a patient's values and person-centred in approach, ACP and GOC discussions can optimize the likelihood a person receives care that is concordant with their goals. This chapter explores the definitions and clinical processes for ACP and GOC discussions and describes how a patient's values and goals can directly inform medical decision making. Differences in ACP among healthy individuals and seriously ill, common communication challenges and the pitfalls of a treatment-centered approach are described. We underscore the importance of illness understanding and provide tips on addressing prognosis. Finally, health care system impacts of ACP and GOC are considered"--
Download or read book Children s Palliative Care in Africa written by Justin Amery and published by . This book was released on 2009 with total page 448 pages. Available in PDF, EPUB and Kindle. Book excerpt: Childen's palliative care has developed rapidly as a discipline, as health care professionals recognize that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming, and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 85% of these are in the developing world. Despite the enormous need, provision of children's palliative care in Africa is almost non-existent, with very few health workers trained and confident to provide care for dying children. The challenges of providing palliative care in this setting are different to those in more developed countries, contending with the shortage of physical and human resources in addition to the vast scope of the care needed. Written by a group with wide experience of caring for dying children in Africa, this book provides practical, realistic guidance by improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care--including communication, assessment, symptom management, psychosocial issues, ethical dilemmas, end of life care, and tips for the professional on compassion and conservation of energy--but always retains the focus on the particular needs of the health care professional in Africa. While containing some theory, the emphasis is on practical action throughout the book. Children's Palliative Care in Africa provides health care professionals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.
