Download or read book Living With Childhood Cancer written by Leigh A. Woznick and published by American Psychological Association. This book was released on 2001-09-15 with total page 486 pages. Available in PDF, EPUB and Kindle. Book excerpt: Like a natural disaster, the diagnosis that your child has cancer can leave you and your family feeling helpless. How do you explain the disease to the child and to his or her siblings? How can you communicate your child's needs to the hospital staff? What are the best ways to reduce the physical side effects and the emotional distress of treatment?How will you, your child or teenager, and the rest of your family cope with cancer, and what can you do to help? When and where do you find good psychological help for your child or your family? How do you manage financial and school issues? How can you foster your child's development and self-esteem? More than 12,000 American children will be diagnosed with cancer this year, and roughly 75% will survive. In addition to excellent medical care, their survival depends on a strong support network, which may include parents, siblings, extended family members, friends and neighbors, classmates and teachers. In this down-to-earth guidebook, the authors draw on their own family's experience with cancer as well as their professional expertise and stories from others to help families address the psychological impact of cancer. The result is a book filled with sound emotional guidance, useful information, and practical advice for families coping with cancer.
Download or read book Cancer in Our Family written by Sue P. Heiney and published by . This book was released on 2013 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Explains to parents how to talk to children to help them cope when their mother or father is diagnosed with cancer, in a book that also has an illustrated activities section.
Download or read book Childhood Cancer Survivors written by Nancy Keene and published by Childhood Cancer Guides. This book was released on 2014-03-01 with total page 481 pages. Available in PDF, EPUB and Kindle. Book excerpt: More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.
Download or read book Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease written by Ronald T. Brown and published by Oxford University Press. This book was released on 2006-04-06 with total page 603 pages. Available in PDF, EPUB and Kindle. Book excerpt: Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including:-Neuropsychological effects of chemotherapy and radiation therapy-Bone marrow transplantation-Important issues about quality of life during and following treatment-Collaborative research among child-focused psychologists-Standards of psychological care for children and adolescents-Stress and coping in the pediatric cancer experience-The role of family and peer relationshipsThe Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.
Download or read book Childhood Cancer and Functional Impacts Across the Care Continuum written by National Academies of Sciences Engineering and Medicine and published by . This book was released on 2021-09-09 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.
Download or read book Childhood Leukemia written by Nancy Keene and published by Childhood Cancer Guides. This book was released on 2018-04-01 with total page 521 pages. Available in PDF, EPUB and Kindle. Book excerpt: Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time, including:•New treatments such as immunotherapy, tailoring drugs dosages to children's genetic profiles, and ways to deal with side effects.•Advice on how to cope with procedures, hospitalization, school, family, and financial issues.•Tips for forming a partnership with the medical team.•Poignant and practical stories from family members.•Updated resources for medical information, emotional support, and financial assistance.Parents who read this book will find understandable medical information and emotional support.
Download or read book Cancer Incidence and Survival Among Children and Adolescents written by and published by . This book was released on 1999 with total page 194 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book Pediatric Cancer Genetics written by Nathaniel H. Robin and published by Elsevier Health Sciences. This book was released on 2017-08-22 with total page 135 pages. Available in PDF, EPUB and Kindle. Book excerpt: Get a quick, expert overview of the many key facets of pediatric cancer genetics with this concise, practical resource by Dr. Nathaniel H. Robin and Meagan Farmer, MS, CGC, MBA. Ideal for pediatric oncologists and all providers who care for children, this easy-to-read reference addresses the remarkable potential of genetic testing as well as the complexities of choosing the correct test, understanding the results, and counseling the family. - Features a wealth of information on pediatric cancer genetics, including the epidemiology and biology of cancer and the genetic evaluation process and role of genetic counsellors - Highlights examples of syndromes that present in childhood and increase susceptibility to cancer - Discusses the genetic evaluation process in context of the multidisciplinary care of children with cancer - Considers the ethical and legal issues of genetic testing in children and provides illustrative case examples - Consolidates today's available information and guidance in this timely area into one convenient resource - Features a wealth of information on pediatric cancer genetics, including the epidemiology and biology of cancer and the genetic evaluation process and role of genetic counselors. - Highlights examples of syndromes that present in childhood and increase susceptibility to cancer. - Discusses the genetic evaluation process in context of the multidisciplinary care of children with cancer. - Considers the ethical and legal issues of genetic testing in children and provides illustrative case examples. - Consolidates today's available information and guidance in this timely area into one convenient resource.
Download or read book Childhood Cancer written by Honna Janes-Hodder and published by Childhood Cancer Guides. This book was released on 2014-03-01 with total page 561 pages. Available in PDF, EPUB and Kindle. Book excerpt: This second edition of the most complete parent guide available features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, financial issues, and communication. Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents know, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel improves the quality of life for the whole family. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone. Parents who read this book will find understandable medical infomation, obtain advice that eases their daily life, and feel empowered to be strong advocates for their child. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.
Download or read book Having Children After Cancer written by Gina M. Shaw and published by Celestial Arts. This book was released on 2011-02-22 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: Yes, you can have children after cancer. When faced with a cancer diagnosis, many doctors and patients rush full-speed ahead into treatment, giving minimal attention to the potential fertility implications. Luckily, the field of oncofertility is growing quickly, and medical writer Gina Shaw, herself a cancer survivor, is ready to unravel the complex and evolving issues involved in pre- and post-cancer fertility and family-building options—for both men and women. Having Children After Cancer gives you all the tools you need to: Understand how different cancers can affect fertility Identify which treatments―chemo, radiation, and surgery―can potentially impair your fertility Discuss fertility-sparing treatment options with your doctor Select the fertility preservation method that’s right for you—from freezing eggs, embryos, and sperm to preserving ovarian tissue Analyze the chances of getting pregnant—using natural methods and with in vitro fertilization Determinethe best time to get pregnant (and which drug therapies to avoid while doing so) Have a healthy post-cancer pregnancy Navigate surrogacy and what to tell prospective candidates about your medical history Consider adoption and learn about survivor-friendly adoption programs and countries Find sample medical letters and other insurance-company red-tape busting information Think through the implications of mother- and fatherhood after cancer Figure out how to talk to your children about the big C With a foreword by top oncologist Hope Rugo of the UCSF Cancer Center, this first and only cancer-and-fertility guide for patients and survivors will allow you to be your own best advocate throughout the journey.
Download or read book What Happens When a Kid Has Cancer written by Sara Olsher and published by . This book was released on 2021-04-23 with total page 36 pages. Available in PDF, EPUB and Kindle. Book excerpt: When a child is diagnosed with cancer, life flips upside-down. Suddenly, our days (and our thoughts) are dominated by doctors, nurses, child life specialists, and a million technical terms that will make anyone's head spin. Add extreme fear and anxiety to that, and you've got a recipe for the most stressful time in a family's life.What Happens When a Kid Has Cancer is a book written with purpose of relieving the anxiety and confusion that comes from a child's cancer diagnosis and treatment.What Happens When a Kid Has Cancer covers the main points of pediatric cancer - what it is and what the experience of treatment is like - and shows how it can change a kid's day. The book is great for ages 4 -10 and discusses:- The science of cancer- Changes to routines- Surgery and anesthesia - Chemotherapy- Hair loss and hair changes- Port, central line, and tubies- Hospital stays- Radiation- Scans and blood draws- Emotions relating to cancerOver the course of a year and with the help of both experts and families who have been through pediatric cancer, author and illustrator Sara Olsher explains the science of cancer (in an age-appropriate, totally non-scary way) and uses an illustrated calendar to show how various treatments affect a child's day-to-day. This method of teaching is based on decades of solid science about how kids learn and cope with the major day-to-day changes that result from issues like cancer. By creating a routine that kids can see and understand, parents can restore a sense of safety and predictability in their kids' lives, helping them to be more resilient in the face of life's inevitable challenges. What Happens When a Kid Has Cancer? helps families that want to reduce their kids' anxiety surrounding a very scary diagnosis. It aims to empower kids with knowledge, which is proven to help kids through traumatic situations.
Download or read book Childhood Cancer Survivorship written by National Research Council and published by National Academies Press. This book was released on 2003-10-15 with total page 225 pages. Available in PDF, EPUB and Kindle. Book excerpt: Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors' health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects-that is, complications, disabilities, or adverse outcomes-as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans.
Download or read book They Never Want to Tell You written by David J. Bearison and published by . This book was released on 1991 with total page 216 pages. Available in PDF, EPUB and Kindle. Book excerpt: They Never Want to Tell You transcends the negative metaphors and clichés of life-threatening disease, to give voice to the culture of cancer and to the behavior and attitudes of those who function within that culture-as patients, medical professionals, family, and friends. In these extraordinary narratives, children coping with cancer reveal their most personal experiences, and they speak with a candor that breaks through the cultural taboos ostensibly designed to protect us from the disease. The rich, compassionate, and honest words of these children give expression to concerns that adults who are struggling with cancer find nearly impossible to articulate. Free of social conventions and cognitive distortions, each story presents a powerful variation on the theme of survival in the face of the continuing uncertainties of life-threatening disease. Bearison, a developmental psychologist and psychotherapist, is keenly aware of the psychological impact of cancer on children, particularly as survival times for childhood cancers lengthen and complex treatments intensify concern about the emotional-not merely physical-well-being of children. Bearison has culled from scores of interviews the most salient moments that represent these individual children in their shared struggle with disease. In these pages the children express their wildest hopes and worst fears about cancer. They speak of the absolute necessity of full disclosure, the problems of relating to friends and family, the difficult adjustment to hair loss, their feelings of punishment, grief, and spirituality, and many other issues. In the course of these stories the children reveal not only their will to survive and their extraordinary capacity to understand themselves and their condition, but their altruistic desire to share that understanding with other children as well as with adults who have cancer. "They Never Want to Tell You" is rich and rewarding reading for cancer patients, their families, and health-care professionals alike.
Download or read book I Wish My Kids Had Cancer written by Michael Alan and published by Michael Alan. This book was released on 2008-10 with total page 118 pages. Available in PDF, EPUB and Kindle. Book excerpt: I Wish My Kids Had Cancer is a fatheras gripping, real glimpse of his familyas struggle to survive with two children with Autism. The book intimately, honestly, and powerfully, addresses the emotional, social, financial, political and medical aspects of a family fighting for their very existence. Learn about the struggle, the epidemic and Help Families In Need! Support Autism Through Song! Download the song aState of Emergencya by world-renowned recording artist Sara Hickman. ALL Proceeds Donated to help Families with Autism! Visit www.iwishmykidshadcancer.com to download or visit www.sarahickman.com to download this powerful, emotionally charged song written in response to this book. Encourage others to listen and download! Help provide hope for those with Autism!
Download or read book Pediatric Psycho oncology written by Lori Wiener and published by Oxford University Press, USA. This book was released on 2015 with total page 433 pages. Available in PDF, EPUB and Kindle. Book excerpt: Pediatric Psycho-Oncology is a comprehensive handbook that provides best practice models for the management of psychological, cognitive, and social outcomes of adolescents living with cancer and their families. Chapters cover a wide range of topics including psychological aspects of particular pediatric cancers and their treatments, how to talk to a child and family at critical times during the disease course, genetic testing, individual, family, educational, psychological and psychiatric interventions, and caring for international patients . Each chapter highlights the necessity of embracing an interdisciplinary approach to ensure that each child has the best options for living with cancer and, when cure is not possible, that death occurs with as much dignity as possible for the child and family. An extensive resource section is appended to provide information on written, online, video, community, national and international services and programs. This book features contributions from experts designed to help clinicians review, anticipate and respond to emotional issues that often arise in the context of treating pediatric cancer patients. Numerous cross-references and succinct tables and figures make this concise reference easy to use. Pediatric Psycho-Oncology is an ideal resource for helping pediatric oncologists and nurses recognize when it may be best to refer patients to their mental health colleagues and for those who are establishing pediatric oncology services or adding psychosocial components to existing clinics.
Download or read book Chemo Craziness Comfort written by Nancy Keene and published by . This book was released on 2002 with total page 202 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book was created to help young patients and their families understand about cancer, how it is treated, and ways to manage it. It shares stories and advice from children who have finished their treatments
Download or read book Children With Cancer written by Christine Eiser and published by Routledge. This book was released on 2004-04-12 with total page 591 pages. Available in PDF, EPUB and Kindle. Book excerpt: Cancer is a very rare disease in children. There have been impressive gains in survival in recent years, and these have been achieved through the use of chemotherapy and national and international clinical trials. The diagnosis of cancer in a child imposes considerable stress on the whole family. In the immediate time after diagnosis, parents must learn about the disease and its treatment, explain what is happening to the child, and make arrangements for the care of other children in the family. For the child, treatment is associated with many side effects depending on the specific drugs used. In addition, the child is prone to infection and therefore is likely to miss a lot of school and other activities. For all these reasons, physicians and families have become aware that cancer has huge implications for the quality of the child's life. This book is an attempt to describe how quality of life is affected at different stages of the disease process. Comprehensive reviews are provided of the impact on the child's physical activity, social life, and school and educational achievements. Special consideration is given to children with leukemia (one of the more common cancers) and brain tumors. Cancer does not just affect the child but every member of the family. Consequently there is coverage of the effects on parents and also healthy brothers and sisters. To the extent that improvements in survival have been achieved by national and international collaboration between clinicians, it is concluded that efforts to improve the quality of these children's lives is dependent on collaboration between clinicians, nurses, and behavioral scientists at national and international levels. This book should provide an impetus for such collaboration.
