Download or read book A Family Disease written by Dana Lorene Creighton and published by McFarland. This book was released on 2021-01-11 with total page 203 pages. Available in PDF, EPUB and Kindle. Book excerpt: Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate. Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother's suicide, Creighton's memoir finds striking similarities and differences in their lives and traces a lineage of family trauma. Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.

Download or read book McWhinney s Textbook of Family Medicine written by Thomas Freeman and published by Oxford University Press. This book was released on 2016 with total page 537 pages. Available in PDF, EPUB and Kindle. Book excerpt: Preceded by Textbook of family medicine / Ian R. McWhinney, Thomas Freeman. 3rd edition. 2009.

Download or read book Hidden Valley Road written by Robert Kolker and published by Anchor. This book was released on 2020-04-07 with total page 426 pages. Available in PDF, EPUB and Kindle. Book excerpt: #1 NEW YORK TIMES BESTSELLER • OPRAH’S BOOK CLUB PICK • ONE OF GQ's TOP 50 BOOKS OF LITERARY JOURNALISM IN THE 21st CENTURY • The heartrending story of a midcentury American family with twelve children, six of them diagnosed with schizophrenia, that became science's great hope in the quest to understand the disease. "Reads like a medical detective journey and sheds light on a topic so many of us face: mental illness." —Oprah Winfrey Don and Mimi Galvin seemed to be living the American dream. After World War II, Don's work with the Air Force brought them to Colorado, where their twelve children perfectly spanned the baby boom: the oldest born in 1945, the youngest in 1965. In those years, there was an established script for a family like the Galvins--aspiration, hard work, upward mobility, domestic harmony--and they worked hard to play their parts. But behind the scenes was a different story: psychological breakdown, sudden shocking violence, hidden abuse. By the mid-1970s, six of the ten Galvin boys, one after another, were diagnosed as schizophrenic. How could all this happen to one family? What took place inside the house on Hidden Valley Road was so extraordinary that the Galvins became one of the first families to be studied by the National Institute of Mental Health. Their story offers a shadow history of the science of schizophrenia, from the era of institutionalization, lobotomy, and the schizophrenogenic mother to the search for genetic markers for the disease, always amid profound disagreements about the nature of the illness itself. And unbeknownst to the Galvins, samples of their DNA informed decades of genetic research that continues today, offering paths to treatment, prediction, and even eradication of the disease for future generations. With clarity and compassion, bestselling and award-winning author Robert Kolker uncovers one family's unforgettable legacy of suffering, love, and hope.

Download or read book The Inheritance written by Niki Kapsambelis and published by Simon and Schuster. This book was released on 2017-03-07 with total page 368 pages. Available in PDF, EPUB and Kindle. Book excerpt: This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.

Download or read book The Family That Couldn t Sleep written by D. T. Max and published by Random House. This book was released on 2006-09-05 with total page 333 pages. Available in PDF, EPUB and Kindle. Book excerpt: For two hundred years a noble Venetian family has suffered from an inherited disease that strikes their members in middle age, stealing their sleep, eating holes in their brains, and ending their lives in a matter of months. In Papua New Guinea, a primitive tribe is nearly obliterated by a sickness whose chief symptom is uncontrollable laughter. Across Europe, millions of sheep rub their fleeces raw before collapsing. In England, cows attack their owners in the milking parlors, while in the American West, thousands of deer starve to death in fields full of grass. What these strange conditions–including fatal familial insomnia, kuru, scrapie, and mad cow disease–share is their cause: prions. Prions are ordinary proteins that sometimes go wrong, resulting in neurological illnesses that are always fatal. Even more mysterious and frightening, prions are almost impossible to destroy because they are not alive and have no DNA–and the diseases they bring are now spreading around the world. In The Family That Couldn’t Sleep, essayist and journalist D. T. Max tells the spellbinding story of the prion’s hidden past and deadly future. Through exclusive interviews and original archival research, Max explains this story’s connection to human greed and ambition–from the Prussian chemist Justus von Liebig, who made cattle meatier by feeding them the flesh of other cows, to New Guinean natives whose custom of eating the brains of the dead nearly wiped them out. The biologists who have investigated these afflictions are just as extraordinary–for example, Daniel Carleton Gajdusek, a self-described “pedagogic pedophiliac pediatrician” who cracked kuru and won the Nobel Prize, and another Nobel winner, Stanley Prusiner, a driven, feared self-promoter who identified the key protein that revolutionized prion study. With remarkable precision, grace, and sympathy, Max–who himself suffers from an inherited neurological illness–explores maladies that have tormented humanity for centuries and gives reason to hope that someday cures will be found. And he eloquently demonstrates that in our relationship to nature and these ailments, we have been our own worst enemy.

Download or read book Parkinson s Disease written by William J. Weiner and published by JHU Press. This book was released on 2006-11-13 with total page 291 pages. Available in PDF, EPUB and Kindle. Book excerpt: Recent innovations, including deep brain stimulation and new medications, have significantly improved the lives of people with Parkinson’s disease. Nevertheless, medical, emotional, and physical challenges remain. The second edition of this accessible and comprehensive guide provides crucial information for managing this complex condition, including details on the use of medications, diet, exercise, complementary therapies, and surgery. The second edition includes new information about: • The genetic and hereditary pattern of the disease • Medications and uses of established medications • Other approaches to treating the symptoms of Parkinson’s • Juvenile-onset Parkinson’s disease • Normal pressure hydrocephalus • The effects of fluctuating hormones on disease symptoms • Fetal cell transplants and porcine cell transplants • The nutritional supplement Co-Enzyme Q10

Download or read book Your Child with Inflammatory Bowel Disease written by North American Society for Pediatric Gastroenterology, Hepatology and Nutrition and published by JHU Press. This book was released on 2017-12-15 with total page 297 pages. Available in PDF, EPUB and Kindle. Book excerpt: "When a child has inflammatory bowel disease, the family has many concerns: Why is my child sick? What can we do to help him get better? What does the future hold for her? In this book, an expert team of pediatric gastroenterologists explains the symptoms, diagnoses, and treatments associated with Crohn disease, ulcerative colitis, and indeterminate colitis to help parents and children cope with the challenges of IBD. The authors' empathy and experience are evident throughout as they answer such questions as: - What are inflammatory bowel disease, Crohn disease, and ulcerative colitis?- Is there a cure for IBD?- How is IBD going to affect my child's daily life?- Will my child's diet change?- Can my child still play sports?- Will my child need surgery?- What are the side effects of commonly prescribed medications?The book also provides parents with practical advice on how to tell their children about their IBD and discusses the challenges children may face at school and in their social lives, especially as they grow older. Additional information on IBD medications, complementary treatments, and further reading round out this comprehensive and reliable resource." --Publisher description.

Download or read book Recovering My Kid written by Joseph Lee and published by Simon and Schuster. This book was released on 2012-11-01 with total page 250 pages. Available in PDF, EPUB and Kindle. Book excerpt: National expert Dr. Joseph Lee explains the nature of youth addiction and treatment, and how families can create a safe and supportive environment for their loved ones during treatment and throughout their recovery. National expert Dr. Joseph Lee explains the nature of youth addiction and treatment, and how families can create a safe and supportive environment for their loved ones during treatment and throughout recovery.Raising a child is tough as it is, but when your kid becomes addicted to alcohol or other drugs, it can feel as if you’re living a nightmare. You’re not alone. In Recovering My Kid, Dr. Joseph Lee, a leading youth addiction specialist, takes worried, confused, and angry parents by the hand and addresses their most pressing questions and fears: What is addiction? What happens when my child returns home from treatment? How can my family support his or her recovery? What if my child relapses? How can my family get well again?Getting your child and your family well again requires the support and understanding of the whole family, even if feelings and trust were damaged. In his engaging and straightforward style, Lee explains the difficult concepts of addiction, treatment, and recovery in a way parents and families can understand and gives them concrete strategies they can put into practice.This book will help family members begin to understand what their loved one is going through and how they can help the addict adjust to a clean-and-sober life while still taking care of themselves.

Download or read book Clinical Addiction Psychiatry written by David Brizer and published by Cambridge University Press. This book was released on 2010-09-16 with total page 270 pages. Available in PDF, EPUB and Kindle. Book excerpt: Clinical Addiction Psychiatry is an anthology of essays that represent the most current and authoritative information now available on addiction theory, practice and research, covering dozens of provocative, fascinating and essential subdomains of the field. Each chapter is authored by a recognized authority in the field and detailed attention is paid to environment, genetics, culture and spirituality as well as treatment and pharmacology. History, street culture, and medical science are brought together in masterful discussions that encompass the full spectrum of addictive disorders, emphasizing assessment and clinical management. This unique resource gathers complex medical and scientific data in a way which is accessible to both health care professionals and readers without medical or psychology backgrounds. Essential reading for addiction counselors and other mental health professionals, this book will also be of interest to patients and their families, and residents and physicians in all fields of medicine.

Download or read book Wilson s Disease for the Patient and Family written by George J. Brewer and published by Xlibris Corporation. This book was released on 2002-04-09 with total page 154 pages. Available in PDF, EPUB and Kindle. Book excerpt: Wilsons Disease for the Patient and Family: A Patients Guide to Wilsons disease and Frequently asked Questions about Copper, is an essential reference book for patients with Wilsons disease and their families. In easy-to-understand language, Dr. Brewer, a world authority on Wilsons disease and copper, explains everything about Wilsons disease, from its genetic cause and mechanism of transmission, to effective treatment plans. A comprehensive glossary provides readers with definitions and explanations for many of the scientific words and phrases used in the text. Major reasons why this book is important to patients relate to the rarity of the disease, variation in its manner of presentation, and the likelihood that doctors consulted about the medical problems will know very little about Wilsons disease. Most doctors, even specialists in liver disease or neurology, will see at most one or two cases during their entire medical careers. If patients hope for rapid and early diagnosis, and that is important to preserve as much function as possible, they may need to help the doctor think of the disease in the first place, and help in sorting out what constitutes proper diagnosis. And then, if there is a diagnosis, comes treatment. The days are gone when one drug, penicillamine (the only anticopper drug most doctors have heard of), is prescribed as soon as the diagnosis is made. Now we have different therapies for different stages. In fact, we no longer recommend penicillamine for Wilsons disease at all. This book will guide the patient and family through all of these various aspects of Wilsons disease. Dr. Brewer begins by describing Wilsons disease, what causes it, how it is inherited, and what symptoms people with Wilsons disease exhibit. It is an inherited disorder of copper accumulation and toxicity, affecting one in 40,000 people worldwide. After basic coverage of Wilsons disease, Dr. Brewer devotes an entire chapter to answering some of the most commonly asked questions about copper. Many of these questions are unrelated to Wilsons disease, but are questions frequently asked by other types of patients as they are informed that there is something wrong with their copper. After that, Dr. Brewer explores the symptoms which should trigger the suspicion of Wilsons disease, and what screening tests can be done to explore this possibility. He then covers testing which will give a definitive diagnosis, what the results of different tests mean, and some of the possible problems with various tests which might be performed. Once a reliable diagnosis of Wilsons disease is made, anticopper therapy is essential to the survival of Wilsons disease patients. Dr. Brewer explains what drugs are available for treatment of Wilsons disease, and offers a comparison of their benefits and side effects. He elaborates on variations in treatment, first discussing the initial stage of treatment, and then long-term maintenance therapy. Included in the discussion are tips for treatment of children and pregnant women. The risks and long-term outlook for a person diagnosed with Wilsons disease are discussed in some detail. After these information-packed chapters, Dr. Brewer devotes a chapter to answering some frequently asked questions about Wilsons disease, and presents resources available to Wilsons disease patients and their families. The book concludes as Dr. Brewer examines the current shortcomings in Wilsons disease therapy, and points to areas which might be improved upon in the future.

Download or read book The Family Life of Sick Children written by Lindy Burton and published by Taylor & Francis. This book was released on 2022-05-24 with total page 279 pages. Available in PDF, EPUB and Kindle. Book excerpt: Originally published in 1975, this book traces the problems which arise for families coping with a chronic childhood disease – cystic fibrosis. The discussion of these problems is important for the families of other seriously ill or disabled children, all of whom are faced with similar implications of their situation. The book looks at the stressful situations which face them: mastering the child’s treatment technique, assisting them to come to terms with their disease. It deals with the practical problems which arise for the parents and siblings of a sick child and explores the profound repercussions of the loss of a child on the entire family, considering the ways in which many of these families managed to transcend their problems.

Download or read book Heart Warriors written by Amanda Adams and published by Behler Publications. This book was released on 2012-06-12 with total page 323 pages. Available in PDF, EPUB and Kindle. Book excerpt: A family conquers grief and lost expectations raising their son born with half a heart, while navigating complex medical challenges.

Download or read book The Urge written by Carl Erik Fisher and published by Penguin. This book was released on 2022-01-25 with total page 393 pages. Available in PDF, EPUB and Kindle. Book excerpt: Named a Best Book of the Year by The New Yorker and The Boston Globe An authoritative, illuminating, and deeply humane history of addiction—a phenomenon that remains baffling and deeply misunderstood despite having touched countless lives—by an addiction psychiatrist striving to understand his own family and himself “Carl Erik Fisher’s The Urge is the best-written and most incisive book I’ve read on the history of addiction. In the midst of an overdose crisis that grows worse by the hour and has vexed America for centuries, Fisher has given us the best prescription of all: understanding. He seamlessly blends a gripping historical narrative with memoir that doesn’t self-aggrandize; the result is a full-throated argument against blaming people with substance use disorder. The Urge is a propulsive tour de force that is as healing as it is enjoyable to read.” —Beth Macy, author of Dopesick Even after a decades-long opioid overdose crisis, intense controversy still rages over the fundamental nature of addiction and the best way to treat it. With uncommon empathy and erudition, Carl Erik Fisher draws on his own experience as a clinician, researcher, and alcoholic in recovery as he traces the history of a phenomenon that, centuries on, we hardly appear closer to understanding—let alone addressing effectively. As a psychiatrist-in-training fresh from medical school, Fisher was soon face-to-face with his own addiction crisis, one that nearly cost him everything. Desperate to make sense of the condition that had plagued his family for generations, he turned to the history of addiction, learning that the current quagmire is only the latest iteration of a centuries-old story: humans have struggled to define, treat, and control addictive behavior for most of recorded history, including well before the advent of modern science and medicine. A rich, sweeping account that probes not only medicine and science but also literature, religion, philosophy, and public policy, The Urge illuminates the extent to which the story of addiction has persistently reflected broader questions of what it means to be human and care for one another. Fisher introduces us to the people who have endeavored to address this complex condition through the ages: physicians and politicians, activists and artists, researchers and writers, and of course the legions of people who have struggled with their own addictions. He also examines the treatments and strategies that have produced hope and relief for many people with addiction, himself included. Only by reckoning with our history of addiction, he argues—our successes and our failures—can we light the way forward for those whose lives remain threatened by its hold. The Urge is at once an eye-opening history of ideas, a riveting personal story of addiction and recovery, and a clinician’s urgent call for a more expansive, nuanced, and compassionate view of one of society’s most intractable challenges.

Download or read book Daddy s Disease written by Carolyn Hannan Bell and published by Createspace Independent Publishing Platform. This book was released on 2013-10-19 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: There are a lot of reasons why we don't talk to our children about alcoholism. We don't want to upset the drinker and make things worse. We don't want to bring attention to the drama and dysfunction. We don't want to be accountable. We want it to go away. We don't want our children to think badly of their parent. We don't know what to say or which words to use. There are a lot of reasons why we don't talk to our children about alcoholism, but none of them are good ones.Talking to children about alcoholism is not hard. NOT talking to children about alcoholism and addiction is hard. Maybe not in the moment, when it feels easier, and maybe even kinder, to cover things up, but in the future when a child's issues borne from misunderstanding, misinterpretation and lack of communication take flight.In an easily understood, beautifully illustrated style, "Daddy's Disease" helps families to navigate the difficult waters of alcoholism.Tommy doesn't know why his father doesn't show up for dinners, or soccer games or why he acts funny sometimes. Tommy thinks it's because his father doesn't want to be with him, that he hasn't been the best boy he can be, that he should try harder. But, Mommy tells Tommy that Daddy has a disease called "alcoholism." She helps Tommy, and his faithful dog Murphy, understand what this disease is and how it affects Daddy, and the whole family. She teaches Tommy that he is not responsible for Daddy's behavior and that gives Tommy the peace he needs to foster a healthy childhood."Carolyn Hannan Bell has given a gift to thousands of children and their parents with her book: "Daddy's Disease". A wonderful book for children who have a parent who has alcoholism. With gentle insight and poignant stories, she introduces us to 7-year-old Tommy whose father is an active alcoholic. Like most children of alcoholics, he is confused, angry and feels it's his fault. This is where Carolyn takes over the voice of Tommy's mother and holds his hand and heart while she guides them through these difficult waters.This is a children's book that everyone living with alcohol should read. Thank you Carolyn"Daniel Gottlieb, PhD Host: "Voices in the Family" WHYY FMAuthor: "Letters to Sam", "Wisdom of Sam" and forthcoming "The Wisdom We're Born With"

Download or read book The 36 Hour Day written by Nancy L. Mace and published by JHU Press. This book was released on 2021-08-10 with total page 361 pages. Available in PDF, EPUB and Kindle. Book excerpt: The 36-Hour Day is the definitive dementia care guide.

Download or read book It Runs In My Family written by Joan C. Barth and published by Routledge. This book was released on 2013-10-28 with total page 228 pages. Available in PDF, EPUB and Kindle. Book excerpt: This volume offers therapists effective, practical strategies for helping patients overcome the psychological impact of a history of serious illness in the family. Using illustrative case material, the author discusses the feelings of powerlessness that family illness can produce in an individual, and describes techniques for fostering a healthier, more empowered attitude. She shows how various assessment exercises and validation techniques can help the person distinguish between reality and the myths that evolved as a result of the family illness.

Download or read book The Biology of Desire written by Marc Lewis and published by PublicAffairs. This book was released on 2015-07-14 with total page 256 pages. Available in PDF, EPUB and Kindle. Book excerpt: Through the vivid, true stories of five people who journeyed into and out of addiction, a renowned neuroscientist explains why the "disease model" of addiction is wrong and illuminates the path to recovery. The psychiatric establishment and rehab industry in the Western world have branded addiction a brain disease. But in The Biology of Desire, cognitive neuroscientist and former addict Marc Lewis makes a convincing case that addiction is not a disease, and shows why the disease model has become an obstacle to healing. Lewis reveals addiction as an unintended consequence of the brain doing what it's supposed to do-seek pleasure and relief-in a world that's not cooperating. As a result, most treatment based on the disease model fails. Lewis shows how treatment can be retooled to achieve lasting recovery. This is enlightening and optimistic reading for anyone who has wrestled with addiction either personally or professionally.