Download or read book The Inheritance written by Niki Kapsambelis and published by Simon and Schuster. This book was released on 2017-03-07 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.
Download or read book The Complete Family Guide to Dementia written by Thomas F. Harrison and published by Guilford Publications. This book was released on 2022-08-10 with total page 255 pages. Available in PDF, EPUB and Kindle. Book excerpt: If you are facing the unique challenges of caring for a parent with dementia, you are not alone. What do you do when your loved one so plainly needs assistance, but is confused, angry, or resistant to your help? Where can you find the vital information you need, when you need it? Journalist Thomas Harrison and leading geriatric psychiatrist Brent Forester show that you don’t have to be a medical expert to be a good care provider in this authoritative guide. They explain the basics of dementia and offer effective strategies for coping with the medical, emotional, and financial toll. With the right skills, you can navigate changing family roles, communicate better with your parent, keep him or her safe, and manage difficult behaviors. Learn how to "care smarter, not harder"--and help your loved one maintain the best possible quality of life. Winner (Second Place)--American Journal of Nursing Book of the Year Award, Consumer Health Category Winner (Third Place)--Foreword INDIES Book of the Year Award, Family & Relationships Category
Download or read book The Hidden Victims of Alzheimer s Disease written by Steven H. Zarit and published by NYU Press. This book was released on 1985-08 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: An invaluable resource guide for anyone working with persons suffering from Alzheimer's disease, this is the first book to present a step-by-step program to help families cope with the day-to-day problems arising from this disease. Using detailed case examples, the authors offer unique and effective strategies to help the family—and the patient—have enjoyable and more productive lives. "Well written and eminently practical guide for families struggling with the burdens of Alzheimer's disease." —Peter V. Rabins, M.D., John Hopkins University School of Medicine, author of Thirty-Six Hour Day "An outstanding book dealing knowledgeably and sensitively with a painful disease affecting millions of American familes." —Robert N. Butler, M.D., Brookdale Professor of Geriatrics and Adult Development, Mount Sinai School of Medicine, New York
Download or read book Talking to Alzheimer s written by Claudia Strauss and published by . This book was released on 2001 with total page 196 pages. Available in PDF, EPUB and Kindle. Book excerpt: Simple ways to connect when you visit with a family member or friend.
Download or read book Alzheimer s written by James Lindemann Nelson and published by Doubleday Books. This book was released on 1996 with total page 232 pages. Available in PDF, EPUB and Kindle. Book excerpt: Caring for a loved one who is terminally ill can be tremendously stressful under any circumstances. If that person has a degenerative and dementing disease such as Alzheimer's, and is unable to participate in decisions regarding his or her care, the stress is that much greater. When it comes to making those difficult moral and ethical decisions which will preserve the dignity and integrity of the patient while also maintaining the caregiver's own selfhood, this is the book that can help. How much should the patient be told? How strongly should he be urged to plan for his own future? Is it ever right to lie to the patient about her condition? When is it right to place your loved one in a nursing home--and not feel guilty about it? How do different family members arrive at agreement among themselves in each of these situations? Authors and bioethicists James and Hilde Lindemann Nelson have written an invaluable step-by-step guide to tackling these and other difficult decisions. Using their extensive research on moral issues in health care, the Nelsons create hypothetical scenarios that demonstrate some of the most common situations caregivers will have to face during every stage of the illness, and show by example how they can make the right choices for themselves, the patient, and the rest of the family. This invaluable information, combined with a state-by-state and city-by-city guide to agencies and support groups offering practical assistance, as well as a list of suggested reading on the subject, make this book unique--and the most complete source of advice available.
Download or read book The Emotional Journey of the Alzheimer s Family written by Robert B. Santulli, MD and published by Dartmouth College Press. This book was released on 2015-03-22 with total page 231 pages. Available in PDF, EPUB and Kindle. Book excerpt: Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.
Download or read book Alzheimer s Disease Treatment and Family Stress written by Enid Light and published by Taylor & Francis. This book was released on 1990 with total page 504 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The 36 Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.
Download or read book I Can t Remember written by Esther Strauss Smoller and published by Temple University Press. This book was released on 2010-06-21 with total page 135 pages. Available in PDF, EPUB and Kindle. Book excerpt: I Can't Remember is an intimate photo essay of four families and their process of coping with Alzheimer's disease -- a process of coming to terms with the practical and emotional consequences of a disease that changes the entire family dynamic. Family members tell their stories of first denying that their loved one cold be suffering from Alzheimer's, then dealing with the changing relationships among family members and the intensifying emotions, as old family troubles are stirred up and new feelings of despair and love appear. Photographs and personal narratives are woven together to show both the unpleasant and the beautiful sides of the struggle for connection between spouses and across generations. Smoller has a gift for capturing people as they interact, whether it's arguing around the kitchen table or dancing cheek to cheek. Each family's story is different, but all four families share common pain and frustration. A highway patrolman who has early onset Alzheimer's describes what it is like to have Alzheimer's. His wife tells a parallel story of life together after hearing the diagnosis. A daughter gives the following account of her mother: "I though that it would be helpful if mother spent time in my home in Colorado. Before this visit, I was in denial, convinced that she suffered from depression and not Alzheimer's disease. ... On the plane trip to Colorado, I was brought into the stark, cold reality that Mom had Alzheimer's. She did not know where she was or where she was going. Upon arrival, she did not recognize my home, although she had visited me numerous times in the past. She tried sleeping in the bathtub the first night." Another daughter relates that she was unaware of the onset of Alzheimer's in her mother, because her mother was such a "wonderful actress." Eventually the memory problems were no longer confined to where things belonged in the kitchen, but extended into driving off at random, driving in circles in a parking lot in the middle of the night or as much as 75 miles away from home. I Can't Remember gives an intimate glimpse into the hearts and minds of caregivers and patients. Supportive social networks are essential for healthy life. This book provides the impetus caregivers need to develop contacts that can provide support. Smoller offers a glimpse of the frustration and losses faced by those who deal with Alzheimer's, as well as the potential to transcend those losses -- even is only for a time -- through love and hope.
Download or read book Six Steps to Managing Alzheimer s Disease and Dementia written by Andrew E. Budson MD and published by Oxford University Press. This book was released on 2021-08-23 with total page 353 pages. Available in PDF, EPUB and Kindle. Book excerpt: Your needs as a caregiver are just as important as those your family member with Alzheimer's Disease or dementia. This book will provide just the insight and guidance you need. Caregiving for a loved one with Alzheimer's disease or dementia is hard. It's hard whether you're caring for your spouse, parent, grandparent, sibling, other family member, or friend. Even if you had an extra ten hours each day to do it, it's hard to manage all the problems that come with dementia. And caring for a loved one with dementia can sometimes feel like a long, lonely journey. Six Steps to Managing Alzheimer's Disease and Dementia can help, addressing concerns such as: · Is the problem Alzheimer's, dementia, or something else? · How do you approach problems in dementia? · How do you manage problems with memory, language, and vision? · How do you cope with emotional and behavioral problems? · What are the best ways to manage troubles with sleep and incontinence? · Which medications can help? · Which medications can actually make things worse? · How do you build your care team? · Why is it important to care for yourself? · How do you sustain your relationship with your loved one? · How do you plan for the progression of dementia? · How do you plan for the end and beyond? Six Steps to Managing Alzheimer's Disease and Dementia is comprehensive yet written in an easy-to-read style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage Alzheimer's disease and dementia.
Download or read book Alzheimer s Disease and the Family written by Joy S. Martyniuk and published by . This book was released on 1990 with total page 40 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The 36 Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2011-10-07 with total page 380 pages. Available in PDF, EPUB and Kindle. Book excerpt: Originally published in 1981, The 36-Hour Day was the first book of its kind. Thirty years later, with dozens of other books on the market, it remains the definitive guide for people caring for someone with dementia. Now in a new and updated edition, this best-selling book features thoroughly revised chapters on the causes of dementia, managing the early stages of dementia, the prevention of dementia, and finding appropriate living arrangements for the person who has dementia when home care is no longer an option.
Download or read book Caring for a Person with Alzheimer s Disease Your Easy to Use Guide from the National Institute on Aging Revised January 2019 written by National Institute on Aging and published by Lulu.com. This book was released on 2019-04-13 with total page 106 pages. Available in PDF, EPUB and Kindle. Book excerpt: The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
Download or read book Caregiving for Alzheimer s Disease and Related Disorders written by Steven H. Zarit and published by Springer. This book was released on 2014-12-13 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Assisting someone with Alzheimer’s disease or another illness that causes dementia is incredibly demanding and stressful for the family. Like many disabling conditions, Alzheimer’s disease leads to difficulty or inability to carry out common activities of daily life, and so family members take over a variety of tasks ranging from managing the person’s finances to helping with intimate activities such as bathing and dressing. Key coverage in Caregiving for Alzheimer’s Disease and Related Disorders includes: Early diagnosis and family dynamics Emotional needs of caregivers Developmentally appropriate long-term care for people with Alzheimer’s Family caregivers as members of the Alzheimer’s treatment Team Legal and ethical issues for caregivers Faith and spirituality The economics of caring for individuals with Alzheimer’s disease Cultural, racial, ethnic, and socioeconomic issues of minority caregivers Advances in Alzheimer’s disease research Caregiving for Alzheimer’s Disease and Related Disorders offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.
Download or read book A Families Journey with Alzheimer s Disease written by Bob Sh'mal Ellenberg and published by Balboa Press. This book was released on 2019-03-08 with total page 83 pages. Available in PDF, EPUB and Kindle. Book excerpt: The book is about the author and his father who had Alzheimer’s disease. Because of the author’s experience with people with AD, he knew he could care of his father. There was family conflict since the author’s mother did not want her husband to live to far from her. The son showed complete compassion for both this parents, finally agreeing on an assisted living facility. The author discusses the many trips he took to visit his father and his mother who was still living in their condo. The author’s mother was a very conflicted woman who was adamant about all she believed but sadly was, obviously at times, confused. There were many quarrels between the mother and son. After twelve months in assisted living, the author brought his father to his home. The son wanted to do his best once his father was in his home, but having three young children living with him and working full time in a hospital as a social worker, none of it was easy. The author concludes this trying, emotional story with a trip to Denver, Colorado. Before the author leaves, two women friends did a shamanic ritual with him, telling him he has to visit Crestone, Colorado. This visit becomes an unexpected mystical retreat for the author that also proved to have a bonded connection with his father.
Download or read book Alzheimer s Disease written by Lenore S. Powell and published by Da Capo Lifelong Books. This book was released on 1993-01-20 with total page 388 pages. Available in PDF, EPUB and Kindle. Book excerpt: When people suffer from Alzheimer's disease, their family and friends usually must care for them and make decisions on their behalf, tasks that can be emotionally and physically draining. Backed by solid medical information about the specifics of the disease -- from early signs, testing, and diagnosis to treatments and long-term care -- this comprehensive guide will help family and caregivers alike be better prepared for the unique challenges ahead of them. An invaluable resource, Alzheimer's Disease explains how to cope with the many feelings provoked by the disease and provides practical care advice including ways to communicate and to make life safe and comfortable for the Alzheimer's patient. Copyright © Libri GmbH. All rights reserved.
Download or read book Alzheimer s Disease written by Lenore Powell and published by Da Capo Press. This book was released on 2009-01-29 with total page 422 pages. Available in PDF, EPUB and Kindle. Book excerpt: When people suffer from Alzheimer's disease, their family and friends usually must care for them and make decisions on their behalf, tasks that can be emotionally and physically draining. Backed by solid medical information about the specifics of the disease-from early signs, testing, and diagnosis to treatments and long-term care-this comprehensive guide will help family and caregivers alike be better prepared for the unique challenges ahead of them. An invaluable resource, Alzheimer's Disease explains how to cope with the many feelings provoked by the disease and provides practical care advice including ways to communicate and to make life safe and comfortable for the Alzheimer's patient.
