Download or read book Understanding Sickle Cell Disease written by Miriam Bloom and published by Univ. Press of Mississippi. This book was released on 2009-10-20 with total page 137 pages. Available in PDF, EPUB and Kindle. Book excerpt: Although more is known about sickle cell disease than about any other inherited disease, no cure for it exists. In America alone, about one in 375 who are of African ancestry is born with sickle cell disease. A smaller number of Americans descended from families from the Mediterranean area, the Middle East, and India also are affected. In addition, about eight percent of black Americans who do not suffer from the disease itself carry the gene for it that can be transmitted to their children. Sickle cell disease is of enormous biological, social, and historic importance. It was first described in medical literature almost a century ago. Improvements during the past two decades in our understanding of the disease and in medical care are permitting those afflicted to live longer, more comfortable and more productive lives. This book was written for all who are interested in this disease--those who have it, their families, the carriers of the sickle cell gene, teachers, and those who wish to update their information about it. This overview of sickle cell disease explains what it is and how it is inherited, as well as the relationship between the sickle cell gene and its geographic origins, the way the gene has been spread throughout history, and the effect of sickle cell hemoglobin on red blood cells that carry it. Understanding Sickle Cell Disease describes the variety of symptoms in both children and adults and details the emotional aspects of the disease. Of particular interest is a chapter on the care, especially the home care, of those who are affected. This book explains how it is possible today for couples carrying the genes to raise families free of the disease. Although there is no known cure for sickle cell disease, there is little doubt that one will ultimately be devised. This volume surveys current research efforts and the promise they hold.
Download or read book Sickle Cell Anemia written by Carol Dominguez and published by Xlibris Corporation. This book was released on 2017-12-26 with total page 44 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book tells her story about herself and her experiences in parenting a child with sickle cell anemia. Her daughter, Penny, was born with sickle cell anemia and is now a thirty-four-year-old mom of one six-year-old son, Diyaari. Despite their challenges, they have lived a happy and comfortable life and will continue to do so for many more years. (Angie and Penny together forever). The author is also known as Angie, her grandmothers name. This book is just a sneak peek into information and my experiences with sickle cell.
Download or read book ABC s of Sickle Cell Disease written by Elle Cole and published by Cleverly Changing Press. This book was released on 2021-04-15 with total page 56 pages. Available in PDF, EPUB and Kindle. Book excerpt: ABC's of Sickle Cell Disease is a top educational resource for children with sickle cell disease. Parents, caregivers, and healthcare workers should have the book on hand to help explain how the condition works within a child's body. A recommended children's book for ages 5-12. It breaks down terms and concepts for children diagnosed with Sickle Cell Disease (SCD). The author simplified the information so even a child could understand how this genetic blood disorder affects the body. The book is an excellent tool for parents, teachers, healthcare workers, or caregivers to teach children.healthcare workers ABC'S OF SICKLE CELL DISEASE FEATURES: Beautiful original illustrations―Children learn more about Sickle Cell Disease using the letters A to Z. Large 8.5 x 11-inch pages. Educational and interesting―Each page effectively describes the blood disorder to young patients. Made for diverse families―The pages feature children, adults, and medical professionals from different ethnic groups because sickle cell disease affects families from multicultural backgrounds worldwide. Positive and inspiring―The book is a positive keepsake that gives young sickle cell warriors a chance to boost their confidence and creativity.
Download or read book A Sickle Cell Coloring Book For Kids A Creative A to Z Guide on Growing Up with Sickle Cell Disease for Children Ages 6 8 With Over 26 Coloring Pages written by Kate Hamernik and published by . This book was released on 2020-05-20 with total page 62 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Sickle Cell Coloring book for Kids was written for children ages 4-8. Itis an educational resource for parents, caregivers, and children. The book breaksdown terms and concepts for children who were diagnosed with sickle celldisease (SCD). When raising achild with a genetic disorder such as SCD there is so much to learn, so theauthor simplified the information so even a child could understand how thisgenetic blood disorder affects the body. The coloring book is great tool forparents or caregivers to color along with the child. ASickle Cell Coloring Book for Kids Features Beautifuloriginal illustrations―Over 26 coloring pages from the letter A to Z all related to caringfor a child with blood disorders. Large 8.5 x 11 inch pages, easy to color forkids Educationaland fun―Each pageis an effective and fun-filled way to relax and reduce stress while coloring. Suitable for coloring with pencils, crayons, and gel pens Madefor diverse families―The coloring pagesfeature children, adults, and medical professionals from different ethnicgroups because sickle cell disease affects families from multicultural backgroundsall over the world. Positiveand inspiring―The book is a positivekeepsake that gives young sickle cell warriors a chance to boost theirconfidence and creativity.
Download or read book Sickle Cell Disease written by Mark T. Gladwin and published by McGraw Hill Professional. This book was released on 2021-01-05 with total page 715 pages. Available in PDF, EPUB and Kindle. Book excerpt: The most comprehensive, current sickle cell disease resource—for both clinicians and researchers A Doody's Core Title for 2023! The first and only resource of its kind, Sickle Cell Disease examines this blood disorder through both clinical and research lenses. More than 80 dedicated experts in the field present their combined clinical knowledge of basic mechanisms, screening, diagnosis, management, and treatment of myriad complex complications of a single base point mutation in the human genome. Case studies with “How I Treat” authoritative insights provide overviews of common and rare complications, and Key Facts offer at-a-glance high-yield information. Filled with clinical photos, illustrations, numerous original diagrams, and with free updates available online, this unmatched resource covers: Mechanisms of sickle cell disease Historic and current research approaches The latest work in gene therapy and editing Guidelines for patient care, diagnosis, unique cases, and therapies Rare and common complications, including domestic and internationally relevant topics Psychosocial and supportive care The newest standards of therapy and future treatment options in children and adults Cardiopulmonary complications
Download or read book The Adventures of the Sickler written by Parker Todd and published by . This book was released on 2017-09-12 with total page pages. Available in PDF, EPUB and Kindle. Book excerpt: In The Adventures of the Sickler, the main character, Chase Parker, displays how strong and fearless he is while battling a life threatening disease. Readers will take a fast ride as Chase Parker transforms into a superhero his alter-ego and brightens the day for all sick children in the hospital. Sickle Cell Disease refers to a group of inherited red blood cell disorders. It is the most common genetic disease in the United States. An estimated 70,000-100,000 Americans have sickle cell disease. For more information on Sickle Cell Disease, visit the following link: https: //www.nhlbi.nih.gov/health/health-topics/topics/sca
Download or read book Hope and Destiny written by Allan F. Platt and published by Hilton Publishing. This book was released on 2002 with total page 292 pages. Available in PDF, EPUB and Kindle. Book excerpt: An up-to-date, informative, and personal discussion of sickle-cell anaemia, this guide provides information on medically proven methods of treatment along with patient vignettes. Written primarily for African Americans, who comprise the majority of the victims of sickle-cell anaemia, this handbook for patients and those who live or work with them examines the complex issues that surround this genetic disease. Advice on dealing with the physical suffering, inability to work, quality of life issues, and premature death that affect sickle-cell patients is offered in layman's terms to aid patients and caregivers in making informed decisions.
Download or read book Burning Bright written by Maryam Awaisu and published by iUniverse. This book was released on 2014-11-13 with total page 243 pages. Available in PDF, EPUB and Kindle. Book excerpt: Burning Bright is not a story about statistics, but of an over-achieving young lady, who is determined not to let sickle cell anemia stand in her way. Without notice, difficulties that Nadia Habeeb did not foresee complicate her health and love life, changing everything immensely. With the walls of life itself closing in on her, will she stand conqueror this time? If she does, what will be her fate back home in Nigeria, with a closed-off heart, and physical challenge? This is a story of a family struggling to maintain faith and hope in the face of severe emotional challenges, social upheaval, medical necessity, and the paradox of humanity. Set within the complexities of Nigerian culture, it is the story of young people trying to make their way in a world they didn't make. It is also a story of pain and redemption, of love lost and found, generational conflict, and the emergence of true faith.
Download or read book A Kids Book About Sickle Cell Disease written by Dr Julia Lamotte and published by . This book was released on 2024-04-05 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Sickle cell disease is the most common inherited blood disease in the world. But it hasn't received the funding and research needed to find a cure. Why? Because those who have it tend to be people whose voices have been historically silenced. Learn more about sickle cell disease and then, share what you know. When we are informed, we can work together toward a healthy and more inclusive future for everyone! Core themes in this book: Empathy, Hope, Illness, Prejudice Meet A Kids Co., a new kind of media company with a collection of beautifully designed books that kickstart challenging, empowering, and important conversations for kids and their grownups.
Download or read book Living with Sickle Cell Disease written by Judy Gray Johnson and published by . This book was released on 2012-05-01 with total page 146 pages. Available in PDF, EPUB and Kindle. Book excerpt: Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Download or read book Sickle Cell Disease and Hematopoietic Stem Cell Transplantation written by Emily Riehm Meier and published by Springer. This book was released on 2017-09-19 with total page 337 pages. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive, state-of-the art review of hematopoietic stem cell transplantation (HSCT) for sickle cell disease (SCD). The book reviews new data about risk prediction for severe SCD, outlines the unique challenges of HSCT for patients with SCD, profiles the supportive care guidelines for patients who are undergoing HSCT, highlights our current understanding of the best transfusion support for SCD patients prior to, during and after HSCT, and provides new perspectives about the ethics of HSCT for pediatric patients with SCD. Published in the last few years, several landmark phase III trials that utilize matched unrelated and haploidentical donors for HSCT in SCD patients are also placed in context with respect to current management. Written by experts in the field, Sickle Cell Disease and Hematopoietic Stem Cell Transplantation is a valuable resource for physicians and researchers dealing with and interested in this challenging, yet exciting, curative therapy for sickle cell disease, that will help guide patient management and stimulate investigative efforts.
Download or read book My DNA Diary written by Lisa Mullan and published by . This book was released on 2019-10-31 with total page 58 pages. Available in PDF, EPUB and Kindle. Book excerpt: Have you heard of DNA? There's me, Alina and my three friends. Oh, and lots of cousins. How we live our life affects how you live yours. It's called genetics and this book will show you how it works. A gentle introduction to genes, chromosomes, inheritance, oxygen transport and sickle cell anaemia for 9-12 year-olds.
Download or read book Sickle Cell Natural Healing written by Tamika Moseley and published by AuthorHouse. This book was released on 2013-09-26 with total page 89 pages. Available in PDF, EPUB and Kindle. Book excerpt: After spending every three months of her newborn's life in the hospital managing his sickle cell disease, Tamika Moseley knew she had to change what she was doing or the hospital would be her second home. In this deeply personal book, Tamika shares her story of the difficult journey she took to find natural ways to treat her son's debilitating disease. Three years since she started using herbs to minimize his sickle cell crises, her son is living a normal, healthy and pain-free life. Whether you have sickle cell disease or the trait, this book will show you what your body needs and how to treat your symptoms so that pain is no longer a part of your vocabulary. As Tamika likes to say, "Knowledge is power!" Sickle Cell Natural Healing: A Mother's Journey gives you the benefit of the wisdom one fearless and determined mother collected so that others suffering with this disease can thrive.
Download or read book The Tale of The Cell written by Georgene' Glass and published by Melanin Origins, LLC. This book was released on 2021-03-31 with total page 24 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Tale of the Cell is a picture book about the trials that children and adults experience while battling Sickle Cell Disease. While Gia goes through the joys and pains of living with Sickle Cell, she never looses her confidence because her "Dream Team" is by her side. The adventure to raise awareness about living with Sickle Cell Disease begins with the Tale of the Cell.
Download or read book Nutrition for people with Sickle Cell Disease written by Stacey Jones and published by Lulu.com. This book was released on 2017-09-02 with total page 60 pages. Available in PDF, EPUB and Kindle. Book excerpt: Nutrition for people with Sickle cell is a comprehensive look at vitamins, minerals and nutrients that contribute to the natural healing of the acute symptoms of sickle cell. Coupled with regular doctor visits and the treatment plans recommended by a physician, patients surviving sickle cell disease will be able to enjoy a life with increased energy, better blood flow, and increased stronger immune system, and many more. These health benefits derived from the listed vitamins minerals and nutrients can be used to alleviate the symptoms of many other health issues including High Blood Pressure, Diabetes, and High Cholesterol. All of the aforementioned diseases can be treated and in many cases the body can heal itself if and when the proper nutrition is consumed as part of a lifestyle change. Love Yourself Nutrition Coaching, LLC. www.smjnutrition.com, [email protected]
Download or read book A Sickle Cell Coloring Book For Kids A Creative A to Z Guide on Growing Up with Sickle Cell Disease for Children Ages 6 8 With Over 26 Coloring Pages written by Kate Hamernik and published by . This book was released on 2020-05-20 with total page 62 pages. Available in PDF, EPUB and Kindle. Book excerpt: The Sickle Cell Coloring book for Kids was written for children ages 4-8. Itis an educational resource for parents, caregivers, and children. The book breaksdown terms and concepts for children who were diagnosed with sickle celldisease (SCD). When raising achild with a genetic disorder such as SCD there is so much to learn, so theauthor simplified the information so even a child could understand how thisgenetic blood disorder affects the body. The coloring book is great tool forparents or caregivers to color along with the child. ASickle Cell Coloring Book for Kids Features Beautifuloriginal illustrations―Over 26 coloring pages from the letter A to Z all related to caringfor a child with blood disorders. Large 8.5 x 11 inch pages, easy to color forkids Educationaland fun―Each pageis an effective and fun-filled way to relax and reduce stress while coloring. Suitable for coloring with pencils, crayons, and gel pens Madefor diverse families―The coloring pagesfeature children, adults, and medical professionals from different ethnicgroups because sickle cell disease affects families from multicultural backgroundsall over the world. Positiveand inspiring―The book is a positivekeepsake that gives young sickle cell warriors a chance to boost theirconfidence and creativity.
Download or read book A Sick Life written by Tionne "T-Boz" Watkins and published by Rodale. This book was released on 2017-09-12 with total page 274 pages. Available in PDF, EPUB and Kindle. Book excerpt: A candid memoir of fame, strength, family, and friendship from the lead singer of TLC As the lead singer of Grammy-winning supergroup TLC, Tionne "T-Boz" Watkins has seen phenomenal fame, success, and critical acclaim. But backstage, she has lived a dual life. In addition to the balancing act of juggling an all-consuming music career and her family, Tionne has struggled since she was a young girl with sickle-cell disease--a debilitating and incurable condition that can render her unable to perform, walk, or even breathe. A Sick Life chronicles Tionne's journey from a sickly young girl from Des Moines who was told she wouldn't live to see 30 through her teen years in Atlanta, how she broke into the music scene, and became the superstar musician and sickle-cell disease advocate she is today. Through Tionne's tough, funny, tell-it-like-it-is voice, she shares how she found the inner strength, grit, and determination to live her dream, despite her often unpredictable and debilitating health issues. She dives deep into never-before-told TLC stories, including accounts of her friendship with Lisa "Left-Eye" Lopes and her tragic death. Tionne's unvarnished discussion of her remarkable life, disease, unending strength, and ability to power through the odds offers a story like no other.
