Download or read book Before My Eyes written by Diane Currie and published by iUniverse. This book was released on 2010-03 with total page 90 pages. Available in PDF, EPUB and Kindle. Book excerpt: "Imagine the heart-wrenching devastation that is experienced by a family when a parent is diagnosed with Alzheimer's disease! Author Diane Currie shares her candid and personal reflections about her mother's struggle with this disease as she copes with the reality of the present but always honors the memory of her past. Through a series of moving vignettes, she remains connected with her mother in a creative way as the strong bond between them slowly dissolves as the disease progresses. From the first moment of her mother's diagnosis, Currie conveys in a captivating manner the intense feelings of loss and hopelessness one experiences when dealing with this dreadful disease. She is able to protray the subtle changes in her mother's behavior and personality throughout her decline, all in a deeply human way. While Before My Eyes describes one family's touching and painful journey, in essence Currie's reflective account may typify the Alzheimer's experience, while offering support and validation to all those who walk its arduous path"--Page 4 of cover.

Download or read book Alzheimer s Daughter written by Jean Lee and published by Createspace Independent Publishing Platform. This book was released on 2015-01-16 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: What would you do if both parents were diagnosed with Alzheimer's?At the time of their diagnosis, Ed Church struggles to his feet, yelling, "How dare you use the A. word with me," while Ibby wags her finger at the doctor scolding, "Shame on you."They protect each other, Ibby by asserting, "We're not leaving our home," and Ed reassuring, "We're just fine."About his driving Ed defends, "I'm an excellent driver, I've never had an accident." When their daughter, Rosie, finds dings in Ed's car, he dismisses, "Someone must have bumped into me."After Rosie moves them to assisted living, convinced they are on a second honeymoon, they break the news, "We've decided not to have more children."In the late stages, they politely shake Rosie's hand, inquiring, "Now, who are you?"In ALZHEIMER'S DAUGHTER readers journey with Rosie Church from her first suspicions that something is awry to nearly a decade later as she is honored to hold Ed and Ibby's hands when they draw their final breaths.

Download or read book I Will Never Forget written by Elaine C. Pereira and published by iUniverse. This book was released on 2014 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver

Download or read book Measure of the Heart written by Mary Ellen Geist and published by Grand Central Publishing. This book was released on 2008-08-13 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mary Ellen Geist decided to leave her job as a CBS Radio anchor to return home to Michigan when her father's Alzheimer's got to be too much for her mother to shoulder alone. She chose to live her life by a different set of priorities: to be guided by her heart, not by outside accomplishment and recognition. The New York Times wrote a front page story on Mary Ellen on Thanksgiving 2005. It was one of the most e-mailed stories for the month. Through her own story and through interviews with doctors and other women who've followed the "Daughter Track"--leaving a job to care for an aging parent--Geist offers emotional insights on how to encourage interaction with the loved one you're caring for; how to determine daily tasks that are achievable and rewarding; how the personality of the patient affects the caregiving and the progression of the diseases; as well as invaluable advice about how caregivers can take care of themselves while accomplishing the Herculean task of constantly caring for others. Geist's years in journalism allow her to report on Boomers' caretaking dilemmas with professional objectivity, and her warm voice brings compassion and insight to one of the most difficult stituations a son or daughter may face during his or her life.

Download or read book Making an Exit written by Elinor Fuchs and published by Plunkett Lake Press. This book was released on 2019-08-17 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Just before World War II, “Lil” escaped a miserable marriage in Cleveland, Ohio, took back her maiden name, left her young daughter Elinor behind, and launched what became an international business career. Rejoining Lil at the age of ten, Elinor watched as her mother gave fabulous parties, sold automotive parts in South America, Asia, and the Middle East, and “in any given room, took up all the air there was.” With her stunning looks, high intelligence, and drive for adventure, Lil was more a figure to admire than a mother to love. Making an Exit is the account of what happened after Lil was diagnosed with Alzheimer’s. As the disease progresses, Elinor becomes her mother’s mother, caring for her with growing compassion. Lil changes, too: filled with new warmth, the word “love” now regularly crosses her lips. And despite the disintegration of Lil’s mind and language, mother and daughter make a surprising new start. “In this moving memoir of mother-daughter love only strengthened by Alzheimer’s, Elinor Fuchs brilliantly pulls off the nearly impossible feat of reproducing on the page the living voice of dementia, a masterly achievement.” — Alix Kates Shulman, author of A Good Enough Daughter and To Love What Is “How many dementia caregivers find themselves laughing and crying at the same time? This is the book for us. Making an Exit is Elinor Fuchs's sparkling gift basket to those who help, or may someday help, someone with severe cognitive impairment. A theater professor and drama critic, Fuchs describes the strange, heroic ten-year ‘Emergency’ of caring for her single mom, Lil-- a glamorously eccentric businesswoman--with irrepressible vitality, generosity, forthrightness, and love.” —Margaret Morganroth Gullette, author of Aged by Culture and Agewise “Unflinchingly honest, open-hearted, and funny, this is a work of passionate intelligence and deep humanity.” — Joyce Antler, author of The Journey Home: How Jewish Women Shaped Modern America and You Never Call, You Never Write! A History of the Jewish Mother “Fuchs celebrates the richness and folly of life and language in this loving and often funny tribute to her nonconformist mother... Never mawkish, this is a tender tale of an idiosyncratic, independent woman and her daughter’s reluctant love.” — Publishers Weekly “This book was a joy to read. It felt as if I were reading a well-written script, part drama and part comedy” — Daniel Kuhn, American Journal of Alzheimer’s Disease and Other Dementias “Making an Exit makes you cry and laugh and think. It takes you into deep disturbances of memory and history and brings you back with compassion and love. No other memoir of dementia combines the trials of caregiving and the painful, yet necessary growth of self knowledge.” — Thomas R. Cole, author of The Journey of Life: A Cultural History of Aging in America “In Making an Exit Elinor Fuchs leaves readers with an understanding of growing older in America today, where filial generosity, enduring resilience, heartfelt ambivalence, and undiminished humor shine through the most vulnerable experiences of decline.” —Stephen Katz, author of Cultural Aging: Life Course, Lifestyle, and Senior Worlds and Professor of Sociology, Trent University, Canada “For millions of sufferers and their families, Alzheimer’s is a bleak and arduous experience. Yet Fuchs’s unsentimental and often wry memoir should help them by showing that though there are certainly dark and precipitous times near the end, a life examined with totality and compassion can make that eventual end an experience not only of tragedy but dignified fulfillment.” — Michael Standaert, Los Angeles Times “Making an Exit is a rare and wonderful rollercoaster of a book, tender and touching, hilarious and high-spirited - a moving portrait of a daughter and mother that is fiercely intelligent, ineffably sad, and, finally, transcendent.” — Kathleen Woodward, author of Aging and its Discontents “Fuchs’s mother is larger than life in both her salad days and in her days of word salad. Making an Exit overflows with life — its sorrows and surprises, its follies and joys.” — Anne Basting, author of Forget Memory and editor of Playing Penelope: An Arts-Based Odyssey to Change Long-Term Care “Tremendous... A book filled with unexpected glimmers of hope, wisdom, and joy... Fuchs possesses a delightfully wicked sense of humor and a sharp eye for the quirky detail. Fuchs [employs] a deft and efficient prose style, one akin to Augusten Burroughs, David Sedaris, and Anne Lamott.” — Greg Changnon, The Atlanta Journal-Constitution “Elinor’s mother Lil is a larger than life character who needs her daughter’s help to make an exit from life’s stage. While Elinor is burdened by her mother’s dementia, she is also uplifted by its possibilities for a late-blooming relationship. Dementia is ripe for social reconstruction, and Fuchs gives us hope with stories that reframe the challenge of cognitive loss in terms of loving relationship. Read this book, find deep humanity, and enrich yours.” — Peter Whitehouse, M.D., author of The Myth of Alzheimer’s and Professor of Neurology, Case Western Reserve University

Download or read book Always My Grandpa written by Linda Scacco and published by . This book was released on 2005-10-01 with total page 48 pages. Available in PDF, EPUB and Kindle. Book excerpt: Gentle narration and easy-to-understand explanations follow Daniel and his family as they experience the gradual, debilitating effects of his grandfather's Alzheimer's Disease. Simultaneous.

Download or read book Floating in the Deep End How Caregivers Can See Beyond Alzheimer s written by Patti Davis and published by Liveright Publishing. This book was released on 2021-09-28 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

Download or read book Inside the Dementia Epidemic written by Martha Stettinius and published by Dundee-Lakemont Press. This book was released on 2012-07-23 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index.

Download or read book Losing Mom written by Cynthia Ryan and published by iUniverse. This book was released on 2014 with total page 211 pages. Available in PDF, EPUB and Kindle. Book excerpt: Author Cynthia Ryan offers a heartfelt glimpse into the experience of losing a parent to Alzheimer's disease. She shares the realities and heartbreak of her mother's experience, one that was both enhanced and complicated by their complex mother-daughter relationship and family dynamics. Shy and distant, but also independent, her mother didn't often find joy in the roles of wife and mother. The trials of a scarred childhood, marked by poverty and an alcoholic father, made true happiness elusive for her mother. On Christmas Eve of 2000, Cynthia started to see noticeable changes in her mother. A devoted grandmother, she had never forgotten to buy presents for one of her grandchildren-until that day. What's more, she spent the day pouting, because the family was celebrating Christmas one day early. Over the coming months, her behavior grew increasingly erratic and forgetful; she became agitated more and more easily. Cynthia finally took her mother to the doctor, where everyone's worst fears were confirmed: Alzheimer's. In this memoir, Cynthia shares their journey of understanding, forgiveness, blessings, healing, and renewed love. She celebrates her mother's life, even as it spiraled out of her control.

Download or read book Death in Slow Motion written by Eleanor Cooney and published by Harper Collins. This book was released on 2013-02-26 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: A raw, unsentimental and passionately written memoir about trying to care for a parent with Alzheimer’s When her once-glamorous and witty novelist-mother got Alzheimer's, Eleanor Cooney moved her from her beloved Connecticut home to California in order to care for her. In tense, searing prose, punctuated with the blackest of humor, Cooney documents the slow erosion of her mother's mind, the powerful bond the two shared, and her own descent into drink and despair. But the coping mechanism that finally serves this eloquent writer best is writing, the ability to bring to vivid life the memories her mother is losing. As her mother gropes in the gathering darkness for a grip on the world she once loved, succeeding only in conjuring sad fantasies of places and times with her late husband, Cooney revisits their true past. Death in Slow Motion becomes the mesmerizing story of Eleanor's actual childhood, straight out of the pages of John Cheever; the daring and vibrant mother she remembers; and a time that no longer exists for either of them.

Download or read book The Little Girl in the Radiator written by Martin Slevin and published by . This book was released on 2010 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: The story of one man's attempt to understand Alzheimer's disease as its progression slowly changed the personality of his mother. This is the hillariously funny, and often heart-breakingly sad story of a family's fight against dementia. A tale of love, joy, humanity and despair that will make you want to laugh and cry at the same time. This true story is full of wonderful characters, the Whistling Woman, who never said a word, Captain John,who thought he lived on a boat, the little man in the red bandana who had just had his brain cleaned, the Irish Band that lived in the house, and of course, the Little Girl in the Radiator, whose special secret was the key to the whole mystery. Over 25 million people in the world have dementia, and if each one has only three other family members who try to take care of them, then over 100 million people are directly or indirectly affected by a disease no-one fully understands. This book is for anyone who has an elderly relative.

Download or read book Alzheimer s Caregiver a Daughter s Story written by Dr. Marian Tally Simmons Brown and published by iUniverse. This book was released on 2024-07-01 with total page 125 pages. Available in PDF, EPUB and Kindle. Book excerpt: Marian Tally Simmons Brown served as her mother’s caretaker for ten years as she suffered through Alzheimer’s disease. In Alzheimer’s Caregiver—a Daughter’s Story, Brown offers a true-to-life account of the family’s struggle to accept an Alzheimer's diagnosis for their wife, mother, and grandmother, and it tells of their determination to keep her in the family home for all her natural days. During this time, Brown undergoes a monumental spiritual and psychological metamorphosis. While her mother’s change is decline of all bodily systems, hers is development of skills to help her function more effectively in her new role and ultimately move closer to fulfilling her ordained life plan. Help comes through CNAs, sitters, even strangers who unexpectedly show up in parking lots and on her job with an encouraging word and in restaurants offering extra pairs of hands to help with her parents. In this memoir, Brown tells how her caregiving role taught her many lessons. Toward the end of her tenth year, she reasoned the greatest accomplishment of motherhood is being in the midst of the family circle; it was from there her mother continued to teach her despite the loss of parts of herself.

Download or read book Flying To The Moon A Mother and Daughter s Journey Through Alzheimer s written by Jennifer Blackmore and published by BookLocker.com, Inc.. This book was released on 2012-07-15 with total page 98 pages. Available in PDF, EPUB and Kindle. Book excerpt: FLYING TO THE MOON: A Mother and Daughter's Journey Through Alzheimer's tells of the enduring devotion of a daughter and her beloved mother, their lives imperiled by an abusive marriage and a debilitating disease. As Ivy's awareness diminishes and Jennifer's marriage unravels, they come together to embrace a new reality accentuated by poetry, piano duets and their celebration of the nonsensical. Once a self-reliant single mother in control of her life, Jennifer returns to her art and discovers a newfound confidence and direction, her mother resolute in support despite the ravages of Alzheimer's. Set in vibrant, multicultural Miami, this affectionate account of a mother and her daughter's journey touches on universal themes of loss, survival and empowerment. Poignant, honest and inspiring, Flying to the Moon offers hope to everyone affected in some way by this tragic affliction.

Download or read book Finding Life in the Land of Alzheimer s written by Lauren Kessler and published by National Geographic Books. This book was released on 2008-05-27 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "An excellent book…an emotional and ruminative anchor...She leaves her readers with hope.”-- San Francisco Chronicle One journalist's riveting and surprisingly hopeful in-the-trenches view of Alzheimer's Nearly five million people in the United States are living with Alzheimer's. Like many children of Alzheimer's sufferers, Lauren Kessler, an accomplished journalist, was devastated by the disease that seemed to erase her mother's identity even before claiming her life. But suppose people with Alzheimer's are not slates wiped blank. Suppose they experience friendship and loss, romance and jealousy, joy and sorrow? To better understand this debilitating condition, Kessler enlists as a bottom-of-the-rung caregiver at an Alzheimer's facility and learns lessons that challenge what we think we know about the disease. A compelling, clear-eyed, and emotionally resonant narrative, Finding Life in the Land of Alzheimer's offers a new optimistic look at what the disease can teach us and a much-needed tonic for those faced with providing care for someone they love. Previously published as Dancing With Rose.

Download or read book My Mom My Hero written by Lisa R. Hirsch and published by . This book was released on 2012-03-25 with total page 200 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 Amazon Best Seller in Memoirs category (June 2013) #7 Amazon Best Seller in Dementia (June 2013) #3 Amazon's "Most Wished For" in Dementia Category (June 2013) A Daughter's Newfound Love When Lisa Hirsch found out her mother, Ruth, had been diagnosed with Alzheimer's disease, her love, appreciation, and caring for her mother was transformed. To Lisa's surprise, it has brought her and Ruth closer together than they've ever been. My Mom My Hero tells the story of this mother-daughter relationship through a series of entries from Lisa's internationally popular blog. Ultimately this is an uplifting and inspirational book for anyone who's going through the difficult and often lonely ordeal of caring for a loved one who suffers from this devastating illness. "My Mom My Hero is filled with love and a deep appreciation for the human spirit." -Laura Stein, best-selling author "This book is a rare gift for anyone who reads it." -Holly Robinson, author of Sleeping Tigers and The Wishing Hill "My Mom My Hero is a light of inspiration in a world that can be dark and frustrating." -Franz Wisner, New York Times best-selling author of Honeymoon With My Brother and How the World Makes Love

Download or read book Shared Stories from Daughters of Alzheimer s written by Kathleen Adams and published by iUniverse. This book was released on 2004-01-04 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Shared Stories from Daughters of Alzheimer's is a support group in print for those escorting a loved one on the Alzheimer's journey. Nine women map the passage of a parent through Alzheimer's disease, describing the evolution of their own emotional responses to the disease and the changes it effects in the patient and in her relationship with family members. The book invites the reader to take a first step in healing from Alzheimer's ripple effect by beginning to journal about the experience. "Use the stories here as tools to understand your own painful situation. Employ them to help you empower yourself, sort through your emotions and begin to heal. Seize upon that which makes sense to you and disregard that which seems irrelevant. Then, pick up your favorite pen and notebook and 'talk' about what is going on in your journey with Alzheimer's disease. We wish you well." -Persis Granger, Editor, Shared Stories from Daughters of Alzheimer's "An enthralling, ambitious and much-needed effort...most definitely the sort of work on Alzheimer's that needs to get public notice." -Karla Morales, People's Medical Society

Download or read book The Inheritance written by Niki Kapsambelis and published by Simon and Schuster. This book was released on 2017-03-07 with total page 407 pages. Available in PDF, EPUB and Kindle. Book excerpt: This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.