Download or read book Childhood Cancer and Functional Impacts Across the Care Continuum written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2021-09-09 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.
Download or read book Childhood Cancer Survivors written by Nancy Keene and published by Childhood Cancer Guides. This book was released on 2014-03-01 with total page 481 pages. Available in PDF, EPUB and Kindle. Book excerpt: More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.
Download or read book Having Children After Cancer written by Gina M. Shaw and published by Celestial Arts. This book was released on 2011-02-22 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: Yes, you can have children after cancer. When faced with a cancer diagnosis, many doctors and patients rush full-speed ahead into treatment, giving minimal attention to the potential fertility implications. Luckily, the field of oncofertility is growing quickly, and medical writer Gina Shaw, herself a cancer survivor, is ready to unravel the complex and evolving issues involved in pre- and post-cancer fertility and family-building options—for both men and women. Having Children After Cancer gives you all the tools you need to: Understand how different cancers can affect fertility Identify which treatments―chemo, radiation, and surgery―can potentially impair your fertility Discuss fertility-sparing treatment options with your doctor Select the fertility preservation method that’s right for you—from freezing eggs, embryos, and sperm to preserving ovarian tissue Analyze the chances of getting pregnant—using natural methods and with in vitro fertilization Determinethe best time to get pregnant (and which drug therapies to avoid while doing so) Have a healthy post-cancer pregnancy Navigate surrogacy and what to tell prospective candidates about your medical history Consider adoption and learn about survivor-friendly adoption programs and countries Find sample medical letters and other insurance-company red-tape busting information Think through the implications of mother- and fatherhood after cancer Figure out how to talk to your children about the big C With a foreword by top oncologist Hope Rugo of the UCSF Cancer Center, this first and only cancer-and-fertility guide for patients and survivors will allow you to be your own best advocate throughout the journey.
Download or read book Supportive Care of Children with Cancer written by Children's Oncology Group and published by JHU Press. This book was released on 2004-04-05 with total page 1326 pages. Available in PDF, EPUB and Kindle. Book excerpt: Three of every four children and adolescents with cancer can now be cured. However, physicians are using increasingly intensive treatment regimens. These treatments can expose patients to toxic chemotherapeutic agents, invasive surgical procedures, and radiation oncology interventions that risk disfigurement, neuropsychiatric damage, and life-threatening organ toxicity. These potentially dire consequences have mandated that advances in cancer treatment go hand in hand with supportive care measures that sustain patients through their therapeutic ordeal and allow each patient to achieve maximum quality of life. In this book, now in its third edition, the discipline of supportive care in pediatric oncology is covered in depth. Supportive Care of Children with Cancer is a ready-reference handbook designed for use at the hospital bedside, in the oncology outpatient clinic, or in the physician's office. To create this book, leading experts in the field recommended approaches to supportive care which were then critically reviewed by members of the Children's Oncology Group, the world's largest cooperative study group for children's cancer. For students, house officers, fellows, pediatric oncologists, surgeons, nurses, nutritionists, social workers, and psychologists, this book provides essential information about the care of pediatric oncology patients. The third edition features a new chapter on recognition, prevention, and remediation of burnout in pediatric oncology staff members, while throughout the book, chapters have been revised and updated to reflect the impact of new antibiotic agents, new antiemetics, and new approaches to pain management.
Download or read book Cancer Incidence and Survival Among Children and Adolescents written by and published by . This book was released on 1999 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Cancer Care for the Whole Patient written by Institute of Medicine and published by National Academies Press. This book was released on 2008-03-19 with total page 455 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer-including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life-cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met.
Download or read book Pediatric Cancer Genetics written by Nathaniel H. Robin and published by Elsevier Health Sciences. This book was released on 2017-08-22 with total page 135 pages. Available in PDF, EPUB and Kindle. Book excerpt: Get a quick, expert overview of the many key facets of pediatric cancer genetics with this concise, practical resource by Dr. Nathaniel H. Robin and Meagan Farmer, MS, CGC, MBA. Ideal for pediatric oncologists and all providers who care for children, this easy-to-read reference addresses the remarkable potential of genetic testing as well as the complexities of choosing the correct test, understanding the results, and counseling the family. - Features a wealth of information on pediatric cancer genetics, including the epidemiology and biology of cancer and the genetic evaluation process and role of genetic counsellors - Highlights examples of syndromes that present in childhood and increase susceptibility to cancer - Discusses the genetic evaluation process in context of the multidisciplinary care of children with cancer - Considers the ethical and legal issues of genetic testing in children and provides illustrative case examples - Consolidates today's available information and guidance in this timely area into one convenient resource - Features a wealth of information on pediatric cancer genetics, including the epidemiology and biology of cancer and the genetic evaluation process and role of genetic counselors. - Highlights examples of syndromes that present in childhood and increase susceptibility to cancer. - Discusses the genetic evaluation process in context of the multidisciplinary care of children with cancer. - Considers the ethical and legal issues of genetic testing in children and provides illustrative case examples. - Consolidates today's available information and guidance in this timely area into one convenient resource.
Download or read book My Parent Has Cancer and It Really Sucks written by Marc Silver and published by Sourcebooks, Inc.. This book was released on 2013-03-05 with total page 221 pages. Available in PDF, EPUB and Kindle. Book excerpt: Let's face it, cancer sucks. This book provides real-life advice from real-life teens designed to help teens live with a parent who is fighting cancer. One million American teenagers live with a parent who is fighting cancer. It's a hard blow for those already navigating high school, preparing for college, and becoming increasingly independent. Author Maya Silver was 15 when her mom was diagnosed with breast cancer in 2001. She and her dad, Marc, have combined their family's personal experience with advice from dozens of medical professionals and real stories from 100 teens—all going through the same thing Maya did. The topic of cancer can be difficult to approach, but in a highly designed, engaging style, this book gives practical guidance that includes: How to talk about the diagnosis (and what does diagnosis even mean, anyway?) The best outlets for stress (punching a wall is not a great one, but should it happen, there are instructions for a patch job) How to deal with friends (especially one the ones with 'pity eyes') Whether to tell the teachers and guidance counselors and what they should know (how not to get embarrassed in class) What happens in a therapy session and how to find a support group if you want one A special section for parents also gives tips on strategies for sharing the news and explaining cancer to a child, making sure your child doesn't become the parent, what to do if the outlook is grim, and tips for how to live life after cancer. My Parent Has Cancer and It Really Sucks allows teens to see that they are not alone. That no matter how rough things get, they will get through this difficult time. That everything they're feeling is ok. Essays from Gilda Radner's "Gilda's Club" annual contest are an especially poignant and moving testimony of how other teens dealt with their family's situation. Praise for My Parent Has Cancer and It Really Sucks: "Wisely crafted into a wonderfully warm, engaging and informative book that reads like a chat with a group of friends with helpful advice from the experts." —Paula K. Rauch MD, Director of the Marjorie E. Korff Parenting At a Challenging Time Program "A must read for parents, kids, teachers and medical staff who know anyone with cancer. You will learn something on every page." —Anna Gottlieb, MPA, Founder and CEO Gilda's Club Seattle "This book is a 'must have' for oncologists, cancer treatment centers and families with teenagers." —Kathleen McCue, MA, LSW, CCLS, Director of the Children's Program at The Gathering Place, Cleveland, OH "My Parent Has Cancer and It Really Sucks provides a much-needed toolkit for teens coping with a parent's cancer." —Jane Saccaro, CEO of Camp Kesem, a camp for children who have a parent with cancer
Download or read book What Happens When a Kid Has Cancer written by Sara Olsher and published by . This book was released on 2021-04-23 with total page 36 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child is diagnosed with cancer, life flips upside-down. Suddenly, our days (and our thoughts) are dominated by doctors, nurses, child life specialists, and a million technical terms that will make anyone's head spin. Add extreme fear and anxiety to that, and you've got a recipe for the most stressful time in a family's life.What Happens When a Kid Has Cancer is a book written with purpose of relieving the anxiety and confusion that comes from a child's cancer diagnosis and treatment.What Happens When a Kid Has Cancer covers the main points of pediatric cancer - what it is and what the experience of treatment is like - and shows how it can change a kid's day. The book is great for ages 4 -10 and discusses:- The science of cancer- Changes to routines- Surgery and anesthesia - Chemotherapy- Hair loss and hair changes- Port, central line, and tubies- Hospital stays- Radiation- Scans and blood draws- Emotions relating to cancerOver the course of a year and with the help of both experts and families who have been through pediatric cancer, author and illustrator Sara Olsher explains the science of cancer (in an age-appropriate, totally non-scary way) and uses an illustrated calendar to show how various treatments affect a child's day-to-day. This method of teaching is based on decades of solid science about how kids learn and cope with the major day-to-day changes that result from issues like cancer. By creating a routine that kids can see and understand, parents can restore a sense of safety and predictability in their kids' lives, helping them to be more resilient in the face of life's inevitable challenges. What Happens When a Kid Has Cancer? helps families that want to reduce their kids' anxiety surrounding a very scary diagnosis. It aims to empower kids with knowledge, which is proven to help kids through traumatic situations.
Download or read book Pediatric Cancer Survivors written by and published by . This book was released on 19?? with total page pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Talking with Your Child about Cancer written by and published by . This book was released on 1986 with total page 20 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Epidemiology of Childhood Cancer written by Julian Little and published by . This book was released on 1999 with total page 404 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer is the second commonest cause of death, after accidents, among children in developed countries, while in developing countries, improvements in the control of communicable diseases and the occurrence of premature delivery may lead to the emergence of cancer in children as a greater public health problem than in the past. The rationale for considering childhood cancers separately from cancers in adults in that there are differences in the sites of occurrence, in the histological appearance and in their clinical behavior. This book reviews the epidemiology of specific types of childhood cancer to mid-1997. The scale of the problem is first reviewed in a major compilation of data on the descriptive epidemiology of childhood cancer, then separate chapters describe studies of the different postulated causal factors and summarize what can be concluded from them.
Download or read book Talking with My Treehouse Friends about Cancer written by Peter Van Dernoot and published by Fulcrum Publishing. This book was released on 2007 with total page 32 pages. Available in PDF, EPUB and Kindle. Book excerpt: This activity book, written by the founder of The Children's Treehouse Foundation, is designed to help children cope with the news that their parents or grandparents have cancer. The diary provides age-appropriate explanations and allows kids to express their feelings through drawing, coloring, pasting, and writing.
Download or read book They Never Want to Tell You written by David J. Bearison and published by . This book was released on 1991 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: They Never Want to Tell You transcends the negative metaphors and clichés of life-threatening disease, to give voice to the culture of cancer and to the behavior and attitudes of those who function within that culture-as patients, medical professionals, family, and friends. In these extraordinary narratives, children coping with cancer reveal their most personal experiences, and they speak with a candor that breaks through the cultural taboos ostensibly designed to protect us from the disease. The rich, compassionate, and honest words of these children give expression to concerns that adults who are struggling with cancer find nearly impossible to articulate. Free of social conventions and cognitive distortions, each story presents a powerful variation on the theme of survival in the face of the continuing uncertainties of life-threatening disease. Bearison, a developmental psychologist and psychotherapist, is keenly aware of the psychological impact of cancer on children, particularly as survival times for childhood cancers lengthen and complex treatments intensify concern about the emotional-not merely physical-well-being of children. Bearison has culled from scores of interviews the most salient moments that represent these individual children in their shared struggle with disease. In these pages the children express their wildest hopes and worst fears about cancer. They speak of the absolute necessity of full disclosure, the problems of relating to friends and family, the difficult adjustment to hair loss, their feelings of punishment, grief, and spirituality, and many other issues. In the course of these stories the children reveal not only their will to survive and their extraordinary capacity to understand themselves and their condition, but their altruistic desire to share that understanding with other children as well as with adults who have cancer. "They Never Want to Tell You" is rich and rewarding reading for cancer patients, their families, and health-care professionals alike.
Download or read book Childhood Cancer written by R. Grant Steen and published by Da Capo Lifelong Books. This book was released on 2000-06-08 with total page 662 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinicians and scientists at the world-famous St. Jude Children's Research Hospital have compiled the most comprehensive and compassionate family reference on childhood cancer--one that covers everything from tests and treatment options to coping with emotions and the life hereafter. Illustrations throughout.
Download or read book Psychological Therapy for Patients with Cancer written by Stirling Moorey and published by American Psychiatric Publishing. This book was released on 1989 with total page 264 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Principles and Practice of Pediatric Oncology written by Philip A. Pizzo and published by Lippincott Williams & Wilkins. This book was released on 2011 with total page 1531 pages. Available in PDF, EPUB and Kindle. Book excerpt: Providing a comprehensive review of the multiple disciplines that make up the care and research agendas for children with cancer, this thoroughly updated edition provides state-of-the-art information on the molecular genetics and biology of cancer as well as new approaches to diagnosis and management.
