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EBookClubs

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Book Parent Perspectives of Neonatal Intensive Care at the End of life and Subsequent Bereavement and Coping Experiences After Infant Death

Download or read book Parent Perspectives of Neonatal Intensive Care at the End of life and Subsequent Bereavement and Coping Experiences After Infant Death written by Erin R. Currie and published by . This book was released on 2014 with total page 168 pages. Available in PDF, EPUB and Kindle. Book excerpt: Introduction: Little is known about parent experiences with end-of-life and palliative care consultation in the neonatal intensive care unit (NICU). The purpose of this study was to: (a) describe parent experiences related to their infant's NICU hospitalization, end-of-life care, and palliative care consultation, and (b) parents' bereavement and coping experiences after infant death. Methods: A descriptive qualitative approach was used to explore and describe parent experiences during their infant's hospitalization in the NICU and bereavement and coping experiences after infant death. Ten parents (seven mothers and three fathers) of infants who had previously died in the NICU were recruited using convenience sampling methods until data saturation was met. Background information was obtained from a demographic questionnaire. Interview data were analyzed using qualitative content analysis. Results: In-person semi-structured interviews revealed two major themes with five categories. "Life and Death in the NICU Environment" was the first major theme with the following categories: (a) the ups and downs of parenting in the NICU, (b) decisionmaking challenges in the NICU, and (c) parent support. "Life after Loss" was the second major theme that emerged from the interviews with the following categories: (a) living with loss and (b) coping with grief over time. Conclusions: "Being a parent" was extremely important for these participants regardless of the infant's prognosis. Nurses played a critical role in facilitating parenting in the NICU. Parents encountered various challenges in the NICU and reported several sources of support that helped them through the hospitalization. Although barriers to initiating palliative care consultation were present, palliative care was a helpful source of support for parents in the NICU. Living with infant loss was a catastrophic and life-changing event for these parents. Coping with infant death proved to be a complex process that evolved over time. Parents oscillated between focusing on the loss and living in a world without their infant. The results from this study suggest there are areas for improvement in the provision of end-of-life and palliative care in the NICU that may be addressed by further research efforts and changes in practice and policy.

Book SIDS Sudden Infant and Early Childhood Death

Download or read book SIDS Sudden Infant and Early Childhood Death written by Roger W. Byard and published by . This book was released on 2018-04 with total page 844 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume covers aspects of sudden infant and early childhood death, ranging from issues with parental grief, to the most recent theories of brainstem neurotransmitters. It also deals with the changes that have occurred over time with the definitions of SIDS (sudden infant death syndrome), SUDI (sudden unexpected death in infancy) and SUDIC (sudden unexpected death in childhood). The text will be indispensable for SIDS researchers, SIDS organisations, paediatric pathologists, forensic pathologists, paediatricians and families, in addition to residents in training programs that involve paediatrics. It will also be of use to other physicians, lawyers and law enforcement officials who deal with these cases, and should be a useful addition to all medical examiner/forensic, paediatric and pathology departments, hospital and university libraries on a global scale. Given the marked changes that have occurred in the epidemiology and understanding of SIDS and sudden death in the very young over the past decade, a text such as this is very timely and is also urgently needed.

Book A Gathering of Angels

Download or read book A Gathering of Angels written by Victoria Leland and published by . This book was released on 2010-01-01 with total page 204 pages. Available in PDF, EPUB and Kindle. Book excerpt: Author Vicki Leland was a nurse in a busy Neonatal Intensive Care Unit (NICU) in 2006--a particularly tough year--when she met five families whose babies had died in the NICU. They touched her life in unexpected and inspiring ways, and they became "angels" to--souls who appear in our lives at times of crisis and walk alongside us as we journey through grief. In A Gathering of Angels, Leland has collected writings from these five women on different aspects of grief. The result is a heartfelt book that shows how real people respond to grief. The women share their intensely personal stories, creating an incredibly universal book that will speak to readers from all walks of life who have lost a baby. Reflections include: Feeling Robbed, Guilt, Grieving Mothers vs. Grieving Fathers, My Faith Has Been Tested, Peace...and the Sundial.

Book Merenstein   Gardner s Handbook of Neonatal Intensive Care   E Book

Download or read book Merenstein Gardner s Handbook of Neonatal Intensive Care E Book written by Sandra Lee Gardner and published by Elsevier Health Sciences. This book was released on 2015-04-10 with total page 1008 pages. Available in PDF, EPUB and Kindle. Book excerpt: Merenstein & Gardner’s Handbook of Neonatal Intensive Care, 8th Edition, is the leading resource for collaborative, interprofessional critical care of newborns. Co-authored by physicians and nurses, it offers concise, comprehensive coverage with a unique multidisciplinary approach and real-world perspective that make it an essential guide for both neonatal nurses and physicians. The 8th edition features the latest neonatal research, evidence, clinical guidelines, and practice recommendations — all in a practical quick-reference format for easy retrieval and review of key information. UNIQUE! Multidisciplinary author and contributor team consists of two physicians and two nurses, with each chapter written and reviewed by a physician-nurse team to ensure that information mirrors current, real-world practice in a neonatal intensive care unit. Critical Findings boxes and tables outline symptoms and diagnostic findings that require immediate attention, helping you prioritize assessment data and steps in initial care. UNIQUE! Clinical content highlighted in color allows you to quickly scan for information that directly affects patient care. UNIQUE! Parent Teaching boxes highlight relevant information to share with a patient’s caregivers. Clinical images, graphs, and algorithms illustrate clinically relevant concepts in neonatal intensive care. Streamlined references include only the most current or classic sources. NEW! Coverage of the latest neonatal research, evidence, clinical guidelines, and practice recommendations addresses topics such as: women with chronic illnesses becoming pregnant; maternal obesity; hypotension and shock in premature infants; pain and sedation; dedicated feeding sets vs. IVs for safety; MRSA; pediatric stroke; autism screening; discharge coordination; and more. NEW! The latest AAP recommendations and guidelines for hypoglycemia, jaundice, herpes, respiratory syncytial virus, and neonatal transport team composition. EXPANDED! Revised Evidence-Based Clinical Practice chapter focuses on evidence-based practice and quality improvement and the role of qualitative research in EBP. EXPANDED! Updated Infection in the Neonate chapter features new GBS guidelines and CRP research.

Book The influence of spirituality  race ethnicity and religion on parent grief and mental health at one and three months after their infant s child s death in the neonatal or pediatric intensive care unit

Download or read book The influence of spirituality race ethnicity and religion on parent grief and mental health at one and three months after their infant s child s death in the neonatal or pediatric intensive care unit written by Dawn Hawthorne and published by . This book was released on 2012 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Merenstein   Gardner s Handbook of Neonatal Intensive Care

Download or read book Merenstein Gardner s Handbook of Neonatal Intensive Care written by Sandra Lee Gardner and published by Elsevier Health Sciences. This book was released on 2015-04-30 with total page 1136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Merenstein & Gardner's Handbook of Neonatal Intensive Care, 8th Edition, is the leading resource for collaborative, interprofessional critical care of newborns. Co-authored by physicians and nurses, it offers concise, comprehensive coverage with a unique multidisciplinary approach and real-world perspective that make it an essential guide for both neonatal nurses and physicians. The 8th edition features the latest neonatal research, evidence, clinical guidelines, and practice recommendations - all in a practical quick-reference format for easy retrieval and review of key information. UNIQUE! Multidisciplinary author and contributor team consists of two physicians and two nurses, with each chapter written and reviewed by a physician-nurse team to ensure that information mirrors current, real-world practice in a neonatal intensive care unit. Critical Findings boxes and tables outline symptoms and diagnostic findings that require immediate attention, helping you prioritize assessment data and steps in initial care. UNIQUE! Clinical content highlighted in color allows you to quickly scan for information that directly affects patient care. UNIQUE! Parent Teaching boxes highlight relevant information to share with a patient's caregivers. Clinical images, graphs, and algorithms illustrate clinically relevant concepts in neonatal intensive care. Streamlined references include only the most current or classic sources. NEW! Coverage of the latest neonatal research, evidence, clinical guidelines, and practice recommendations addresses topics such as: women with chronic illnesses becoming pregnant; maternal obesity; hypotension and shock in premature infants; pain and sedation; dedicated feeding sets vs. IVs for safety; MRSA; pediatric stroke; autism screening; discharge coordination; and more. NEW! The latest AAP recommendations and guidelines for hypoglycemia, jaundice, herpes, respiratory syncytial virus, and neonatal transport team composition. EXPANDED! Revised Evidence-Based Clinical Practice chapter focuses on evidence-based practice and quality improvement and the role of qualitative research in EBP. EXPANDED! Updated Infection in the Neonate chapter features new GBS guidelines and CRP research.

Book A Q Analysis of Nursing Behaviors which Facilitate the Grief Work of Parents with a Premature Infant in a Neonatal Intensive Care Unit

Download or read book A Q Analysis of Nursing Behaviors which Facilitate the Grief Work of Parents with a Premature Infant in a Neonatal Intensive Care Unit written by Pamela Nelson Fordham and published by . This book was released on 1989 with total page 220 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Parental Loss and Grief in the Neonatal Intensive Care Unit

Download or read book Parental Loss and Grief in the Neonatal Intensive Care Unit written by Emily Reuvers and published by . This book was released on 2018 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Premature and ill infants are admitted to neonatal intensive care units (NICU) for specialized medical and nursing care. Infants admitted to NICUs require the use of life sustaining technology and care from a multidisciplinary health care team. While in hospital, an infant's prognosis and expected outcomes can dramatically change. Depending on the circumstances of their infant's health, parents may choose to withdraw life sustaining treatment, or alternatively, face a future reality with the potential of long-term impact related to their infant's diagnosis. Parents with an infant in the NICU experience many different types of losses which can generate a grief response. The purpose of this thesis is to explore parental loss and grief in the NICU. A systematic review of qualitative evidence modelled on the Joanna Briggs Institute method (2014) was completed. This approach included a systematic and rigorous approach to the searching, critical appraisal, and aggregation procedures. Four databases (CINAHL, Medline, PsycINFO, Nursing and Allied Health) were systematically searched using pre-identified search criteria. Two reviewers were involved in the search and screening, and three additional reviewers were used to identify included articles. This search process resulted in five studies being included in the review. Five themes were identified from the original research studies: support, not knowing what to expect, hospital practices, communication, and coming through grief. The results of this systematic review of qualitative evidence demonstrate that loss and grief have been described by parents in the NICU, both in the presence and absence of neonatal death.

Book Trauma Informed Care in the NICU

Download or read book Trauma Informed Care in the NICU written by Mary Coughlin, RN, MS, NNP and published by Springer Publishing Company. This book was released on 2016-08-28 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: This innovative book for Neonatal Nurses and NICU clinicians provides evidence-based clinical guidelines proven to mitigate and reduce the often profound trauma experience and subsequent developmental challenges for vulnerable hospitalized infants and their families. Each in-depth guideline includes the latest scientific research explaining the clinical rationale for the recommended practices, associated short-term and long-term outcomes, and implementation strategies to support practice improvement. The text reflects a trend —the provision of trauma-informed care in the neonatal intensive care unit--that has recently gained increasing momentum. With endorsements by respected transdisciplinary neonatal clinicians, it provides guidelines that encompass the five core measures for age-appropriate care, including the Healing Environment, Pain and Stress, Protected Sleep, Activities for Daily Living, Age-Appropriate Infant Guided Feeding, and Family-Integrated Care. The book also features downloadable sample competencies and parent teaching guides, along with additional eLearning modules with Nursing CE. A self-assessment checklist and teaching sheets, sample competencies, and sample algorithms add to the book’s utility. Key Features: Provides clinically relevant, evidence-based practice guidelines for minimizing trauma in neonates Encompasses the five core measures for age-appropriate care Includes proven implementation strategies to facilitate practice transformation Offers downloadable sample competencies and parent teaching guides and eLearning modules with Nursing CE Reviewed and endorsed by transdisciplinary neonatal clinicians [EN1] Not sure I like this word – maybe a development, awareness, etc.?

Book Parental Grief Following the Loss of an Infant in NICU

Download or read book Parental Grief Following the Loss of an Infant in NICU written by Sharon Morgan and published by . This book was released on 1987 with total page 326 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Neonatal Transport and Parental Anxiety

Download or read book Neonatal Transport and Parental Anxiety written by Minerva Ratliff and published by . This book was released on 1981 with total page 302 pages. Available in PDF, EPUB and Kindle. Book excerpt:

Book Parental Grief Reactions After an Infant Death

Download or read book Parental Grief Reactions After an Infant Death written by and published by . This book was released on 2002 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: Higher levels of personal growth. The findings of the study were discussed with related literature.

Book When Children Die

    Book Details:
  • Author : Institute of Medicine
  • Publisher : National Academies Press
  • Release : 2003-02-09
  • ISBN : 0309084377
  • Pages : 713 pages

Download or read book When Children Die written by Institute of Medicine and published by National Academies Press. This book was released on 2003-02-09 with total page 713 pages. Available in PDF, EPUB and Kindle. Book excerpt: The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

Book Parenting Matters

    Book Details:
  • Author : National Academies of Sciences, Engineering, and Medicine
  • Publisher : National Academies Press
  • Release : 2016-11-21
  • ISBN : 0309388570
  • Pages : 525 pages

Download or read book Parenting Matters written by National Academies of Sciences, Engineering, and Medicine and published by National Academies Press. This book was released on 2016-11-21 with total page 525 pages. Available in PDF, EPUB and Kindle. Book excerpt: Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Book Neurological Rehabilitation   E Book

Download or read book Neurological Rehabilitation E Book written by Darcy Ann Umphred and published by Elsevier Health Sciences. This book was released on 2013-08-07 with total page 1526 pages. Available in PDF, EPUB and Kindle. Book excerpt: Using a problem-solving approach based on clinical evidence, Neurological Rehabilitation, 6th Edition covers the therapeutic management of people with functional movement limitations and quality of life issues following a neurological event. It reviews basic theory and covers the latest screening and diagnostic tests, new treatments, and interventions commonly used in today's clinical practice. This edition includes the latest advances in neuroscience, adding new chapters on neuroimaging and clinical tools such as virtual reality, robotics, and gaming. Written by respected clinician and physical therapy expert Darcy Umphred, this classic neurology text provides problem-solving strategies that are key to individualized, effective care. UNIQUE! Emerging topics are covered in detail, including chapters such as Movement Development Across the Lifespan, Health and Wellness: The Beginning of the Paradigm, Documentation, and Cardiopulmonary Interactions. UNIQUE! A section on neurological problems accompanying specific system problems includes hot topics such as poor vision, pelvic floor dysfunction, and pain. A problem-solving approach helps you apply your knowledge to examinations, evaluations, prognoses, and intervention strategies. Evidence-based research sets up best practices, covering topics such as the theory of neurologic rehabilitation, screening and diagnostic tests, treatments and interventions, and the patient's psychosocial concerns Information. Case studies use real-world examples to promote problem-solving skills. Non-traditional approaches to neurological interventions in the Alternative and Complementary Therapies chapter include the movement approach, energy approach, and physical body system approaches therapies. Terminology adheres to the best practices of the APTA as well as other leading physical therapy organizations, following The Guide to Physical Therapy Practice, the Nagi model, and the ICF World Health Model of patient empowerment. Updated illustrations provide current visual references. NEW chapters on imaging and robotics have been added. Updated chapters incorporate the latest advances and the newest information in neuroscience and intervention strategies. Student resources on an Evolve companion website include references with links to MEDLINE and more.