Download or read book I Will Never Forget written by Elaine C. Pereira and published by iUniverse. This book was released on 2014 with total page 283 pages. Available in PDF, EPUB and Kindle. Book excerpt: It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver
Download or read book Alzheimer s Daughter written by Jean Lee and published by Createspace Independent Publishing Platform. This book was released on 2015-01-16 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: What would you do if both parents were diagnosed with Alzheimer's?At the time of their diagnosis, Ed Church struggles to his feet, yelling, "How dare you use the A. word with me," while Ibby wags her finger at the doctor scolding, "Shame on you."They protect each other, Ibby by asserting, "We're not leaving our home," and Ed reassuring, "We're just fine."About his driving Ed defends, "I'm an excellent driver, I've never had an accident." When their daughter, Rosie, finds dings in Ed's car, he dismisses, "Someone must have bumped into me."After Rosie moves them to assisted living, convinced they are on a second honeymoon, they break the news, "We've decided not to have more children."In the late stages, they politely shake Rosie's hand, inquiring, "Now, who are you?"In ALZHEIMER'S DAUGHTER readers journey with Rosie Church from her first suspicions that something is awry to nearly a decade later as she is honored to hold Ed and Ibby's hands when they draw their final breaths.
Download or read book Alzheimer s Caregiver a Daughter s Story written by Dr. Marian Tally Simmons Brown and published by iUniverse. This book was released on 2024-07-01 with total page 125 pages. Available in PDF, EPUB and Kindle. Book excerpt: Marian Tally Simmons Brown served as her mother’s caretaker for ten years as she suffered through Alzheimer’s disease. In Alzheimer’s Caregiver—a Daughter’s Story, Brown offers a true-to-life account of the family’s struggle to accept an Alzheimer's diagnosis for their wife, mother, and grandmother, and it tells of their determination to keep her in the family home for all her natural days. During this time, Brown undergoes a monumental spiritual and psychological metamorphosis. While her mother’s change is decline of all bodily systems, hers is development of skills to help her function more effectively in her new role and ultimately move closer to fulfilling her ordained life plan. Help comes through CNAs, sitters, even strangers who unexpectedly show up in parking lots and on her job with an encouraging word and in restaurants offering extra pairs of hands to help with her parents. In this memoir, Brown tells how her caregiving role taught her many lessons. Toward the end of her tenth year, she reasoned the greatest accomplishment of motherhood is being in the midst of the family circle; it was from there her mother continued to teach her despite the loss of parts of herself.
Download or read book Heeding the Caregiver Call written by Dr. Barbara Ella Milton Jr. and published by Xlibris Corporation. This book was released on with total page 355 pages. Available in PDF, EPUB and Kindle. Book excerpt: In the fall of 2015, Barbara Sr. called her only child to ask for her help. Unbeknownst to her family, Barbara Sr. was already in the grips of Alzheimer’s. This book tells the story of Barbara Jr.’s journey as her mother’s caregiver and shares insights into the physical, emotional, financial, and spiritual impacts of caregiving while fighting her own cancer. It also provides practical information to others who assume caregiving roles for their loved ones. Follow this mother and daughter’s journey through resentments and regrets, forgiveness and faith, laughter and love. Barbara Jr. promised her mother on her deathbed that she would tell her story. Here it is.
Download or read book Inside the Dementia Epidemic written by Martha Stettinius and published by Dundee-Lakemont Press. This book was released on 2012-07-23 with total page 400 pages. Available in PDF, EPUB and Kindle. Book excerpt: One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index.
Download or read book Measure of the Heart written by Mary Ellen Geist and published by Grand Central Publishing. This book was released on 2008-08-13 with total page 169 pages. Available in PDF, EPUB and Kindle. Book excerpt: Mary Ellen Geist decided to leave her job as a CBS Radio anchor to return home to Michigan when her father's Alzheimer's got to be too much for her mother to shoulder alone. She chose to live her life by a different set of priorities: to be guided by her heart, not by outside accomplishment and recognition. The New York Times wrote a front page story on Mary Ellen on Thanksgiving 2005. It was one of the most e-mailed stories for the month. Through her own story and through interviews with doctors and other women who've followed the "Daughter Track"--leaving a job to care for an aging parent--Geist offers emotional insights on how to encourage interaction with the loved one you're caring for; how to determine daily tasks that are achievable and rewarding; how the personality of the patient affects the caregiving and the progression of the diseases; as well as invaluable advice about how caregivers can take care of themselves while accomplishing the Herculean task of constantly caring for others. Geist's years in journalism allow her to report on Boomers' caretaking dilemmas with professional objectivity, and her warm voice brings compassion and insight to one of the most difficult stituations a son or daughter may face during his or her life.
Download or read book Caring for Mother written by Virginia Stem Owens and published by Westminster John Knox Press. This book was released on 2007-06-04 with total page 179 pages. Available in PDF, EPUB and Kindle. Book excerpt: In Caring for Mother, Virginia Stem Owens gives a clear and realistic account of caring for an elderly loved one. Along the way, Owens notes the spiritual challenges she encountered, not the least of which included fear of her own suffering and death. This book will be a helpful companion to those who have recently assumed the role of caregiver, helping them anticipate some of the emotional turbulence they will encounter along the way.
Download or read book The Language of Time written by Ashley Bendiksen and published by . This book was released on 2020-06-12 with total page 336 pages. Available in PDF, EPUB and Kindle. Book excerpt: "My mother developed Alzheimer's at just 48. It didn't make any sense. Worse, there was no cure and no timeline. I became a caregiver overnight, endlessly aware of a heartbreaking new reality - tomorrow was no longer guaranteed. I needed to somehow slow down time, to find answers, to create a miracle (while still managing my own life as a woman in my 20s). At the very least, I had to do my best to capture it all before time ran out - archiving memories and learning all I could about courage, how to live, and how to love." Combining journal entries with transcribed conversations and emotive storytelling, The Language of Time is a real and honest expression of one daughter's sudden and unplanned journey as caregiver. It's a story of hope, strength, courage, and the unbreakable bond between a daughter and her mom. It's a story of womanhood, without the guidance of a mother. And it's a poignant reminder of the ever-passing moments of time with those we love. The Language of Time is a breakthrough memoir that will be appreciated by those who have been touched by caregiving, Alzheimer's/dementia, terminal illness, hospice, or loss of a parent. It shines a light on the unique circumstances of early onset Alzheimer's, and fulfilling the role of caregiver as a young adult. It's also filled with stories of facing life's challenges, love, family, gratitude, personal growth, and self-discovery.
Download or read book Floating in the Deep End How Caregivers Can See Beyond Alzheimer s written by Patti Davis and published by Liveright Publishing. This book was released on 2021-09-28 with total page 185 pages. Available in PDF, EPUB and Kindle. Book excerpt: With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.
Download or read book Making an Exit written by Elinor Fuchs and published by Plunkett Lake Press. This book was released on 2019-08-17 with total page 136 pages. Available in PDF, EPUB and Kindle. Book excerpt: Just before World War II, “Lil” escaped a miserable marriage in Cleveland, Ohio, took back her maiden name, left her young daughter Elinor behind, and launched what became an international business career. Rejoining Lil at the age of ten, Elinor watched as her mother gave fabulous parties, sold automotive parts in South America, Asia, and the Middle East, and “in any given room, took up all the air there was.” With her stunning looks, high intelligence, and drive for adventure, Lil was more a figure to admire than a mother to love. Making an Exit is the account of what happened after Lil was diagnosed with Alzheimer’s. As the disease progresses, Elinor becomes her mother’s mother, caring for her with growing compassion. Lil changes, too: filled with new warmth, the word “love” now regularly crosses her lips. And despite the disintegration of Lil’s mind and language, mother and daughter make a surprising new start. “In this moving memoir of mother-daughter love only strengthened by Alzheimer’s, Elinor Fuchs brilliantly pulls off the nearly impossible feat of reproducing on the page the living voice of dementia, a masterly achievement.” — Alix Kates Shulman, author of A Good Enough Daughter and To Love What Is “How many dementia caregivers find themselves laughing and crying at the same time? This is the book for us. Making an Exit is Elinor Fuchs's sparkling gift basket to those who help, or may someday help, someone with severe cognitive impairment. A theater professor and drama critic, Fuchs describes the strange, heroic ten-year ‘Emergency’ of caring for her single mom, Lil-- a glamorously eccentric businesswoman--with irrepressible vitality, generosity, forthrightness, and love.” —Margaret Morganroth Gullette, author of Aged by Culture and Agewise “Unflinchingly honest, open-hearted, and funny, this is a work of passionate intelligence and deep humanity.” — Joyce Antler, author of The Journey Home: How Jewish Women Shaped Modern America and You Never Call, You Never Write! A History of the Jewish Mother “Fuchs celebrates the richness and folly of life and language in this loving and often funny tribute to her nonconformist mother... Never mawkish, this is a tender tale of an idiosyncratic, independent woman and her daughter’s reluctant love.” — Publishers Weekly “This book was a joy to read. It felt as if I were reading a well-written script, part drama and part comedy” — Daniel Kuhn, American Journal of Alzheimer’s Disease and Other Dementias “Making an Exit makes you cry and laugh and think. It takes you into deep disturbances of memory and history and brings you back with compassion and love. No other memoir of dementia combines the trials of caregiving and the painful, yet necessary growth of self knowledge.” — Thomas R. Cole, author of The Journey of Life: A Cultural History of Aging in America “In Making an Exit Elinor Fuchs leaves readers with an understanding of growing older in America today, where filial generosity, enduring resilience, heartfelt ambivalence, and undiminished humor shine through the most vulnerable experiences of decline.” —Stephen Katz, author of Cultural Aging: Life Course, Lifestyle, and Senior Worlds and Professor of Sociology, Trent University, Canada “For millions of sufferers and their families, Alzheimer’s is a bleak and arduous experience. Yet Fuchs’s unsentimental and often wry memoir should help them by showing that though there are certainly dark and precipitous times near the end, a life examined with totality and compassion can make that eventual end an experience not only of tragedy but dignified fulfillment.” — Michael Standaert, Los Angeles Times “Making an Exit is a rare and wonderful rollercoaster of a book, tender and touching, hilarious and high-spirited - a moving portrait of a daughter and mother that is fiercely intelligent, ineffably sad, and, finally, transcendent.” — Kathleen Woodward, author of Aging and its Discontents “Fuchs’s mother is larger than life in both her salad days and in her days of word salad. Making an Exit overflows with life — its sorrows and surprises, its follies and joys.” — Anne Basting, author of Forget Memory and editor of Playing Penelope: An Arts-Based Odyssey to Change Long-Term Care “Tremendous... A book filled with unexpected glimmers of hope, wisdom, and joy... Fuchs possesses a delightfully wicked sense of humor and a sharp eye for the quirky detail. Fuchs [employs] a deft and efficient prose style, one akin to Augusten Burroughs, David Sedaris, and Anne Lamott.” — Greg Changnon, The Atlanta Journal-Constitution “Elinor’s mother Lil is a larger than life character who needs her daughter’s help to make an exit from life’s stage. While Elinor is burdened by her mother’s dementia, she is also uplifted by its possibilities for a late-blooming relationship. Dementia is ripe for social reconstruction, and Fuchs gives us hope with stories that reframe the challenge of cognitive loss in terms of loving relationship. Read this book, find deep humanity, and enrich yours.” — Peter Whitehouse, M.D., author of The Myth of Alzheimer’s and Professor of Neurology, Case Western Reserve University
Download or read book Finding Life in the Land of Alzheimer s written by Lauren Kessler and published by National Geographic Books. This book was released on 2008-05-27 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: "An excellent book…an emotional and ruminative anchor...She leaves her readers with hope.”-- San Francisco Chronicle One journalist's riveting and surprisingly hopeful in-the-trenches view of Alzheimer's Nearly five million people in the United States are living with Alzheimer's. Like many children of Alzheimer's sufferers, Lauren Kessler, an accomplished journalist, was devastated by the disease that seemed to erase her mother's identity even before claiming her life. But suppose people with Alzheimer's are not slates wiped blank. Suppose they experience friendship and loss, romance and jealousy, joy and sorrow? To better understand this debilitating condition, Kessler enlists as a bottom-of-the-rung caregiver at an Alzheimer's facility and learns lessons that challenge what we think we know about the disease. A compelling, clear-eyed, and emotionally resonant narrative, Finding Life in the Land of Alzheimer's offers a new optimistic look at what the disease can teach us and a much-needed tonic for those faced with providing care for someone they love. Previously published as Dancing With Rose.
Download or read book Breakfast Memories written by Kate Hanley and published by Green Place Books. This book was released on 2019-08-06 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Breakfast Memories is the story of a daughter's journey through her mom's dementia and her discovery of the power of memories stored in the soul. What prompted me to begin writing this book was the discovery of a pile of paper napkins that had been tucked away in a drawer on which my dad had written morning love poems to my mom. Every morning he placed one next to the breakfast that he had prepared for her. I found these napkins after my dad had died and my mom was in failing health at a local nursing home. The discovery of the napkins (sonnets) and sharing them with my mother was what brought her back from the darkness and despair of dementia.
Download or read book Finding the Right Words written by Cindy Weinstein and published by JHU Press. This book was released on 2021-09-07 with total page 209 pages. Available in PDF, EPUB and Kindle. Book excerpt: "This memoir tells the story of a man's deterioration from Alzheimer disease from two perspectives. His daughter, an English professor at Caltech, describes her father's dementia, using her expertise in language and literature as a way to frame his loss of words, spatial orientation, identity, behavioral decorum, and memory. The physician, an academic neurologist at the University of California at San Francisco, explains the science behind Alzheimer disease using his expertise in neurology, articulating to a general audience how dementia assaults the brain"--
Download or read book I Love You Who Are You written by Along The Way Press and published by . This book was released on 2011-10-27 with total page 288 pages. Available in PDF, EPUB and Kindle. Book excerpt:
Download or read book The Alzheimer s Action Plan written by P. Murali Doraiswamy and published by Macmillan. This book was released on 2009-04-28 with total page 500 pages. Available in PDF, EPUB and Kindle. Book excerpt: Leading experts from Duke University provide the cutting-edge information that every family affected by Alzheimer's needs--from the benefits of early detection to prolonging quality of life.
Download or read book Shared Stories from Daughters of Alzheimer s written by Persis Granger and published by iUniverse. This book was released on 2004 with total page 164 pages. Available in PDF, EPUB and Kindle. Book excerpt: Shared Stories from Daughters of Alzheimer's is a support group in print for those escorting a loved one on the Alzheimer's journey. Nine women map the passage of a parent through Alzheimer's disease, describing the evolution of their own emotional responses to the disease and the changes it effects in the patient and in her relationship with family members. The book invites the reader to take a first step in healing from Alzheimer's ripple effect by beginning to journal about the experience. "Use the stories here as tools to understand your own painful situation. Employ them to help you empower yourself, sort through your emotions and begin to heal. Seize upon that which makes sense to you and disregard that which seems irrelevant. Then, pick up your favorite pen and notebook and 'talk' about what is going on in your journey with Alzheimer's disease. We wish you well." --Persis Granger, Editor, Shared Stories from Daughters of Alzheimer's "An enthralling, ambitious and much-needed effort...most definitely the sort of work on Alzheimer's that needs to get public notice." --Karla Morales, People's Medical Society
Download or read book Finding the Light in Dementia written by Jane M Mullins and published by Duetcare. This book was released on 2017-12 with total page 226 pages. Available in PDF, EPUB and Kindle. Book excerpt: 'Finding the Light in Dementia: a guide for families, friends and caregivers' is an essential book that explains common changes that can occur in those living with dementia. By offering valuable approaches, tips and suggestions interspersed with individuals' stories, the reader can learn to care for and maintain a connection with their loved one (care partner). Whether you're a spouse, partner, daughter, son, sibling, friend or even a parent caring for a loved one living with dementia, this book is for you. Finding the Light in Dementia will help give you more confidence to care by: Supporting you through your partner's diagnosis of dementia Helping you understand what your partner is experiencing Teaching you ways to communicate and connect with each other Helping you make subtle changes to your home to help your partner feel safe and content Introducing practical and creative ways to stimulate memories to help with day to day living Showing you how to create lifestories together Suggesting ways to keep your partner interested and engaged in meaningful activities Providing tips for sleeping, eating and drinking Suggesting ways to help your partner with their appearance and dignity Showing you ways of overcoming the challenges of changing behaviour, reactions and responses Helping reduce the effects of hallucinations, delusions and misperceptions Suggesting ways for you to care for yourself Involving families and friends Giving advice when considering professional care at home and in residential care Knowing how tired and stressed you may feel, 'Finding the Light in Dementia' is written in bite sized chunks that makes it easy to follow. By giving you space to write down any points you would like to make and providing question sheets for you to refer to when speaking with your doctor and/or legal professionals you can make this your personal guide. When following the approaches in this book, you should find that your partner will feel more understood and you will become calmer thereby helping you both find a sense of connection and continue to live well.